3rd international congress

on

Pulmonary Rare Diseases

and Orphan Drugs

March 20-21, 2009

Milan - Italy

Organized by U.O. Pneumologia

Ospedale San Giuseppe - Milanocuore SpA

President Sergio Har ari

AIPO - AssOcIAzIOne ItAlIAnA PneumOlOgI OsPedAlIerI

sImer - sOcIetà ItAlIAnA medIcInA resPIrAtOrIA

OmceO - OrdIne deI medIcI chIrurghI ed OdOntOIAtrI dellA PrOvIncIA dI mIlAnO

With the patronage of

3rd InternatIonal Congress on

PUlMOnARy RARe DISeASeS AnD ORPHAn DRUGS

MIlan, Italy - MarCh, 20 - 21, 2009

organIzed By U.o. PneUMologIa - osPedale san gIUsePPe - MIlanoCUore sPa

Sergio Harari, Milan - Italy

President of the congress

Victory Project Congressi Via C. Poma 2 – 20129 Milano, ItalyPhone +39 02 89 05 35 24 - fax +39 02 20 13 95info@victoryproject.it

Organizing Secretariat

Assert CommunicationVia V. Monti, 41 – 20123 Milano, ItalyPhone +39 02 43 99 52 06 - fax +39 02 43 98 52 41info@assert.it

Press Office

Congress Center Palazzo delle Stelline Corso Magenta, 61 - 20123 Milan, Italy

location

Antonella Caminati, Milan - Italy

Scientific Secretariat

9.00 Welcome to the Audience Treatment of pulmonary Hypertension: from the past to the future

Chairmen: S. Harari (Milan - Italy), F. Martinez (Ann Arbor, MI – USA), P. Vitulo (Palermo - Italy)

09.15 lecture: PAH from treatment to cure, is it a possible goal? G. Simonneau (Paris - France)

09.45 Combination therapy for PAH: where are we now? O. Sitbon (Paris - France)

10.05 Pulmonary veno-occlusive disease M. Humbert (Paris - France) 10.25 lecture: Place of surgery in pulmonary hypertension Ph. Dartevelle (Le Plessis Robinson - France) 10.55 Discussion

11.15 Coffee break

IPF: a look to the future

Chairmen: F. Calabrese (Padua - Italy), M. Confalonieri (Trieste - Italy), T.e. King (San Francisco, CA – USA)

11.40 lecture: HRCT in UIP/IPF: the role in diagnosis and disease progression evaluation M. Zompatori (Bologna - Italy) 12.10 The pathologist’s role in IPF: an up-to date A. Cavazza (Reggio Emilia - Italy)

12.30 Bronchoalveolar lavage: what does it tell us? A. Pesci (Monza - Italy)

12.50 Transbronchial lung biopsy in IPF: can we use it? V. Poletti (Forlì - Italy)

13.10 Discussion

13.30 Lunch

Friday, March 20 - Morning Session

Friday, March 20 - Afternoon Session

Diagnostic and management dilemmas in Idiopathic Interstitial pneumonia

Chairmen: J.F. Cordier (Lyon - France), J. Moss (Bethesda, MD - USA), P. Rottoli (Siena - Italy)

14.30 lecture: Acute exacerbation of IPF: etiology, diagnosis and management F. Martinez (Ann Arbor, MI - USA)

15.00 The problems of clinical trials and registries in rare diseases M. luisetti (Pavia - Italy)

15.20 IPF: new insights into diagnosis and prognosis A. Caminati (Milan - Italy)

15.40 Prevalence, course and significance of PH in IPF C. Albera (Turin - Italy)

16.00 lecture: Treatment of IPF and NSIP: where are we and where are we going? T.e. King (San Francisco, CA - USA)

16.30 Discussion

17.10 End of the day sessions

Sforza's CastleAlong with the Cathedral - Milan's most famous and much beloved monument - the big Castle is linked to the vicissitudes and dramatic events that the city has been experiencing over the past centuries. The Castle was named after Francesco Sforza, who transformed it into a ducal residence in 1450. But its origins date back to the second half of the 14th century, at the time of Galeazzo II Visconti.

new issues in rare lung diseases (Part 1)

