long-term survival of women with breast cancer susan brown, m.s., r.n. susan g. komen for the cure...

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LONG-TERM SURVIVAL OF WOMEN WITH BREAST CANCER Susan Brown, M.S., R.N. SUSAN G. KOMEN FOR THE CURE ®

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LONG-TERM SURVIVAL OF WOMEN WITH BREAST CANCER

Susan Brown, M.S., R.N.

SUSAN G. KOMEN FOR THE CURE®

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

OUR VISION…OUR PROMISE

A World Without Breast Cancer

To save lives and end breast cancer forever by

empowering people, ensuring quality care for all

and energizing science to find the cures.

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

FIGHTING BREAST CANCER ON ALL FRONTS

Next to the U.S. government, we are the world’s largest

source of nonprofit funds dedicated to ending breast cancer.

Local communities Innovative research on a national level

Strong public policy across all levels of

government

Global expansion

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

The Global Breast Cancer Crisis•A case of breast cancer is diagnosed every 19 seconds

OVER THE NEXT 25 YEARS

Another 41 million people worldwide are expected to be diagnosed

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

LONG –TERM SURVIVAL

1. Definition of long-term survival

2. Physical issues

3. Psychological issues

4. Young women – special issues

5. The need for follow-up – for life

6. Komen investment

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

LONG –TERM SURVIVAL

What is long-term survival?

Why talk about it now?

4 MILLION BREAST CANCER SURVIVORSWORLDWIDE

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

PHYSICAL ISSUES FOR BREAST CANCER SURVIVORS

Lymphedema

Fatigue

Bone health

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

Incidence

Risk

Recent studies

LYMPHEDEMA

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

Incidence

Risk

Research

FATIGUE

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

Incidence

Risk

Research

BONE HEALTH

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

PSYCHOLOGICAL ISSUES

Fear of recurrence

Sexuality

Depression

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

FEAR OF RECURRENCE

Ongoing surveillance

Anniversary anxiety

Communication

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

SEXUALITY

Incidence

Risk

Research

Communication

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

DEPRESSION

Incidence

Risk

Research

Communication

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

SPECIAL ISSUES FOR YOUNGER WOMEN

Fertility and Pregnancy

Early menopause

Distress

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

FOLLOW-UP - FOR LIFE

Survivorship Care Plans

Follow-up for life

“Teachable moment”

Research

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

WHAT IS KOMEN DOING?

Research Portfolio – metastatic breast cancer

Cancer Support Community – MAP registry www.breastcancerregistry.org

Copyright © 2011 by Susan G. Komen for the Cure.  All rights reserved.

In Partnership Together

To End Breast Cancer Forever