organized by in associati on with · samira sanusi, samira sanusi sickle cell foundation, nigeria...

Organized by Host CityIn Associati on With

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#ACSCD201931 OCTOBER - 2 NOVEMBER 2019 - LAGOS, NIGERIA

EYO FESTIVAL, LAGOS STATE

4 ACSCD 2019 | www.acscd.org

Schedule at a Glance 02

Welcome Note 06

ACSCD Co-Chair 06

ACSCD Grand Patron 07

Minister of Health 08

Floor Plan 08

Sponsorship Opportuniti es 09

Daily Schedule 13

Day 1 - Thursday, October 31 14

Day 2 - Friday, November 1 16

Day 3 - Saturday, November 2 20

See You in 2020 23

CONTENTS

CONGRESS PROGRAM SPONSOR

www.acscd.org | ACSCD 2019 5

Dear Esteemed Guests,

ACSCD and its host city Lagos State are delighted to welcome you the 1st African Congress

on Sickle Cell Disease. We are excited to be welcoming you to this beautiful city and hope that

you are ready to make the most of what promises to be an impact driven and enlightening

three days of learning for us all.

The Congress represents a unique and ideal platform for the International sickle cell

community to meet, discuss, share, learn and connect in order to fi nd solutions to reduce the

impact of sickle cell on communities in Africa and around the world.

The theme for the Congress is ‘Overcoming Sickle Cell Disease - Power of the collective voice’

which is a true inspiration in the program layout, as the aim is to foster collaboration and rapid

learning into concrete actions for impact. Over the course of the three-day event, you will

experience extensive networking and meeting opportunities and we would encourage you to

make the most of these. There will be focus sessions to promote greater interactivity between

presenters and delegates, and a Patient Pavilion on the exhibit fl oor. The program promises to

be educative.

We are very confi dent that everyone who attending the African Congress on Sickle Cell

Disease will leave Lagos inspired and full of new thoughts and ideas to continue their own

eff orts in the fi ght against sickle cell disease. As this event brings together a unique group

of people who share much in common, we look forward to joining eff orts and accelerating

progress through your active participation.

DrAjaere

Dr. David Ajaere DHBM, DNM, ND, FANM, FNCPFounder/Chief Medical DirectorDr. SickleCell, Center for Sickle Cell Disease.

On behalf of the Organizing Committee of ACSCD 2019.

WELCOME NOTE

Olalekan Makinde

Dr. Olalekan Makinde MBBS, MPH, MWACP, FMCPH, FRSPH(UK), MBAChief Executi ve Offi cerOlusegun Obasanjo Foundati on


It is with great pleasure that I welcome you all to this occasion, marking the inaugural African Congress on Sickle Cell Disease (ACSCD)

The theme being; “Overcoming Sickle Cell Disease: Power of the Collective Voice” connotes a core message to all delegates as it is known that Sickle Cell is a neglected tropical disease that requires signifi cant attention in Africa, and especially in Nigeria.

The growing burden of sickle cell disease in Africa is undeniable. Sickle cell disease (SCD) is one of the world’s most common genetic diseases, aff ecting an increasing number of people. It poses a signifi cant public health problem notably in sub-Sahara Africa, the Middle East, parts of India, the Caribbean, and Brazil. It is at this time, we come together as a collective to seek best practices and innovation to addressing the challenges of sickle cell disease and to further ensure we achieve successful outcomes for a healthier Africa.

As you deliberate on critical issues on sickle cell disease aff ecting Africa and the world, I hope that you will also enjoy our legendary hospitality.

Once again I welcome you to Nigeria, to ACSCD 2019 and wish you a very productive meeting.

H.E Chief Olusegun Obasanjo GCFR. Ph.D. Former President of the Federal Republic of Nigeria

The Grand Patron of ACSCD 2019.

HIS EXECELLENCY, CHIEF OLUSEGUN OBASANJO, GCFR Ph.DFormer President of the Federal Republic of Nigeria.

ACSCD 2019 GRAND PATRON


Dear Delegates,

It is my honour and privilege to welcome you to the 1st African Congress on Sickle Cell Disease (ACSCD). This event is billed as one of the giant strides taken in recent times to better understand and address the devastating effects of Sickle Cell Disease in Africa.

The conference is expected to provide a platform for knowledge exchange, sharing of our experiences of best practices and informed recommendations on Sickle Cell management, control and policies.

We welcome you and your organization as you add your voice to the ACSCD theme titled ‘Overcoming Sickle Cell Disease: Power of the Collective Voice’ and be part of this event, as we chart a way forward together with world-renowned sickle cell and public health experts, health ministries, NGOs, policy and decision makers, caregivers, development partners, the media from across Africa and beyond and most importantly patient representatives for a collective voice towards sickle cell disease prevention in Africa and the world at large.

