lillie’s eyes compressed
TRANSCRIPT
L illie’s EyesL illie’s Eyes
CHD AwarenessCHD AwarenessMusic by Tripp Edwards
1-100 babies are born with a congenital heart defect each year…1-100 babies are born with a congenital heart defect each year…
BornBorn October 24 at 9:34 pm…………. October 31 2006 7 days old October 24 at 9:34 pm…………. October 31 2006 7 days old
Interrupted Aortic Arch construction and VSD RepairInterrupted Aortic Arch construction and VSD Repair
Lillian Ruth Edwards
Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow.” – mary anne radmacher
Our lives forever changed by the one little Our lives forever changed by the one little heart that has led us in this journey, heart that has led us in this journey, learning the language to speak for the learning the language to speak for the broken hearts that can’tbroken hearts that can’t
• There may be no signs when the There may be no signs when the heart is in distressheart is in distress
• Cardiac Catheterization obtained. Cardiac Catheterization obtained. 70% blockage found in her Aortic 70% blockage found in her Aortic
Arch August 10, 2007Arch August 10, 2007
There are over 35 different congenital heart defectsThere are over 35 different congenital heart defects
• September 11 2007 Repair of Aortic ArchSeptember 11 2007 Repair of Aortic Arch
CHD is the #1 Birth DefectCHD is the #1 Birth Defect
Peace be unto thee
Now I raise me up from sleep,I thank the Lord who did me keep,
All through the night; and to Him prayThat He may keep me through the day.All which for Jesus' sake, I say. Amen.
~~~~~~Peace be unto thee
Oct 24 2007 1 years old
Oct 24 20082 years old
Oct 24 2009Oct 24 20093 years old3 years old
American Heart Association Heart Walk 2009Brenner’s Children's Hospital
Research and technology is our Research and technology is our future in detecting and treating future in detecting and treating
CHD.CHD.Support and become involved Support and become involved
for our children.for our children.
American Heart AssociationBrenner’s Children’s Hospital
Heart Walk 2008
AHA Heart Walk Oct 2007
Lillian Edwards IAA(intrurrupted Aortic Arch), AS(Aortic Stenosis), ASD (Atrial Septal Defect), BAV(Bicuspid Aortic Valve), and PS (Quadricuspid Pulmonary Valve) She will have a valve replacement surgery in the future. Doctors keep a close eye, with regular ECHO’s and mommy and daddy always looking and listening….and praying
Our Local Mended Little Hearts GroupOur Local Mended Little Hearts Group
• Mended Mended LittleLittle Hearts/The Tinman Club Hearts/The Tinman ClubEmail: Email: [email protected]@mendedlittlehearts.orgContact: Dawn ShriverContact: Dawn ShriverTel: 336-922-1754Tel: 336-922-1754Contact: Alicia StoutContact: Alicia StoutTel: 336-884-3483 Tel: 336-884-3483