CADDAC 2013 Accomplishments

CADDAC as an Organization

Bylaw review and revisions according to Canada Not-For-Profit Act Articles of

Continuance

Certificate of Continuance approved, 2013-03-14

Education

Web site Brochures

Billingual Q&A videos on adult and child and adolescent ADHD up-loaded to CADDAC web site

Continued up-dates of web site, linked to Awareness Week (AW) web site

Continued printing and distribution of CADDAC brochure to individual physician’s offices, clinics and several medical conferences and patient educational events

Development and production of hundreds of CDs containing with patient handouts for

physician offices handed out at booths and to individual physicians and educators

Presentations and Workshops

Presentations to educators training as special education teachers, Feb 5th and July 4th.

Presentation at Mississauga High School, April 25th

Full day workshop “ADHD From Preschool to College and Beyond” May 4th organized and run by CADDAC jointly with the Shoniker Clinic including a presentation “The Impact of ADHD on the Family” by Heidi Bernhardt, with 150 attendees

October 15th Durham school Board ADHD presentation to students (see AW)

October 17th Scholar’s Choice webinar presentation to 1,000 participants (see AW)

November 14th Scholar’s Choice webinar part 2 to over 700 participants (see AW)

Present at Social Justice Tribunals Ontario, May 10th, during workshop on the challenges

of Autism, ADHD and FASD.

CADDAC 5th annual four day conference

Located at the Holiday Inn Yorkdale

Over 300 attendees

Content:

Thursday November 21st ADHD and Learning

An evening presentation geared to educators featuring Dr. Margaret Weiss and Dr. Candice

Murray, with presentations on the impact of ADHD and learning, ADHD and executive

functioning, followed by workshops for elementary and high school/postsecondary strategies

Friday November 22nd Adult ADHD for Allied health and Human Resources

A full day of presentations and workshops covering what Health Care & Human resource professionals need to know about ADHD, treatments, alternative Treatments, accommodations and strategies to Improve Functioning at Work and at Home Saturday November the 23rd What parent’s Need to Know About ADHD

A full day of presentations geared to parents of children and adolescents who have ADHD.

Presentations on understanding ADHD as a neurological disorder, how to know if your child

really has ADHD, and possible treatments both mainstream and alternative, occurred during

the day. Parents were also able to choose to attend a workshop on parenting tips and

strategies for either the child or adolescent.

Sunday November 24th ADHD for Adults and Their Families

This full day of presentations focused on ADHD adult. Presentations covered, understanding

ADHD as an adult disorder, what medication treatment can and cannot do, CBT and

psychosocial treatments, alternative treatment s. The day concluded with a presentation about

organizational strategies and the benefits of an adult ADHD coach.

Awareness / Advocacy

CADDAC Awareness and Advocacy initiatives

Paying Attention to the Cost of ADHD, The Price Paid by Canadian Families,

Governments and Society

http://adhdawarenessweek.ca/en/documents/Socioeconomic%20Policy%20Paper.pdf

This white paper was completed in May of 2013 with corresponding cover letters

targeting several ministries and legislative bodies. It was sent out to all provincial, and

federal legislative representations across Canada and to provincial and federal ministries

of Health, Education, Child and family, Social Services, Labour and Justice.

Follow-up meetings to date that we are aware of:

Conference call meeting with Judy Darcy MLA for New Westminster BC and Opposition

Health Critic on the white paper

In person meeting with Monte Kwinter, MPP, York Centre August 26th

In person meeting with Mark Adler, MP for York Centre and Ms. Obukhova, Case

Manager, Sept 24th re white paper

In person meeting with John McCallum MP Markham / Unionville October 1st re white

paper

Meeting call with Mark Docherty MLA Regina Coronation Park and Legislative Secretary

for Disabilities October 9th re white paper

In person meeting with Helena MPP Oak Ridges Markham and Parliamentary Assistant

to the Minister of Health and Long-Term Care October 11th re white paper

In person meeting with Steven Del Duca MPP Vaughan November 1st

Tracey Sweetapple met with Rob Anderson her MLA in Alberta which followed with Mr.