We have the obligation to do our best possible towards sparing this generation and generations to come from the financially devastating, emotionally and physically agonizing and stigmatizing effects of stigmatization, morbidity and mortality from Sickle cell Disease.

We look forward to hosting you at this conference and hope you have a great moment and memory of our hospitality.

Welcome to Lagos, Nigeria, to ACSCD 2019!

Dr. Osagie EhanireHonourable Minister for Health, NIGERIA

WELCOME NOTE - MINISTRY OF HEALTH, NIGERIA


ACSCD 2019 CONGRESS PARTNERS & SPONSORS

IN ASSOCIATION WITH HOST CITY

KNOWLEDGE PARTNER OFFICIAL PRINT PARTNER

INNOVATOR PARTNER ADVOCATE PARTNER

PATRON PARTNERS

CHARITY PARTNER OFFICIAL RESEARCH(CRO) PARTNER

SUPPORTED BY


MEDIA PARTNERS

SUPPORTING PARTNERS

ACSCD 2019 CONGRESS PARTNERS & SPONSORS


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CONGRESS PROGRAM SPONSOR

DAILY SCHEDULE

Open To All Registered Delegates

THURSDAY, OCTOBER 31

OPENING CEREMONY

3:00 pm - 6:00 pm

Join the ACSCD Grand Patron His Excellency Chief Olusegun

Obasanjo and other special guests as we mark the offi cial

opening of ACSCD 2019

Welcome RemarksHer Excellency, Dr. Ibijoke Sanwo-Olu, First Lady of Lagos State

Opening Keynote & Conversation - Living With Pain, Finding JoyAnne Welsh, Founder& President, Arise Consult, United Kingdom

Keynote Talk - Learnng & Unlearning Throught Life’s JourneyOyindamola Adesina , Simbi Interactive, Nigeria

Keynote Talk - Sickle Cell Stigma - A Woman’s PerspectiveSamira Sanusi, Samira Sanusi Sickle Cell Foundation, Nigeria

Keynote Talk - Self Care or Self Hurt.. Managing Chronic Care in a Stressful EnvironmentToyin Adesola, Sickle Cell Advocacy & Management Initiative, Nigeria

My Story - Yasmine PonleYasmine Ponle, Sickle Strong Warrior Foundation, Ghana

Keynote Conversation - Exploring the Impact of Sickle Cell Disease on Earning Potential and Possible Solutions in the Nigerian ContextPanelist: Greg Emuze: CrimsonBow SCI, Princess Oluwakemi Magaji, Opeyemi Emoruwa

Closing Remark

3:50 pm - 6:15 pm -

Women Overcoming Sickle Cell Symposium (WOSC)

Plenary Hall

3:50 pm - 4:00 pm

4:00 pm - 4:20 pm

4:20 pm - 4:35 pm

4:35 pm - 4:55 pm

4:55 pm - 5:15 pm

5:15 pm - 5:30 pm

5:30 pm - 6: 15pm

6:15 pm

Plenary Hall

GRAND PATRON

HIS EXCELLENCY,

CHIEF OLUSEGUN OBASANJO

OPENING PRAYERS

BISHOP EMMANUEL

OBIORAH,

SATURDAY, NOVEMBER 2

Plenary Hall

Highlights


DAY 1THURSDAY, OCTOBER 31

3:30 - 4:20

4:20 - 4:45

4:45 - 4:50

4:50 - 5:20

5:20 - 5:40

5:40 - 6:00

6:00 - 6:10

6:10 - 6:20

Welcome Remarks

- Dr. Osagie Ehanire; Honorable Minister of Health, Nigeria

- Prof. Jean-Marie Dangou; WHO Africa

- Dr. David Ajaere; CMD, Dr. SickleCell - Center For Sickle Cell Disease

Special Address

H.E Chief Olusegun Obasanjo, GCFR - Former President of The Federal Republic of

Nigeria

How to make the best out of your Congress Participation

Keynote Address - Importance of meaningful intra-country partnerships in the fi ght

against sickle cell Disease in Nigeria

Dr. Evelyn Ngige, Director of Public Health, Federal Ministry of Health Nigeria

Nigeria’s strategy towards Sickle Cell Control: Needs of a multicultural society

Dr. Alayo Sopekan, Desk Offi cer, Sickle Cell Program, Federal Ministry of Health, Nigeria

The Role Of Government in Sickle Cell Prevention and Screening: Support of Lagos

State Ministry of Health in Sickle Cell Control and Care Lagos Ministry of Health

Commissioner For Health, Lagos State Ministry of Health

How will ACSCD help the international sickle cell community create the platform

Dr SickleCell/Olusegun Obasanjo Foundation

Closing Remarks

WELCOME RECEPTION2:30 pm - 3:30 pm

Exhibit Hall

3:30 am - 6:00 pm

ACSCD 2019 Opening Ceremony

Plenary Hall


DAY 2FRIDAY, NOVEMBER 1

Plenary - Sickle Cell Disease in Africa: Challenges and Opportunities

Dr. David Ajibade, Brain and Body Foundation, Nigeria

Plenary - Treatment Options For Sickle Cell Disease in Africa: What are we

investingin?

