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Page 1: Kimberley area profile consultation document Development...Source: Real Estate Institute of WA (REIWA) 2012 (refer to footnote 3). There are many other sources of information that

1 │Area profile for comment Januuary 2013

Area profile for comment January 2013

Map based on information provided by and with the permission of the Western Australian

Land Information Authority (Landgate), and the Australian Bureau of Statistics.

Profile—Kimberley area Consultation Document

Page 2: Kimberley area profile consultation document Development...Source: Real Estate Institute of WA (REIWA) 2012 (refer to footnote 3). There are many other sources of information that

Profile—Kimberley area

2 │Area profile for comment January 2013 (last updated 11/12/2012)

Area profile for comment January 2013

Consultation document

The Disability Services Commission’s (DSC) vision is that all people live in welcoming

communities that facilitate citizenship, friendship, mutual support and a fair go for everyone.

To achieve this, Western Australia requires a responsive disability service sector to support

people with disability, their families and carers to access more opportunities in the

community.

To meet this goal, the Commission in

partnership with key stakeholders is

creating a Sector Development Plan. Its

purpose is:

to provide further direction and

targeted developmental

opportunities across WA

to ensure the disability services

sector continues to evolve to meet

the needs, goals and preferences

of people with disability.

Fifteen profile area documents have been

created to cover all areas across WA.

They combine existing information to

create a picture of supports and services

that make up the disability sector in each

area. It provides a base of information to

be validated or challenged by

stakeholders.

Feedback will add to our understanding of each area and how well supports and services

match people’s needs. The consultation process will identify strengths and gaps in supports

provided to people with disability in each area.

Guiding strategic documents

Convention on the Rights of

Persons with Disability (United

Nations 2006)

Count Me In: Disability Future

Directions (DSC 2009)

Delivering Community Services in

Partnership Policy (Department of

Premier and Cabinet 2011)

Disability Care and Support Reports

(Productivity Commission 2011)

Disability Services Commission

Strategic Plan 2011–2015

(DSC 2011)

National Disability Agreement

(Commonwealth of Australia 2011)

National Disability Strategy

(Commonwealth of Australia 2009)

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This diagram below explains how the plan will be developed:

Have your say

We are seeking feedback from interested stakeholders and have developed a list of questions covering a number of topics for your consideration. A feedback form template has also been provided which may assist you in consolidating your comments. Should you wish to use the template provided you can either complete it electronically or print it and hand write your comments.

Forms can be returned to the Commission by email or post.

email the template to [email protected]

post the template to:

Disability Services Commission Sector Development Plan Feedback PO Box 441 WEST PERTH WA 6872

The template has been supplied as a helpful tool but it is not compulsory that you use it or answer every question to provide your feedback. Any general comments can be provided to the Commission via email or post using the details above, or they can be provided verbally or by attending a focus group.

To provide feedback another way you can:

provide verbal feedback by phoning Sector Development on 9426 9309

attend a focus group that will be hosted in local areas (these will be advertised on the www.dsc.wa.gov.au web site).

The closing date for feedback will be advertised on the www.dsc.wa.gov.au web site. If you have any questions or require further assistance, please email [email protected] or phone 9426 9309.

Phase one

Describing existing supports and services

15 profile area consultation documents

State-wide overview

Phase two

Seeking local feedback

Identifying strengths and gaps

Phase three

Planning and identifying opportunities to improve the sector

Developing solutions to address gaps

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Note about information and data

All efforts have been taken to ensure that the data contained in these profiles is as accurate

and contemporary as possible. Specific data limitations are listed throughout the profiles

and in Appendix B and users are encouraged to interpret the information with caution.

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Location The Kimberley area profile covers about 419,558 square kilometres (Australian Bureau of Statistics 2012b) and includes four local government authorities (LGAs): the Shires of Broome, Derby-West Kimberley, Halls Creek and Wyndham-East Kimberley. The region stretches from the Wolfe Creek Meteorite Crater National Park in the south to the King George River in the north and from the Eighty Mile Beach in the west to Purnululu National Park and the Northern Territory border in the east. Of the four LGAs, the Shire of Halls Creek covers the largest expanse of land covering about 32 per cent of the total area (ABS 2012b).

Demographics

According to the 2011 Census (ABS 2012b), there is an estimated 34,792 people living in

the region and about 43 per cent reside in the Shire of Broome. The Kimberley area

represents about 1.55 per cent of the West Australian population.

Table 1: Kimberley population by LGA area

Total: Kimberley profile area 34,792

Shire of Broome 14,998

Shire of Derby-West Kimberley 8,434

Shire of Halls Creek 3,560

Shire of Wyndham-East Kimberley 7,800

Source: ABS 2012b.

