mandates for health literacy in medicine and education – the iom report and beyond lynn nielsen,...
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Mandates for Health Mandates for Health
Literacy in Medicine and Literacy in Medicine and
Education – Education –
the IOM Report and the IOM Report and
Beyond Beyond Lynn Nielsen, Ph.D.Lynn Nielsen, Ph.D.
Assistant Professor of Physiology & Director of ResearchAssistant Professor of Physiology & Director of Research
Lincoln Memorial University DeBusk College of Osteopathic MedicineLincoln Memorial University DeBusk College of Osteopathic Medicine
Health literacy is a shared Health literacy is a shared
function of social and individual function of social and individual
factorsfactors
Individuals’ health literacy skills Individuals’ health literacy skills
and capacities are mediated by and capacities are mediated by
their education, culture, and their education, culture, and
languagelanguage
Intervention points for Intervention points for improving health improving health
literacyliteracy
Health systemsHealth systems
Social marketingSocial marketing
Education systemsEducation systems
PartnershipsPartnerships
Critical to improved Critical to improved health literacyhealth literacy
Repeatedly mandatedRepeatedly mandated but with minimal fundingbut with minimal funding
RareRare
Obstacles to Obstacles to PartnershipPartnership
Lack of follow through on Lack of follow through on Existing science education Existing science education
standardsstandardsMandatesMandates
• Must include recommendations for fundingMust include recommendations for funding• Funding must be provided for mandates to Funding must be provided for mandates to
be carried outbe carried out
Funding of recommended Funding of recommended programsprograms
Lack of awareness across fieldsLack of awareness across fields
Fostering PartnershipsFostering Partnerships
Partnerships wantedPartnerships wanted
Adult education programsAdult education programs
Adult learners Adult learners
Health systemsHealth systems
PractitionersPractitioners
Engage Multiple FieldsEngage Multiple Fields
Health care services Health care services
should be developed in should be developed in
partnerships with the local partnerships with the local
community, organizations, community, organizations,
and institutionsand institutions
Local ResourcesLocal Resources
Health care institutionsHealth care institutions
Adult education programsAdult education programs
LibrariesLibraries
Community leadersCommunity leaders
Example PartnershipsExample Partnerships
Demonstration Demonstration ProjectsProjects
Develop CurriculaDevelop Curricula
Train the TrainerTrain the Trainer
Leadership for Community Leadership for Community Change Change Kellogg Foundation Demonstration ProjectKellogg Foundation Demonstration Project
Classroom trainingClassroom training
MentoringMentoring
NetworkingNetworking
Community-based leadersCommunity-based leaders
Local organizationsLocal organizations
Multiple sitesMultiple sites
Promote cross-Promote cross-discipline discipline relationshipsrelationships
Develop self-Develop self-continuing projectscontinuing projects
Take action on Take action on existing mandatesexisting mandates Lobbying for increased Lobbying for increased
fundingfunding
ReferencesReferences
11 Committee on Health Literacy, Board on Committee on Health Literacy, Board on
Neuroscience and Behavioral Health. Neuroscience and Behavioral Health. Health Health
Literacy: A Prescription to End Confusion.Literacy: A Prescription to End Confusion. L L
Nielsen-Bohlman, AM Panzer, DA Kindig, Eds. Nielsen-Bohlman, AM Panzer, DA Kindig, Eds.
Washington DC: National Academies Press, 2004. Washington DC: National Academies Press, 2004.
http://www.iom.edu/?id=32784http://www.iom.edu/?id=32784
4 4 Committee on the Future of Rural Health Care, Board Committee on the Future of Rural Health Care, Board
on Health Care Services. on Health Care Services. Quality Through Quality Through
Collaboration: The Future of Rural Health CareCollaboration: The Future of Rural Health Care. .