Prof. Bazuaye Nosakhare, University of Benin Teaching Hospital, Nigeria

Plenary - A Call to Action of Sickle Cell Trait

Dr. Stephen Boateng, Sickle Cell 101, USA

Plenary - Eff ective Advocacy to Reduce Stigma and Improve the Quality of Life of the Families aff ected by Sickle Cell Disease

Mrs. Lanre Tunji-Ajayi, Sickle Cell Awareness Group of Ontario, Canada

Plenary - Policy and Action for Sickle Cell Control: The African Perspective

1. Overview of policy strategies in Nigeria

Dr. Alayo Sopekan, Ministry of Health, Nigeria

2. Control and Management Strategies for Sickle Cell Disease: Perspectives from Ghana

Dr. Enam Bankas, Sickle Life, Ghana

3. Outreach Programs And Advocacy of Sickle Cell Disease Care in Kenya

Samuel Mbunya, AMPATH Hematology & Oncology, Kenya

4. Overview of sickle cell in Tanzania

Pascazia Mazeze, Sickle Cell warriors, Tanzania

5. Overview of policy strategies in Uganda

Hon. Dr. Prosperous Nankindu, Minister of Health, Buganda Kingdom, Uganda

Q&A

proposed by: Dr SickleCell - Center for Sickle Cell Disease

A Cure for Sickle Cell Disease Exists: A Partnership Model to Promote Equitable Access to Curative Bone Marrow Transplantation

Randal Mills, Ph.D., The National Marrow Donor Program / Be The Match, USA

proposed by: The National Marrow Donor Program / Be The Match

9:00 am - 10:40 am

Plenary Hall

11:10 am - 12:20 pm

Plenary Hall

11:10 am - 12:20 pm

Plenary Hall

11:10 am - 12:20 pm

Plenary Hall

11:10 am - 12:20 pm

Plenary Hall

2:10 pm - 2:35 pm

Plenary Hall


PATIENT VOICES - PATIENT PAVILION1:10 pm - 1:50 pm

Exhibit Hall

Breaking The Cycle Of Pain


The Relationship Between The Patient and The HEalth Worker: A Healing

Therapy.

Emmanuel Ibekwe – Dabma Sickle Cell Foundation

Keying into Possibilities and Opportunities

Oyindamola Adesina – Simbi Interactives

QUESTIONS AND ANSWERS

1:10 pm - 1:20 pm

1:20 pm - 1:30 pm

1:30 pm - 1 :40 pm

Plenary - The Opportunities and Challenges of Implementing Bone Marrow Transplant Cure in Nigeria

Panelist

1. Prof. Bazuaye Nosakhare, Department of Hematology, University of Benin Teaching

Hospital, Benin city.

2. Prof. Sunday Ocheni, Department of Haematology and immunology UNTH Enugu

3. Dr. Olowoselu Festus, Department of Haematology and Blood Transfusion, College of

Medicine, University of Lagos.

4. Dr. Rahman Bolarinwa, Department of Haematology and Immunology, Obafemi

Awolowo University, Ile-Ife, Nigeria

Moderator - Dr Udo Christiana, Senior Registrar, National Hospital Abuja

Session proposed by: The Africa Leadership Forum

Blood Needs In Sickle Cell Disease

1. Blood needs in Sickle Cell Disease, Keeping Up Supplies

Dr. Bodunrin Osikomaiya, Lagos State Blood Transfusion Service, Nigeria

2. Professional Misconduct, Patronizing Qualifi ed Health Facilities and Motivation For

Safe Blood Products

Ayodeji Faremi, The State Hospital Management Board, Osun State, Nigeria

Sickle Cell Disease and Mental Health

1. Psychosocial Complications in Sickle Cell Anemia

Okechukwu Chioma

2. The Need For Psychological Treatment as Part of Treatment For Sickle Cell Patient

Toluse Francis

Taking Chage, Clinical Updates on Sickle Cell Trait

Dr. Stephen Boateng, Sickle Cell 101, USA

“The Four Horsemen” of Sickle Cell Disease - Practical tips and strategies


2:35 pm - 4:05 pm

Plenary Hall

4:35 pm - 5:15 pm

Room 2A

4:35 pm - 5:15 pm

Room 2B

4:35 pm - 5:00 pm

Plenary Hall

5:00 pm - 5:25 pm

Plenary Hall

5:25 pm - 5:45 pm

Plenary Hall

5:45 pm - 6:30 pm

Plenary Hall

Highlight: Patient Stories

Movie Preview


XThe Front eXperiment

Editors of Disruption...

www.tfx.musicatloud.africa

Catalizing disruption in a fast-changing digital world.


