2017 Annual Impact

Report

Care. Cure. Thrive.More than 28,000 U.S. children live with a brain tumor.If we put our heads together, we can save theirs.

With the launch of our new, three-year strategic plan in 2017, we refreshed our mission to “Care. Cure. Thrive.,” reflecting our commitment to support children and families throughout their brain tumor journey.

Last year, we expanded our footprint with our Georgia, California and Illinois chapters leading the way to provide greater on-the-ground support. Starting this year, we’ll unpack the results of a nationwide Community Health Needs Assessment we commissioned to guide the expansion of programs to help fill the most critical gaps identified by families and healthcare providers.

Last June, pursuing the “cure” component of our mission, we convened leaders from the research and medical community, the pharmaceutical industry, governmental agencies and patient advocacy groups to steer our future research investments, including an exciting immunotherapy initiative. Our 2017 research

projects focused on leveraging partnerships with other nonprofits dedicated to this community.

We continue to build partnerships for greater impact because we can’t achieve our vision of “A world without childhood brain tumors” alone. With your help, we’ll invest in the most promising research and support to give all kids what they deserve – a long, healthy life!

WITH DEEP GRATITUDE,

Robin Boettcher,President and CEO

190events

38states

$$5.7M

raised

HOW YOU HELPED IN 2017

27,335donors

$

11,654event participants

DEAR FRIENDS,

Doug Porter,Board Chair

FIGHTING FOR FUTURES

31

78hospital partners

A COMMITMENT TO CARE

CHAPTER SUPPORT

Georgia, California and Illinois Chapters grew their on-the-ground support, serving

more families through weekly hospital visits, care package deliveries, peer

mentoring and educational programs.

The Pediatric Brain Tumor Foundation works every day to support families in meaningful ways from the moment of diagnosis — no matter where the journey leads. With your support, we’re providing life-changing programs

and resources to more families across the country.

2,073families served

AWARD-WINNING

VIDEOS FOR KIDSPBTF and pro bono partner agency RPA launched

the Imaginary Friend Society, a series of 20 animated films providing children answers, smiles

and support after a brain tumor diagnosis.

EXPANDED SPANISH RESOURCES

Reached more Spanish-speaking families by creating an online family

profile form in Spanish and providing translators at programs. We also

hosted a Spanish-language support group and family camp.

$416,000in emergency financial

assistance provided

380free Starfolio resource notebooks distributed

to newly-diagnosed families

survivors awarded college scholarships

103

158,873video views

CURES THROUGH COLLABORATION

RESEARCH GRANTS

Duke UniversityResearch developments into a novel vaccine for recurrent medulloblastoma resulted in a new clinical trial for children and adolescents that will open this year.

The Hospital for Sick Children, Toronto, CanadaMichael Taylor, MD, PhD, FRCS(C) co-led and authored a groundbreaking study revealing new medulloblastoma subtypes. As one of the largest genomic sequencing efforts on a single type of human cancer, the results will help advancemore targeted, less toxic treatments for this highly malignant brain tumor.

Pacific Pediatric Neuro-Oncology Consortium PNOC’s PBTF-supported Operations Center at the University of California, San Francisco is essential to the consortium’s overall success, coordinating activities across all participating research centers and clinical trial protocols. In 2017, PNOC added five new research sites worldwide for a total of 18, and opened three new clinical trials.

Project:EveryChild, The Children’s Oncology GroupBecause of PBTF support, children with brain tumors are well-represented in Project:EveryChild, a biobank helping labs develop more personalized treatments for children with cancer. By funding children’s brain tumor tissue collection at 114 hospitals, the PBTF is helping to preserve today’s tissue samples for tomorrow’s breakthroughs.

Together to Care. Cure. Thrive.Our nonprofit funding partners, joining forces to care for and cure the kids!

Bryan’s Dream FoundationChristopher Brandle Joy of Life FoundationMeagan’s Walk FoundationCoverys Community Healthcare Foundation

The Kyrie Foundation Catching Up With JackKeris Kares FoundationSoar with Grace

$1.7Mspent on research& hospital support

$

Pratiti Bandopadhayay, MBBS,PhD, was named Assistant

Professor of Pediatrics at HarvardMedical School and opened a lab at Dana-Farber Cancer Institute using cutting-edge genomics to identify pediatric brain tumor drivers and

develop targeted therapies.

