Participatory Design and the Making of

Health

Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee

Associate Professor School of Medicine/

Public Health

My academic Identity:

My Alternative Online Identity

I tweet and blog about the intersection of health, technology,

and participatory design

http://goo.gl/jQdUxR

Disclosure: I have no formal training in design

Design was something I stumbled upon through a

personal design experiment

B and S have life- threatening food allergies

The teachers need vital information about how

and when to give the epi-pen

But this is a #design #fail

So we were inspired to make a Youtube video!

By “we” I mean the collective “we” since I am a

#lazytigermother

Go to the 1st video on Ihavefoodallergies.tumblr.com!

I posted it online

http://goo.gl/M9XZwS

His teacher shared it with the whole school

It went a little bit viral

http://goo.gl/v3lE18

#designsuccess #proudtigermother

1479 views!

B has his own blog now http://ihavefoodallergies.tumblr.com

Check out video 2 of the trilogy on the blog!

http://goo.gl/M9XZwS

Check out video 3 of the trilogy on the blog!

I also made a low-!delity version for the teachers

With his illustrations

And additional information about “tricky” allergens

My Design Insights

about the Production of Health and the Future

of Healthcare

We were

experts

We were

makers

We were

collaborators

Patient as

expert maker

collaborator #futureofhealthcare

But to reach the #futureofhealthcare

we need to overcome the #cultureofhealthcare

Expert “D!"#$r%&'(e)

e*+,(t%-./n!0.1a23,4t%  

 Editorial hashtag:

#whereareallthewomen

“O567/c89#:f;<=/h8>?@h)pABCDs%3E4aFG.Hh!I?J b8&K(eL0M4g)N,Ol2N”  

 

Maker

“H!"#$h i% c&'($e) d*+,-r

T. p/012n3”  

Collaborator

I started collaborating with Matt Kenyon & John Marshall

Applying Design Thinking to Healthcare

Recognizing the wisdom and expertise of the patient

Allowing the patient voice to drive the identi!cation and prioritization of problems

Working with patients as co-designers in the creation

of solutions for health

@jakiebones & @TheTrevorTorres http://goo.gl/3w3lIZ

Pairing patients with designers to create tools inspired by the

patient experience

“A” & @robokittycat http://goo.gl/STfnuX

@showindshe http://goo.gl/xoZxK8

Design = A Distraction

A critical tool for the creation of health

Creating a culture of design in health

Maker Movement

Do It Yourself (DIY)

Learning by Doing

Peer-to-Peer

Maker Movement

Participatory Design =

The maker movement, a model for patient-centered participatory design?

DIY = Expert

Learning by doing = Maker

Peer-to-Peer = Collaborator

www.makehealth.us

We brought together a community of patients and

health providers

Designers, Tinkerers, and Makers

To explore the amazing things that can be created

by combining making and health

We created a collaborative innovation network called

HealthDesignBy.Us to further this work

Join us! goo.gl/mEmaiO

Doctor to Patient Passive Solitary

#currentstateofhealthcare

Patient to Patient Active

Collaborative

#mydreamforhealthcare

B is thinking about making more prototypes

B extended his allergy work at the We #makehealth Fest

http://goo.gl/fPTFuF http://goo.gl/bEY0Tg

B gave the opening remarks at the Fest too!

http://goo.gl/bEY0Tg

HealthDesignBy.Us Twitter: @healthbyus

FB: HealthDesignBy.Us

My gratitude to our patient experts, Matt Kenyon, John Marshall, Patricia Anderson, Nancy

Benovich Gilby, Emily Puckett Rogers, Scott Olson, Amy Cohn, Patricia Abbott, Kelly Parent,

John Costik, Jose Gomez-Marquez, Emily Hirschfeld, Ghada Mustapha, Jacob Hendricks,

Margot Robert, Xiaoying He, Trevor Torres, Nick Reid, Sam Oliver, Charles Woodson Research Fund, UM Provost, & the HealthDesignBy.Us

virtual community