national brain tumor society 2014 summit

NATIONAL BRAIN TUMOR SOCIETY 2014 SUMMITOctober 1 - 2, 2014

Hotel Marlowe, Cambridge, MA

Thank you for joining us at the National Brain Tumor Society 2014 Summit!

Reflecting on this past year and looking ahead to breakthroughs on the horizon, please know that your collective experiences, commitment, and support are the primary motivation and inspiration for us to drive progress.

We are proud to stand with you as a powerful force for change, building key collaborations across industry, research, and government and designing integrated research and public policy initiatives to address the critical needs of the brain tumor community.

As we come together this year to recognize accomplishments, I would also like to acknowledge the leadership team and our former Chief Executive Officer, N. Paul TonThat, whose vision and dedication have been critical in enabling the National Brain Tumor Society to become what it is today: the largest, most impactful nonprofit dedicated to the brain tumor community in the United States.

Thanks to you and the passionate commitment of our staff and Board, I am proud to say that our organization has never been stronger, and we look forward to having even more impact in the future, together.

Very truly yours,Michael Nathanson, JD, LLM

Chairman of the Board

TABLE OF CONTENTS

2 Schedule of Events

5 2014 – 2015 National Events

6 Feldman Founder’s Award

7 Community Support and Engagement

8 Programmatic Overview

9 Defeat GBM Research Collaborative

10 2014 Grant Recipients

13 Thank You to Our Advisors and Volunteers

16 2013 Donor List

24 Recognizing Our Generous Sponsors

2014 Summit 32 National Brain Tumor Society

WEDNESDAY, OCTOBER 1

8 AM – 2 PM Board Meeting

2 – 5 PM Defeat GBM Scientific Meeting (closed session)

5:30 – 6:30 PM Annual Meeting Community Reception

6:30 - 9:30 PM Annual Meeting Dinner Program

THURSDAY, OCTOBER 2

9 – 11 AM Oligodendroglioma Research Roundtable (closed session)

9 AM – 3 PM Volunteer Empowerment Meetings with Advocacy and National Event Programs (closed session)

SCHEDULE OF EVENTS - OCTOBER 1–2 WEDNESDAY OCTOBER 1

2 – 5 PM DEFEAT GBM SCIENTIFIC MEETING (CLOSED SESSION)

This meeting brings together key advisors to discuss the progress of the Defeat GBM Collaborative, the National Brain Tumor Society’s largest and boldest strategic research initiative to date.

NATIONAL BRAIN TUMOR SOCIETY ANNUAL MEETING

5:30 – 6:30 PM Community Reception

Enjoy connecting with patients and families, volunteers, advocates, researchers, clinicians, and government and industry professionals.

6:30 – 9:30 PM Annual Meeting Dinner Program

• Welcome

• Clifton Leaf, Keynote, Author of Truth in Small Doses

• National Brain Tumor Society Today

• Community Leadership Awards

» Programs/Events – presented to Bill Coffman in recognition of his years of ongoing devotion to the cause and relentless fundraising support as part of the Boston Brain Tumor Ride since 1998.

» Colleague Organization – presented to Mario Lichtenstein, founder of Voices Against Brain Cancer, for his passion and incredible commitment to raise brain tumor awareness, fund research, and support patients and families through his organization.

» Awareness – presented in honor of Emily Morrison for her optimism and unrelenting dedication to raising brain tumor awareness and advocating for critical issues affecting the brain tumor community.

• Feldman Founder’s Award – presented to Dr. Darell Bigner (see p.9)

• Closing

Clifton Leaf, Deputy Managing Editor at Fortune magazine, is the author of The Truth in Small Doses: Why We’re Losing the War on Cancer—and How to Win It. A winner of the Gerald Loeb Award for Distinguished Business and Financial Journalism, and a two-time finalist for the National Magazine Award, Cliff was until recently a guest editor for The New York Times op-ed page and Sunday Review. Previously, he was executive editor at The Wall Street Journal’s SmartMoney magazine and executive editor at Fortune.


9 – 11 AM OLIGODENDROGLIOMA RESEARCH ROUNDTABLE

This roundtable discussion with the principle investigators will focus on the current and upcoming research efforts funded by the Oligodendroglioma Community Research Fund and how to maximize shared findings and combined knowledge to expedite progress.

9 AM – 3 PM VOLUNTEER EMPOWERMENT MEETINGS

Volunteers and staff come together to discuss opportunities and ideas, conduct organizational trainings, and gain helpful tools. Tracks include:

State Lead Advocates

This year’s class of State Lead Advocates will gather for policy and messaging training to support their ongoing advocacy work. State Lead Advocates are committed to building the volunteer advocacy program, motivating existing advocates to engage in the latest action opportunities, and serving as the key contact to the offices of their Members of Congress on public policy issues that directly impact the brain tumor community.

National Events

National event directors and volunteer event committee chairs come together to discuss winning strategies for the national events program. The focus is to foster idea sharing among those who are heavily engaged in community fundraising and awareness across the country. Event committee chairs are committed to representing the National Brain Tumor Society across the nation at our 18 events per year.

THURSDAY OCTOBER 2

UPCOMING EVENTS

Come out, support the community, raise awareness, and fundraise for critical brain tumor research. Learn more at www.braintumor.org/takeaction

Boston Brain Tumor Walk

October 26, 2014 DCR Mother’s Rest at Carson Beach, South Boston, MA

Registration: 8 - 9 AM Program & Activities: 9 AM - 12 PM

Join us as a team or individual for this inspirational, all-ages fundraising 5K walk and community day to support the brain tumor cause. www.braintumorwalk.org/boston

(Note: The route is wheelchair and stroller accessible.)

Day-of registration is welcome. Hope to see you there!

Nashville Brain Tumor Race – October 11, 2014 (new!)

Race for Hope – Philadelphia – November 2, 2014

Dallas-Ft. Worth Brain Tumor Walk – November 8, 2014

Upcoming Event Locations

Phoenix, AZ

Charlotte, NC

San Diego, CA

Wilmington, DE

San Francisco, CA

Washington, DC

Waltham, MA

Denver, CO

New York, NY

Portland, OR

Los Angeles, CA

Orange County, CA

Long Island, NY

Silicon Valley, CA

2014-2015 NATIONAL EVENTS


NATIONAL BRAIN TUMOR SOCIETY FELDMAN FOUNDER’S AWARD

The National Brain Tumor Society Feldman Founder’s Award is presented to Dr. Darell Bigner, for his invaluable impact on the field of brain tumor research.

