MonthlyUpdateJuly 2015

Serving New York City, Long Island, Westchester County, Hudson Valley, and Northern & Central New Jersey42 Broadway, Suite 1724, New York, NY 10004 • (212) 619-1400

www.ALS-NY.org • Facebook.com/ALSofGNY • Twitter - @ALSofGNY

JULY SUPPORT GROUPS

NORTHERN NJ/SADDLE BROOKThursday, July 2nd - 7 to 9 pmKessler Institute for Rehabilitation300 Market Street, Saddle Brook, NJ 07663Contacts: Debbie Schlossberg, LMSW(732) 710-8832Mary Ann Mertz, RN, (908) 552-5573Topic: An ALS Diagnosis can change the way we view ourselvesGuest Speaker: Sharon Buck, MSW, LCSW Clinical Social WorkerNext month’s support group meets: Aug. 13th.

SUFFOLK COUNTY, NYTuesday, July 7th - 6 to 8 pmStony Brook University, Dept. of Neurology179 N. Belle Meade RoadEast Setauket, NY 11733Contact: Cindy Keyser-Posner, LMSW(631) 416-2767Topic: Raising ALS Awareness -Walks and YouGuest Speaker: Kristen Cocoman,Director of Marketing andSpecial Events, ALSA- GNY.Next month’s support group meets: Aug. 4th.

HUDSON VALLEY/FISHKILL, NYTuesday, July 7th - 6:30 to 8:30 pmAmbulatory Surgery Center Bldg. C, 3rd Fl.200 Westage Business CenterFishkill, NY 12524Contacts: Helen Mayer, RN, (845) 520-0952Nancy Brenner, LCSW, (914) 406-3513Topic: Tips for Accessing the Computerand Other Assistive Technology HintsGuest Speaker: Ben Lieman, Assistive Technology Specialist, ALSA-GNYNext month’s support group meets: Aug. 4th.

NASSAU COUNTY, NYThere will be no July Support Groupdue to July 4th Holiday.North Shore LIJ - Plainview Hospital888 Old Country RoadPlainview, NY 11803(Downstairs)Contact: Cindy Keyser-Posner, LMSW(631) 416-2767Next month’s support group meets: Aug. 2nd.

WESTCHESTER, NY/WHITE PLAINSTuesday, July 14th- 6 to 8 pmBurke Rehabilitation Center785 Mamaroneck AvenueBuilding 7White Plains, NY 10601Contacts: Helen Mayer, RN (845) 520-0952Nancy Brenner, LCSW (914) 406-3513Topic: Tips for Accessing the Computerand Other Assistive Technology HintsGuest Speaker: Ben Lieman, Assistive Technology Specialist, ALSA-GNYNext month’s support group meets: Aug. 11th.

MANHATTAN, NYTuesday, July 21st - 6 to 8 pmMt. Sinai Beth Israel HospitalPhillips Ambulatory Care Center10 Union Square East(b/w 14th & 15th Sts.)New York, NY 10003Neurology Department5th Floor Conference RoomContact: Jody Wiesel, PhD, (917) 699-9751Topic: Open discussionNext month’s support group meets: Aug.18th.

CENTRAL NJ/NEW BRUNSWICK Saturday, July 18th - 1:30 to 3:30 pmRobert Wood Johnson Fitness & Wellness Ctr.100 Kirkpatrick St., New Brunswick, NJ 08901 Level 2, Community Education RoomContacts: Debbie Schlossberg, LMSW(732) 710-8832Mary Ann Mertz, RN (908) 552-5573Topic: Legal and Financial Issues affectingthe ALS CommunityGuest Speaker: Madeline Tulipani, MBA, Director of Community Education and Outreach for Hanlon, Niemann & Wright, PCNext month’s support group meets: Aug. 15th.

TELEPHONE SUPPORT GROUPSPatient group: Every Friday from 2:30 to 3:30 pmCaregivers group: Every Friday from 4 to 5 pmContact: Sue Zimmerman, LCSW(212) 720-3050.Topics include: Open discussions or Meditation and Guided Imagery for Stress Reduction

Sunday, July 19th – Team ALS will participate in the Panasonic New York City Triathlon. For questions or more information, contact Kristen Cocoman at(212) 720-3048 or cocoman@als-ny.org.

Tuesday, July 28th – Long Island Walk to Defeat ALS Kick Off. For questions or more information, contact Sarah Pattison at (212) 720-3042 or spattison@als-ny.org.

Saturday, August 1st – Hudson Valley Walk to Defeat ALS Kick Off. For questions or more information, contact Sarah Pattison at (212) 720-3042 or spattison@als-ny.org.

Upcoming EventsLong Island, NY

Saturday, Sept. 19

Hudson Valley, NYSunday, Oct. 18

2015 Walk Dates

WWW.ALSWALKS.ORG

(212) 720-3042

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Greater New York Chapter42 Broadway, Suite 1724New York, NY 10004(212) 619-1400Fax: (212) 619-7409www.als-ny.org

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by Sue Zimmerman, LCSW

In our continuing efforts to help children and teens that have a loved one with ALS, or have already lost a loved one to ALS, we wanted to let you know about some wonderful and supportive camping experiences for kids. The following organizations offer camping for kids who are directly affected by ALS or who have experienced a death and are grieving:

1. Camp HLC at Fairview Lakes YMCA in Stillwater, NJ. This weekend camp is free to children and young adults who have family members who are affected by ALS or have lost someone they love to ALS. For more information, go to the website, www.hopelovescompany.org.

2. Bob Sweeney’s Camp H.O.P.E. (in collaboration with Good Shepherd Hospice, Catholic Health Services), is a free two day camp for kids ages 5-17 who have experienced the death of an immediate family member. Children must be accompanied by one parent/legal guardian/caregiver who will participate in activities with the children. The next camp weekend will be on July 11 and July 12,2015. For information, call 631-465-6262.

3. Camp Good Grief on Staten Island is a weekend camp as well, but for grieving children and teens in general. It also is free. The camp has had experience with children of ALS families. It is held at the Jewish Community Center Manor Road Campus. The next camp weekend will be in early November 2015. Camp (Saturday-Sunday) is offered several times a year. For information and registration, see their website, campgoodgriefsi.org. You may also call 888-507-4474.

4. East End Hospice Camp Good Grief. This is a bereavement camp for children of all ages held in Southhold, NY. For details, please call 631-288-8400. There is no fee for attendance.

These camping programs offer children and teens a wide range of expressive activities, often using art, music, drama, journaling, sports and play to create positive memories and foster peer support as they cope with painful emotions -- whether they have a loved one with ALS, or are experiencing bereavement. Some of these organizations may offer support groups or counseling for kids as well. Early application is recommended. If your kids do attend any of these camps, please let us know about the experience! Please feel free to contact Sue Zimmerman, LCSW, Chapter Patient Services Coordinator at (212) 720-3050 or zimmerman@als-ny.org if you would like to discuss emotional support for you and your family.

Camps for Kids Coping with ALS

This Augustand EveryAugust UntilA Cure!

Go to www.als-ny.org for more info.