my child was just identified with an autism spectrum disorder: now what do i do? ten tips for...
TRANSCRIPT
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My Child Was Just Identified with an Autism Spectrum
Disorder: Now What Do I Do?
Ten Tips for Families
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1. Give yourself time to grieve
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.
2. Dream new dreams for your child
Celebrate the successes!
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Positive Profile
• Strengths
• Interests
• Needs
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Positive Profile
• Please download the handouts from the website titled
• “Positive Profile”
• “Positive Profile – Eric”
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Positive Profile1. Who is ____________?
2. What are ___________'s strengths?
3. What are ___________'s successes?
4. What are ___________'s greatest challenges?
5. What supports are needed for ___________?
6. What are our dreams for ___________?
7. Other helpful information.
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Positive Profile - Eric, Age 6 1. Who is Eric? • oldest child; Susan's brother • likes to help in the yard (digging, raking, etc.) • loves dinosaurs and trains • favorite channel is the Discovery Channel • favorite color is blue• likes to sing • likes to take pictures, like his dad. • likes to visit the library to look at books
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Positive Profile - Eric, Age 6
2. What are Eric's strengths? • is persistent in learning about things of interest • is helpful w/ routine tasks (e.g. setting the table,
feeding the dog)• very neat and organized with his DVDs• can learn a fact if it is put to music • remembers names of people • understands what is being said
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Positive Profile - Eric, Age 6
3.What are Eric's successes? • belongs to children's choir at church• voted "most helpful" by his peers • learned to ride his bike• is getting better at sharing • is very good at operating a computer • can dress himself
• is learning to read
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Positive Profile - Eric, Age 6
4.What are Eric's greatest challenges?
• can't communicate clearly
• dislikes unexpected change
• is hypersensitive to sound and touch
• is reluctant to do things on demand
• has difficulty with fine motor tasks such as handwriting
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Positive Profile - Eric, Age 6
5. What supports are needed for Eric? • opportunities to observe and learn from 'typical' children • a circle of friends for support • routines that are structured, yet flexible to allow for
increased tolerance to change • a curriculum which can be modified• use of assistive technology (i.e., computer), to expand
ability to communicate • increased opportunities to be included in community
activities
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Positive Profile - Eric, Age 6
6.What are our dreams for Eric? • have a circle of friends in his neighborhood • learn to read and write • expand his ability to communicate
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3. Create a system for organization
• Assessments• School records• Service providers• Medical records• Data collection
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Document Management System
• Please download the handouts from the website titled
• “Document Management System Table of Contents”
• “Service Providers”
• “Intervention Log”
• “Medical Appointments Log”
• “Medication Log”
• “Daily Notes”
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4. Take time for yourself, your partner, and your other children
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5. Find a local support group for parents of children with autism – and go!
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6. When someone asks to help, let them
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7. Educate yourself by reading and attending as many workshops and conferences as you can
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8. Consider applying for Medicaid Waivers •ID (Intellectual Disability) Waiver
•ED/CD (Elderly or Disabled) Waiver
•DD (Developmental Disabilities) Waiver
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Webcast
Virginia Medicaid Waivers for Individuals with Autism
Spectrum Disorder by Bradford Hulcher
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9. Set up a Special Needs Trust for your child, so future access to government benefits is not jeopardized
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10. Seek other forms of assistance: Your child might qualify for:
•Supplemental Security Income - www.ssa.gov
•Medicaid, Family Caregiver Grants - contact your local Department of Social Services
•Family Access to Medical Insurance Security (FAMIS) - www.famis.org
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Finally, remember YOU are the expert on your child.