Dr. Bigner is the director of the Preston Robert Tisch Brain Tumor Center and the Pediatric Brain Tumor Foundation Institute at Duke University and Leader of the Neuro-Oncology Program of the Duke Comprehensive Cancer Center. He has successfully implemented several internationally recognized programs targeting brain tumors using radiolabeled monoclonal antibodies, immunotoxins, and tumor-specific vaccination. Dr. Bigner and his colleagues have identified several major genetic aberrations in GBM tumors and low grade gliomas, including EGFR, IDH1 and IDH2, and TERT, that provided novel diagnostic and therapeutic implications. They are making huge strides in identifying new drugs and those not previously thought to be active against CNS tumors. Currently Dr. Bigner is overseeing a promising clinical trial utilizing a genetically engineered poliovirus to treat glioblastoma.

The Feldman Founder’s Award recognizes individuals or laboratories for a transcendent scientific discovery, an exceptional body of work, or leadership that had a significant and sustained impact on the brain tumor community consistent with the National Brain Tumor Society’s mission to find better treatments, and ultimately a cure, for people living with a brain tumor. The recipient will receive a grant award and will join the prestigious group of past National Brain Tumor Society Founder’s Award for Research Excellence winners including co-recipients, Dr. Anna Barker, then Deputy Director of the National Cancer Institute and Dr. Kenneth Kinzler, Professor of Oncology at the Johns Hopkins Kimmel Center, for their work on The Cancer Genome Atlas (TCGA); CEO of American Association for Cancer Research, Dr. Marge Foti, PHD, MD (h.c.) for her years of leadership in the field, particularly in systems biology; and Dr. David Louis, Pathologist-in-Chief at Massachusetts General Hospital for his work in the molecular genetic basis of gliomas.

Support and connection are key parts to managing life with a brain tumor. We provide critical brain tumor information, helpful resources, and partnerships to guide people through all stages of their journey. People affected join the fight with us through building awareness, joining or starting events, becoming advocates, and much more. Visit www.braintumor.org/help or www.braintumor.org/join-the-fight for more information.

We also continue to foster a robust dialogue with and between community members through social media, online community chats, and events across the country. During Brain Tumor Awareness Month, we heard from survivors, caregivers, family, and friends who shared advice and knowledge about brain tumors to educate and empower others. On Facebook, people share their experiences, questions, and stories while continuing to stay attuned to what is going on in the community.

The important thing to always remember is that together we are stronger than this disease!

.

COMMUNITY SUPPORT AND ENGAGEMENT


NATIONAL BRAIN TUMOR SOCIETY PROGRAMMATIC OVERVIEW

Our strategic initiatives and funded programs aim to improve the understanding of brain tumors to transform research findings into new and more effective treatments. Using an integrated approach, we strive to address obstacles from the very first phases of basic research to the clinical trial and FDA approval process. Some of these efforts require funded research programs, some require new public policy solutions, and many need to combine tactics. All require getting the right parties together; including researchers and clinicians, biopharmaceutical and other for-profit industry companies, government funders, Congress, regulators, other philanthropic and nonprofit organizations, or some combination thereof.

The following pages provide information on each of our initiatives and currently funded researchers. In addition, we continue to foster collaboration by hosting workshops and meetings covering critical brain tumor topics, participating in key discussions taking place in the community, and mobilizing volunteer advocates across the country.

Learn more at www.braintumor.org/advance-research.

CLINICAL TRIAL ENDPOINTS INITIATIVE

This Initiative leverages both our research and public policy programs to work with the US Food and Drug Administration (FDA), patient advocacy and philanthropic organizations, medical imaging, biotechnology, and pharmaceutical companies, neuro-radiologists, neuro-oncologists, contract research organizations, and the National Cancer Institute to create change in the brain tumor clinical trial process.

As part of this effort, the Jumpstarting Brain Tumor Drug Development Coalition (National Brain Tumor Society, Accelerate Brain Cancer Cure, Musella Foundation, and Society for Neuro-Oncology) was created to convene these key stakeholders in two separate workshops to advance alternative endpoints for brain tumor clinical trials. The workshops represent the state of brain tumor endpoint measurement and contribute to the development of new criteria required for designing valid clinical trials using alternative endpoints. This work promises to create more incentives for future research and investment in brain tumor treatments and deliver a pipeline of new therapies to the community.

DEFEAT GBM RESEARCH COLLABORATIVE

The Defeat GBM Research Collaborative, a subsidiary of the National Brain Tumor Society, is a bold, multi-faceted, and concentrated effort, which aims to double the five-year survival rate of GBM patients – in just five years.

The following synergistic and simultaneous research projects are underway:

Aim 1: Finding the Right Target

• Ludwig Cancer Research, Dr. Web Cavenee and Dr. Frank Furnari Along with identifying the right biological target(s), this project seeks to understand any associated resistance mechanisms.

Aim 2: Finding the Right Drug

• The University of Texas MD Anderson Cancer Center, Dr. Fred Lang and Dr. John de Groot Accelerate drug development by identifying existing molecules/drugs that can be applied specifically to GBM, both on their own and in combination, as well as develop new therapies.

• Memorial Sloan Kettering Cancer Center, Dr. Ingo Mellinghoff Better understand a tumor’s systematic molecular and biological response when attacked with clinical inhibitors of well-characterized GBM mutations. Use systems biology approaches to develop and test rational combinations of inhibitors against these known GBM drug targets.

Aim 3: Determining the Right Patient

• Ludwig Cancer Research, Dr. Paul Mischel and Dr. Tim Cloughesy Develop predictive biomarker panels to guide therapy – including combination therapy – for each patient based on the molecular composition of their tumor.

Special thanks to our Scientific Director, Dr. W.K. Alfred Yung for his vision and guidance in creating this Collaborative. We are also grateful for Dr. Yung’s years of advising and support, helping to make our programs what they are today.