Washington DC: National Academies Press, 2005. Washington DC: National Academies Press, 2005.
http://www.iom.edu/?id=29734http://www.iom.edu/?id=29734
A selection of articles A selection of articles
relevant to health systems relevant to health systems
and adult education and adult education
partnerships to address partnerships to address
health literacyhealth literacy
Further ReadingFurther Reading
Doak LG, Doak CC, Meade CD. 1996. Strategies to improve cancer education materials. Doak LG, Doak CC, Meade CD. 1996. Strategies to improve cancer education materials. Oncology Nursing Oncology Nursing
Forum.Forum. 23(8): 1305–1312. 23(8): 1305–1312.
HHS (U.S. Department of Health and Human Services). 2000. HHS (U.S. Department of Health and Human Services). 2000. Healthy People 2010: Understanding and Healthy People 2010: Understanding and
Improving Health.Improving Health. Washington, DC: U.S. Department of Health and Human Services. [Online]. Available: Washington, DC: U.S. Department of Health and Human Services. [Online]. Available:
http://www.health.gov/healthypeoplehttp://www.health.gov/healthypeople [accessed: January 15, 2003]. [accessed: January 15, 2003].
Jacobson E, Degener S, Purcell-Gates V. 2003. Jacobson E, Degener S, Purcell-Gates V. 2003. Creating Authentic Materials for the Adult Literacy Classroom: Creating Authentic Materials for the Adult Literacy Classroom:
A Handbook for Practitioners.A Handbook for Practitioners. Cambridge, MA: World Education Inc. Cambridge, MA: World Education Inc.
Joint Committee on National Health Education Standards. 1995. Joint Committee on National Health Education Standards. 1995. National Health Education Standards: National Health Education Standards:
Achieving Health Literacy.Achieving Health Literacy. Atlanta, GA: American Cancer Society. Atlanta, GA: American Cancer Society.
Matthews TL, Sewell JC. 2002. Matthews TL, Sewell JC. 2002. State Official’s Guide to Health Literacy.State Official’s Guide to Health Literacy. Lexington, KY: The Council of State Lexington, KY: The Council of State
Governments. Governments.
Morse L. 2002. Morse L. 2002. Improving Health Literacy: An Educational Response to a Public Health Problem.Improving Health Literacy: An Educational Response to a Public Health Problem. Presentation Presentation
given at a workshop of the Institute of Medicine Committee on Health Literacy. December 11, 2002, given at a workshop of the Institute of Medicine Committee on Health Literacy. December 11, 2002,
Washington, DCWashington, DC
Murphy PW, Davis TC, Mayeaux EJ, Sentell T, Arnold C, Rebouche C. 1996. Teaching nutrition education in Murphy PW, Davis TC, Mayeaux EJ, Sentell T, Arnold C, Rebouche C. 1996. Teaching nutrition education in
adult learning centers: Linking literacy, health care, and the community. adult learning centers: Linking literacy, health care, and the community. Journal of Community Health Journal of Community Health
Nursing.Nursing. 13(3): 149–158. 13(3): 149–158.
NRC (National Research Council). 1996. NRC (National Research Council). 1996. National Science Education Standards.National Science Education Standards. Washington, DC: National Washington, DC: National
Academy Press.Academy Press.
Pateman B, Grunbaum JA, Kann L. 1999. Voices from the field—A qualitative analysis of classroom, school, Pateman B, Grunbaum JA, Kann L. 1999. Voices from the field—A qualitative analysis of classroom, school,
district, and state health education policies and programs. district, and state health education policies and programs. Journal of School Health.Journal of School Health. 69(7): 258–263. 69(7): 258–263.
Rudd RE. 2002. A maturing partnership. Rudd RE. 2002. A maturing partnership. Focus on Basics: Connecting Research and Practice.Focus on Basics: Connecting Research and Practice. 5(3). 5(3).
Rudd RE, Moeykens BA. 1999. Rudd RE, Moeykens BA. 1999. Adult educators’ perceptions of health issues and topics in adult basic Adult educators’ perceptions of health issues and topics in adult basic
education. NCSALL Report #8.education. NCSALL Report #8. Cambridge, MA: National Center for the Study of Adult Learning and Literacy. Cambridge, MA: National Center for the Study of Adult Learning and Literacy.
