RCITO

CORR

Le Registre Canadien des Insuffisances et des Transplantations d'organes (RCITO)

CORR: Progressive Reporting?

S. Iqbal

MUHC

RCITO

CORR

Objectives

Last Annual Report summarized Missing Data

Reasons for missing data Why aim to improve

Data collection/progressive or continuous reporting

RCITO

CORR

The Canadian Organ Replacement Register (CORR) is a national information system that records, analyzes and reports the level of activity and outcomes of vital organ transplantation and renal dialysis activities. This register provides statistics that track long-term trends for dialysis, organ failure, transplantation, organ waiting list and organ donation and makes comparative data available in order to facilitate better treatment decisions.

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CORR

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CORR

Table D9. Non-Response/Unknown Values for Key Analytical Data Elements Related Incident Dialysis Patients Registered in CORR by Year, 1993 to 2002

Data Element

% Non-Response/Unknowns

93 94 95 96 97 98 99 00 01 02

Sex0

%0

%0

%0

%0

%0

%0

%0

%0

%0

%

Race/ethnic origin6

%8

%9

%9

%13%

13%

14%

15%

7%

7%

Residential postal code

5%

7%

3%

1%

0.9

%2

%3

%2

%1

%

0.4

%

Diagnosis12%

12%

13%

14%

16%

13%

13%

12%

14%

15%

Cause of death (deceased recipients only)

17%

18%

18%

21%

22%

19%

21%

23%

22%

23%

RCITO

CORR

% Non-Response/Unknowns

93 94 95 96 97 98 99 00 01 02

Presence of other serious illness

13%

11%

16%

11%

18%

11%

10%

11%

17%

18%

Current smoker12%

10%

14%

12%

17%

11%

8%

10%

13%

14%

Coronary artery bypass/

angioplasty34%

35%

35%

31%

14%

8%

6%

8%

8%

8%

Table D9. Non-Response/Unknown Values for Key Analytical Data Elements Related Incident Dialysis Patients Registered in CORR by Year, 1993 to 2002

RCITO

CORR

Data ElementOntario

Quebec Total

Sex 0% 0% 0% 

Race/ethnic origin 11% 5% 10% 

Residential postal code 1% 0.9% 2% 

Diagnosis 11% 12% 14% 

Cause of death (deceased recipients only) 17% 19% 20%

 

Non-Response/Unknown Values for Key Analytical Data Elements Related Incident Dialysis Patients Registered

in CORR by Province of Treatment, 1993 to 2002

RCITO

CORR

Missing Data

Voluntary submission of data ‘meet the deadline’ No consequences in omitting data Lack of incentives Information difficult to locate from a

chart review

RCITO

CORR

Essential to improve

Professionalism Information from the registry is useful only if

the data is valid Important for the government to have true

information for decision-making purposes Quality assurance for centres to receive

centre-specific information in a timely fashion

RCITO

CORR

Data collection

Collection occurring at the provincial level and centre level

Not being validated regularly Best to collect the data when the

information is readily available

RCITO

CORR

Progressive/Continuous Reporting Q monthly submission of data Incorporate data collection form with the

dialysis or transplant charts Would be able to compile a report every

3 months for the centres Paper format or excel files would be

acceptable for submission

RCITO

CORR

Conclusions

PD and living renal transplants need to be revived in Quebec.

Growth of dialysis patients is slower, are we are selective in starting patients or better with transplantation or under-reporting

Should we encourage Santé Quebec to keep a registry of dialysis – to facilitate monthly reporting