Marc Remke, MD, continued to seeexciting developments in using mass spectrometry to analyze

medulloblastoma proteins. Our investment has helped him obtain

additional funds for this breakthrough work, with preparations underway to release these discoveries from

translational research in 2018.

Kyle Walsh, PhD, accepteda faculty position at Duke

University, giving himthe opportunity to continue

pursuing neuro-epidemiology andusher in a better understanding

of the underlying causes ofpediatric brain tumors.

EARLY CAREER DEVELOPMENT GRANTS

35research centersengaged

2017 FINANCIALS

$

Of the funds spent, 76.1% was invested in the mission.

Source: Pediatric Brain Tumor Foundation’s Form 990 for the year ending Dec. 31, 2017

1.9% Investment Income: $109,546

98.1% Public Contributions: $5,620,898

11.8% Fundraising: $707,302

12.1% Management: $725,025

76.1% Programs: $4,553,433

$5,730,444 Revenue

$5,985,760 Expenses

Ending net assets of $1,382,804

$100,000 & GreaterAmerican Honda Motor Co.Coverys Community Healthcare FoundationGenentech FoundationVictory Automotive Group

$50,000 to $99,999Estate of Yuergen BoehmkeChristopher Brandle Joy of Life FoundationEcoMediaHardee’s RestaurantsJ. Smith Lanier & Co.

$25,000 to $49,999Bryan’s Dream FoundationDenise & David ChaseCole-Crone Family FoundationKeris KaresNielsen EnterprisesNorth Henderson High SchoolPi Kappa Alpha Fraternity - Mu Beta ChapterWintrust Financial Corp

$10,000 to $24,999A Taste of ItalyAlbertsons Companies FoundationAmWINS Brokerage of GeorgiaAngier Bike FestBatchelor FoundationStephen & Mary Birch FoundationBob’s BMWJim & Marisa BowenCarolina Comfort AirKaren & Steve ChaikinSandra ChaikinCharlotte Christian SchoolKathleen & Tony FerritoGEICO Philanthropic FoundationJason GladwellGrayson’s Gift FoundationGreat American Insurance CompanyBrenda HillLauren & Johnathon Hodges Honda Manufacturing of AlabamaHonda of America ManufacturingHoward Family FoundationScott Hudgens Family FoundationInsurance Industry Charitable Foundation-GA ChapterKaiser PermanenteLinda Tallen & David Paul Kane Educational &

Research FoundationJill & Chris KernionChris & Tahnee Kirk FoundationFanny & Svante Knistrom FoundationTom Lange CompanyMason’s Twenty-ForeRicky Morales Memorial Golf TournamentNAILBA Charitable FoundationDave OdessJohn K. & Alice O’Neill Powers FoundationRelaDyne Oil Distributing CompanyH. English and Ermine Cater Robinson FoundationRonald McDonald House Charities of

Southern California Ron SobchikSoccer for HopeTaylor Family FoundationTravelers InsuranceUNUM GroupBeth & Brady Young