The age distribution across the population in the Kimberly area differs to that across

Western Australia—with significantly higher population aged from newborn to 14, from 20 to

44, while lower numbers of people are aged between 15 to 19 years-of-age and over 45

years-of-age.

According to the Survey of Disability, Ageing and Carers (SDAC) 2009, Small area

estimates, an estimated 437 (2.4%) (refer to footnote 1) of the private dwelling population

have a severe or profound core activity limitation (ABS 2012c) (refer to

footnote 2). In reality most areas do not deviate hugely from 3.1% because the numbers

are so small.

1 Figures from the SDAC are produced from samples which are then generalised to the population—the numbers are referred to as estimates and are to be used as a guide only (see Appendix B). 2 Core activities are tasks related to self-care, mobility and communication. People with severe and profound limitations sometimes or always need help and supervision with a core activity, or have difficulty understanding or being understood by family and friends (ABS 2012b) (see Appendix B).

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Population characteristics

About 14 per cent of the population in this area was born overseas, which is

significantly lower than the WA average of 31 per cent (ABS 2012b).

Across the Kimberley area 18 per cent of the population speaks a language other

than English at home (ABS 2012b). This is less than the WA average of 21 per cent.

Across the region’s LGAs the figure varies—with 48 per cent of the Halls Creek

population, 27 per cent of Derby-West Kimberley, and over nine per cent of

Wyndham-East Kimberley and Broome speaking a language other than English at

home.

People who identified as Aboriginal and Torres Strait Islander in the 2011 Census

(ABS 2012b) represent 40 per cent of the population in the area—this is significantly

higher than the figure for across WA (three per cent). This figure was higher in Halls

Creek (78 per cent) and Derby-West Kimberley (48 per cent).

For all LGAs in this profile area, about six per cent of the population provided unpaid

assistance to a person with disability (ABS 2012b). This is slightly less than the

percentage recorded for the State (ABS 2012b).

The median total household weekly incomes across the Kimberley area is variable

compared to the State figure ($1,415), and ranges from $968 in Halls Creek to $1,610 in

Broome (ABS 2012b). Residents in each LGA recorded the following median total

household incomes:

Table 2: Median total household income

State-wide median total household income $1,415

Shire of Broome $1,610

Shire of Derby-West Kimberley $1,208

Shire of Halls Creek $968

Shire of Wyndham-East Kimberley $1,547

Source: ABS 2012b.

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Table 3: Rental and housing prices

Suburb LGA Median weekly

rent (3 b/rm)

Median house

price (3 b/rm)

Broome Shire of Broome $550 $600,000

Derby Shire of Derby-West Kimberley $1,600 $545,000

Halls Creek Shire of Halls Creek $265 NA

Wyndham Shire of Wyndham-East Kimberley $400 $200,000

Perth metropolitan N/A $385 $470,000

Source: Real Estate Institute of WA (REIWA) 2012 (refer to footnote 3).

There are many other sources of information that could be considered with this area

profile document. Information about health services, local government services and

education services will enhance the context in which disability sector development is

considered. For example, Regional Development Australia (RDA) in partnership with

the Kimberley Development Commission has developed a regional plan for the

Kimberley. The plan can be accessed via rda.gov.au/my-rda/wa.

Tell us what you think

1. What other information would you like to add about the Kimberley area that is not

already contained in the profile?

3 Rent prices from October–December 2011. House prices based on sales as at 4 May 2012.

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People, families, supports and services

This section describes supports and services people with disability, families and carers

accessed in the Kimberley profile area in 2011−2012. It includes information about

networks and support groups, Commission-funded and provided services and other

community services available.

Networks and support groups

People with disability, their families and carers often get practical and moral support from

their wider family, friends, neighbours and other families of people with disability. This

support is important.

Informal and structured community groups also play a valuable role in supporting and

strengthening individuals and families. People and families are often involved within their

community in church groups, sports and recreation activities, community networks,

mothers’ groups, playgroups, self-help and peer support programs, disability-specific

support groups, cultural groups and education and counselling services.

People can access information about local support groups through other community

members, the Commission’s Local Area Coordination (LAC) or through information services

provided by Commonwealth Respite and Carelink Centres (CRCC), Carers WA or local

government authorities (LGAs).

A sample of groups and organisations providing support in the area includes (Support

Groups Association WA 2012):

Broome Community Information Resource: Offers family support information and

referral. A financial counsellor provides information and assistance with budgeting bill

paying and obtaining entitlements.

Contact: 9193 6425 Web: www.broomecircle.org.au

Marnja Jarndu Outreach Service: To help keep the women and children of Broome and

surrounding communities safe.

