Using Large Datasets for Populations-based Health Research

Dr. Ch.Muhammad Junaid NazarMBBS,MPH(UK),MD INTERNAL MEDICINE(UK), Msc

Nephrology(UK), FRSPH (UK),FCPS-1,IMM

Nephrologist/ Clinical ResearchNephrology Department,

Shifa International Hospital, Pakistan.

Content

IntroductionWhere Does the Data Comes from?Uses of Secondary Data in Health ResearchStrengthsLimitations and SolutionsFuture Directions and Conclusion

Data Sources Primary Data National Surveys Disease Registries1. United Network for Organ Transplant Sharing Database (UNOS) • https://www.unos.org2. Surveillance Epidemiology and End Results Cancer Data Base (SEER)• http://seer.cancer.gov

Secondary Data Hospital Discharge Public Data e.g., claims and surveys data complied by Medicare and health

government agencies Private Data e.g., created by pharmacies, research oriented HMO’s

Uses of Secondary Data in Health Research

Monitoring Secular Trends Health Disparities Research Geographic Variation Evaluating Specific Disease and Treatments

Strengths

Researchers can draw conclusions about large populations

Well Suited for studying rare conditions or events because they contain enough cases to maintain statistical power

Inexpensive and more quick results

Limitation

Data QualityLack of Clinical DetailData Mining and Statistical SignificancesGeneralizability and the Ecological Fallacy

Ethical Considerations Informed Consent

Future Directions and ConclusionsHealth data networks National Institute of Population Studies(NIPS) Human Organ Transplant Association ( HOTA) Shifa Cancer Registry Gallop GN Registry Healthy People NADRA