Chairmen: S. Johnson (Nottingham - UK), C. Saltini (Rome - Italy ), R. Scorza (Milan - Italy) 09.00 lecture: Stem cell therapy for interstitial lung diseases: hope and reality C. Agostini (Padua - Italy)

09.30 Combined pulmonary fibrosis and emphysema: a clinically relevant syndrome V. Cottin (Lyon - France)

09.50 PH in non IPF interstitial lung diseases S. Harari (Milan - Italy)

10.10 lecture: Therapeutic options for systemic sclerosis related interstitial lung diseases l. Mouthon (Paris - France)

10.40 Discussion

11.00 Coffee break

new issues in rare lung diseases (Part 2)

Chairmen: V. Cottin (Lyon - France), l. Richeldi (Modena - Italy), A. Sanduzzi ( Naples - Italy )

11.20 lecture: Rare lung tumors: a new issue for pulmonologists? J.F. Cordier (Lyon - France)

11.50 The diagnosis of cystic lung diseases: a role for Bal and TBB ? O. Torre (Milan - Italy)

12.10 The ERS guidelines for LAM: trying a rationale approach to a rare disease S. Johnson (Nottingham - UK)

12.30 lecture: LAM, a look to the future: Molecular insights lead to targetted therapies J. Moss (Bethesda, MD - USA)

13.00 Discussion

13.30 End of the International Meeting

Saturday, March 21 - Morning Session

Agostini Carlo, Padua, Italy

Albera Carlo, Turin, Italy

Calabrese Fiorella, Padua, Italy

Caminati Antonella, Milan, Italy

Cavazza Alberto, Reggio Emilia, Italy

Confalonieri Marco, Trieste, Italy

Cordier Jean François, Lyon, France

Cottin Vincent, Lyon, France

Dartevelle Philippe, Le Plessis Robinson, France

Humbert Marc, Paris, France

Johnson Simon, Nottingham, UK

King Talmadge E., San Francisco, CA - USA

Luisetti Maurizio, Pavia, Italy

Martinez Fernando, Ann Arbor, MI - USA

Moss Joel, Bethesda, MD - USA

Mouthon Luc, Paris, France

Pesci Alberto, Monza, Italy

Poletti Venerino, Forlì, Italy

Richeldi Luca, Modena, Italy

Rottoli Paola, Siena, Italy

Saltini Cesare, Rome, Italy

Sanduzzi Alessandro, Naples, Italy

Scorza Raffaella, Milan, Italy

Simonneau Gerald, Paris, Italy

Sitbon Olivier, Paris, France

Torre Olga, Milan, Italy

Vitulo Patrizio, Palermo, Italy

Zompatori Maurizio, Bologna, Italy

International and Italian Faculty

Giovanni Donato Montorfano's CrucifixionOn the wall in front of the Last Supper by Leonardo, there is a remarkabe fresco itself, the Crucifixion by Montorfano done in 1495, which is unfortunately obscured by the ungenerous comparison with the Leonardo's masterpiece, actually much more modern and which raised immediately the interest and the emulation by a whole generation of Lombard artists.

Organizing Secretariat Victory Project Congressi Via C. Poma 2 - 20129 Milan - Italy Phone: +39 02.89.05.35.24 Fax: +39 02.20.13.95 info@victoryproject.it

Secretariat on site Secretariat and registration desk in congress venue will be on duty on: Friday, March 20 08.15-17.30 Saturday, March 21 08.30-14.00

Technical exhibitionAn exhibition of scientific and technical equipments will be organized in the Congress Area. Interested firms are kindly requested to contact the Organizing Secretariat to obtain the exhibition kit with full information.

Certificate of attendanceA certificate of attendance will be given to all registered participants upon presentation of their badge at the secretariat desk on Saturday, March 21.

CME/ECM accreditation for Italian participants The program will be submitted for Continuing Medical Education accreditation.

LanguageItalian and English are the official languages of the congress. Simultaneous translation will be available.

Computer centreOnly pc data projection will be available during the congress. Conference room will be provided with a laptop, therefore the use of one’s laptop is not allowed. To allow a smooth running of sessions, speakers are requested to contact the computer centre and hand in their cd or pen drive at least one hour before the beginning of their session.