2014 NATIONAL BRAIN TUMOR SOCIETY GRANT RECIPIENTS

PEDIATRIC RESEARCH

National Brain Tumor Society is committed to directing one-third of its research budget to pediatric-specific initiatives. Most recently we funded work in molecular profiling, which made important contributions to the field. Currently work in Developmental Neurobiology is underway. Looking ahead, Project Impact is the National Brain Tumor Society’s new, multi-faceted initiative to address the key interrelated barriers that are slowing drug development for pediatric brain tumors, specifically high-grade gliomas. Project Impact will combine efforts in funded research and public policy to confront inefficiencies that currently exist in both the pediatric brain tumor pre-clinical research system and pediatric cancer clinical trial environment.

Robert Wechsler-Reya, PhD Sanford-Burnham Medical Research Institute Genetic targeting of cerebellar stem cells to study development and tumorigenesis

The most aggressive subtype of medulloblastoma occurs in tumors that have increased expression of the MYC oncogene. In this research, the Wechsler-Reya laboratory will build on previous research that suggests that stem cells can give rise to MYC-driven medulloblastoma. The researchers will create and study mouse models that allow targeting of genes to stem cells and then follow the course of normal stem cells and generate models of MYC-driven medulloblastoma. The goal is to discover potential new treatments based on an understanding of the tumor cells of origin.

Alexandra Joyner, PhD Memorial Sloan-Kettering Cancer Center Identification of genes and cell behaviors regulated by Shh/Gli2 signaling in the cell of origin of a major subtype of medulloblastoma using novel genetic tools in mouse

Medulloblastoma, the most common brain tumor in children, occurs in multiple molecular subtypes. A process called hedgehog signaling (named after the hedgehog gene Hh) is elevated in tumor subtypes that arise from cerebellar granule cell progenitors (GCPs). In this research, the Joyner laboratory will investigate how altering the level of signaling in GCPs in genetically engineered mice alter GCP behaviors. The goal is to discover novel signaling pathways that are important for normal cerebellum development.

2014 NATIONAL BRAIN TUMOR SOCIETY GRANT RECIPIENTS, CON’T

PEDIATRIC RESEARCH (CON’T)

Joseph Scafidi, DO Children’s Research Institute The effects of molecularly targeted therapies on the developing neurogenic niches

Although recent treatment compounds have shown promise in decreasing the burden of pediatric brain tumors, the compounds also affect the developmental pathways of a normal developing brain, and long-term effects are unknown. In this study, the Scafidi laboratory will assess the cellular and functional effects of compounds in rodents at various developmental ages, and whether and rehabilitation efforts after treatment can induce brain plasticity and address the deficits associated with treatment. Some of his early findings were published in the prominent journal Nature.

INNOVATION GRANT - PEDIATRIC

David H. Gutmann, MD, PhD Washington University School of Medicine KIAA1549:BRAF genetically-engineered mice for pediatric glioma-targeted therapeutic drug discovery and evaluation

One of the most common brain tumors in children is the pilocytic astrocytoma. This tumor is often caused by either genomic rearrangement of the BRAF gene (sporadic) or the inactivation of the NF1 tumor suppressor gene (inherited) that, when mutated, causes neurofibromatosis type 1. For this research project, the Gutmann laboratory will conduct experiments using advanced systems biology bioinformatics to identify potential biological treatment targets for both sporadic and inherited pilocytic astrocytoma. He also created a new model with the BRAF mutation that did not previously exist.


OLIGODENDROGLIOMA RESEARCH FUND

The Oligodendroglioma Research Fund is part of our Community Research Fund program – an initiative allowing contributors to pool donations to support research on a specific type of tumor. Donations large and small can be earmarked and combined to fund a two-year grant of $300,000, the minimum grant amount necessary to conduct significant research studies.

David Louis, MDMassachusetts General Hospital (MGH) Mapping the Epigenomic Landscape of Oligodendroglioma to Elucidate Tumor Growth and Chemosensitivity

Dr. Louis and his team will seek to identify the elements that drive the growth of oligodendrogliomas by applying next-generation sequencing tools and experiments. Dr. Louis’ work is designed to lead to discoveries of specific molecular targets, which subsequent studies would examine for potential therapeutic approaches.

Anders Persson, PhDUniversity of California, San Francisco IDH1R132H-induced Transformation of Oligodendrocyte Progenitor Cells into Oligodendroglioma

Dr. Persson and his team will seek to create predictive disease models (in mice/human/xenograft tissue) to prove that a specific gene mutation of the common enzyme IDH1 creates a molecule, called oncometabolite 2-HG, that facilitates the transformation of normal oligodendrocyte cells (OPC), a common cell in the human brain, into malignant, oligodendroglioma cells. Dr. Persson’s team will work to validate that these OPC’s are the “cell of origin”, and know what mutations drive them to develop into an oligo tumor, in order to develop targeted therapies to attack their pathways.

Robert Jenkins, MD, PhD & Dr. Daniel Lachance, MDMayo Clinic Function Biology of Germline Predisposition to Oligodendroglioma

Drs. Jenkins and Lachance will seek to generate both cell lines and animal models that replicate oligodendroglioma from initiation, based on previous discoveries of germline variations that contribute to tumor development. Current models reflect oligodendroglioma late in their course, and models from disease initiation may allow therapeutic screening for treatments effective against the disease in its earliest and most treatable state.

2014 NATIONAL BRAIN TUMOR SOCIETY GRANT RECIPIENTS, CON’T

Special thanks to our pro bono legal advisors offering both business and legal expertise for our initiatives and extensive support for our public policy efforts.

Morgan, Lewis & Bockius, LLP Hogan Lovells Bracewell & Giuliani

In our mission to find new treatments and ultimately a cure, we are fortunate to have the assistance of several volunteer advisory boards comprised of world-renowned and respected individuals who represent the diverse needs and interests of the brain tumor community. By volunteering their time and expertise, these individuals help to strategically guide the organization on research, industry, scientific, medical, healthcare, and public policy-related initiatives. We would like to express our deepest appreciation for the immense generosity and dedication of these advisors.