Members of the IOM Committee on Health LiteracyMembers of the IOM Committee on Health Literacy
Dr. Dyanne Affonso, Dr. Dyanne Affonso, Executive Administrative Specialist, Dept. of Pharmacy, University of Executive Administrative Specialist, Dept. of Pharmacy, University of
Hawaii Hilo,Hawaii Hilo, 60 Nowelo St., Ste 101, Hilo, HI 96720 60 Nowelo St., Ste 101, Hilo, HI 96720 [email protected]@hawaii.edu (808) 443-5900 (808) 443-5900
Dr. Eric Chudler, Dr. Eric Chudler, Eric H. Chudler, Director of Education and Outreach, Eric H. Chudler, Director of Education and Outreach,
University of Washington Engineered BiomaterialsUniversity of Washington Engineered Biomaterials (UWEB), (UWEB), Department of BioengineeringDepartment of Bioengineering, ,
BOX 355061, BOX 355061, University of University of WashingtonWashingtonSeattleSeattle, WA 98195-5061 , WA 98195-5061
http://faculty.washington.edu/chudler/ehc.htmlhttp://faculty.washington.edu/chudler/ehc.html (206) 616-6899 (206) 616-6899 [email protected]@u.washington.edu
Dr. Marilyn Gaston, Assistant Surgeon General of the United States, Retired, Dr. Marilyn Gaston, Assistant Surgeon General of the United States, Retired,
http://www.leadwithexperience.org/prize/finalists/gaston-porter.cfmhttp://www.leadwithexperience.org/prize/finalists/gaston-porter.cfm [email protected]@aol.com
Dr. David Kindig, Committee Chair, PDr. David Kindig, Committee Chair, Professor of Preventive Medicine and Director of the rofessor of Preventive Medicine and Director of the
Wisconsin Network for Health Policy Research, Department of Preventive Medicine, 760 Wisconsin Network for Health Policy Research, Department of Preventive Medicine, 760
WARF Building, 610 N. Walnut St., Madison, Wisconsin 53705-2397 WARF Building, 610 N. Walnut St., Madison, Wisconsin 53705-2397
http://www.medsch.wisc.edu/adminmed/faculty/dkindig.htm http://www.medsch.wisc.edu/adminmed/faculty/dkindig.htm [email protected]@facstaff.wisc.edu
(608) 263-4886(608) 263-4886
Dr. Cathy Meade, Dr. Cathy Meade, Director, Education Program, Leader, Cancer, Culture, and Literacy Director, Education Program, Leader, Cancer, Culture, and Literacy
Institute, Institute, Moffit Cancer Center, Univerity of South Florida, Moffit Cancer Center, Univerity of South Florida, H. Lee Moffitt Cancer Center & H. Lee Moffitt Cancer Center &
Research Institute, 12902 Magnolia Drive, Tampa, FL 33612 Research Institute, 12902 Magnolia Drive, Tampa, FL 33612 [email protected]@moffitt.usf.edu (813) (813)
745-6730 745-6730
Dr. Lynn Nielsen, Committee Director, Assistant Professor of Physiology & Director of Dr. Lynn Nielsen, Committee Director, Assistant Professor of Physiology & Director of
Research, DeBusk College of Osteopathic Medicine, Lincoln Memorial University, 6965 Research, DeBusk College of Osteopathic Medicine, Lincoln Memorial University, 6965
Cumberland Gap Parkway Harrogate, Tennessee 37752 Cumberland Gap Parkway Harrogate, Tennessee 37752 http://http://
www.lmunet.edu/DCOM/faculty/nielsen.htmwww.lmunet.edu/DCOM/faculty/nielsen.htm 423-869-7120 423-869-7120 [email protected]@lmunet.edu
continued next pagecontinued next page
Members of the IOM Committee on Health Literacy, continuedMembers of the IOM Committee on Health Literacy, continued
Allison Panzer, Committee Staff, University of Rochester Medical Center, Allison Panzer, Committee Staff, University of Rochester Medical Center,
[email protected][email protected]