General InformatIon

Registration prices are in Euro and include VAT

Before November 30 After November 30

AIPO - SIMeR members

290,00 € 330,00 €

Non members 350,00 € 400,00 €

Only registered participants are allowed to attend the scientific sessions. After March 10, 2009 only registrations on site at the New Registration Desk in the Congress Venue will be accepted. Instructions for payment Payment of registration fee can be placed by:

• International check payable to: Victory Project Congressi Srl (please enclose check)

• Bank Transfer (please enclose copy) to:Victory Project Congressi SrlUniCredit Banca - Credito Italiano - Agenzia 24 - Milan, Italy Account n. 9340484 - Swift Code UNCRIT B 1224IBAN IT44L 02008 01624 00000 9340484

For this kind of payment, participants are absolutely requested to notify the bank of their complete name and address and the reason for the payment. Bank expenses must be on participant’s charge.

• Credit Card: CartaSì - Mastercard - Visa - American Express Please note that only registrations accompanied by the relevant payment will be processed.

Cancellations and refund In case of cancellation of the registration, you are kindly requested to contact the Organizing Secretariat by January 10, 2009. A 70% of paid fee will be refunded.

Please note that no refund will be made for cancellations notified after this date.

reGIstratIon

All those interested in making hotel reservation are kindly requested to send the enclosed form, by December 30, 2008, to: Victory Project Congressi Via C. Poma 2 - 20129 Milan - Italy Fax: +39 02.20.13.95 info@victoryproject.it

Due to the great demand for hotel rooms in Milan in this period, we cannot guarantee any hotel reservation after expiration of the deadline.

Hotel Single Double used single Double

Palazzo Hotel delle Stelline *** 114,00 € 134,00 € 170,00 €

Sant’Ambroeus *** 99,00 € 128,00 € 148,00 €

Mercure Milano Corso Genova *** - 119,00 € 119,00 €

The above listed rates are expressed in Euro and are per room per night, including continental breakfast, services and taxes.All the hotels are located at a walking distance from the Congress Venue.

Instructions for hotel payment The total prepayment of the requested nights and a booking fee of € 20,00 per room are requested.

Payment of hotel accommodation can be placed by: • International check payable to Victory Project Congressi Srl (please enclose check)

• Bank Transfer (please enclose copy) to: Victory Project Congressi Srl UniCredit Banca - Credito Italiano - Agenzia 24 - Milan, Italy Account n. 9340484 - Swift Code UNCRIT B 1224 IBAN IT44L 02008 01624 00000 9340484

For this kind of payment, participants are absolutely requested to notify the bank of their complete name and address and the reason for the payment.Bank expenses must be on participant’s charge.

• Credit Card: CartaSì - Mastercard - Visa - American Express

Please note that only requests accompanied by the relevant payment will be processed.

Cancellations and refund No refund will be made for hotel rates.

Hotel reservatIon

Palazzo delle StellineCorso Magenta, 61 – 20123 Milan, Italy

Located right in the centre of Milan and at walking distance from the S. Maria delle Grazie Church and the Castello Sforzesco fortress, the Palazzo delle Stelline was a 15th century monastery. The original building has been recently refurbished and restored through the addition of full-view windows installed in the cloister.

How to reach the Congress Venue ➭ By Plane

From Malpensa Airport: take the train Malpensa Express and stop in Cadorna Station.From Linate Airport: take the bus 73 to San Babila Square and then the Underground Red Line and stop in Cadorna Station.

➭ By TrainFrom Central Railway Station take the Underground Green Line and stop in Cadorna Station.

➭ By CarFrom any highway exit, follow indications Centro and then ask for piazza Cadorna. In piazza Cadorna you are at 10 minutes walking to the Congress Venue.Parking facilities are available near the Congress Venue.