Scientific Advisory Council

Jean Zhao, PhD Dana-Farber Cancer Institute

Forest M. White, PhD Massachusetts Institute of Technology

Evan Snyder, MD, PhD Sanford Burnham Medical Research Institute

John Sampson, MD, PhD Duke University Medical Center

Paul Mischel, MD University of California, Los Angeles

Linda Liau, MD, PhD University of California, Los Angeles

Ching Lau, MD, PhD Texas Children’s Cancer Center

Robert Jenkins, MD, PhD Mayo Clinic

C. David James, PhD University of California, San Francisco

Candece Gladson, MD Cleveland Clinic

G. Yancey Gillespie, PhD University of Alabama at Birmingham

Frank Furnari, PhD University of California, San Diego

David Eisenstat, MD, MA, FRCPC University of Alberta

Joseph Costello, PhD University of California, San Francisco

Suzanne Baker, PhD St. Jude Children’s Research Hospital

Medical Advisory Board

Jeffrey Wefel, PhD The University of Texas MD Anderson Cancer Center

Liz Salmi The Liz Army

Jeffrey Raizer, MD Northwestern Memorial Hospital

Scott Pomeroy, MD, PhD Boston Children’s Hospital

Susan Pannullo, MD New York-Presbyterian Hospital/Weil Cornell Medical College

Gigi MacMillan We Can Pediatric Brain Tumor Network

Glen Lesser, MD Wake Forest University Medical Center

Mark Gilbert, MD The University of Texas MD Anderson Cancer Center

THANK YOU TO OUR ADVISORS


Amar Gajjar, MD St. Jude Children’s Research Hospital

Sherry Fox, PhD, RN, CNRS Bon Secours Cancer Institute

Paul Fisher, MD Stanford University Medical Center

Timothy Cloughesy, MD, Vice Chair University of California, Los Angeles

Terri S. Armstrong, PhD, NP The University of Texas MD Anderson Cancer Center

Industry Advisory Board

Joanne Smith-Farrell, PhD Merck & Co.

Michael Nathanson, JD The Colony Group

Skip Irving, MBA Health Advances

Michael Gutch, PhD MedImmune Ventures

Richard Gaynor, MD Eli Lilly and Company

Brian Gallagher, Jr., PhD SR One/GlaxoSmithKline

Neil Exter, MBA Third Rock Ventures

Giulio Draetta, MD, PhD UT MD Anderson Cancer Center

Bruce Booth, PhD Atlas Venture

Louis Beardell, Jr., JD, MBA Morgan, Lewis & Bockius LLP

Lauren Abrey, MD Genentech/Roche

Public Policy Committee

Eric Wenger Microsoft Corp.

Max Wallace, JD Accelerate Brain Cancer Cure

BethAnn Telford Team BT

Cord Schlobohm, DMD

Chandri Navarro, JD Hogan Lovells US LLP

Scott Memmott, Esq. Chair Morgan, Lewis & Bockius LLP

Richard Hamburg, MPA Trust for America’s Health

James “JD” Derderian The Stanton Park Group

Strategic Scientific Advisory Council

W.K. Alfred Yung, MD The University of Texas MD Anderson Cancer Center

William C. Hahn, MD, PhD Dana-Farber Cancer Institute

Richard B. Gaynor, MD Eli Lilly and Company

George D. Demetri, MD Dana-Farber Cancer Institute

Webster Cavenee, PhD Ludwig Institute for Cancer Research, San Diego

Darell D. Bigner, MD, PhD Duke University

Mitchel S. Berger, MD University of California, San Francisco

Anna Barker, PhD Arizona State University

Scientific Policy Committee

W.K. Alfred Yung, MD The University of Texas MD Anderson Cancer Center

Patrick Wen, MD Dana-Farber Cancer Institute

Linda M. Liau, MD, PhD University of California, Los Angeles

Susan Pannullo, MD New York-Presbyterian Hospital/Weil Cornell Medical College

Jan Buckner, MD Mayo Clinic

Steven Brem, MD University of Pennsylvania, Perelman School of Medicine

Kenneth D. Aldape, MD The University of Texas MD Anderson Cancer Center

THANK YOU TO OUR ADVISORS THANK YOU TO OUR VOLUNTEERS FROM AROUND THE COUNTRY

We can’t do it without you!

National Brain Tumor Society would like to thank the many volunteers across the country that play an integral role in fulfilling our mission. We are grateful for the giving of your time, energy, and talent to help improve the lives of all those affected by brain tumors. From serving on committees and working on the event day at our Walks, Races, and Rides, to advocating, joining at Head to the Hill, creating your own event, blogging, helping in the office, sharing your story with others, and so much more. Thank you!


National Brain Tumor Society is pleased to recognize and thank its generous supporters. The following individuals, foundations, and corporations made gifts January 1 through December 31, 2013.

INDIVIDUALS

$100,000 + Anonymous

$50,000 - $99,999Joe and Christine PerriconeWilliam Reller

$25,000 - $49,999Barry GlassmanCharles TrippyBarbara Weagant

$10,000 - $24,999Stacey CaseAmy HalvorsenWilliam R. Hearst, IIIJohn KernSandra KramerDavid LakeElizabeth MoragneStephen RellerBill & Amy RellerJudi Ross ZukerKarim SoukiSusan TavillaCatherine Wytzka

$5,000 - $9,999Douglas AdeMonty BennettPaul BernsteinKenton BraunKristen CampanaSheree ChiouGreg CliftLewis CohenJoyce CowanRussell DeyoMadelyn DonoffJames DoughanSusan FleckConstance Forchheimer HellerCatherine GabrielJeffrey HicklingRichard HowlettRay KeoughJeffrey KolodinSheri Leiter

Nathaniel LeonardScott MemmottMichael MulvaneyMichael NathansonStephen O’BrienNorman OblonJames PerakisLuanne PinkRoberta RassieurRoger ReadingJames RichterAlison RossStephen SadlerGeorge David SardCord SchlobohmMary SenffBrett SizemoreJames SteeleStella TavillaJames TennisJohn TravisBecky WalterGayle & Don WarrenJill WathenAdrienne WilkCraig Winer

$2,500 - $4,999Pedro AlfonsoKimberly ArmstrongElliott BalbertRuth Bartels-GriffinDawn BaulekeDaniel BeekhuizenDick BeersAlison BlankDale BohrerThomas BradleyChristopher & Kimberly BrownKevin CamphausenBill CoffmanCandice CoxJason CrawfordSally CurtinNicole DeLeonRobert EminianStephanie FarberBonnie Feldman

