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The Patients’ Scoliosis Journey DVD

Durham &Teesside Patient Safety Conference 2015

Cheryl Honeyman - Specialist Nurse

Elizabeth McLachlan - Physiotherapist

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The Scoliosis Team

• Team approach to scoliosis care has been established since 2010 at South Tees

• 3 Spinal Surgeons• Consultant Paediatrician• Consultant Anaesthetists• Specialist Nurse• Physiotherapist• Orthotists• PICU and paediatric surgical ward for post-op

care

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• Scoliosis is a 3 dimensional curvature of the spine that can be congenital (from birth), related to neuromuscular conditions, such as cerebral palsy and is linked to many syndromes.

• However, for the majority of patients with scoliosis there is no known cause and the deformity occurs in otherwise fit and well adolescents – they have adolescent idiopathic scoliosis.

• Referrals are from GPs, Physiotherapists, Paediatricians & other Consultants

• There is an established criteria for surgical consideration / intervention, but every patient is considered on an individual basis and the patient and family are a major part of the decision-making process.

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Service Improvement Idea

• Well established pre-operative out-patient clinic and pathway

• Leaflets and verbal advice given

• Support groups discussed

• No visual aids to take home

• DVD discussed with MDT, videographer within trust and patients/families

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Aims of the DVD

• Provide a visual representation of what is going to happen

• Increase knowledge about their surgery• Increase patient engagement• Reduce stress• Increase patient satisfaction• Support pre-operative teaching• Provide realistic expectations• Augment patients’ psychological well-being• Improve Patient Safety

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Process

•Liaise with Videographer within Trust

•Identify a patient, gain consent

•Start to finish 3 weeks

•Lots of editing!

•Patient and team approval

•DVD Live end of Dec 2014.

•Screening DVD at Scoliosis event

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Using the DVD

• Now given out at Pre-assessment clinic

• So far feedback has been very positive

• It augments all other information given

• Available on You tube or trust website

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“I watched the DVD last night. It is excellent. Dispelled a lot of concerns. Huge thanks! “

 

DVD Link via trust website

http://southtees.nhs.uk/services/orthopaedics/paediatric-spinal/

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Evaluation

• Patient Satisfaction Questionnaire is completed during the 6 week post op review.

• Questions around the DVD have been added to aid further audits and service improvement