$5,000 to $9,999Ace American Insurance Co.ADPAdvisors Charitable Gift FundAetnaAflac; Continental American Insurance CompanyAidan’s Miles for SmilesAllstate FoundationAmerican Legion Post 117Aileen S. Andrew FoundationAnixterMargaret M. Bloomfield Family FoundationBring A Trailer MediaBuilders Insurance GroupSean BurkeCar Show 4 Kids FundraiserCatching Up with JackCharlotte Volleyball AcademyChatlos FoundationCIGNA Health & Life Ins. CoCNA Cont Casualty CompanyCWS Team IncorporatedEdward DeBartoloJoyce & Scott DerricksonEnbridge FoundationEpicFidelity Charitable Gift FundBilly Foreman FundGeorgia Theatre Company - IIJohn GoinsHap’s Gulf Coast RidersHarbisonWalker InternationalKathy & Jerry HartHartford InsuranceGordon Hartman Family FoundationHexberg Family FoundationHonda Federal Credit UnionI.B.E.W. Local 617IBM Employee Service CenterImperial RecyclingLeAnn & Ernest JacksonWilliam R. Johnson Family FoundationGloria & Richard KernsStephanie KerrishLake CableLexisNexis Risk Solutions Liberty Mutual GroupLos Angeles Trial Lawyers’ CharitiesMorgan MartinezMcDowell Pile KingJennifer & Sean McGrathGregg MillerMaria MorabitoMungenast FoundationMungo Homes of North CarolinaNationwide Mutual Insurance CompanyNehemiah InvestmentsJames & Colleen NewmanNorth Wake CountyDoug PorterQBE FoundationMaggie & Terry SimsJulie & Jeffrey SkeltonJoseph & Fiora Stone FoundationStrategic Risk SolutionsRobert & Jamie Taylor FoundationTeammates for Kids FoundationCharles ThomasonJimmy & Billie TragleTurner’s HondaUS BankVereen Family FoundationWarren Averett CompaniesWhaleyville Animal HospitalFrances Wood Wilson Foundation

Windrock ATV Club of Oliver SpringsKaren & Jeff YeagerZenith Insurance Company

$2,500 to $4,999Aardvark TrashAccident FundAlixandra CollectionsAmerican Endowment FoundationAmerican Honda FinanceAmerican International GroupAmeritas Life InsuranceApex Friendship Patriots Athletic ClubApexone Investment PartnersArch Insurance GroupAtlanta Association of Insurance & Financial AdvisorsAnthony Avello Bank of America Charitable FoundationAndrew BaronBarter CompanyTim BielskiBig Bear Trail RidersBlue Cross Blue Shield of GeorgiaViolet Brown MemorialCharli & Dave CarterCDH ConstructionCity & County Credit UnionClub of HeartsCole Family Charitable FoundationKim & Christopher CollinsComerica BankEllie & Alan CowferC. R. Bard FoundationCRC Insurance ServicesCrystal Family FoundationGary DarkensDiverse Label PrintingPam & David EllisEnterprise Holdings FoundationEquifaxErgonEverett PowersportsFCCI Insurance GroupFreedom PayFT Cares FoundationJeff GableStephanie & Miron GurielBo HamiltonHanover InsuranceGregg HansonRobert HeilbronHeritage PropertiesHerman Miller CaresDeborah HillsHM Life Insurance CompanyHodges-MaceHonda Marysville MotorsportsHouston Area #1 HOGHSC CarriereI.B.E.W. Local 6I.B.E.W. Local 332JD’s TavernJohnson & JohnsonKristi Johnson-Seibert & Mike SeibertGeorge & Dorothy JuzdanAmy Kanyuk & Matthew BensonKretz Media HoldingsKroger CompanyL & S IBCKathy LandAudrey & Tom LangerMichael LeeEric LuJohn LumadueMAG Mutual InsuranceMEDCOM

WE COULDN’T DO IT WITHOUT YOU$

$2,500 to $4,999 (cont.) Met LifeBonnie & John MiccarelliJohn MillsMotorcycle MallJeanne & Karl MuellerMutual of Omaha Insurance CompanyNational Christian FoundationNational Christian Foundation CaliforniaNavigant Credit UnionNicolet National BankNotre Dame Cathedral LatinKarleen O’NeillHillary & Zackery PadgettPaint Breeze Credit UnionPanoz Family FoundationCathy & Edgar ParkinToni PaschallPhiladelphia Insurance CompaniesJosephine M. Pintozzi FoundationRobert PizzoniaPMA CompaniesCesare PortesProgressive Mobility & MedicalRay Price Harley-DavidsonVelvet & Rob RedaShellie & Doug RichterKathy & Chris RileyRisk Placement ServicesRyan Specialty GroupCarmela SaundersSeminetta Family FoundationSeneca Insurance CompanyShattuc Cord SpecialtiesAmy SnyderSouthern Lee Athletic Booster ClubTeladocThomson ReutersTraverse ExplorationH. William Twigg Memorial Scholarship FundTwin Cities Motorcycle EscortTwisted ScizzorsUnited States Fire Insurance CompanyValue Village/SaversJennifer & William WardGadi WeinreichWells Fargo FoundationChristina & Sam WillisWilson SchoolW.R. Berkley Corporation Charitable FoundationWonderful Giving Julie Wong Tam and Robert TamBradley Zankel Foundation

