!!!

!!

Department)of)Clinical)Immunology)&)Rheumatology))

and))

Vellore)Rheumatology)Doctor9Patient)Joint)Initiative,)2017)

)

organizes**_____________________________________________________*

1st*National*Joint*Meeting*Of*

Patients*and*Health*Care*Providers*in*Rheumatology*

*Theme: Education for self-care, efforts for empowerment _____________________________________________)

*Venue:*New*Examination*Hall*(Ground*floor),*Christian*Medical*

College,*Bagayam,*Vellore**15th*&*16th*December*2017*

**

Welcome*Message*Dear*Colleagues*and*Patients**It*is*my*great*pleasure*to*invite*you*all*to*be*a*part*of*the*1st)National)Joint)Meeting)Of)Patients)and)Healthcare9providers) in)Rheumatology,)at)Christian)Medical)

College,)Vellore)on)15th)&)16th)(Friday)&)Saturday))December)2017.)

)

There*are*more*than*100*rheumatic*diseases,*including*inflammatory*conditions*such*as*rheumatoid*arthritis,*ankylosing*spondylitis*etc,*autoVimmune*diseases*such*as*lupus*etc*and*degenerative*conditions*such*as*osteoarthritis.*But*the*number*of*rheumatologists*who*provide*healthcare*to*these*patients*with*rheumatic*diseases*are*few*in*number*in*our*country.*Often*these*patients*remain*underVdiagnosed*and*underVtreated*and*end*up*seeing*various*specialties*before*they*reach*a*Rheumatologist.*And*time*is*of*essence,*as*damage*can*lead*to*deformity,*disability*and*loss*of*function.*Patients*are*often*misguided*to*seek*advice*from*quacks*and*healers* in*search*of*cure*and*are*experimented*upon*with*unknown*preparations*with*significant*toxicities.*Internet*&*Social*media*are*mixed*bags*&*anyone*can*upload*anything*online*to*confuse*a*patient.***Since*most*rheumatic*diseases*are*chronic*in*nature,*it*is*very*important*that*the*patient*is*an*active*participant* in* the* treatment*process.*Patients*with* rheumatic*diseases,* in*general,* lack* knowledge* regarding* the* causation* and* nature* of* their* disease* and*medications* used* in* their* treatment,* their* adverse* effects* and* monitoring* for* these*effects.*They*also*do*not*have*a*lucid*understanding*of*adherence*to*medications*and*followVups.***With*this*background,*we*have*planned*this*unique*meeting*where*patients,*careVgivers*and*health*care*providers*can*meet*on* the*same*platform*outside*a*stressful*hospital*environment*and*bridge*the*divide*between*knowledge*and*understanding*of*disease*and*better* life* quality.* We* will* discuss* issues* pertaining* to* causation,* nature,* treatment*options,* diet,* monitoring* and* followVup,* management* of* finances,* rehabilitation* and*support*groups*related*to*their*disease.*We*will*attempt*to*banish*myths,*misconceptions*and*doubts*through*facts*and*experience.*Together*we*aim*to*empower*our*patients*and*help* them* achieve* a* better* quality* of* life.* Discussions* and* workshops* on* various*rheumatic*diseases*will*be*steered*by*expert*rheumatologists*from*all*over*the*country.**We*also* intend*to*set*up*a*“Society* for*Patients*with*Rheumatic*Disorders”*under*our*mentorship*which*will* take* forward*a* ‘patient*pro’*agenda*and*empower* the*patients,*where* they* can* help* themselves* and*many* others.* Such* patient* support* groups* and*societies*are*very*popular*and*active* in*developed*nations.*They*have*grown*to*wield*such*influence*that*they*have*their*say*in*clinical*trials*testing*new*treatment*options,*formulation*of*national*governmental*policies*and*also*funding*new*research.*One*such*exemplary*society*is*the*Swedish*Society*of*Rheumatology.*Such*patient*support*groups*and*societies*are*the*need*of*the*hour*and*must*be*encouraged.*This*meeting*is*our*small*

but*sure*attempt*at*improving*patient*knowledge*and*compliance*by*making*them*active*participants*in*their*road*to*recovery*from*rheumatic*disease.**Therefore,*I*most*cordially*invite*colleagues*&*patients*to*join*us*in*Vellore*in*making*a*difference*in*the*lives*of*our*patients.*****