Dr. Ruth Parker, Professor of Medicine, Dept. of General Medicine, Emory School of Med Dr. Ruth Parker, Professor of Medicine, Dept. of General Medicine, Emory School of Med http://http://
med.emory.edu/faculty/profile_bio.cfm?idmed.emory.edu/faculty/profile_bio.cfm?id=846=846 [email protected]@emory.edu (404) 778-1639 (404) 778-1639
Dr. Victoria Purcall-Gates, Dr. Victoria Purcall-Gates, Canada Research Chair in Early Childhood Literacy, Faculty of Education, Canada Research Chair in Early Childhood Literacy, Faculty of Education,
Department of Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia, Department of Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia,
Vancouver, B.C., Canada V6T 1Z4 Vancouver, B.C., Canada V6T 1Z4 http://educ.ubc.ca/faculty/vpurcell-gates/http://educ.ubc.ca/faculty/vpurcell-gates/
[email protected]@ubc.ca 604.822.0105 604.822.0105
Irv Rootman, Irv Rootman, Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W
3R4 http://web.uvic.ca/chpc/whoweare/team.htm 3R4 http://web.uvic.ca/chpc/whoweare/team.htm [email protected]@uvic.ca (250) 472-4102 (250) 472-4102 Dr. Victoria Purcall-Dr. Victoria Purcall-
Gates, Gates, Canada Research Chair in Early Childhood Literacy, Faculty of Education, Department of Canada Research Chair in Early Childhood Literacy, Faculty of Education, Department of
Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia, Vancouver, B.C., Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia, Vancouver, B.C.,
Canada V6T 1Z4 Canada V6T 1Z4 http://educ.ubc.ca/faculty/vpurcell-gates/http://educ.ubc.ca/faculty/vpurcell-gates/ [email protected]@ubc.ca 604.822.0105 604.822.0105
Irv Rootman, Irv Rootman, Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W
3R4 http://web.uvic.ca/chpc/whoweare/team.htm 3R4 http://web.uvic.ca/chpc/whoweare/team.htm [email protected]@uvic.ca (250) 472-4102 (250) 472-4102
Dr. Rima Rudd, Dr. Rima Rudd, Senior Lecturer on Society, Human Development, and Health, Senior Lecturer on Society, Human Development, and Health,
Department of Society, Human Development, and HealthDepartment of Society, Human Development, and Health, Harvard. 677 Huntington Avenue, Kresge , Harvard. 677 Huntington Avenue, Kresge
Building 7th Floor, Boston, MA 02115Building 7th Floor, Boston, MA 02115
http://www.hsph.harvard.edu/faculty/rima-rudd/index.htmlhttp://www.hsph.harvard.edu/faculty/rima-rudd/index.html [email protected]@hsph.harvard.edu 617-432-3753617-432-3753
Dr. Susan Scrimshaw, Dr. Susan Scrimshaw, President, Simmons College, 300 The Fenwaym Boston, MA 02115 President, Simmons College, 300 The Fenwaym Boston, MA 02115
http://www.simmons.edu/overview/president/index.shtml http://www.simmons.edu/overview/president/index.shtml [email protected]@simmons.edu 617-521- 617-521-
20702070
Bill Smith, Bill Smith, Senior Scientist and Director, Social Change Group, Senior Scientist and Director, Social Change Group, Academy for Educational Development, Academy for Educational Development,
1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 httphttp://www.aed.org/Experts/smithw.cfm://www.aed.org/Experts/smithw.cfm
[email protected]@aed.org 202-884-8000202-884-8000
Members of the IOM Committee on Health Literacy, continuedMembers of the IOM Committee on Health Literacy, continued
Dr. Rima Rudd, Dr. Rima Rudd, Senior Lecturer on Society, Human Development, and Health, Senior Lecturer on Society, Human Development, and Health,