Anderson speaking in the Alberta Legislature

http://blogs.rockyview.ab.ca/heartofgradditude/files/2013/11/ADHD-in-the-Legislature-with-Rob-Anderson-MLA.mov http://blogs.rockyview.ab.ca/heartofgradditude/?p=309

Adult Comorbidity Survey

Develop, implement and analyze survey on adult ADHD and Comorbidities

Develop Powerpoint presentation on results http://www.caddac.ca/cms/CADDAC_pdf/Surveys/ADHD%20Comorbidity%20Survey%20FINAL

%20June%206%202013.pdf

Adult media release with access to audio files of adult interview

http://www.caddac.ca/cms/CADDAC_pdf/Surveys/FINAL_Media_Release_CADDAC_FINAL.pdf

http://www.caddac.ca/cms/page.php?258

Media Results:

CTV (Maritimes) - Interview with Dr. Kronfli on CTV News at 5 (the Maritimes # 1 news

and current affairs program). The program airs on CTV N.S., CTV P.E.I, and CTV New

Brunswick

CHCH Hamilton ON– Interview with Heidi Bernhardt

Rogers TV Durham Region –Heidi Bernhardt and Russ Le Blanc were interviewed on

“Daytime Durham”

Halifax Herald (with circulation throughout Nova Scotia) article – Reporter John McPhee

conducted two interviews, one with Heidi Bernhardt and one with Russ Le Blanc

Rogers TV Richmond Hill – Russ Le Blanc was interviewed on “Living Disabled.

The media release was also reported to be posted on the following internet sites:

AlipesNews Amiweb ArnpriorToday.ca AssignmentEditor.com Benchmark Imaging Group Biz Wire Express Brian's Roar Cactus News Online Canadian Press Room Chantal Reviews CNW Group Con2web.net Digital Journal eMoneyDaily Feed Head Lines MedicalNewsService.com

Metro Latino Magazine Morningstar MrBayStreet.com Newsinfoguide.com Older Not Dead.com One News Page Global Edition Outcome Magazine Pharma Leaders Health Care Enrichment Program Intern Daily InvestorPoint.com Latest News Today Life Science Industry News Living by the Seasons Global Newsweek

2013 Awareness Week

Events

CADDAC Lead:

CADDRA Conference

CADDAC booth highlighting Awareness Week

Distribution of CDs with CADDAC patient handouts, the white paper, AW and

conference

Distribution of hard copies of the white paper

Collection of over 60 signatures of medical professional supporting the white paper

Durham District School Board

Board wide Awareness Week promoted with posters distributed to all schools

Full day educational event on awareness and understanding of ADHD

o Two educational sessions (morning and afternoon) for student and teacher

representatives (35 schools represented in the am and 42 schools in the pm),

with 2 adults and 3 students from each school attending

o Students attended 2 presentations, one by Rick Green and one by Heidi

Bernhardt

o Adults attending a session presented by dr. Rosemary Tannock on ADHD and

Learning

o Evening presentation open to the entire community presented by Dr. Rosemary

Tannock (audience of approximately 200)

o Students and teachers were asked to develop a plan on how share the

information they learned back at their schools

o ADHD Support Network Durham was formed out of this event with a Facebook

page (First meeting to occur December 9th)

Scholar’s Choice Webinar October 17th 8:30 pm

Heidi Bernhardt presented “ADHD 101” to over 1,000 people through an educational

portal run by Scholar’s choice

Part 2, “ADHD More Than Inattention” was presented to over 700 people on November

the 14th

Presentation is archived on the Scholar’s Choice web site

http://community.scholarschoice.ca/teacher/focused-approach-an-expert-explanation-

of-adhd-in-the-classroom-recap

Events Across Canada

British Columbia

CHADD Vancouver Parenting Children with ADHD & Research update, October 15, 2013

Vancouver Adult Support Groups BC Lower Mainland Cities with ADHD Awareness events by city 70+ BC ADHD Awareness Week 2013 Activities

Quebec

PANDA

Congrès, colloques et conférences sur le TDAH Conférence grand public sur les stratégies adaptatives pour le TDAH chez les grands -Dr Annick Vincent (avec PANDA Capitale nationale et les services adaptés CEGEP Ste-Foy)