Postal address: PO Box 1263, Broome, WA, 6725.

Ngungar Women’s Resource Centre—Derby: Provides a meeting place for mothers, a

mobile play group in remote areas, drop-in centre, financial counselling and craft shop.

Open Monday to Friday 8am-4.30pm.

Contact: 9193 1455

Marinwarntikura Women’s Resource Centre: Assists women with advocacy information

on health issues and is a resource centre for domestic violence abuse. Liaises with

government organisations regarding housing etc. Organises community workshops for

remote areas. Open Monday to Friday 8am-4.30pm.

Contact: 9191 5284

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Wyndham Family Support Inc.—Joongari House: A resource and information support

service for all members of the community. Services include a drop-in centre, playgroup, toy

library, financial counsellor, emergency relief, craft/sewing sessions, workshops and home

visits. Open Monday to Friday 7.30am-4pm.

Contact: 9161 1383

WA Special Families: Is a state wide Facebook support group. It is accessed by invite-only

and the people able to access it must be a parent of or someone caring for, a person with

disability.

Tell us what you think

2. What other disability or community support groups are available and active in this area?

3. What other informal community support groups would the area benefit from?

People using Commission-funded and provided services

This section describes people with disability and their families who live in the Kimberley

area and used Commission-funded and provided supports and services in 2011−2012. It

reflects how the Commission defines, organises and funds services at present. It does not

provide detail about how well these services are working.

Local information and support for individuals and families

Local Area Coordination (LAC)

Many people with disability and their families access the Commission’s LAC support. LAC

works at an individual and community level to support people with disability, their families and

carers to participate, contribute and belong in their local communities. It assists people with

disability and their families’ access supports and services designed to help them exercise

choices in their daily lives. This approach helps to foster independence and the development of

skills and abilities that enables them to participate in their community and to pursue a good life.

LAC works directly with individuals and families to provide support that is personalised,

flexible and responsive. The cornerstone of the LAC role is building and maintaining

effective working relationships that help support individuals and families to pursue their

goals and meet their needs. LAC provides local support to children and adults with physical,

sensory, neurological, cognitive and/or intellectual disability who are under 65 at the time

they first apply for support.

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In 2011–2012, 200 people in the Kimberley area were registered with LAC according to the

Annual Client and Service Data Collection (ACDC) (Disability Services Commission 2012).

Of these people:

Over 43 per cent were aged between five and 19 (this is consistent with the high

numbers of young people registered with LAC across WA).

Most lived in Broome (75), followed by Derby-West Kimberley (69), Wyndham-East

Kimberley (43) and Halls Creek (13).

A number of people live in very remote communities throughout the Kimberley. To

meet with these people LACs can spend several days travelling by road or small

aircraft.

Directing supports and services—shared management

Most people with an individualised funding allocation from the Commission have their

support managed and provided by a prequalified disability sector organisation. Some

people with Community Living or Family Living manage their funding allocation through an

agreement with their LAC.

Disability service organisations are encouraged to offer shared management which enables

individuals and/or families to have directive control over matters related to their supports

and funding. Some people have their funding allocation transferred to them by the

organisation and they manage the use of these funds and acquittal in accordance with the

shared management agreement.

Where the individual and/or family elect to take on shared management, negotiation occurs

between the individual and/or family and the organisation to achieve a shared agreement.

This enables each party’s requirements, expectations and responsibilities to be clearly

established and subsequently documented in a signed shared management agreement.

Shared management gives those people who want autonomy an opportunity to have

greater control. It requires a good relationship between all parties to ensure the right

balance of support is provided.

Table 4: Organisations that offered shared management in the Kimberley area in

2012

Kimberley Individual and Family Support Association (KIFSA)

Source: DSC 2012.

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Supported living

Supported living describes a type of support provided to people with disability so they can

live in their home and community. In WA, it is resourced through individual funding

allocated by the Commission. This funding is applied for by the individual (or their family)

and is allocated on the basis of priority of need, through the Combined Application Process

(CAP), or allocated based on need and planning through the Community Living Program.

Increasingly, this support is provided in ways that allow people greater choice and flexibility.

In 2011−12, around 23 people in the Kimberley area had a Commission allocated

individualised funding package and were supported in shared supported accommodation or

an individualised accommodation arrangement (DSC 2012).

Shared supported accommodation

In 2011−12, less than five people in the Kimberley area had an individualised funding

package for accommodation support (DSC 2012). Life Without Barriers are the only shared

supported accommodation provider operating in the Kimberley area.

Individualised community living (ICL)

In the Kimberley area in 2011−12, 17 people had an individualised funding package for

accommodation support and utilised individual community living support and services (DSC

2012). Most of these people live in Broome (12).