Roger FriedmanJohn FrishkopfRichard GendersonScott GreenbergBarbara HamrickSister Elizabeth HayesRonald HeidemanBryan HumeScott HuttonMarjorie JelinMichael JohnsonKatherine JohnsonCharlotte KaitzMark KanerBridgett KreiderDeborah LaRocheRobert LazarowitzRandy LebowitzNancy LevensSung LeweRoberta LindsayLaura LoebKathleen McDermottJamie McGuireVincent PatroneKelly PaulGlenn PayneNancy PfundAmos PikeKevin PlatzAmanda PrattKaren QuintalMichael ReichbachBrett RogersSarah RohanBarclay RomanIrene RomeroMichael RushworthFred SamahaSteven SchwartzCarole SclafaniSidra SeeleyTanya SeidelRonald SimonJulie SohlDiana SutherlandSusan SwiderMichael Thaler and Melissa

THANK YOU TO OUR SUPPORTERS

GrahamLois UmhoeferJohn WardElizabeth WeathermanKaren Weeks

$1,000 - $2,499Eric AbbottCasey AdamsLaura AdlerJill AdrogueTasha AhlquistChristin AitchisonDavid AlagnoKimberly AlbroGregg AlwinePatrick AlwineAlisha AmendtMiguel AmezquitaBarbara AndrewsDavid AnmuthJeff ArmstrongHal ArnesonRebecca AsherLeda AsmarGordon AtkissonAmy AvenattiLori AverillBenjamin BaileyNicholas BaldickThomas & Laurie BaldwinMarie BallJackie BanchikV. Raja BandaruDavid BarnardSusana Barros-FerreiraJulia BarthMarisa BarthelMichael BaryckiGayle BasehoarBridget BasehoarCharles BatchelderLaura BeachClaire BeanSean BeardsleyKathy BeckBecky BeckfieldJoan BeddowDavid BeddowWilliam BeddowRobert BeerNathan BegleyHoracio BellofioreDianne BenefielCynthia BengierMarie BenjaminSteven Berg

Philip BerganChad BernotaAllison BishofPaul BishofJulie BishopLisa & Brad BlackwellTheodore BobroskeJoshua BogartRichard BondPatricia BosworthSchatem BoydPaul BrandesPaul BraunSean BrennanGeorge BridenbaughKenneth BroadRichard BrockmanSalvatore & Jane BrognaOlivia BrownPatricia BryanJohn & Margaret BrynjolfssonElizabeth BuchbinderBeth BuchholzRick BurkeBrian BurkeParks ByrdMichael CallnanSharon CampbellDonald CampbellDavid E. Canter & Lisa A. StropeJoan CarlsonMary CarmichaelKim CarterRichard CartwrightRachel CashwellJames CassidyNancy CastellanosKim CatoeAnthony CeciBill ChaplinLise ChasséMaurice CheeksMark CherryAbbie ChesneyTina ChristensenRobert ChristiansenJody ChristopherSue CiglerDolores ClaeysJoseph Lawrence ClareFrederick W. Claybrook, Jr.Robyn CollinsPeter CondakesSteven ConnollyTom & Alicia CookPeggy CooperMichael & Lauren Corkin

Theresa CovelloEdwin CoxBrad CoxBill & Clyde CrookJulia CumberbatchTroy CummingsDouglas CummingsPatricia D’AlessandroDavid D’AndreaPhyllis DanihelSami DavidLuke DavisonSusana De La TorreLuann DeanCraig DeckerCathy DeCockAngela DeElseDominic DemattiesEugene DemersDoug DeVriesMary DillonMelissa DixonLaurin DoddPaul DohertyElaine DonovanJane DougallDawn DrownCurt Dudley-MarlingJames DuffChristopher DumaCandace DuncanAndrew DuncanKaren DurishinMrs. Ridge EaganCatherine EamesThomas EbbertBrittney EbertPatrick EdwardsSonja EdwardsMahmoud ElassirBeth ElderSusan ElliottCharles EnicksJoseph FabianiJeff FagerLindsay FaheyRokhsan FallahRho FarberHelen FarleyTracy FenoDawn Fischer-KrowlSusie FisherTracie FlemingLaurie FlyerJames ForeseShelly ForresterDaphne Foster



Mary Jo FraleyMartin FranciscoMichael FreedeRobert FreitasFranklin FreyFrances FriedmanBarbara FurmanekJason GanGianina GannKim GannonChris GaraventeRussell GarrubaJohn GengoMark GibsonPatricia GibsonHenry GoldbergMartha & Todd GolubWilliam GondaMary GongMike GoodwinMarion GordonThomas GordonShari Leigh GordonMichael GormleyScott GorranKimberly GorrellPatrick GradyDavid GraisWilliam GrantMilton GreenbergConstance GreeneBrock GreeneRev. Dorothy GreeneDiana & Mark Greene HallAileen GregoryKen GreyJoan GriffinLaurie GrossStanley GrossmanGinny GrunleyDavid GuertlerKelly HaeckelDavid HammondDeborah HankinsonConnie HansenAleecia HansenKevin HarneyRichard HarneyMichelle HarrisAnn & Mason HawkinsLynzie HaynesPaul HedbergJohn HeiseyBarbara HenryShawn HerlihyMichael HerouxRocky Higgins

Hal HindinRobert HiteChristine HoangJohanna HohleJ. Douglas HolladayEdmund HollanderGene HolmquistRuth Holton-HodsonNoël HolubFrances HopkinsAllison HorneBarry HorwitzPat HowardRob HoweMarian HoyleHeather HundAnn HundFiona Hutton-WiseMary IrishTed IsaacsonMargaret IshakJeff JacobsonCarl JanssenJoshua JohnsonAlan Hull JohnsonJessica JohnsonEric JohnstonDana JonesMarie JordanStephen JoyceWilliam JugusGerald JurrensGary KarlitzJohn KennedyDonna KentJohn KhourySheila KilleenTammy KinbergLee KirkAlan KlineBrian KneafseyCharles KnowlesKara KosmidesLawrence KosowHugo KostelniLen KowalskiMark KrailDave KramerKurt KrizanRhea KrolikiewiczPatricia KunkelKim KuntavanishPerry KupietzDan LaBellePhyllis LaccaRobert LaneAndrew Lantz