**

**Dr*Debashish*Danda*MD,*DM,*FRCP,*FACR,*FAMS*Professor*&*Head,*Clinical*Immunology*&*Rheumatology*Christian*Medical*College*&*Hospital,*Vellore,*India**Member*Director,*Asia*Pacific*League*of*Associations*for*Rheumatologists*(APLAR)**President*Elect,*Indian*Rheumatology*Association**Editor*in*Chief,*International*Journal*of*Rheumatic*Diseases**** * * &*Convener,*Vellore*Rheumatology*DoctorVPatient*Joint*Initiative,*2017*

***

*

PROGRAMME*SCHEDULE**Day)1)

15/12/17)Friday)

**

08.00*AM*onwards***********

Registration**

* JIA)AND)OTHER)CHILDHOOD)ONSET)

RHEUMATIC)DISEASES)

*09.00AMV*09.15AM**

Topic)Patient*education*in*childhood*rheumatic*diseases*Speaker))

Dr*Surjit*Singh**

Lead)Expert)

Dr*Suma*Balan*)

*

09.20AMV*09.30AM*************

CHILD,*PARENT*PERSPECTIVE* *

09.30AMV*09.45AM*

Question*and*Answer* *Expert)Panelists)

Dr*Surjit*Singh*Dr*Ravichandran*R*Dr*Joe*Thomas*Dr*Sagar*Bhattad*******************

09.50AMV10.30AM*

Workshop*on*Childhood*Rheumatic*disease*

Co9ordinator)

Dr*Ravichandran*R*)

Resource)Faculty))

Dr*Suma*Balan*Dr*Joe*Thomas*Dr*Sagar*Bhattad*******************

) FIBROMYALGIA*10.00*AMV*10.15AM**

Topic*Why*do*I*have*these*aches*and*pains*and*how*do*I*overcome*it?*

Lead)Expert))

Dr*Vishad*Vishwanath)

Speaker))

Dr*BG*Dharmanand)**

10.20AM*V*10.30AM************

PATIENT*PERSPECTIVE*

10.30AMV*10.45AM**

Question**&*Answer* Expert)Panelists)

Dr*SK*Das*Dr*Dharmanand*BG*Dr*Ajit*Surin*Dr*Damodaram*P*Dr*Manish*Bavalia***

) OSTEOPOROSIS*10.50*AMV*11.05AM**

TopicVOsteoporosis*Vwhat*it*means*to*the*patient*and*the*impact*of*fracture*on*life!*Speaker)))

Dr*U*R*K*Rao*)

Lead)Expert)

Dr*Mahendranath*KM*

11.10AM*V*11.20AM************

PATIENT*PERSPECTIVE*

11.20AMV*11.35AM**

Question*&*Answer* Expert)Panelists)

Dr*U*R*K*Rao*Dr*Mohini*Ganu*Dr*Nikhil*Gupta**

11.45am*V*12.15pm****

Opening)Ceremony)

)

Welcome)Address))

Dr*Debashish*Danda**Prayer)by)Chaplain)

*Address)by)Director)

Dr*J*V*Peter**

Address)by)Principal)

Dr*Anna*B*Pulimood**Guests)of)Honor))

Dr*Ramnath*Misra**Address)by)a)Patient)Representative)

Mr*O*P*Gupta***

12.15PMV13.00PM*

LUNCH*

* RHEUMATOID)ARTHRITIS)

13.00*PM–*13.45*PM*

Topic:)What*a*patient*of*RA*should*know,*joints*and*beyond?)Speaker)

Dr*Padmanabha*Shenoy*

Lead)Expert)

*Dr*Jyotsna*Oak**

***13.20PMV*13.30PM** *** * *

****PATIENT*PERSPECTIVE**

13.30*PM–*13.45PM*

Question*&*Answer* Expert)Panelists)