Life Without Barriers are providing most of the individualised community living support in

this area.

Less than five people in this area have a community living package.

Support to pursue meaningful occupation/lifestyle

This section describes services and supports available for people to pursue meaningful

occupation and an active lifestyle. These services tend to be referred to as social

participation, alternatives to employment or post-school options and recreation.

Post School Options (PSO) and Alternatives to Employment (ATE) are Commission funded

programs intended to support people to pursue meaningful activities during their week. Both

programs involve the application and allocation of individualised funding packages to

individuals. The PSO program is for individuals of school-leaving age and allocated based

on eligibility and support needs. ATE funding can be accessed by adults with disability

through the Combined Application Process and is based on eligibility, support needs and

priority of need.

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In the Kimberley area, 31 people received an ATE or PSO allocation in 2011−2012

(DSC 2012):

Most people lived in Derby-West Kimberley (15), followed by Broome (11).

There are two Commission prequalified organisations working with people with ATE

and PSO funding allocations in the Kimberley area—Kimberley Individual and Family

Support Association provided the majority of ATE and PSO support.

Recreation

Eligible people with disability may access support to pursue recreational activities.

The Commission contracts and funds organisations to provide recreation support.

People contact organisations to find out about eligibility and access to services.

In 2011–2012, 26 people in the Kimberley area used recreation support services

(DSC 2012):

Most people who accessed these services lived in Broome (23).

The Kimberley Individual and Family Support Association was the recreation service

used by the largest number of people in the Kimberley region.

Support to families

This section describes services and supports for families when additional support is

required. These supports and services aim to improve family wellbeing. In some cases,

these supports and services are individually funded such as through the Family Living

Initiative (FLI) or Intensive Family Support (IFS). In other cases, service organisations are

funded directly (block-funded) to provide support to eligible people, such as with respite

services. The FLI is a relatively new strategy to support families. It has a strong emphasis on

planning. Families can apply for an individualised funding allocation based on a plan that

complements informal supports provided by families, carers, friends and the wider

community.

When families are under stress or at risk of breakdown people with disability can apply for

IFS funding through the Commission’s Combined Application Process. Funding is allocated

to people who have been given the highest priority by an independent panel and is

allocated specifically to the person with disability.

In the Kimberley area in 2011–2012:

Less than five people and their families received Intensive Family Support funding

(DSC 2012)

No people in the area have a plan and funding package through the Commission’s

Family Living Initiative (DSC 2012).

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Breaks for families and carers

To give themselves a break, families and carers can sometimes access services from

Commission-funded disability sector organisations (often called respite or family support

services). The Commonwealth also funds respite services.

Respite programs are generally block-funded (direct contract and funding to organisations)

with individuals and families applying for respite opportunities that are allocated based on

need and vacancies.

These services can be provided in the person’s home and/or community (also known as

flexible or non-residential respite) or in respite houses (also known as out-of-home or

residential respite). Many organisations offer places in school holiday programs.

Access to family support services by a person and their family will vary depending on their

relative need, type of respite accessed and availability of services. It is important to note

Commonwealth Respite and Care Link can provide families with information about

organisations that provide respite in their area. It can also fund short-term or one-off

respite through Commonwealth Department of Health and Ageing funding.

Local Area Coordinators can also help families have a break or access supports. Nine

people received some form of family support package funded through the Commission and

managed through LAC.

In 2011–2012, 74 people in the Kimberley profile area accessed Commission-funded

respite support through prequalified organisations (DSC 2012).

Support to optimise independence and wellbeing

Disability professional services

Many people with disability access professional services, including therapy, to contribute to

their wellbeing, independence and positive relationships and to develop skills to participate

in community life.

In regional Western Australia comprehensive professional services are provided through

WA Health’s Country Health Services (WACHS). People may also pay privately for these

types of services, or, in some cases, access Commonwealth funding.

Through comprehensive services, eligible individuals can access therapies (including

speech and occupational therapy), physiotherapy and psychology support. Comprehensive

services respond flexibly to the needs and desired outcomes of individuals and their

families. Services are organised by early childhood, school age and adult intervention

services. People can access disability professional services through several means,

depending on eligibility, availability of services and relative need.

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Targeted services are single-focused, highly specified services available State-wide and

across a person’s lifespan. Services include equipment display, specialised equipment

consultancy, interventions for challenging behaviours and State-wide consultancy and

resource teams. These teams work with service providers to better support people with

highly complex needs.

Tell us what you think

4. What difference are supports and services making?

5. How well are disability-specific supports and services complementing other

community supports?