Department of Society, Human Development, and Health, Harvard. 677 Huntington Department of Society, Human Development, and Health, Harvard. 677 Huntington
Avenue, Kresge Building 7th Floor, Boston, MA 02115Avenue, Kresge Building 7th Floor, Boston, MA 02115
http://www.hsph.harvard.edu/faculty/rima-rudd/index.html [email protected] http://www.hsph.harvard.edu/faculty/rima-rudd/index.html [email protected]
617-432-3753617-432-3753
Dr. Susan Scrimshaw, Dr. Susan Scrimshaw, President, Simmons College, 300 The Fenwaym Boston, MA President, Simmons College, 300 The Fenwaym Boston, MA
02115 http://www.simmons.edu/overview/president/index.shtml 02115 http://www.simmons.edu/overview/president/index.shtml
[email protected] [email protected] 617-521-2070
Bill Smith, Bill Smith, Senior Scientist and Director, Social Change Group, Senior Scientist and Director, Social Change Group, Academy for Academy for
Educational Development, Educational Development, 1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 1825 Connecticut Ave., NW, Washington, D.C. 20009-5721
http://www.aed.org/Experts/smithw.cfm [email protected] http://www.aed.org/Experts/smithw.cfm [email protected] 202-884-8000202-884-8000
Contracted Contributors to the IOM Health Literacy ReportContracted Contributors to the IOM Health Literacy Report
Dr. Terry Davis, Contributor, Dr. Terry Davis, Contributor, Professor of Medicine and Pediatrics , Director of Behavioral Professor of Medicine and Pediatrics , Director of Behavioral
Science Section, Feist-Weiller Cancer Center, LSU Health Sciences Center-Shreveport, 1501 Science Section, Feist-Weiller Cancer Center, LSU Health Sciences Center-Shreveport, 1501
Kings Highway, Shreveport, Louisiana 71130-3932 Kings Highway, Shreveport, Louisiana 71130-3932
http://www.fwcconline.org/db/doctorbio.aspx?doctorID=129http://www.fwcconline.org/db/doctorbio.aspx?doctorID=129 [email protected]@lsuhsc.edu (318) 675- (318) 675-
58135813
Dr. David Howard, Dr. David Howard, Assistant Professor, Department of Health Policy and Management, Assistant Professor, Department of Health Policy and Management,
Rollins School of Public Health Room 610, Emory University, 1518 Clifton Road NE Atlanta, GA Rollins School of Public Health Room 610, Emory University, 1518 Clifton Road NE Atlanta, GA
3032230322http://www.sph.emory.edu/~dhhowar/http://www.sph.emory.edu/~dhhowar/ [email protected]@emory.edu 404-727-3907 404-727-3907
Dr. Dean Schillinger, University of California San Francisco, Dr. Dean Schillinger, University of California San Francisco, San Francisco General Hospital, San Francisco General Hospital,
1001 Potrero Avenue, San Francisco, CA 94110, Box 1364, Bldg 10 1001 Potrero Avenue, San Francisco, CA 94110, Box 1364, Bldg 10
http://dgim.ucsf.edu/sfgh/Faculty/schillinger.htmlhttp://dgim.ucsf.edu/sfgh/Faculty/schillinger.html (415) 206-8940 [email protected](415) 206-8940 [email protected]
Barry Weiss, Contributor, Professor , Department of Family and Community Medicine, Barry Weiss, Contributor, Professor , Department of Family and Community Medicine,
University of Arizona College of Medicine, 1501 N. Campbell Avenue, PO Box 245017, University of Arizona College of Medicine, 1501 N. Campbell Avenue, PO Box 245017,
Tucson, Arizona 85724 Tucson, Arizona 85724 http://www.fcm.arizona.edu/index.cfm/1,149,320,0,html/Barry-Weisshttp://www.fcm.arizona.edu/index.cfm/1,149,320,0,html/Barry-Weiss
(520) 626-4555 (520) 626-4555