$1,000 to $2,499323 Sports550 Tavern & GrilleMichael AbbottAbsolute SportsAir Cleaning TechnologyAlamo Cycle SalesAliso DesignALR436America’s CharitiesAmerican Family Insurance: Carmen Sarack III AgencyAnchor QEABarbara & Edward ApelianApple Valley American Legion Post 1776Asset Life SettlementsAssociated Students Lakeridge High SchoolAssociation Management CenterAuto Club EnterprisesPatricia BabuinChester BainesDeborah & James BakerSue BanuelosRob BaptieLogan BarberBarham-Calhoun Memorial FundJohn & AnnMarie BartholomeoBasso & AssociatesBeth & Dean BataliKathy & Ted Bates

Cromwell BaunThomas BedardChelsea BellBend Your KneesBerkley Southeast Insurance GroupBeverage DistributersBig LotsBioNutritional Research GroupJessica BlackChuck BodermanRobin & Grant BoettcherJason BolandHolly & Eric BondusCatherine & Bill BonoBoosterYvette BowserDanielle BradfordStephanie BradfordBrandmuscleBrooklyn Baseball Co.Charles BrownOwen BuggCharles BurrageSharon BurrisTrevor BushhouseDiana CannonCardinal Gibbons High SchoolCardinal Ventures IncMary & Roland CargillCaring Foundation of Blue Cross & Blue Shield of ALCary AcademyJohn CaufieldCBH III Giving FundCenk FamilyCollins ChalmersPeg & George ChernyEllen & John CioccioLisa & James ClancyClassic BMWColaluca Family Charity FundCollege Park Cavalier Band Booster ClubColonie LuxembourgeoiseColumbia Insurance GroupCommunity BankCompass GroupKevin Cordasco FoundationElaine CoulterAlan CoxJackie & Roy CrowderJay CulbertsonCumberland ChapelsCushing & RabinovitzDanville Moose LodgeTrisha DanzeGlenn & Karen DavidsonSandie & Jay DavisKristine Deer Cheryl & Brian DehmlowMary DekernionJulie DematteoDempsey CompaniesBetty DickinsonDickinson Fleet ServicesNeoma DisneyDistribution NowTom DixonGerald A Doering Foundation Dan and Maria DodsonDonate WellAmy & Kelly DooleyRyan DornbushOrene & Archie DukeLu & Bob DumasJill DuncanEast Chapel Hill High SchoolEd Holmes & Associates Land SurveyorsEl Cajon FordElectrical Industry Advancement ProgramLoucas & Linda EleftheriEurosport AshevilleEvergreen FordExxonMobil FoundationEye Candy

Luz Farfan & Anthony BarberaLinda & Timothy FarrowDonna L Faucheux Irrev TrustFDR Honda KawasakiPaul FeehanStephen FerdinandsPamela FerrellFluid FloorsFoam SuppliesFord of KirklandFraternal Order of EaglesFrazee Carpet & InteriorsAmy FreemanFrom Maddi’s ClosetDarlene & William FuchsGadsden High School Class of 1962Sanjiv GambhirApril GardnerHeath GarmonJanice & John GarsideHenry GatesPeter GattoJ. B. GauthierGE FoundationShea & Jim GeeslinDuncan G Geisler Living TrustNorman GerasinKristi & Vito GerminarioMichele GirardiGKN FoundationGlaxoSmithKline FoundationGo RealtyCathy & Don GodenGolden State Foods FoundationScot & Sharon Gordon TrustGrange Insurance CompaniesTari GriggsMarianne & Robert GublerPam & Randy GulsethSandra GustafsonGWRRA AL-AGWRRA WA-DGWTA WA-CMarlene & Jay HallerLydia & Robert HardyCheryl & Barton HarrisJacqueline HassettHauser FamilyHenderson Harley-DavidsonHeritage Automotive GroupJoe HicksMichelle Higa FoxJayne HimmelRichard & Pat HinchleyHiway Federal Credit UnionCheryl HoffmanHOG of RaleighKimberly & Matthew HoganHolloway FoundationTia & Donald HoltHomebridge Financial ServicesHomewood Motorcycles IncHonda of PasadenaHonda R & D AmericasHonda Rides Club of Tidewater Chapter 45Charles HornerDon HorningHirair & Anna Hovnanian FoundationHuntington Beach High SchoolI.B.E.W. Local 440I.B.E.W. Local 551Bilqees IkramInfinity Children’s ServicesIntegra FoundationIronman FoundationGary IveyFrank JensonJohnson & Johnson Matching Gifts ProgramJohnson & Johnson Medical Device Business ServicesLarry & Michael Johnson Family FoundationJones & CondeBecky & Paul Jones