17 octobre 2013, CEGEP Ste-Foy. Détails

Nova Scotia

Excalibur ADHD Association Nova Scotia Monthly Programs

Alberta

Tedx Talk ADHD Approach With Science, October 9 2013, Rocky View Schools, Airdrie, Alberta http://www.tedxrockyviewschoolsed.com/ Link to the talk: Tracey Sweetapple at TEDxRockyViewSchoolsED

City of Airdrie

Airdrie council meeting minutes/agenda announcing ADHD Awareness Week

Airdrie council proclaims ADHD Awareness Week

Awareness Week Web site

http://adhdawarenessweek.ca/en/ & http://adhdawarenessweek.ca/fr/

Development of a new web site to remain live through the year featuring:

Awareness Week Key messages

The Socioeconomic white paper

Information documents

Ways in which people can become involved in the awareness effort

o Advocacy toolkit

o Why advocacy is necessary

o Why their assistance is required

o Templates for letters to the editor, PMs, MPPS. MLAs, MNAs and ministries

Media release

Posters that can be printed including an infographic

Six video clips including one by Rick Green

http://www.youtube.com/user/adhdvid?feature=watch

Patient examples

Events list

Resources

List of Coalition members

CHADD Canada

PANDA

TDA/H Mauricie Centre du Québec

Vancouver Adult Add Support Group

Excalibur ADHD Association

PANDCentre for ADHD Awareness, Canada

A Lanaudière nord

TDAH Estrie

List of medical and health care supporters, over 60 health care professionals and

CADDRA

Facebook Page remains active

https://www.facebook.com/ADHDWeek

National Media Campaign

Highlights and links

• CBC, The National -

http://www.cbc.ca/player/News/TV+Shows/The+National/Canada/ID/2412249334/

• Global TV Edmonton - http://globalnews.ca/video/904414/iron-and-adhd

• La Presse - http://affaires.lapresse.ca/economie/canada/201310/16/01-4700239-le-

deficit-dattention-coute-7-milliards.php

• Canadian HR Reporter - http://www.hrreporter.com/articleview/19105-adhd-costs-

workplaces-up-to-11-billion-a-year-in-lost-productivity-study

Media Coverage

Yahoo.ca - Included the news release online. Morningstar news - Included the news release online. Wall Street Journal - Included the news release online. Le Lezard - Included the French news release online. Protostar - Included the French news release online. The Todd Veinotte Show - interview completed. Global TV Edmonton - Interview with Dr. Nagy Youssef

completed. http://globalnews.ca/video/904414/iron-and-adhd CBC The National - Dr. Peter Lin spoke to the survey results, the piece included several

of our messages and data points. http://www.cbc.ca/player/News/TV+Shows/The+National/Canada/ID/2412249334/

Canadian Health Reference Guide - Included the news release online. Guide de santé ligne - Included the French news release online. Northhumberlandview.ca -Included the news release and infographic online. News Silobreaker - Included the news release online. Yahoo.ca - Included the news release online. Morningstar news - Included the news release online. Wall Street Journal - Included the news release online. Le Lezard - Included the French news release online. Protostar - Included the French news release online.

Canadian HR Reporter - developed an article based on the release with several of our messages included. http://www.hrreporter.com/articleview/19105-adhd-costs-workplaces-up-to-11-billion-a-year-in-lost-productivity-study

Vimeo - Video vignettes included. Daily Motion - Video Vignettes included. Rebel Mouse - Included news release online. Health Render - Included the news release online. Kawartha Now - Included the news release online. Racing for Change - Included a post on ADHD Awareness

Week. http://mindyourmentalhealthcampaign.wordpress.com Hippo Hug (Bloggers) - Included a post on ADHD Awareness

Week. http://www.hippohug.ca/blog/ TVA - interview complete. La Presse - covered the announcement and highlighted several of our

messages. http://affaires.lapresse.ca/economie/canada/201310/16/01-4700239-le-deficit-dattention-coute-7-milliards.php

Calista's Ramblings - included a post about ADHD awareness week http://callistasramblings.com/2013/10/adhd-awareness-week-oct-14-20-2013/#idc-container

Audio News Release Coverage AB, CANADA

CIKT-FM Grande Prairie CJCA-AM Edmonton CIXM-FM Whitecourt CHMN-FM Canmore CKMP-FM Calgary CIUP-FM Edmonton CKER-FM Edmonton CHBW-FM Rocky Mountain