Catherine LanutoKevin LaRocheAdam LaRocheEmily LaRocheMark LaymanMichael LeBlancAlan LeeDavid LendtMadeline LeoneTheodore LeonsisVictor LevinsonSteven LewisRaymond LewisLois LindauerJosephine LittleJoel LoaneChristine LuckenbaughSara LundgrenJanet LustgartenMarilu MacCarthyKatie MacCarthyJevon MacDonaldMalcolm MacKenzieOliver MaggardChip MahanLeslie MahrCatherine MannionMatthew MarcelloJohn MarcianoMary Sue MarshallLaurie & Alan MarshallKaren MartinRonna MartinMichael MassiminoSue Ann MasukawaMarilyn MawnDorothy MawnLee MazanecTravis MazzaRonnie McBethMaria McCabeJacqueline McCauleyMarcie McCauleyJanet McClainPeggy & Joe McCloskeyDon McCordHeather McDavittCarol McDonaldAutumn McDonaldJohn McDonaldTom McDuffieMaureen McFarlandMark McGahaSharon McGeeRobin McInnisDeanna McIntireWaneta McKemie


Katherine McNabbRusty MeadowsLarry MeadowsMarni MeloniDavid MeltcherJan MercerRoslyn MeyerLeesa MiaoNicole MichelPatricia MilaneseDeanna MillerLisa & Ty MillerJeffrey MillerGeorge MillerDebora MitchellMary-Ann MoalliIsabella MolinariDavid MollPatty & Jim MoodyJohn MooneyRoberta MooreDebbie MoormannHeidi MoosShirley MorganLinda MorisonJudith MorrisWilliam MoseleyMark & Kristan MosleyShelley MulitzPamela MullinRick MunroSonya MurphyJames MurphyPaul MurphyCaroline MusilIsabel NeidorfMike NeilShawn NeverveRebecca NewlandKatherine NewmanSteve NewmanCatherine NicholsJohn NickersonKaren NusbaumSteve NussbaumSteven NussbaumKaren O’BrienJames O’MalleyJeff OlsonAnn OropezaBlanca OrtegaTom OswoldGordon OwadesLouisa PackBashi PackerJohn PaloianJonathan Paluga

Melissa PalumboChristopher ParkerAnuj PatelSuzanne PeckCynthia PeffersMichael PeilPenny PenguinSandra PerkinsFrancis PerrottAnn PetachElaine PetachPeter PetasAmy PetersonEileen PetrilloKaren PetronisJames PickeringLaurence PierceDon PizzogerratoJonathan PotterSuzanne PowersChristopher PowersPrabin PradhanDrana PrekelezajKim PrudenStephen QuinnKim RaduenzPatty RaileyCristina RamirezBruce RamsayRandall ReganChris ReillyKathleen ReillyJudith RemondiCarol ReschDoug RichardsKathleen RiekeWilliam RileyMark RobertsVictoria RobertsJanet RobertsBruce RobinDonna RobinsonDaniel RogersDerrick RomaelleMelissa RosatoRobert RosenbaumEllen RosenblumBenjamin RothCharlene RothkopfJoseph RotondoBenjamin RousselNancy RovansekMichael RudmanTabbetha RussellRichard RyanRichard & Carole RyanPeter & Meryl Sabeff

Brian SaccoCynthia SalkowskiJames SamahaMichelle Samaha KennedyCraig SandersKathy SanzoDonna SawyerAmy ScaliciJeffrey SchanzRichard SchifterPeter Schmidt-FellnerMichael SchoenerGary SchwabEdward SchwartzJan SchwartzJohn SciallyJack SelbyThomas SelmanLucinda SettleJohn ShaneDon ShawShilpa ShikarpuriDaniel ShraderMark SilvermanAnnie SimmsGregg SimonMark Simon and Penelope BellamySharan SinghAlec SirkenLynn SlaterDaphne SmitCurtis SmithLori SollersGireesh SonnadAshley SparkmanBarbara SpeerDorenda SpragueMichael StanleyNancy StearnsRichard SteppicJean SternMargo StolfiTracy StollThomas SummervilleFrank SurfaceThomas SweeneyJanie SweenyJeffrey SwiggettAmy SylvetskyKelly TagueBascom TalleyKaren TalmadgeKai TanIngrid TauberVirginia TavillaRichard TellerDavid Tesar



Blake ThomasDan ThomassonJen TibbilsLang TibbilsElaine TicknorBeatrix TirkanitsCarol ToneyAnthony TorsielloDavid TownshendRay & Nancy TreigerAlexander TrembiskiCorine TrujilloFranklin TsungPaul TurnerMary Lynn TwenteyTom UmhoeferJean UmsteadFrelan Underwood

Thomas VallelySue VanLisa Van ErtFrank Van VeenendaalLee VenturinoShawn Verbout and Joan O’BrienRandolph VerzilloCurt ViebranzBill & Drusilla VodraBarbara WadeJohn WalkerKevin WalshStacy WaltersJoan WatsonChuck WattersMarcus WattsMark WeitzelDavid Welch

JerMara WelchJudith WellsEric WengerGary WengerterDavid WestAmy WhiteCara WhitehillSarah WhitlockRyan WickstrandCheryl WolcottKelly & Edward Woods IVJohn YasalonisDon YoungDavid ZallieNatalia ZuazoCynthia Zuniga

ORGANIZATIONS


David Cook Luncheon 2013Estate of Dr. Harriet CharacterFirst Annual TEAM DINO Spaghetti DinnerFrito-LayHansen FoundationHewitt-Trussville Middle SchoolHoag Memorial Hospital PresbyterianIBM Employee Services CenterJBG Properties HouseholdJoan and Sanford I. Weill Medical College of Cornell UniversityJoel H. Levitt Memorial Charitable FundJohns Hopkins MedicineJohnson & Johnson Matching Gifts ProgramKatten Muchin Rosenman, LLPKings Care FoundationLiberty Property TrustLiner, Grode, Stein, Yankelevitz, Sunshine, Regenstreif, & Taylor, LLPMadison Asset Management, LLCMarin Community FoundationMarshall & SterlingMaximus FoundationMedical Research CharitiesMorgan Stanley GoldMorgan, Lewis & Bockius LLPNeidorf Family FoundationNeighbor To NationNeurological Surgery, PCNJR Energy ServicesNoblisNovocureOregon Health & Science UniversityPaul F. and Mary Anne McLaughlin Family FoundationPerformance-Based.comPerl Nelson Family Foundation Inc.Pfizer Foundation Matching Gifts ProgramPotomac Insurance, Inc.Rockwood Capital CorpSalesforce.com FoundationSusquehanna International Group, LLPThe Anne And Ronald Abramson Family FoundationThe Katz Family FoundationThe Laroche Family Charitable FundThe Simon Strauss FoundationU.S. TrustU.S. Trust Newport BeachUniversity Of California, IrvineViropharma IncorporatedVocus Inc.Wolf Family Charitable TrustYK Foundation