$1,000 to $2,499 (cont.) Jack Jones Lucas Jones Matthew JostKaplen FoundationKB HomeChristopher KempleMark KingstonKirkland PropertiesMichael Klein FoundationTim KlespiesKay & Richard KnepperJohnathon KoechleyJoseph & Helen Komarek FoundationLara & Daniel KowalskiRobert LaneLangley ConstructionLisa & Teddy LantripLAZ ParkingJoel & Elaine LazereMel LeeSherryl & John LeeEllen & Doug LeslieLevy, Ray & ShoupGregory & Jennifer LiebeLinks ManagementLisa Nickels Insurance AgencyDebra & Ralph LloydPatricia & Wilfrid LoekenUrsula & Gerd LohmannTarsis LopezSusan & Scott LordPat & Christopher LowryCaryl LumppJanet & Ronnie LunsfordPatricia Lynn-FordDebra & Mark MaiettaMajestic WolvesBetsy & Tim MaloneManassas Honda Kawasaki SuzukiSuzanne & Ketan ManibhaiShelly ManskerMarsh & McLennan CompaniesAllan MartinLisa & Jim MartinCharles & Victoria MathisEdward McCaskeyCraig McCaughanCynthia McCombsJo & Hal MeeksElena Melius FoundationMen In Black Pest Control ServicesMerrimack Valley HOG ChapterAmanda & Dave MeyersKathryn MeyersMichiana Insurance ServicesJames MillerMississippi BravesDenise Mitchell & James BurkeMoncrief Heating & AirRobert MontoyaJacqueline MooneyRobert MooreJeff MoreauMorgan StanleyMelinda MorganMotorcycle Sports Touring AssociationMullen Family “36” FoundationJeff MuraltJoe MyersDavid NanceNational Christian Foundation IndianaLawton NeaseWilliam & Dianne NegliaNetwork For GoodConnie & Michael NewmanKen NewtonTed & Donna NielsenVicki & Jerry NielsenPatricia NietrzebaRandy Nonnenberg

Ken & Yukiko NordNorth Central Texas YamahaNorthern Trust CompanyNorthwest HondaNovak Construction CompanyNovartisTimothy O’BrienPatricia & Edward OlligesKenneth OlsonStephanie OlsonOne Beacon Charitable TrustCarlos OramasOur Saviour’s Lutheran ChurchGloria & Ron PainterPatty & Gary PainterPark AdministrativeMichelle ParkerParnell HaulingPatch BrosPD Harp EnterprisesPepsi-Cola Bottling Company of Hickory NCJason & Nicole PerezPerformer’s AcademyMichael & Julia PerkinsMark PhillipsPike-Jackson FoundationJennifer PilgrimTom PitaOlivia & Jeff PollardSusan PollardToby PotterJean & Walter PotworaShelley PowellMary Lee & Jerrie PowersDoug & Kathy PoyerPreformed Line Products CompanyQuincy Credit UnionR & T Motorcycle ClubGary RabalaisRabobankSharon & Randy RainwaterSylvia RamirezReach Four MooreLiam Reda FoundationLlewelyn RentelThomas RhodesMary RingemannJohn RitchieJanis & Stanley RobertsRobert & Mary RobertsNathan & Mateo RobisonRock-N-Roll City Harley-DavidsonRandall & Susan RodehaverKathy & Durant RodrigueRoof ManagementPhyllis RothMaureen & Walter RowsonThomas RubrightMartin RyanDavid SaccoSalem United Methodist ChurchSabrina & Gordon SalisburySam Jackson EnterprisesSan Jacinto Harley-DavidsonBette SantosDori & Steve SchelhammerMarilyn SchueppertRobert SedorSelective InsuranceWilliam SelfKay & John SerratelliEllen & Bruce ShawLatria ShawJames ShockleyChad ShooterElaine & Cliff SilerJennifer & Richard SilvaSimple Man PropertySirote & PermuttSixth City SyndicateSlingshot Events IncLisa & Curtis Sloan