Dr*Padmanabha*Shenoy*Dr*Sapan*Pandya*Dr*Arul*Rajamurugan*Dr*Ashish*Badika*Dr*Aswin*M*Nair**

* SPONDYLOARTHRITIS)INCLUDING)PSORIATIC)

ARTHRITIS)

13.50PMV14.10PM*

Topic)Patient*education*on*Spondyloarthritis*)Speaker)Dr*Prasanta*Padhan)*Topic*All*I*need*to*know*about*my*skin*and*joints:*Psoriatic*Arthritis*Speaker*Dr*Indrajit*Agrawal*)

*

Lead)Expert)

Dr*Santosh*K*Mandal*)

***14.10PMV*14.20PM** *** * *

****PATIENT*PERSPECTIVE*

14.20*PM–*14.35PM*

Question*&*Answer* Expert)Panelists)

Dr*Renu*George*Dr*Indrajit*Agrawal*Dr*Sarbani*Sengupta*Dr*Mithun*CB*Dr*Santosh*K*Mandal*Dr*Ashish*J*Mathew**

* OSTEOARTHRITIS,)GOUT)AND)OTHER)CRYSTAL)

RELATED)ARTHRITIS)

*14.40PM*–*14.55PM** ***

Topic)OA:*What*a*patient*with*the*most*common*arthritis*should*know?)Speaker)

Dr*Siddharth*K*Das*

Lead)Expert)

Dr*Raja*N*

15.00PM*–*15.10PM*** *

PATIENT*PERSPECTIVE***

15.10PM*–*15.20PM* ***********

Question**&*Answer* Expert)Panelists)

Dr*Siddharth*K*Das*Dr*Pradeep*Sharma*

Dr*Raheesh*Ravindran**

15.20PMV*15.30PM*

BREAK*

* SLE)&)ANTI9PHOSPOLIPID)SYNDROME)

*15.30PM*–*15.45PM*

Topic)Lupus*in*the*new*age:*the*future*is*bright)Speaker))

Dr*Alakendu*Ghosh*

Lead)Expert)

Dr*Vineetha*Shoba**

15.50PM*–*16.00PM** **

PATIENT*PERSPECTIVE*

16.00PM*–*16.15PM*** **

Question*and*Answer* Expert)Panelists)

Dr*Alakendu*Ghosh)Dr*John*Mathew*Dr*Sham*S*Dr*Nagaprabu*V*Dr*Yapi**

** * **** ** ** *

)

SJOGREN’S)SYNDROME)

*

16.20PM*–*16.35PM*

Topic)Dry*eye,*dry*mouth*and*everything*else*in*Sjogren’s*Syndrome)Speaker)Dr*Sapan*Pandya*

Lead)Expert)

Dr*Santosh*K*Mandal*

16.40PM*–*16.50PM*

PATIENT*PERSPECTIVE*

16.50PM*–*17.05PM*

Question*and*Answer* Expert)Panelists)

Dr*Sapan*Pandya*Dr*Sandhya*P*Dr*Shyamasis*Das*Dr*Rabin*Chacko*

Dr*Saban*Horo*

** *** * ***

SCLERODERMA)AND)MYOSITIS) )

17.10*PM–*17.25PM*

Topic)Scleroderma:*What*lies*beneath*the*tight*skin)Speaker*Dr*Uma*Kumar*

Lead)Expert)

Dr*Vikas*Aggarwal**

17.30PMV17.40PM***

PATIENT*PERSPECTIVE****

17.40PM*V*17.55PM*

Question*and*Answer* Expert)Panelists)

Dr*Uma*Kumar*Dr*Nagaprabu*V*Dr*Prasanta*Padhan**

* SYSTEMIC)VASCULITIS)

18.00PMV18.15PM*

Topic)Myths*and*Pearls*for*patients*with*Vasculitic*diseases*Speaker))

Dr*Ramnath*Misra*

Lead)Expert)