6. Can you provide details of any partnerships that are working well in this area?

7. Does the mix of services match the needs of people in this area?

8. What supports are working well in this area?

9. Are there services and supports in this area that are not achieving the best

outcomes? What kind of fine-tuning is needed?

10. Are there barriers to accessing services and supports in this area? If so, what are

they?

Other community services

Employment supports and services for people with disability

Some people with disability access employment services to support them to find and keep a

job. People choose (or are assessed and directed by Centrelink) to access Australian

Disability Enterprises (ADE) or Disability Employment Services (DES), depending on their

support requirements. Individuals may be required to undergo formal assessments such as

a job capacity assessment (by Centrelink) to determine their eligibility for support.

Australian Disability Enterprises (ADE)

ADEs (formerly Business Services) provide employment opportunities for people with

disability. These are commercial enterprises funded by the Department of Families, Housing,

Community Services and Indigenous Affairs (FaHCSIA) (Australian Government, FaHCSIA

2011). There are no ADEs operating in the Kimberley area.

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Disability Employment Services (DES)

Disability Employment Services help people with disability find and keep a job in the open

labour market. DES are funded by the Department of Education, Employment and

Workplace Relations (DEEWR) (Australian Government, DEEWR 2012).

People can access one of two DES programs, depending on their assistance needs:

Disability Management Services (DMS) and Employment Support Services (ESS). DMS

programs provide support to job-seekers with disability, injury or health conditions who do

not require long-term assistance in the workplace. ESS programs provide longer term

support in the workplace to people with disability (Australian Government, DEEWR 2012).

Detailed information about DES available to people in the Kimberley profile area can be

found at www.deewr.gov.au/Employment/Programs/DES/Pages/About.aspx.

Tell us what you think

11. What is required to support people with disability in the area to achieve their

employment aspirations?

12. What are the main three factors that assist people with disability to achieve their

employment aspirations? (list in order of importance—with one being most important).

13. What are the top three barriers to people with disability achieving their employment

aspirations? (list in order—with one being the greatest barrier).

Home and Community Care Services (HACC)

The HACC program provides basic assistance to people who are aged, frail or with

disability, supporting them to continue living independently (Australian Government 2010).

Services include nursing care, allied health care, meals, domestic assistance, personal

care, home maintenance, transport, respite, counselling, information and advocacy, social

supports and assistance with essential activities such as shopping and banking.

In the metropolitan area, individuals may apply for HACC services and be assessed for

eligibility via the Commonwealth Carelink and Respite Centre (CCRC). The HACC program

has limited resources and services are allocated according to relative needs (Australian

Government 2010). HACC is funded by the Commonwealth Department of Health and

Ageing and WA Health. The WA Government is responsible for managing and approving

HACC services. Detailed information about the number and types services provided in the

Kimberley profile area can be found at

www.health.wa.gov.au/hacc/docs/mds/HACC_Report_2010_2011.pdf

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Tell us what you think

14. What examples can you provide of Home and Community Care services working

well on the ground for people with disability in this area?

Demand for supports and services

The demand for supports and services (current and future) can be challenging to accurately

quantify. Demand from people wanting support and services continues to grow, as does new

and responsive ways of meeting demand. This includes the use of social media to provide

information and support, flexible delivery of services in the home, school or community and

locally-based solutions such as those proposed through the My Way project. While demand

grows, many people need less support over time as they gain confidence.

Over many years, demand has been quantified in relation to service programs such as the

need for more accommodation or respite services or by considering waiting lists. The

evolution of services to focus on individualised responses provides an opportunity to focus

on new ways of providing more tailored support and services. The focus on more

individualised self-directed supports aims to achieve increased quality and better use of

limited resources. In recent years, there has been a significant increase in demand for

services that allow a tailored, flexible approach. Increasingly, service organisations are

shifting their focus to offer new ways of providing support and services, such as sharing

management. It is expected demand for more tailored services will continue to increase.

Service access

The table below compares the number of people with disability using various service types

in the Kimberley area with those across WA using per 1,000 head of population. In contrast

to other programs, there is a higher rate of people registered with LAC (5.20) compared to

WA (3.88), but significantly lower for shared supported accommodation and intensive family

support, compared with numbers accessing services in other areas across WA. Shared

supported accommodation (group home) tends to be less prevalent in regional areas where

more individualised accommodation approaches are developed.

Table 5: Service coverage for Kimberley and state-wide per 1,000 head of population

People

accessing

LAC

People

accessing

shared

supported

accommod.

People

accessing

individ.

community

living

People

accessing

ATE/PSO

People

accessing

intensive

family

support

Kimberley 5.20 0.06 0.49 0.89 0.06

State-wide 3.89 0.88 0.51 1.12 0.42

Source: DSC 2012.