$2,500 - $4,99916W Marketing, LLCAbramson Family Foundation Inc.American Express Charitable FundApex Home Loans, Inc.Arkin Youngentob Associates, LLC

AY Northern California, Ltd.Balfour Beatty Construction HouseholdBank Of AmericaBath Saver, Inc.Berenbaum Weinshienk PCBESI Inc.Cascades Tissue Group-Sales, Inc.Catherine V. & Martin W. Hofmann FoundationCharleston’s Omaha Inc.Clark Construction Group, LLCCoach Matching Gift FundCommonwealth Asset ManagementCreekside Cancer Care LLCDutch, LLCFederal Capital Partners Fund Manager LLCFore! Reservations Inc.Ginny And Maurice Feldman Family Foundation, Inc.Halliburton CompanyHart Family FoundationHerr Foods Inc.Honolulu Freight ServiceJasper’s Big Dog SaloonManager’s Investment GroupMcDonnell Investment Management, LLCMerck Employee Giving CampaignMicrosoftNorthwest BiotherapeuticsO’Melveny & Myers LLPP. Tavilla Co., Inc.Queens Ballpark Company LLCRocky Mountain Gamma Knife Center, LLCSellers Publishing, Inc.StarbucksSurrey InteriorsThe Chris & Melody Malachowsky Family FoundationThe Community Foundation for Northern VirginiaThe Hexberg Family FoundationThe Ironman FoundationThe Moody’s FoundationThe Regence Fund of The Oregon Community FoundationThe Shooshan CompanyThe Wolf-Pack FundTishman Speyer Properties, LPTomkins Corporation FoundationUmhoefer Foundation, Inc./Associated Trust CompanyVisa GivingstationWestside Estate Agency RealtorsWestwood Financial Corp.Windsor Foods

$1,000 - $2,499Albert’s Organic’sAmerican Endowment FoundationAON FoundationAppoquinimink High SchoolAronson & Company


$100,000 + Genentech, Inc.The Estate of Christine HowardThe Stringer Foundation

$50,000 - $99,999 Brain Tumor Foundation of CanadaCassidy Turley Washington, LLCClear Channel Broadcasting Inc.MLM International Corp.Students Supporting Brain Tumor Research

$25,000 - $49,999 City National BankClear Channel OutdoorHamill Family Charitable FundLamb Family FoundationStephen C. And Ellen J. Conley Family FundTimeless Entertainment LLC, The State TheatreVionic

$10,000 - $24,999 A & J TrustActive NetworkBeacon Capital Partners, LLCBernstein Management CorporationBlue Mash Country ClubCooper University Health CareEpic Systems CorporationFirst Potomac Realty Investment LPFood For LessGeico Philanthropic FoundationKatten Muchin Rosenman Foundation, Inc.Lennox Family Fund

Lymphoma Research FoundationMedical Research Agencies Of AmericaMichael Cassidy Memorial FundNBC10Penn MedicinePerry, Neidorf & Grassl, LLPRobert Lloyd Corkin Charitable FoundationStanford Hospital And ClinicsThe Amy Marie Crabtree Foundation - Christina CrabtreeThe Case FoundationThe Gregg Family FoundationThe Kroger Co. FoundationThe Mary Kline Classic Inc.The Rainwater Charitable FoundationThe William J. Shaw Family Foundation Inc.Thomas Jefferson UniversityUnited Plankton Charitable TrustUnited Way of Central Maryland, Inc.

$5,000 - $9,999Amazing Counselors Conquering CancerAmerican Consumer Credit Counseling Inc.Annette M. and Theodore N. Lerner Family Foundation, Inc.Arnold & Porter LLPBarclays Bank DelawareBaylor Health Care System HouseholdBNY Mellon Community PartnershipCelgene CorporationCelldex TherapeuticsChevron HumanKind Matching Gift ProgramClark Charitable Foundation, Inc.Coventry Health Care, Inc.Crowell and Moring


Association of American RailroadsBank of America United Way CampaignBessinger Pickle Company Inc.BJ’s Restaurants Foundation, Inc.Blue Cross Blue Shield of MassachusettsBoseBoston Foundation Inc. - Joyce FriedmanBottomline TechnologiesBracewell and Giuliani, LLPBrown Advisory Charitable Foundation, Inc.Bruce G. Von Barkhausen EstateCandle ProjectCareOregon Inc.Carolina Business Interiors - CBICastanea Partners, Inc.CDM SmithCGC Financial ServicesCharles R. Wood FoundationCheck Point SoftwareCheiron Inc.Chez NicoleChildren’s Doctor P.C.Christiana Care Health ServicesChristiana Rotary Club FoundationCNU Pre-Med ScholarsCora and Murray Simpson Family Fund, Inc.CoStar Realty InformationCove Risk Services, LLCCriswell MaseratiCrozer-Keystone Health SystemDana Corman FoundationDarel & Janine Hodgson Family FoundationDouglas Development Corp.E Street Investments, LLCEarth Care Plus, Inc.Eaton Vance ManagementEdward H. Kaplan Revocable TrustEllen J. Gleberman Family FundEngo Co.Ernst & YoungESA International LLCExpedia GivesFalvey Steel Castings, Inc.Federal Criminal Investigators AssociationFirst Eagle Investment Management FoundationFM Global FoundationFoundation for Neuroscience, Stroke and RecoveryFreeman Freeman And Smiley LLPFriends of Tara and the BrainsGarnick Moore PhotographersGeneral Dynamics C4 SystemsGlobal Response CorporationGoldman, Sachs & Co. Matching Gift ProgramGolf Car Specialties, LLCGood Times Burgers and Frozen CustardGoogle Matching Gifts ProgramGovernment Printing Office Federal Credit Union