Dr*Aman*Sharma**

18.20PMV18.30PM*

PATIENT*PERSPECTIVE****

18.30PMV18.45PM*

Question*and*Answer* Expert)Panelists)

Dr*Ramnath*Misra*Dr*Debashish*Danda)Dr*Vishad*Vishwanath*Dr*Ruchika*Goel*Dr*Anoof*PP*

18.45PMV*19.00PM*

Ethical issues relating to Doctor-Patient relationships*

Dr*Nalin*Mehta,*AIIMS*

* ** *19.00PM*–*19.30*PM**

*

Cultural*Program*by*patients*and*doctors**

19.30PMV20.00PM*

Terra Incognita)Australis,)Dr#Nalin#Mehta,#AIIMS#New#Delhi*

20.00PMV21.00PM*

DINNER*

*Day)2))

16/12/17)Saturday)

**09.00AMV10.00AM* PARALLEL)WORKSHOPS)

* )

SPONDYLOARTHRIT

IS))**Theme:*SELF*ASSESSMENT*OF*DISEASE*ACTIVITY,*THERAPEUTIC*****MONITORING*and*REHABILITATION**Co9ordinator)

Dr*U*R*K*Rao***************Resource)Experts)))

Dr*Sarbani*Sengupta*Dr*Anoof*PP*Dr*Molly*Thabah*Dr*Mithun*CB*Dr*Abraham*S*Babu*Dr*Aswin*M*Nair**

*PSORIATIC)

DISEASE)

)

Theme*:*SKIN,*JOINT,*SPINE*–*CARE,*SELF*ASSESSMENT*OF*DISEASE*ACTIVITY,*THERAPEUTIC*MONITORING*and*REHABILITATION**Co9ordinator)

Dr*Pradeep*Sharma**Resource)Experts)))

Dr*Indrajit*Agrawal*Dr*Renu*George*Dr*Nikhil*Gupta*Dr*Ashish*J*Mathew*

FIBROMYALGIA))

Theme:)Cognitive,*Behavioural*and*Relaxation*Techniques))

Co9ordinator)

Dr*Dharmanand**Resource)Experts)))

Dr*Ashish*Badika)Dr*Manish*Bawaria*Dr*Abraham*S*Babu**Dr*John*Mathew**

SYSTEMIC)

VASCULITIS))

*Theme*:*SELF*ASSESSMENT*OF*DISEASE*ACTIVITY*AND*THERAPEUTIC******MONITORING*Co9ordinator)

Dr*Vishad*Vishwanath)*Resource)Experts)

Dr*Aman*Sharma*Dr*Prasanta*Padhan*Dr*Raheesh*Ravindran*Dr*Ruchika*Goel****

10.00AMV11.00*AM***

PARALLEL)WORKSHOPS)

*

* RHEUMATOID)

ARTHRITIS))

*Theme*:*SELF*ASSESSMENT*OF*DISEASE*ACTIVITY,*THERAPEUTIC*********************MONITORING*AND*REHABILITATION**Co9ordinator)

Dr*Binoy*J*Paul*)

Resource)Experts)

Dr*Arul*Rajamurugan*Dr*Raja*N*Dr*Abraham*S*Babu*

SYSTEMIC)LUPUS)

&)ANTI9

PHOSPHOLIPID)

SYNDROME)

Theme*:**SELF*ASSESSMENT*OF*DISEASE*ACTIVITY*AND*THERAPEUTIC******MONITORING*Co9ordinator)

Dr*Vineetha*Shoba**Resource)Experts)

Dr*Alakendu*Ghosh*Dr*Sham*S*Dr*Shrilekha*S*

Dr*Aswin*M*Nair* Dr*Santosh*K*Mandal*Dr*Yapi****

* SCELRODERMA)AND)

MYOSITIS)

)

Theme*:**SELF*ASSESSMENT*OF*DISEASE*ACTIVITY,*THERAPEUTIC*******MONITORING*AND*REHABILITATION**Co9ordinator))

Dr*Vikas*Agarwal*)

Resource)Experts)