Michael SmithHeidi SmootNicole & Brandon SpadaroAdam SpeiranKimberly Spight-Howell & Kirk HowellSports AwardsSRA InternationalDavid StaffordStanislaus Community FoundationStarbucks Coffee CompanyState Farm Companies FoundationRandy SugiharaSweetwater Lumber & LandMatthew TanisDonez TavillaTaylor Family FoundationKathleen & Paul TaylorsonTeam PowersportsTeamsters Local Union No 456Texas Powersports of PasadenaJulie & Brad ThiemeAnthony ToellenAnn TollesonJulie & Gary TouchstoneTousley Motor SportsTractManager MediTractTraining WheelsTruistRuby & Tim TuckerTwiggs CyclesUltimate SpectacleUnited Healthcare ServicesVanguard Charitable Endowment ProgramVanguard Products GroupVEHMichael VenazioVenice Vintage Motorcycle ClubDavid VigilRichard VollenweiderJean & Frederick von HeimburgBarren WallisWalmart Community GrantsCandice & Sean WalshKathryn & John WaltersJohn WaltonStephen WardRobert WareWarwick Student Activity AccountWashington Baseball SchoolMark WeberDoley & Mike WegenerBeth & Kevin WeirWEOCWerner EnterprisesSandy & Doug WernerWeswood FoundationWexford Dance AcademyAnita & John WheelerJane WhitakerSpence WhitmanGlenn WilcoxWilliam WilkinsonWilliams Family FoundationRobert WilsonGary WoodsRobert WunderleBrigid WyszomirskiKristin & Bryant YoungRussel & Carolyn YoungZebulon Chamber of Commerce

curethekids.org

/curethekids /PBTF_events /PBTF

GET INVOLVEDRIDE FOR KIDSThe longest-running, most successful motorcycle charity event in the nation.

VS. CANCEROur newest signature fundraising campaign empowers any sports team, any athlete, any community to help kids with cancer.

STARRY NIGHT WALK & 5K RUNAn uplifting event that shines a light on the 28,000 children and teens living with brain tumors and the kids who are no longer with us.

START YOUR OWN FUNDRAISERWe’re here to help, making it easy and fun to care for and cure the kids.

LEAVE A LEGACYMaking a gift to the PBTF in your will sustains our mission to Care. Cure. Thrive. for years to come.

302 Ridgefield Ct, Asheville, NC 28806 • (800) 253-6530

Imagine a world without childhood brain tumors.

That’s the future we’re fighting for. Today’s reality is that 13 children and teens are diagnosed each day with a brain tumor, more children die of brain tumors than any other cancer, and survivors often face lifelong debilitating effects following treatment.

As the world’s leading nonprofit dedicated to children and teens with brain tumors, the Pediatric Brain Tumor Foundation’s mission is to care for families along their journey, cure every childhood brain tumor and help survivors and families thrive.

You can join the f ight for futures.

2018 PBTF National Board of Directors

Chuck BodermanJeff GelfandAJ JanowerChase JonesLarry Little

Karl MuellerDoug Porter

John RagnoniSusie Rossick

Jill Scognamiglio

Anne SuttonGadi WeinreichKurt YndestadBrady YoungKristin Young

Download a copy of this annual report: curethekids.org/impactreport

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