nothing about us without us making consumer directed care work for you and your allies

Nothing about Us without Us – Making Consumer Directed Care

work for you and your allies

1 May 2023 1

Still Dementia in a Changing World Alzheimer’s Australia NSW Forum

Illawarra Region 7 September 2016

Nothing about me without me www.carriehayter.com

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Purpose • Making Consumer Directed Care System work

for you and your allies – Four key steps

• Work with service users and over 300 aged care and disability services

• Advocate for my father and grandfather

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Carrie Hayter Consulting

1 May 2023 4


Empowering people who use social care to be in charge of their funding and supports

Empowering people who use social care to be in charge of their supports and funding

01/05/2023 5

Shifting Policy Landscape –Personalisation

Passive Clients

Active Citizens

Block funding Individualised

funding

Rigid inflexible, bureaucratic

services

Flexible responsive services


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Social Model of Support Swaffer 2016

Diagnosis/ confirmation of diagnosis

Assessments (eg Driving, medication occupational therapy )

Rehabilitation

Strategies to manage and support disabilities (eg

technology, buddy/mentor)

Advanced Care Directives

Continued meaningful

engaging activities

Source: Swaffer, K., (2016:165) What the hell happened to my brain? Jessica Kingsley Publishers, London and Phiiladelphia

Support for a terminal progressive chronic

disease

Aged Care

What is Consumer Directed Care?Older people

• Giving more power to people to determine the who, what, why and how supports are provided

• Home Care Packages – Individualised budgets – Choose your provider from

February 2017

National Disability Insurance Scheme • Individualised funding • Planning that links to goals

and outcomes and resources and funding

• Funding is portable• People can choose to

manage their supports, joint management or organisation manages funds

8Nothing about me without me www.carriehayter.com


Step One – Educate yourself about the system

My Aged Care65+ years

Regional Assessment

Service

Aged Care Assessment

Team

Respite, personal care, transport, allied health,

podiatry, food services, in home support

Commonwealth Home Support Program

Assistance with Care and Housing

Home Care Packages

Levels (1-4)

Residential Care Program

Residential Respite

Subsidy for 63(+) days per financial

year in RACF

Permanent residential care

Personal budgetCo-ordinated package of services (including

respite excluding resi) Service Development

Carer Gateway,

Carer Respite Centres

Emergency Short Term Respite

Consumer Directed Respite Care Packages (Personal Budget for any respite, including resi)

Carer info and education

NDIS – Roll out

1 May 2023 11Person Centred Thinking in the NDIS World

1st July 2016

Central CoastNorthern SydneySouth Western SydneySouthern NSWWestern SydneyAdults in;Nepean Blue Mountains

1st July 2017

Illawarra ShoalhavenMid North CoastMurrumbidgeeNorthern NSWSouth Eastern SydneySydneyWestern NSWFar West

1st July 2018

The scheme will become available for all eligible people with disability in NSW

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Get more knowledge and skills

www.mychoicematters.org.au


https://homecaretoday.org.au/

https://www.carriehayter.com/training

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Step Two – Know what you and your allies want

from the system Nothing about me without me www.carriehayter.com

Active Ageing Conference © Carrie Hayter Consulting 14

The people in my life

1 May 2023 Active Ageing Conference © Carrie Hayter Consulting 15

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Step Three – Connect with people


Connect with People • Alzheimer’s Australia NSW • Peer to peer networks

– Local connections and support – Planning cafes – Dementia Alliance International – http://www.dementiaallianceinternational.org/– Sharing knowledge, skills and expertise

• Pay it forward– Share your story


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Step Four – Engage the system


Engage the System • Home Care Package

– Track your budget – February 2017

• change providers

• Support plan – It is your plan so make it work for you

• Get an advocate – You have the right to be heard – Use Seniors Rights Services– http://seniorsrightsservice.org.au/, Ph 1800 424 079

1 May 2023 22Nothing about me without me www.carriehayter.com

http://seniorsrightsservice.org.au/



Be a Warrior

1. Educate yourself about the system2. Know what you want from the system

Push the limits 3. Connect with like minded people

pay it forward 4. Engage the system

Don’t give up, get an advocate

1 May 2023 23Nothing about me without me www.carriehayter.com

More Information Sign up for tips and planning resources

by completing the form www.carriehayter.com

@carriehayter


http://www.carriehayter.com/

nothing about us without us making consumer directed care work for you and your allies

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