Dr*Uma*Kumar*Dr*Padmanabha*Shenoy*Dr*Ajit*Surin*Dr*Pramod*Chebi*Dr*Ruchika*Goel*)

OSTEOARTHRITIS)

)

Theme*:*PAIN*MANAGEMENT*and*REHABILITATION*)

Co9ordinator))

Dr*SK*Das**Resource)Experts)

Dr*P*Damodaram*Dr*Pradeep*Punnoose*Dr*Raji*Thomas*Dr*John*Mathew*************************

11.00AMV11.30AM* PANEL)DISCUSSION)ON)BIOLOGICALS)

Lead*Panelist*******Dr*U*R*K*Rao*Panelists**************Dr*Vineetha*Shoba***************************Dr*Joe*Thomas***************************Dr*Alakendu*Ghosh***************************Dr*Shrilekha*S***************************Dr*Vishad*Viswanath***

11.30AMV12.00PM* PANEL)DISCUSSION)ON)DRUG)THERAPY)

SYNTHETIC)DMARDs)

Lead*Panelist******Dr*Mahendranath*KM*Panelists*************Dr*Anoof*PP**************************Dr*Pradeep*Sharma**************************Dr*Raja*N**************************Dr*Manish*Bavalia*

*************************Dr*Pramod*Chebi**

12.00PMV12.30PM* BIOETHICS TAKEN FOR GRANTED)

Dr*Nalin*Mehta,*AIIMS**

12.30PM*–*13.00*PM**

ECONOMIC)BURDEN)

OF)RHEUMATIC)

DISEASES)–

WORKING)TOWARDS)

A)SOLUTION)

Mr*Alok*Ranjan*Tata*Institute*of*Social*Sciences*Facilitator:*Mrs*Sangeetha,*Social*Worker,*Department*of*Clinical*Immunology*and*Rheumatology,*CMC*Vellore*

13.00*PMV13.30*PM* PATIENT*GROUP*FORMATION****

13.30*PM***

LUNCH*

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Organizing)Committee)*Chairman* Dr*Debashish*Danda*Organizing)Secretary) Dr*Ashish*Jacob*Mathew*

*Joint)Organizing)Secretary* Dr*Aswin*M*Nair*

Dr*Arvind*G*Scientific)Committee* Dr*John*Mathew*

Dr*Ruchika*Goel*

Dr*Sandhya*P*

Dr*Aswin*M*Nair*

Transport)and))Hospitality)Team) Dr*Satish*Kumar*T*

Dr*Shivraj*

Dr*Jayakanthan*K*

*Registration,)logistics)and)secretarial)

support*Mrs*Sangeetha*

Mrs.*Asha**

Ms*Santhya*

Mr*Rasu*

Mr*Rajendran*

Contacts*

Please*logVon*to**www.cmcvelloreVrheumatology.com*for*details*and*updates*

Dr.*Debashish*Danda**

Organizing*Chairman*and*Convener*

Mobile:*8489946707**

E*mail*ID:*debashisdandacmc@hotmail.com*

Dr.*Arvind*G*

Joint*Organizing*Secretary*

Mobile:*8220168671*E*mail*ID:*arvind_hegde1985@yahoo.com*

*

Ms.*Sangeetha*

Secretary*

Mobile:*9952387705*E*mail*ID:*rheumat@cmcvellore.ac.in**

Fax*no.:*+91*–*416*–*2232035*/*2232164�Phone*nos.:*+91*–*416*–*2283689*/*2282529*/*2283681�Postal*Address:*Organizing*secretary,*Department*of*Clinical*Immunology*&*Rheumatology,**

Christian*Medical*College,*Ida*Scudder*Road,*Vellore*–*632004.*Tamil*Nadu.*India.*

*

Please*logVon*to**www.cmcvelloreVrheumatology.com*for*details*and*updates*

Registration Form

Registration is free, but compulsory

Please fill in capital letters & tick in appropriate box.

Name: Prof./Dr./Mr./Mrs./Ms.______________________________________

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CHRISTIAN*MEDICAL*COLLEGE,*COLLEGE*CHAPEL,*BAGAYAM

*