➭ By Local Transportations * Underground Line 1, Red – Cadorna Stop * Underground Line 2, Green – Cadorna Stop * Bus: nr. 54, nr. 70, nr. 94 * Tram: nr. 19, nr. 27, nr. 29

ConGress venue

To be sent to: VICTORY PROJECT CONGRESSI Via C. Poma 2 - 20129 Milano - Italy Fax + 39 02 20 13 95 info@victoryproject.it

Preferably within November 30, 2008

PLEASE FILL IN THIS FORM USING A TYPEWRITER OR BLOCK LETTERS

Last Name

First name

Address for invoice

Zip Code

City

Country

Phone Mobile

e-mail

Institute

Department

C.F. / P.Iva (for Italian residents only)

Registration fees (prices are in Euro and include VAT):Before November 30 After November 30

AIPO - SIMeR members 290,00 € 330,00 €

Non members 350,00 € 400,00 €

reGIstratIon form - a

✃

3rd International Congress on Rare Pulmonary Deseases and Orphan Drugs

Payments methods:

• International check payable to Victory Project Congressi Srl (please enclose copy)

•Bank Transfer (please enclose copy) to: Victory Project Congressi Srl UniCredit Banca - Credito Italiano - Agenzia 24 - Milan, Italy

Account n. 9340484 - Swift Code UNCRIT B 1224IBAN IT44L 02008 01624 00000 9340484

For this kind of payment, participants are absolutely requested to notify the bank of their complete name and address and the reason for the payment.Bank expenses must be on participant’s charge.

• Credit Card. Please charge my: ❏CartaSì ❏Mastercard ❏Visa ❏American Express

Card nr ❏❏❏❏ ❏❏❏❏ ❏❏❏❏ ❏❏❏❏Expiration date ❏❏ / ❏❏ ❏❏❏❏Cardholder’s surname

Cardholder’s name

Date of birth

Date Signature

Please note that only registrations accompanied by the relevant payment will be processed.I enclose the following amount:

Registration fee(s): €

Total €

Date Signature

Privacy-Italian Law n. 196/2003 – We warrant complete privacy on personal data. They will be used only for communications concerning the meeting organization.

reGIstratIon form - b -

Security Code3 nr. for VISA - Mastercard4 nr for American Express

✃

To be sent to:

VICTORY PROJECT CONGRESSI Via C. Poma 2 - 20129 Milano - ItalyFax + 39 02 20 13 95info@victoryproject.it

Within December 30, 2008

PLEASE FILL IN THIS FORM USING A TYPEWRITER OR BLOCK LETTERS

Last Name

First Name

Address for invoice

Zip Code

City

Country

Phone Mobile

e-mail

C.F. / P.I. (for Italian residents only)

Hotel Single Double used single Double

Palazzo Hotel delle Stelline *** 114,00 € 134,00 € 170,00 €

Sant’Ambroeus *** 99,00 € 128,00 € 148,00 €

Mercure Milano Corso Genova *** - 119,00 € 119,00 €

(Prices are in Euro and are per room per night, including continental breakfast, services and taxes)

Hotel aCCommodatIon form - a -

✃

3rd International Congress on Rare Pulmonary Deseases and Orphan Drugs

Please reserve for me:

Nr room/s ❏single ❏double used single ❏double

Preferably at Hotel

Arrival date Departure date

Payments methods:

❏ International check payable to Victory Project Congressi Srl (please enclose copy)

❏ Bank Transfer (please enclose copy) to: Victory Project Congressi SrlUniCredit Banca - Credito Italiano - Agenzia 24 - Milan, Italy Account n. 9340484 - Swift Code UNCRIT B 1224IBAN IT44L 02008 01624 00000 9340484

For this kind of payment, participants are absolutely requested to notify the bank of their complete name and address and the reason for the payment.Bank expenses must be on participant’s charge.

❏ Credit Card. Please charge my:❏CartaSì ❏Mastercard ❏Visa ❏American Express

Card nr ❏❏❏❏ ❏❏❏❏ ❏❏❏❏ ❏❏❏❏Expiration date ❏❏ / ❏❏ ❏❏❏❏Cardholder’s surname

Cardholder’s name

Date of birth

Date Signature

Please note that only hotel requests accompanied by the relevant payment will be processed.

I enclose the following amount:

Hotel payment: €

Booking fee of € 20,00: €

Total €

Date Signature

Privacy-Italian Law n. 196/2003 – We warrant complete privacy on personal data. They will be used only for communications concerning the meeting organization.

Hotel aCCommodatIon form - b -

Security Code3 nr. for VISA - Mastercard4 nr for American Express

✃

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