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Future demand

The high percentage of Aboriginal and Torres Strait Islander people represented in

the Kimberly population may indicate increasing future demand for culturally

appropriate supports and services.

Service models that provide coverage across the vast distances in the Kimberley

region and that provide support in remote areas are likely to be in demand.

Family support (including intensive family support, family living initiative and the use

of respite services funded through the Commission) are less prevalent in the

Kimberley than in other regions.

Demand is expected to increase for shared management arrangements, giving

people with individual funding packages greater control of their supports and

services.

Tell us what you think

15. Are you aware of any emerging trends where the changing needs of people with

disability in this area are not fulfilled by current services? If so, what are they?

16. What supports and services are likely to be in demand in this area into the future?

17. What types of supports and services needed by local people are not available now?

Sector development issues

This section considers any existing sector development initiatives and describes what may

be emerging needs for this profile area. Consultations will provide an opportunity to

consider sector development in more detail.

Sector development initiatives

A shared management resource has been developed by West Australia’s Individualised

Services (WAIS) and is available online at www.waindividualisedservices.org.au.

This resource will be regularly updated and WAIS have a shared management advisor

available to support organisations to develop and improve practice in shared management.

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Potential areas for sector development

When considering the potential areas for sector development it may be useful to take the

Count Me In: Disability Future Directions into account. Count Me In was developed after

many consultations with people with disability, their families and carers, through these

consultations 13 areas for development were identified. These include ways to support

people with disability to participate and contribute in all areas of life, ensuring people have

economic security, live in accessible communities, and have access to personalised

supports and services (DSC 2009, 7).

An initial review of data included in this profile area suggests the following potential areas

for sector development:

The high percentage of Aboriginal and Torres Strait Islander people represented in

the Kimberly population (ABS 2012b) may indicate increasing future demand for

culturally appropriate supports and services. This will require understanding what

models of support and/or service are preferred and viable across the Kimberley area.

Adequate support to individuals and families who prefer to undertake shared

management—demand for individuals and families to share manage services is

increasing across WA. In the Kimberley area, no organisations offer shared

management. Demand for shared management is likely to increase into the future.

Organisations and individuals may require practical assistance to undertake shared

management.

Optimising employment opportunities—sector development may be required to

ensure adequate career/employment preparation and planning and support

opportunities are developed to support the young people registered with LAC in this

area pursue meaningful lifestyles.

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Tell us what you think

18. Can you suggest any ways to improve the effectiveness of disability supports and

services in WA? If so what are they?

19. Can you identify barriers to improving the effectiveness of disability supports and

services in WA?

20. If so, what are the top three barriers? (list in order—with one being the greatest

barrier).

21. Can you suggest any opportunities for developing the disability sector in WA? If so,

what would they be? (list in order—with one being the biggest opportunity).

22. Are there any emerging issues regarding the disability services sector or emerging

issues facing people with disability, their families and carers? What do we need to

take into consideration when planning in this area?

23. To what extent do service providers have the capacity to support people with

disability, families and carers to share decision-making and management of their

supports and services where and when needed?

General comments

24. Do you have any other feedback?

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References

Australian Bureau of Statistics (ABS) 2012a, Table Builder Basic 2006, Map Builder,

CData Online, accessed 13 August 2012, www.abs.gov.au/CDataOnline .

Australian Bureau of Statistics (ABS) 2012b, Census of Population and Housing,

Basic Community Profiles, accessed 25 July 2012,

www.abs.gov.au/websitedbs/censushome.nsf/home/communityprofiles?opendocument&na

vpos=230 .

Australian Bureau of Statistics (ABS) 2012c, Survey of Disability Ageing and Carers

(SDAC) 2009, Small Area Estimates.

Australian Government, Department of Families, Housing, Community Services and

Indigenous Affairs 2011, Australian Disability Enterprises, accessed 21 June 2012,

www.australiandisabilityenterprises.com.au/About.aspx .

Australian Government, Department of Education, Employment and Workplace Relations

2012, Disability Employment Services, accessed 21 June 2012,

www.deewr.gov.au/Employment/Programs/DES/Pages/About.aspx .

Australian Government, Department of Health and Ageing, Home-based care 2010, accessed

21 June 2012, www.health.gov.au/internet/main/publishing.nsf/Content/hacc-index.htm .

Australian Government, Department of Regional Australia, Local Government, Arts and

Sport (RDA) 2012, Regional Plan Kimberley 2012, accessed 27 November 2012,

www.rdakimberley.com.au/files/files/91_Regional_Plan_Review_2012_-

_October_2012.pdf.