DAY 3FRIDAY, NOVEMBER 2

Plenary - Setting Priorities For National, Regional and Global SCD Prevention and Control Programs

Prof. Jean-Marie Dangou; Coordinator of NCD Primary Preventi on (NPP), NCD

Integrated Management, WHO Africa

Plenary: How Database, technology, diagnosti cs and supply chain focus can increase quality medications in the system

Vivian Nwakah, Medsaf

Plenary - Youth Empowerment for Sickle Cell AnemiaSharon Browne-Peters, Cells of a Generation, Nigeria

Plenary - Anything is Posible.. Or Not?Oyindamola Adesina , Simbi Interactives, Nigeria

Coffee Break

Plenary - Alternative Medicine and Sickle Cell Anemia: Looking withinMr. Believe Oshiuhwu, SickleCell Herbal Solutions, Nigeria

Plenary - Mesenchymal Cell-based Therapy: An alternative to joint replacement in sickle cell anaemia patients with vascular necrosisDr. Pradeep Mahajan, Chairman and MD, StemRx Bioscience Soluti ons

Plenary - Transplant with Haploidentical Donors: A New InnovationDr. Satyendra Katewa – Head, Pediatric Hematology Oncology and Bone Marrow Transplant,

Manipal Hospital India

Lunch & Networking

9:00 am - 9:25 am

Plenary Hall

9:25 am - 9:50 am

Plenary Hall

9:50 am - 10:15 pm

Plenary Hall

10:15 am - 10:40 am

Plenary Hall

10:40 am - 11:10 pm

Exhibit Hall

11:10 am - 11:35 am

Plenary Hall

11:35 am - 12:00 pm

Plenary Hall

12:00 pm - 12:25 pm

Plenary Hall

12:25 pm - 2:10 pm

Plenary Hall


Women Overcoming Sickle Cell Symposium

See Page 13 For Details

Understanding The Role of Christain Care Giving in Sickle Cell Management

ECC Okwunu, Deputy Chairman, Pentecoastal Fellowship of Nigeria

Muslim Couples And Their HealthProf. Ishaq Akintola, Director Muslim Rights Concern, Nigeria

Highligh: Project Presentations

Projects:

1. The Mentorship Project

2. Project Better - Creating Better Advocacy for Sickle Cell Warriors

3. Feed a Warrior Program: Nutritional Management of Undernutrition in Sickle Cell

Disease

4. Sickle Cell Clinic Day - Easing access to point of sickle cell care in rural areas in Ngora

District, Eastern Uganda

Oral Abstract Presentations

Presentation:

1. Dual burden eff ects of Viral Hepatitis B infection on Oxidative Stress of Sickle Cell

Disease Patients at Ede Government District Hospital, Southwest, Nigeria.

2. THE PUNNETT SQUARE AND THE 25% CHANCES COUPLES BOTH WITH SICKLE CELL

TRAITS HAVE TO BIRTH CHILDREN WITH SICKLE CELL DISORDERS

3. Talinum fruticosum soup signifi cantly infl uence pack cell volume in sickle cell anemia at

Federal capital teritory of Nigeria West Africa

4. Randomized Clinical Trial of Hemoxide Supplement For Sickle Cell Anaemia

Management: a Study Protocol

Sickle Cell Advocacy Contest Award and Close of Congress

Adherence to the New Disease Guidelines in Treatment of Children With Sickle Cell Anemia

Panelist:

1. Dr. Felix Alakalolo, Consultant Pediatric and Laparoscopic Surgeon, Lagos University

Teaching Hospital.

2. Dr. Bamigboje; Consultant Pediatrician

3. Abdullahi Muhammad Yakasai, Health association partner from the PACFaH@Scale

project

4. Dr. Rahila Aliyu Mukhtar, Health association partner from the PACFaH@Scale project

Moderator: Kenneth Emeka Enwerem,

Session proposed by: The Africa Leadership Forum

3:50 pm - 6:15 pm

Plenary Hall

4:35 pm - 4:55 pm

Room 2B

4:55 pm - 5:15 pm

Room 2B

4:55 pm - 5:35 pm

Exhibit Hall

4:35 pm - 5:35 pm

Room 2A

6:15 pm

Plenary Hall

2:10 pm - 3:40 pm

Plenary Hall


thank you

SEE YOUIN 2020

FOR A BIGGER EXPERIENCE

www.acscd.org

organized by in associati on with · samira sanusi, samira sanusi sickle cell foundation, nigeria...

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