patient and family experience summit dr kate granger st5 doctor in elderly medicine & terminally...
TRANSCRIPT
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Patient and Family Experience Summit
Dr Kate GrangerST5 Doctor in Elderly Medicine &
terminally ill cancer patient
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About Me….
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What I’m going to talk aboutExperiences as a patient
CommunicationUndergoing proceduresDeciding to stop chemotherapy
The impact of illness on me as a doctorCommunicationAdvocacyImportance of Palliative Care
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My experience on the other side as a cancer patient
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To me being a patient is…EmbarrassingUndignifiedFrighteningStressfulTime consumingIsolating
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Simple as 1,2,3…
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Listen
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Imagine this scenario…I am aloneI am in agonyA junior doctor I have never met beforeTells me I have metastatic cancer…
He then leaves me without telling the nurses what he has just said, does not ask if I would like him to get anyone for me and I never see him again
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Finding out my definitive diagnosisMy Consultant sees me with his junior teamHe asks if I want anyone with meAn appropriate warning shot is fired I am gently told that I have DSRCTHe holds my handWhen I break down emotionally and ask the
juniors to leave it is fineLots of quiet time for the news to settleMy questions are answered at an appropriate
level
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Procedure after procedure• Retrograde bilateral ureteric stent insertion• 3 x nephrostomies• 2 x omental biopsies• Hickman line insertion• Flexible cystoscopy and stent removal• Antegrade bilateral ureteric stent insertion• Hickman line removal• (and numerous venepunctures, cannulations,
intimate examinations etc)
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Dignity!
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Deciding to stop
New Year’s Eve 2011In hospital with febrile neutropaenia and peritonitisBurdens of treatment outweighing benefitsPerceived as ‘giving up’ by someRelief from othersConsultant tried to talk me into continuing…
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Impact of terminal illness on me as a practising doctor
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CommunicationImportance of the ‘Little Things’
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Breaking bad newsRight time, right person, right setting, right
after-care
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AdvocacyI can advocate for myself effectivelyMany of my patients cannot…
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Palliative CareArguably the most important time in
healthcare terms for a patientPalliative Care is everyone’s business
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Any questions?
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To summariseSerious illness has had a major impact on me
as a doctorCommunication, communication,
communicationPatient-centred care is the Holy GrailPatients are individual people first and
foremost; they are not just disease entitiesTime to care
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www.theothersidestory.co.uk
Shameless self-promotion…