Disability Services Commission (DSC) 2009, Count Me In: Disability Future Directions. Disability Services Commission: Perth, WA, accessed 10 December 2012, www.disability.wa.gov.au . Disability Services Commission (DSC) 2011, Annual Client and Service Data Collection (ACDC) Data Guide: Questions and Definitions. For Western Australian Service Providers 2011–2012, accessed 28 November 2012, www.disability.wa.gov.au .

Disability Services Commission (DSC) 2012, Annual Client Data Collection (ACDC)

2011–2012, Service User Data.

Real Estate Institute of Western Australia 2012, Perth Suburb Profiles, Rental price for period

October–December 2011 and house prices for period April 2011–April 2012, accessed 1

August 2012, reiwa.com.au/Research/Pages/Suburb-profile-

results.aspx?suburb_id=121&census_code=SSC51036&geogroup_id=2627&geogroup_pare

nt_id=3 .

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Support Groups Association Western Australia 2012, Connect Groups, Directory Search,

accessed 20 August 2012,

www.connectgroups.org.au/modules/directory/search.php?search_term=&location=6126&s

earch=Submit+Search .

Western Australia’s Individualised Services (WAIS) 2012, Shared Management. A guide for

Support Organisations exploring Shared Management, accessed 25 November 2012,

www.waindividualisedservices.org.au/assets/Uploads/SharedmanagementGuide-

FINAL2.pdf .

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Appendix A—Additional data

Table 6: Percentage of total state-wide population residing in the Kimberley profile

area

Kimberley total population State-wide total population Percentage of state-wide total population

34,792 2,239,170 1.55%

Source: Australian Bureau of Statistics (ABS) 2012b.

Chart 1: Population age distribution Kimberley compared to state-wide

Source: ABS 2012b.

0.00

2.00

4.00

6.00

8.00

10.00

12.00

14.00

Percentage of population

Age Ranges

Kimberley population distribution(%) State-wide population distribution(%)

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Table 7: General population and population with severe or profound core activity

limitation under 65 years-of-age in Kimberley and state-wide

Area Estimated

residential

population

Estimated

population with

severe or

profound activity

limitation

Estimated

percentage of

population with

disability

Kimberley profile

area 18,072 437 2.4%

State-wide 1,932,500 60,300 3.1%

Source: ABS 2012c.

Chart 2: Numbers of people registered with Commission’s Local Area Coordination

(LAC) in the Kimberley area by age range in 2011–2012

Age ranges 0-4 5-9 10-

14

15-

19

20-

24

25-

29

30-

34

35-

39

40-

44

45-

49

50-

54

55-

59

60-

64

65+

Kimberley

totals 8 23 36 28 14 11 14 11 11 12 12 13 6 5

Source: Disability Services Commission (DSC) 2012 (refer to Appendix B).

0

5

10

15

20

25

30

35

40

45

50

55

60

65

Number of people

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Chart 3: Number of people accessing shared supported accommodation and

individualised community living in the Kimberley area in 2011–2012

Accommodation

type

Shared supported Individualised community

living

Kimberley totals 5 17

Source: DSC 2012 (refer to Appendix B).

Table 8: Organisations used by people in the Kimberley area for shared supported

accommodation in 2011–2012

Organisation Number of people

rounded to nearest 5

Life Without Barriers 5

Source: DSC 2012 (refer to Appendix B).

0

5

10

15

20

25

30

35

40

45

50

55

60

65

Number of people

Shared Supported Individualised Community Living

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Table 9: Organisations used by people in the Kimberley area for individualised

community living in 2011–2012

Organisation Number of people

rounded to nearest 5

Life Without Barriers 10

Kimberley Individual and Family Support Association 5

LAC (self-managing) 5

Multiple Sclerosis Society 5

Source: DSC 2012 (refer to Appendix B).

Table 10: Organisations used by people in the Kimberley area for Alternatives to

Employment (ATE) and/or Post School Options (PSO) in 2011–2012

Organisation Number of people

rounded to nearest 5

Kimberley Individual and Family Support Association 25

LAC (self-managing) 5

Life Without Barriers 5

Source: DSC 2012 (refer to Appendix B and footnote 4).

Table 11: Organisations used by people in the Kimberley area for recreation in

2011–2012

Organisation Number of people

rounded to nearest 5

Kimberley Individual and Family Support Association 25

Source: DSC 2012 (refer to Appendix B and footnote 5).

4 These services may not actually be based in this area and some people may travel out of the area to a preferred service.

5 Recreation services are provided by organisations contracted directly by the Commission.

People may travel out of their local area to receive this support. Access to services is

directly through the organisations.

