palliative care needs of people with advancing neurological illness

Authors: Mags Rogers Neurological Alliance of Ireland, Marie Lynch Irish Hospice Foundation, Deirdre Shanagher Irish Hospice Foundation. Over 700,000 people in Ireland are living and will die with an advancing neurological illness. In 2008 the “Palliative Care for All” report highlighted the rationale of palliative care for people with non malignant illnesses. In response the Neurological Alliance of Ireland (NAI) and the Irish Hospice Foundation (IHF) commenced a programme of work addressing the palliative care needs of people with advancing neurological disease with a focus on Motor Neurone Disease, Multiple Sclerosis, Parkinsons Disease and Huntingtons Disease. This work programme commenced in 2013 and first phase will be completed by end 2014. Methods Addressing the palliative care needs of people with advancing neurological disease Early findings and Interventions Next Steps Introduction/context Programme participants expressed having difficulty accessing information about palliative care, and difficulty in determining when to introduce the conversation addressing matters relating to palliative care . In response IHF developed a series of web pages that include prompts for healthcare workers to use to address the palliative care needs of those with advancing neurological illness – extract below. Feb 2014 This programme is informed by focus groups, review of literature, and international developments. The full findings from this work programme will be available at the end of 2014 This work programme will inform policy and practice with regard to meeting the palliative care needs of people with an advancing neurological disease. For further details see www.hospicefoundation.ie or contact [email protected] ; [email protected] or [email protected] Further Information and resources for people with an advancing neurological illness and staff working in this area can be accessed via the Irish Hospice Foundation web site: www.hospicefoundation.ie/what-we-do/palliative-care-for-all/advancing-neurological- illness/

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Establishing the palliative care needs of people with advancing neurological illnesses.

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Page 1: Palliative Care needs of people with advancing neurological illness

Authors: Mags Rogers Neurological Alliance of Ireland, Marie Lynch Irish Hospice Foundation, Deirdre Shanagher Irish Hospice Foundation.

Over 700,000 people in Ireland are living and will die with an advancing neurological illness. In 2008 the “Palliative Care for All” report highlighted the rationale of palliative care for people with non malignant illnesses. In response the Neurological Alliance of Ireland (NAI) and the Irish Hospice Foundation (IHF) commenced a programme of work addressing the palliative care needs of people with advancing neurological disease with a focus on Motor Neurone Disease, Multiple Sclerosis, Parkinsons Disease and Huntingtons Disease. This work programme commenced in 2013 and first phase will be completed by end 2014.

Methods

Addressing the palliative care needs of people

with advancing neurological disease

Early findings and Interventions

Next Steps

Introduction/context

Programme participants expressed having difficulty accessing information about palliative care, and difficulty in

determining when to introduce the conversation addressing matters relating to palliative care .

In response IHF developed a series of web pages that include prompts for healthcare workers to use to address the

palliative care needs of those with advancing neurological illness – extract below.

Feb 2014

This programme is informed by

focus groups, review of literature,

and international developments.

The full findings from this work programme will be available at the end of 2014

This work programme will inform policy and practice with regard to meeting the palliative care needs of people with an advancing neurological disease.

For further details see www.hospicefoundation.ie or contact [email protected]; [email protected] or

[email protected]

Further Information and resources for people with an advancing neurological illness and staff working in this area can be accessed

via the Irish Hospice Foundation web site: www.hospicefoundation.ie/what-we-do/palliative-care-for-all/advancing-neurological-

illness/

http://www.hospice-foundation.ie/

mailto:[email protected]

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