masterlab 2014 - july 2, 2014

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  • Helping Ourselves & Others We Love With Diabetes Adapted by Paul Madden Initially Developed by my Colleague, Friend, Tom Boyer, Leading Advocacy Expert, Director, State Government Affairs; NovoNordisk Advocacy
  • To share: some helpful information, define the stakeholders, raise some thoughts/questions for your discussion and consideration, if needed, inflame your passions in advocacy to benefit people living with diabetes. Thoughts About My Presentation
  • Who amongst us Knows the name of the President, the VP Knows the name of their Member of Congress and Senators Has met with their Member of Congress to further a goal Votes Writes letters or email to elected officials Or has an opinion about anything If you answered yes to any of these questions then YOU ARE AN ADVOCATE, THANK YOU! I assume you are all here because you believe there is much more that we have to do. We need more determined advocates who understand the challenges, are humble enough to develop the solutions together, and stay focused so we can all, YES ALL; Type 1, Type 2, Gestational, Type 3, Pre-Diabetes can lead healthier, more productive, happier lives! A Poll of the Room
  • Stakeholders 1: People Living with Type 1, 2, and 3 diabetes, Gestational Diabetes. Stakeholders 2: Governments, Businesses, Schools, Taxpayers (our acquaintances, our friends), etc Without being inclusive with Stakeholders 1 and 2 we will not secure the growing number of advocates needed to ensure that access to optimal health and lifes robust opportunities (no discrimination) are realized by people living with diabetes and at risk of developing diabetes. Stakeholders
  • Question; How Much Do I (YOU) Value Diabetes Health and the Health of My Country? They are connected. If you value: optimal health, for you, your loved ones, friends, co-workers, a productive country that supports its people with proper access to care the long term reduction of manageable health care costs which are shared by all. Now let me share just a glimpse of DM in the US, what has occurred to date, what works and what doesnt and how our focused efforts can build a bolder story of success for people living with diabetes for today and our many tomorrows.
  • Age-Adjusted Prevalence of Obesity and Diagnosed Diabetes Among U.S. Adults Aged 18 Years or older 1994 2000 No Data 9.0% Source: CDCs Division of Diabetes Translation. National Diabetes Surveillance System available at http://www.cdc.gov/diabetes/statistics 2010 Diabetes, a Growing Epidemic - 29 million people in the United States have diabetes, CDC 2 - estimated 86 million Americans
  • Costs of Diagnosed Diabetes $245 billion in 2012 1 in 10 health care dollars in the U.S. are spent directly on diabetes and its complications, 1 in 5 health care dollars in the U.S. goes to the care of people with diagnosed diabetes. People with diabetes who do not have health insurance: have 79% fewer physician office visits,* are prescribed 68% fewer medications than people with insurance coverage* have 55% more emergency department visits than people who have insurance* The U.S. and much of the world are in dire financial straits. Leaders must understand that balanced diabetes as well as delayed, prevented and screened earlier Type 2 diabetes increases productivity in all parts of life, improves the quality of life and significantly decreases health care costs. Money Talks.
  • Diabetes has the Largest % Increase in Cause of Death from 2010 to 2011 According to the CDC, among chronic diseases, diabetes saw the biggest increase in death rate from 2010 to 2011; rising 3.4%. In comparison, death rates from heart disease, cancer and stroke dropped. Source: Hoyert DL and Xu J. Deaths: Preliminary Data for 2011. National Vital Statistics Report. 61(6): October 10, 2012; To access the full National Vital Statistics Report, visit http://www.cdc.gov/nchs/data/nvsr/nvsr61/nvsr61_06.pdf Top 10 Causes of Death in the U.S. (% change from 2010 to 2011) Heart disease (-3%) Cancer (-2.4%) Chronic lower respiratory diseases (+1.2%) Stroke (-3.1%) Accidents or unintentional injuries (unchanged) Alzheimers disease (-2%) Diabetes (+3.4%) Influenza and pneumonia (+4%) Kidney-related diseases (-12.4%) Suicide (-0.8%)
  • Diabetes; State & Federal How are we doing? Spotty coverage of insulin pumps and continuous glucose monitoring by federal health and insurers Glucose testing strips more often limited by Medicaid, Medicare and some private insurers. Insurers telling ill informed doctors what to prescribe. 4 year delay in the CA Supreme Court hearing a discrimination case impacting school-children with diabetes >27% of the Seniors have diabetes. Insulin Pumps and CGMs not specifically covered by Medicare. Often pay for just 2 blood strips per day. (This inadequate coverage suggests that our diabetes get easier to balance as we get older?? We wish this was true. Often >more hypoglycemic unawareness, greater risk of more serious complications of hypoglycemia)
  • Diabetes Action Plan (Kentucky/Texas Model) Requires collaboration among several State Agencies to collaborate to identify goals and benchmarks while also developing individual entity plans to reduce the incidence of diabetes in Kentucky, improve diabetes care, and control complications associated with diabetes. Recent Challenges that became wins: Diabetes Special School, Sharps containers Best Practice: Pass Targeted Legislation Other Diabetes Legislation: Safety for Students with Diabetes (Georgia Model) With parental consent, grants students the autonomy to self-manage and self-treat their diabetes AND trains school personnel in diabetes care. Covered Diabetes Benefits for State Medicaid Recipients Recommended covered benefits include: Mandatory screening for gestational diabetes, participation in NIH, evidence-based Diabetes Prevention Program For the first time state agencies are talking about how we can collectively tackle the diabetes epidemic in Kentucky. - Dr. Steve Davis, Director, KY Department of Public Health
  • Corporate Commitment to Access = Social Responsibility, Selling Products/Services AND YES We Need and Want Them to Sell Good Products! Right partnerships are the key to success
  • At this very moment, your Congressperson is thinking about A. Whether the move to defeat the previous question will succeed and defeat the rule for todays scheduled legislation. B. Todays hometown news interview C. The needs of people with diabetes D. Re-election
  • At this very moment, your Congressperson is most probably thinking about Re-election
  • About how many meetings will a Congressperson have on the average day? 23-30 meetings/day
  • If the Congressional staffer you meet is so young that you think he or she is cutting class Deal with it. Congress is run by people a large number of people. Respect and work closely with them.
  • Congressional staff love to get One concise page with local contact information (e.g. business card) attached.
  • After you meet an elected official, assume that the official visited Has forgotten that you even exist.
  • If you follow-up, youll get what you want 90% of the time. Make notes of requested information Secure business cards for follow-up conversations Do debrief as instructed Send email thank yous Reminder call/email after 30 days Outlook 90 day reminder Find other people who can support you and bring the same issue up with the legislator Short Term Follow-up Long Term Follow- up
  • In Advocacy, Remember, At the End of the Day At the end of the day governments, businesses and the general public vote mainly with their wallets in mind; what supports a better standard of life, their life opportunities, and again their wallets. The productivity advantages of balanced, earlier diagnosed, and delayed and prevented diabetes must be stressed and captured in programs. Balanced diabetes and diabetes that is prevented or significantly delayed costs society 10X to 30X less than consistently unbalanced diabetes with serious complications. Your passion, ample knowledge on diabetes advocacy, your network all woven together will make a significant difference in life outcomes for all of us. Thank you!
  • Commit to monitor for problems related to discrimination and health coverage for people with diabetes in your community, in your schools, at your business, on your daughters sports team? Commit to responding to advocacy alerts generated by reputable organizations? Commit to develop a strong Diabetes Advocacy presence in your community, in your state and/or on the Federal level? Work with other diabetes advocates with humility. How You Can Help