my presentation - - keystone human services€¦ · my empower us fellowship •through my work...
TRANSCRIPT
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MY PRESENTATION JAIME CRUZ JUSCAMAITA
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• My name is
Jaime Cruz Juscamaita
• I´m 24 years old and I come from Perú
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• I live with my parents, my sister and my dog, Mia.
• I’m an actor
• I like sports, I swim, surf and go to the gym.
• I am also a self-advocate
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What is self-advocacy?
Self-advocacy is when a person with an intellectual disability speaks up and advocates for themselves and
for others. A self-advocate works on making their community a
more inclusive place.
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My experience as a self-advocate • My first experience as a self-advocate
was when the Peruvian Down Syndrome Society invited me to talk about the right to have an Inclusive Education.
• I was invited because I had an inclusive education, I also had experience of working with the Secretary of Education in Peru
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• As I was starting to learn more about self-advocacy my support told me that I should study the UN Convention on the Rights of Persons with Disabilities (CRPD).
• This helped me to understand more about laws and the barriers that people with intellectual disabilities face.
My training to become a self-advocate
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• I also studied in Centro de Locución y Oratoria with Gina Parker.
• Gina is a reporter in Peru who has a TV show.
• She trained me to organize my ideas and be more prepared for public talking
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• I started to participate in the self advocate group at the Peruvian Down Syndrome Society
Joining my self-advocacy group
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Some success from our self-advocacy work
• The self-advoactes from our group have had many successes.
• In 2018 MARÍA ALEJANDRA VILLANUEVA received the right to vote for 24,000 persons with disabilities.
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• SANDRA CELIS sued an insurance company after they denied her the same health insurance that they gave to her siblings
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• As a self advocate, a topic that is important to me is the Right for inclusive education
• I work on building awareness about this right and training teachers, directors, families and students.
My work on inclusive education
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• We often work with the media in Peru
Our self-advocacy work and the media
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• In fact last Friday and yesterday there were segments about me on 2 Peruvian news shows!
• They were sharing my work at the UN.
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Our work on the Sustainable Development Goals
• Another important piece of work we have done has been creating an Easy to Read version of the UN Sustainable Development Goals (SDGs).
• These are goals that all countries are working on to make the world a better place.
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• The SDGs motto is ‘Leave No One behind’ this must include people with disabilities!
• Because of this it is important people with an intelectual disability know about the goals and the work our countries are doing on them
• Our guide has also been translated into English so that international self-advocates can use it!
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What is Inclusion International?
• Inclusion International is the international network of people with an intellectual disability and their families.
• My organisation SPSD and Keystone Human Services are both members of Inclusion International
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• In 2018 I traveled to Birgmingham, UK, for the Inclusion International World Congress and Global Self Advocates Summit .
• There, I found out more about international self-advoacy
The Global Self-Advocacy Summit
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What is Empower Us?
• Empower Us is one of Inclusion International’s programmes of work.
• It is the work Inclusion International do to help members develop their self-advocacy and inclusion work.
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• The Empower Us work is led by people with intellectual disabilities who are self-advocates.
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• Inclusion International´s self-advoacte representative for the Americas is Luis Gabriel Villareal from Colombia
• Luis works on Empower Us.
• He interviewed me for the Empower Us team and I was selected.
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My Empower Us fellowship
• Through my work with Inclusion international and Empower Us I was selected to become the Empower Us fellow.
• The Empower Us fellow works to support self-advocacy in their region
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• Inclusion International do a lot of work on the Convention on the Rights of Persons with Disabilities (CRPD)
• Every year governments, disabled peoples organisations and other groups come together to speak at a Conference at the UN about the Convention
• This year there were many self-advocates taking part and speaking up about the things that were important to us!
• Including 6 of my colleagues from Empower Us!
The Conference of State Parties (COSP)
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Jaime from Peru
Dianna from Moldova
Alanna from Australia
Kory from Canada
Luis Gabriel from Colombia
Robert from New Zealand
Chaica from UAE Jayne from Kenya
Tia from USA
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• I spoke at a roundtable on why being included in sports, culture and leisure is so important.
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Being included in sports, culture and leisure
• This is a very important topic for me.
• I am very active and take part in lots of different sports.
• I am also an actor
• I have built friendships with lots of different people in my community.
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• In my speech I talked about my experience and how sports, culture and leisure has impacted my life.
• I made the point that participating in separated groups is not a true opportunity for inclusion.
• Inclusion starts from school.
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• I said that seperating people from the rest is not good and does not help us be part of our community.
• I said that rights are for everyone so not one of us should be left behind!
• Speaking at the UN was a fantastic experience and I hope my speech made a difference.
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What next? Empower Us training
• Earlier today myself and Tia led Empower Us training for some Keystone self-advocates
• The Empower Us team have led this training all around the world
• The training is for self-advocates who are from Inclusion International members
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• Myself and Luis Gabriel will be leading the training in Mexico soon for Latin America self-advocates.
• I am excited to support my fellow self-advocates to build their skills and understand more about how to speak up and take action for inclusion!
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Gracias! Follow me on social media! Find my Facebook page – search Jaime Cruz Instagram – JaimitocJ (here you can also find the link to my youtube channel!)
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For more information
• Send us an email • [email protected]
• Become an Inclusion International member • www.inclusion-international.org /join
• Follow SPSD on Facebook! • https://www.facebook.com/SPsindromedown/