Grandstand Sports and Memorabilia, Inc.Great American Insurance GroupGrimshaw Gudewicz Charitable FoundationGuam Freight Services Inc.HighmarkHint WaterHolman Automotive Group, Inc.Homer Skelton Charitable FoundationHoughton Mifflin Matching Gift ProgramHP FoundationInvestment Management Consultants AssociationInVision CommunicationsJ. Frank Schmidt Family Charitable FoundationJames & Theodore Pedas Family FoundationJim McLaughlins Lynnway Truck Center, Inc.John F. Gerner, Inc.John Muir Neurosciences InstituteJP Morgan Chase FoundationJust BagelsKeene State College Women’s Lacrosse TeamLarabarLegal Search, Inc.Lehigh HansonLogistics Management InstituteLoss SolutionsLou Pizzo, LLCM&T Charitable FoundationMarlette Family FoundationMay Financial SolutionsMcGladrey LLPMcLea’s Tire and Automotive ServiceMercedes-Benz USA, LLCMethodist Brain and Spine InstituteMetro Metal Recycling, LLCMichael Baker Corporation FoundationMicrosoft Matching Gifts ProgramMorris Township Fraternal Order of PoliceNew Jersey State Police Female TroopersNiSource Charitable FoundationNYU Langone Medical CenterOB/GYN Associates of Bergen Co.OC Generations VOktoberfest For HopeOlesky Family FoundationOrange County Community Foundation - Shyamal & Anita PatelPark Piedmont Advisors LLCParkin Family FundPat’s PizzeriaPhiladelphia PhilliesPotomac Eye SurgeonsPrecious Metal Refining Services, Inc.RainierReliable Churchill LLLPRenaissance Investment ManagementRichard H Holzer Memorial FoundationRing’s EndRobert Wood Photography


RollgivingRollout For Charity Handball TournamentRoman Catholic Archbishop of BostonRosebud Suffolk Farms Inc. Community - Suffolk Inc.Rudolph And Hilda Forchheimer FoundationSamuel and Nathlyn Larner Family FoundationSaxon’s Diamond Centers, Inc.Scaffold Resource LLCSchwab-Silfen FoundationShark River Beach & Yacht ClubSherman H. Starr FoundationSmart & Final Charitable FoundationSnell & Wilmer LLPSomerset Aerie F.O.E. 2137Storm Castle Foundation - Julia & Jim DavidsonSwavelle/Mill Creek Fabrics, Inc.T.C.G.Teva Pharmaceuticals USA Inc.TGF Management Group Holdco Inc.The Albany AcademiesThe Blum Family FundThe Bowers FoundationThe Carroll Obremskey Charitable FundThe Clark Family FoundationThe Eric K. Torvi Foundation, IncThe Goldstein Family FoundationThe Graphic Source Chris & Lori LopinThe Grossman Family FoundationThe Haggerty Family Foundation Inc.The Halcyon FoundationThe Hallock Family Charitable FundThe HartfordThe Lawrence And Carol Saper Foundation Inc.The Lenkin Company ManagementThe Prone TrustThe Reebok FoundationThe Sather Foundation Inc.The Sidney and Beatrice Albert Foundation

The Thomas Rosato FoundationThe United States Probation OfficeThe Varitz Foundation Inc.The Zeller Corporation FoundationThomasson, Thomasson, Long & Guthrie, PCTomhannock Bicycles, LLCTrio FoundationTruistTurkey HillU.S. Aluminum Company, Inc.U.S. Investment CorporationUBS Matching Gift ProgramUhlmans Ice CreamUnited Way California Capital RegionUnited Way of DelawareUnited Way of Greater PA and Southern NJUniversity of California, Los AngelesUniversity of California, San Francisco Medical CenterUniversity of Pittsburgh Medical CenterVerizon FoundationWalton Street Capital, LLCWell Baby Center FoundationWesley Auto Recovery, Inc.Woodmen Valley Sertoma ClubWoodruff Sawyer & CompanyXerox CorporationYasso Frozen Greek YorgurtZBI Employee Allocated Gift FundZeldin Family FoundationZenith Information Systems Inc.

Every effort has been made to ensure the accuracy of our donors’ names. We regret any errors or omissions, and we invite you to call the Development Office at 617.391.6541 with any corrections or concerns. Thank you.



Thank you to our Flagship, Gold, Silver, Bronze, and Underwriting sponsors for all our 2014 events.

!

THANK YOU TO OUR GENEROUS SPONSORS

Bath Saver Inc. • Bayhealth

Brigham & Women’s Hospital Department of Neurosurgery

Cambia Health Solutions and Regence

BlueCross BlueShield of Massachusetts • BlueShield of Oregon

CareOregon • Children’s Doctor • Christiana Care Helen F. Graham

Cancer Center and Research Insititute • Christiana Rotary

Energy Fitness & Gymnastics • FactSet Research Systems • Highmark

Blue Cross Blue Shield Delaware Hofstra University

Hospice of the Valley • ImmunoGen • Lomustine (CCNU) by NextSource

Biotechnology • Lumosity Millennium: The Takeda Oncology Company

Monteris Medical • Organization Learning Group

Santora CPA Group • Sports Authority

THANK YOU TO OUR GENEROUS SPONSORS

National Brain Tumor Society

National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.

We have a rigorous and thoughtful agenda, integrating research and public policy to bridge critical gaps. Starting with discovery science, to clinical trial design and the development of new therapies, there are many opportunities to make improvements and speed the momentum of new findings.

It’s time to build on progress and transform tomorrow, today.

55 Chapel Street, Suite 200, Newton, MA 02458617 924 9997 | www.braintumor.org

Jeffrey Kolodin, Chairman Emeritus Kristen Campana, Esq.

Michael DurbinJohn Frishkopf

Richard Genderson Ken Grey

Sheila Killeen Chandri Navarro, Esq.

Susan Pannullo, MD

Alison Ross, Esq.Stephen T. Sadler, JD Rabbi Eric B. Wisnia

Honorary Board MembersG. Bonnie Feldman Steve KarolScott Memmott, Esq. Charles B. Wilson, MD

2013-2014 Board of Directors

Michael Nathanson, JD, LLM, ChairmanCord Schlobohm, DMD, Vice Chairman

Michael Corkin, TreasurerSarah Durham, Clerk

Board Members

For those of you who may be tweeting from the Summit, we encourage you to mention #BrainTumorSummit so others can see what you are saying about the event!

Join our NBTS Community:

national brain tumor society 2014 summit

Documents