pancreatic ca
TRANSCRIPT
Goals
• What are your goals for today's talk?
• Pain and other physical symptoms
• Psychological, spiritual, and social concerns
• Where to turn?
Managing Pain
• It is common
• Barriers to treatment are many
• What can you do?
• Keep track of your pain and use of medicines
• Work with your doctor, nurse, and pharmacist - team approach
• Address your worries
What doctors need to
know about your Pain
• Location
• Intensity: how bad is it?
• 'Quality': what does it feel like?
• Timeline
• What makes it better/worse
• What have you tried, were there side effects...
Understanding Pain
Management
Definitions:
• Adjuvant: helps the other meds work better.
• Non-opioid: acetaminophen (Tylenol) ibuprofen or naprosen
• Opioid: morphine, oxycodone, fentanyl, hydromorphone (Dilaudid), methadone
Opioids
• Addiction versus dependence versus tolerance
• Long-acting and short-acting (immediate release)
• Pill/liquid versus IV
• Side effects:
• constipation - doesn't go away
• Sleepiness, nausea
• Less common: confusion, twitching (myoclonus)
Pain - other treatments
• Radiation therapy
• ERCP
• Interventional pain (anesthesia)
• Nerve blocks: celiac plexus
• Intraspinal medicine/pumps
• Non-pharmacologic
• Physical therapy, including TENS, compresses
• Psychological/behavioral therapy
• Complementary or alternative therapy
Gastrointestinal symptoms
• Nausea
• Vomiting
• Anorexia (loss of appetite)
• Megace
• Dexamethasone
• Small, frequent meals, plastic/wooden utensils
• Constipation
• Senna & colace
• Yakima paste
Gastrointestinal symptoms
• Nausea and vomiting
• causes: constipation, medications, compression of
intestinal tract.
• treatment: “bowel regimen” for constipation,
medications, procedure (stent) or surgery (bypass, or
ostomy).
• Sometimes a temporary tube may help relieve
symptoms.
Weakness and fatigue
• Let your doctor know
• How are you sleeping?
• There are many causes and treatment is targeted when possible
• Anemia
• Insomnia
• Anxiety, depression, stress
• Other...
Psychological symptoms
• Anxiety, fear, uncertainty
• Depression, sadness, grief
• Concern for family and future
• Dignity
• Resilience and hope
Your team
• Doctors, nurse practitioners
• Nurses
• Social worker
• Psychologist
• Family, friends, chaplains
• When you need more help: palliative care
What is palliative care?
• Treatment that focuses on alleviating suffering, improving sense
of well-being
• It is available at all stages of illness
• It can be offered alone or during other therapies/treatment in
the hospital, and sometimes at home or in a clinic
• It is a team approach - lending support to patients and their
family
• Options in home care support: visiting nurses (bridge or choices
program) and home care through hospice
Other resources
• The Center for Mindfulness
• www.cancer-pain.org
• www.getpalliativecare.org
• www.betterendings.org
Summary
• Work with your team... We're here to help
• Treat and identify symptoms early:
• pain, fatigue, GI symptoms, psychological concerns
You're not alone
We want to help
We can help