out of the spotlight: housing and home modifications jon pynoos, ph.d. national resource center on...
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Out of the Spotlight: Housing and Home
Modifications
Jon Pynoos, Ph.D.National Resource Center On Supportive Housing
And Home ModificationAndrus Gerontology Center
University Of Southern CaliforniaLos Angeles, CA 90089-0191
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Why Is The Home Environment Important?
The Physical Environment Can Enhance Or Impede One’s Functional Ability And Quality Of Life
Potential Mismatch In Fit Between Person And The Environment (Powell Lawton)
Strong Preference Of Older Adults To Age In Place Psychological Familiarity Ties To Neighborhood
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What Are Home Modifications?
Home Modification (HM) Refers To Converting Or Adapting The Environment To Make Performing Tasks Easier, Reduce Accidents, And Support Independent Living.
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Examples Of Home Modification
Ramps And Stair Glides Hand-held Showers Grab Bars Roll-in Showers Better Lighting Chair Lifts Widened Hallways
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Most Homes “Peter Pan” Housing
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3 Major Problem Areas Of The Home:
Outside Steps To The Entrance
Inside Stairs To A Second Floor
Unsafe Bathrooms Source: HUD (2001)
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Purpose To Understand Why Housing and
Home Modifications Have Been Neglected Issues
To Analyze Why They Have Been Rising on the Public Agenda
To Speculate on the Future
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Why Has It Taken So Long to Get HMs on the
Agenda?
Use Kingdon’s Model of Agenda Setting as a Guide
•Problem Stream•Politics Stream•Policy Stream
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1. Indicators: Understanding the Magnitude of the Conditions
Few Empirical Studies on the Dimension of the Problem
Estimates of Unmet Need Have Varied Over Time From 865,000 to 14 Million
Issues in the Problem Stream:
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Elderly Households With Unmet Needs For Home Modifications
8.4%
6.5%5.6%
3.9%3.0%
0.0%
2.0%
4.0%
6.0%
8.0%
10.0%
Handrails orGrab Bars
Ramps Easy-AccessBathrooms
Specially-Equipped
Telephones
Easy-AccessKitchens
Types of HMs
Per
cent
Source:American Housing Survey, 1995
A Complex of Problems
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2. Little Feedback From Existing Programs About HMs As a Problem HMs Considered a Small
Component of Their Activities Not on Par With Transportation,
Nutrition and Even Home Repair Services
3. Few Policy Entrepreneurs to Promote the Issue
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4. Conditions in “Peter Pan” Housing Are Not Recognized As Problems
Lack of Consumer Awareness (Often Change Behavior Instead of Environment)
Often Easier to Provide Personal Care Services Than Modify Homes
False Belief That the Americans With Disabilities Act and the Fair Housing Amendments Act of 1988 Solve the Problems
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Issues in the Politics Stream:
1. Interest Groups and Organizations
No One Individual Policy Community (e.g., Trade Association or Consumer Group) Owns the Problem or Might Benefit From Working to Solve It
Issue Crosses Different Policy Communities (Housing, LTC, Aging Services, Disability, Rehabilitation)
Any Savings From Addressing the Problem (e.g., Long Term Care Costs) Unlikely to Accrue to the Program Making the Investment (Housing).
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2. The Service Delivery System Is Very Fragmented, Diverse, Uncoordinated, and Under Funded:
Difficulty Identifying a Service System to Solve the Problem•HMs a “Stepchild” of Housing and
Community Based Care, Two Different Systems
A “Patchwork” System With Many Gaps Because HMs Not an Entitlement:
Competition at the State and Local Level With Many Other Needs
Lack of Skilled Providers
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Issues in the Policy Stream
Unrealistic Proposals:
National Policy on Home Modifications
Overhaul Medicare
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Indications That HMs Are Rising on the Agenda
Progress in the Problem Stream
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Research Indicates That HMs Are Cost Effective/ Save LTC Expenditures
In A Controlled Intervention Study:
HMs In Combination With Assistive Devices and Assessment And Follow-up By An OT Reduced Health Care Costs And Delayed Institutionalization
Source: Mann et al. (1999)
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Research Indicates That HMs Are Beneficial
HMs Make It Easier to Perform Tasks Such As Bathing:
1. HMs Reduce Bathing Difficulty For Those With High Levels Of Functional Impairment
2. HMs, in Combination With OT Assessment and Follow-up, Significantly Improved Bathing Ability Among Frail Elderly
Source: Matsuoka & Pynoos (2000); Gitlin et al. (1999).
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Research Suggesting That HMs May Prevent Falls:
For Example: Cumming et al. (1999) Found Among
Those With A History of Falls, OT Visits And Provision Of HM’s Reduced The Risk Of Falling
However, Gill et al. (2000) Found Weak Relationship Between The Presence of Environmental Hazards And Falls
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Research Suggests That HMs Support Caregiving
1. Adequate Space Can Facilitate Caregiving
2. HMs May Help Reduce Challenges For Dementia Caregivers
•Caregivers in the Treatment Groups Showed Enhanced Self-efficacy
Source: Newman (1985); Gitlin et al. (2001)
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Increase in Use of HMs Over Time Significant Increases In The Use Of
Assistive Devices & HMs Over Last Decade
45.3% Of Older Persons Live In Homes That Have Special Features
Suggests That HMs Substitute For Personal Care Services, But Mechanism Unclear
Source: Manton et al. (1993); American Housing Survey (1995)
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Better Estimates of Need Suggest Problems are Manageable
One Recent Estimate: 1.14 Million Elderly Households With At Least One Functional Limitation Report Unmet Need For HMs (HUD, 1999)
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Increase in Awareness Older Persons and Caregivers
More Aware That the Home Itself Can Cause Problems
Greater Consumer Information Available: AARP’s Independent Living Strategy
Involvement of Younger Persons With Disabilities
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Indications That HMs Are Rising on the Agenda
Progress in the Politics Stream
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Increased Involvement of Interest Groups/ Organizations
Trade Associations Such As National Association of Home Builders Realize That There Might Be a Market in HMs
National Home Modification Coalition and Blueprint for Action
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Indications that HMs are Rising on the Agenda
Progress in the Policy Stream
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Recent Policy Strategies: Attention at Local Level on
Provision of HMs (e.g. CDBG) State Grant and Loan Programs Medicaid Waiver Programs
Include HMs Income Tax Deductions for HMs
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What is Next?
A Multi- Pronged Strategy
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Expect Continued Progress In:
Nationally-directed and Investigator- Initiated Research Initiatives
Increasing Awareness Among Consumers, Policy Makers, and Practitioners
Increasing Involvement of Interest Groups and Organizations
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Additional Strategies: Coalition-building Lawsuits Development of a Model
Visitability Law/ Ordinance Coordinated Effort by Health,
Long-term Care, and Housing Agencies
Collect Policy and Public Expenditure Data on HMs
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Conclusion: A Manageable Problem Big Benefits:
Cost-effective Meets Older Adults’ Preferences
Growing Constituency and Movement
Progress Will Be Incremental Through Small Windows of Opportunity
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