nkf agm 28 th march 2015 an introduction to the west london kidney patients association
TRANSCRIPT
NKF AGM
28th March 2015
AN INTRODUCTION TO THE WEST LONDON KIDNEY PATIENTS ASSOCIATION
Formed through the amalgamation of Charing Cross, Hammersmith Hospital and St. Marys KPAs
All renal patients within the Imperial Hospital Trust units are eligible for membership – currently over 3000 members
Hospitals, dialysis units and clinics covered :
8 Strong committee – meeting 6-7 times annually
WHO ARE WE
2
St Mary’s HospitalNorthwick Park HospitalSt Charles HospitalCentral Middlesex HospitalWest Middlesex Hospital
Hammersmith Dialysis unitHammersmith Nephrology clinicEaling HospitalHayes Hospital
Hillingdon HospitalMount Vernon HospitalAuchi Dialysis Unit at Hammersmith HospitalCharring Cross HospitalAshford Hospital
KEY POSITIONS ON THE COMMITTEE
3Presentation Title
Patron – Vasilios Papalois
President – Elaine Clutterbuck
Chair– John Hiney
Vice Chair – Oliver Pearcey
Secretary– Sarah ilic
Treasurer – Sue Orchard
VISION AND OBJECTIVES
OUR VISION AND AIMS
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actively involve West London in renal health issues and care
provide relief and support to persons suffering from Kidney Disease who are served by WLRTS
We …
To …
By … • Fund raising • Supporting staff and WLRTS activity
• Lobbying • Education and Research
• Awareness and Communication
• Pastoral Care
HOW DO WE SUPPORT AND WHAT DO WE NEED TO FUNDRAISE FOR?
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Fundraising to support
full range of patient support
Group support
Individual support
Direct patient assistance Indirect patient assistance
Hardship fund
SeminarsRepresentation to
unit/hospital
Buddy system
Group trip funding
Lobbying and regulatory
representation
Purchase of medical
equipment
Provision of information and
updates
Improvements to patient facilities
Holiday support Funding
Representation/appeals to hospital authoritiesEg: transport services
New letters and support publications
Building awareness of developments in kidney care
Annual conferences
Support for Emsworth
House
Support for transplant sport
activitiesDialysis unit facilities
Awareness and fundraising
• Support for key events – WKD, Transplant Week
• Visits to interest groups
• Sales and tombola's
Newsletters 3-4 times per year
• Key news, diet tips etc
Manage/fulfil requests
• Patient “comfort” – TVs/Cushions
• Medical equipment/research
Direct patient support
• Seminars, buddy programme
WHAT DOES THAT MEAN IN REALITY?
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WLKPA - 2015 Activity calendarSat Sun Mon Tues Weds Thurs Fri Sat Sun Mon Tues Weds Thurs Fri Sat Sun Mon Tues Weds Thurs Fri Sat Sun Mon Tues Weds Thurs Fri Sat Sun Mon Tues Weds Thurs Fri Sat Sun
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March WKD KPA day & NKF AGM
1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th
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June1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th
Julytxp
sport
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August1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th
September1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st
October AGM
1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st
November1st 2nd 3rd 4th 5th 6th 7th 8th 9th 10th 11th 12th 13th 14th 15th 16th 17th 18th 19th 20th 21st 22nd 23rd 24th 25th 26th 27th 28th 29th 30th 31st
December
Committee Meetings Seminars/conferences NewslettersWorld Kidney Day NKF Events TXP SportTransplant Week Fundraising Events
Please join in - Help us, help you!
NKFConferenc
NHS BT Transplant week
TXP Sport
Lobbying and support on key hospital issues both through newsletters and other comms
Patient viewpoint input to support materials
Input to, and delivery of, research programmes
…AND OTHER “STUFF”
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• Digital contact details
• Active participation
– Engagement with KPA
– Engagement outside of unit visits
– Volunteers for events
– Transplant sport
• Fund raising – ongoing pressure
• Increased demands on funds raised
• Increase in support/assistance requirements from trust/other groups
OUR CHALLENGES
10Presentation Title
THANK YOU