BC, CANADA

CITR-FM Vancouver CHMJ-AM Vancouver CHLY-FM Nanaimo CJOR-AM Osoyoos CFNI-FM Port Hardy CFML-FM Burnaby

MB, CANADA

CJGV-FM Winnipeg CHSM-AM Steinbach CFRY-AM Portage La Prairie CHVN-FM Winnipeg CFEQ-FM Winnipeg

NB, CANADA

CKHJ-AM Fredericton CFRK-FM Fredericton CHNI-FM St-John CFMH-FM St-John

NL, CANADA

VOAR-AM Mt Pearl

NS, CANADA

CKDU-FM Halifax CJNI-FM Halifax CKCH-FM Sydney CJLU-FM Halifax CIOO-FM Halifax CHFX-FM Halifax CHNS-FM Halifax

PE, CANADA

CHLQ-FM Charlottetown

SK, CANADA

CFSL-FM Weyburn CIOT-FM Nipawin CFWD-FM Saskatoon CJAW-FM Moosejaw CJME-AM Regina CKOM-AM Saskatoon CKSW-FM Swift Current

ON, CANADA

CFRH-FM Penetanguishene CFRC-FM Kingston CIKZ-FM Waterloo CJIV-FM Dryden CJJM-FM Espanola CHMS-FM Bancroft CICX-FM Orillia CFZN-FM Haliburton CFRU-FM Guelph CHBM-FM Toronto CHML-AM Hamilton CJOT-FM Ottawa CJFB-FM Bolton CKWS-FM Kingston CJRL-FM Kenora CICW-FM Fergus CFOB-AM Fort Frances CHOD-FM Cornwall CHES-FM Erin CFGM-FM Caledon

Additional Interviews and Media as a result of Awareness Week Media

Interview of Heidi Bernhardt by McLean’s magazine and arranged interviews with 2 parents

Interview of Heidi Bernhardt by a reporter from a Human Resource magazine

Article “Pay Attention to ADHD, by Dr. Debbie Pollack published in the Jewish Post and News

Nov 27th. (Assisted with wording and information)

Interview of Heidi Bernhardt by Everyday Health and Wellness magazine out of Strathmore, AB

Individual Media Interviews throughout the year

Interviews with university newspapers re adult ADHD in the postsecondary setting

Interview with three separate Today’s Parent Magazine journalists for three stories http://www.todaysparent.com/kids/kids-health/adhd-when-to-medicate/

Correspondence with Pauline Chan CTV re her questions on ADHD study results

Interview on The Current CBC radio 1, April 9th (Heidi Bernhardt)

http://www.cbc.ca/thecurrent/episode/2013/04/09/diagnosing-adhd-are-we-getting-it-right/

Interview with Chatelaine Magazine

Interview Mac Lean’s magazine journalist Kate Lanau, October 25th

Interview with Guelph Mercury

Booths

Booth Scarborough Library Diversity Week

Booth at Ontario Psychiatric Association April 5th and 6th

Booth at Family Physician Primary Care Conference May 9th, 10th and 11th

Booth at York Region District School Board evening presentation on April 11th

Booth at CADDRA conference

Booth Dorothy Hill Symposium, Ontario school psychologists, October 24th

Treatment Advocacy

Patient Evidence Submission CADTH, Canadian Agency for Drugs and Technology in

Health

Patient Evidence Submission Ontario Pubic Drug program

Education Advocacy

Review of Ontario Mental Health in Schools paper and send comments to Paul Grogan

Meet on conference call with NHCC youth committee re renewing education initiative

Formation of committee to review and challenge ADHD requirements of Queen’s

university

Correspond with LDAO re Queen’s university requirements for LD students

Outreach

Participated in a two day Advisory Board meeting in Stockholm for the development of ICF Core Sets for ADHD project, organized by the Karolinska Institutet/KIND

Continued membership in NHCC, Neurological Health Charities Coalition

Connection with new ADHD organizations in Quebec through Awareness week Coalition

TDA/H Mauricie Centre du Québec PANDA Lanaudière nord TDAH Estrie

Continued engagement with ABBDO

Continued communication with LDAO, Tourette Syndrome Foundation, Ontario Brain Trauma, and FASD organization

Continued interaction and postings of Clinics, support groups, research studies, coaches and other resources