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Table 12: Organisations used by people in the Kimberley area for Intensive Family

Support (IFS) services in 2011–2012

Organisation Number of people

rounded to nearest 5

Kimberley Individual and Family Support Association 5

Source: DSC 2012 (refer to Appendix B).

Table 13: Organisations used by people in the Kimberley area for flexible respite in

2011–2012

Organisation

Kimberley Individual and Family Support Association

Source: DSC 2012 (refer to footnote 6).

6 It is important to note Commonwealth Respite and Care Link can provide families with

information about organisations that provide respite in their area and can also fund short-

term or one-off respite through Commonwealth Department of Health and Ageing funding.

This table only reflects Commission-funded flexible services.

Some people manage their family support funding (flexible respite) allocation, directly

through LAC.

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Table 14: Organisations used by people in the Kimberley area for Commission-

funded disability professional services (DPS) in 2011–2012

Organisation Comprehensive DPS Targeted DPS

ECI SAI AI BSI Other

Autism Association of WA

DSC - Statewide Specialist Services

Family Planning WA

Association for the Blind of Western Australia (Inc)

The Centre for Cerebral Palsy

Source: DSC 2012.

Key:

ECI Early childhood intervention BSI Behaviour specialist intervention

SAI School-aged intervention Other Equipment and other targeted services, relationships

AI Adult intervention

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Chart 4: Numbers of people accessing services per 1,000 head of population,

comparing the Kimberley area to state-wide in 2011–2012.

Registered

with LAC

Shared

supported

accommod.

Individualised

community

living

ATE/PSO IFS

Kimberley 5.20 0.06 0.49 0.89 0.06

State-wide 3.89 0.88 0.51 1.12 0.42

Source: DSC 2012 (refer to footnote 7).

7 This chart compares the number of people with disability using various service types in the Kimberley area to state-wide by using numbers of people per 1,000 head of population. LAC refers to numbers of people registered for the LAC service. Shared Supported Accommodation refers to people in group home accommodation. Other programs represent people allocated individualised funding packages receiving a service.

0.00

1.00

2.00

3.00

4.00

5.00

6.00

Number of people per 1,000 head of population

Kimberley State-wide

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Appendix B—Data quality All efforts have been taken to ensure that the data contained in these profiles is as accurate

and contemporary as possible. Specific data limitations are listed throughout the profiles

and in this appendix and users are encouraged to interpret the information with caution.

Survey of Disability Ageing and Carers (SDAC) 2009, Small Area

Estimates (Australian Bureau of Statistics 2012c)

The Australian Bureau of Statistics (ABS) conducted the Survey of Disability, Ageing and

Carers (SDAC) and have released data for local government areas. These have been

amalgamated into regions or profile areas for the Sector Development Plan which are

based on the Commission’s Local Area Coordination (LAC) areas.

Important notes about data quality:

Figures from the SDAC are produced from samples which are then generalised to the

population—the numbers are referred to as estimates and are to be used as a guide.

The small area estimates are applicable to private dwellings, with data from special

dwellings excluded from the analysis. Some groups have been excluded from SDAC 2009

and have not been reflected in the small area estimates.

For the Kimberley profile area it is possible that the prevalence of people in the following

LGAs has been under-estimated—but as the number of people in these areas is small it is

likely that any impact is minor.

Shire of Derby-West Kimberley

Shire of Halls Creek

Exclusions:

The following groups are excluded from SDAC 2009 and are therefore not reflected in the

small area estimates:

remote and very remote settled areas

members of the permanent Australian defence forces

non-Australian diplomatic personnel

members of non-Australian defence force personnel (and their dependants)

stationed in Australia.

The small area estimates are applicable to private dwellings in scope of ABS household

collections. Data for the following special dwellings has therefore been excluded from the

analysis:

hostels for the homeless and people with disabilities

night shelters

refuge

hotels and motels

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hospitals and homes, including nursing homes and retirement villages which have a

care facility onsite

religious and educational institution

institutions, including psychiatric institutions and corrective institutions

cared accommodation including residents of hospitals, nursing homes, aged care

and disability hostels and other homes such as children’s homes, who had been or

were expected to be living there for at least three months

prisons

boarding houses

indigenous communities

caravan parks and camping grounds.

Annual Client and Service Data Collection (ACDC) 2011–2012, Service

user data (Disability Services Commission 2012)

The ACDC is the Disability Services Commission’s (DSC) system of collecting and

analysing important information concerning people with disabilities and the services they

use. This information is collected on an annual basis by each service provider and is

reported to the Commission.

Organisations are requested to provide information about:

each of the service types they are funded to provide

all service users who received appropriate support over the financial year

the service type(s) the service user received.

For more detailed definitions about ACDC collection refer to Annual Client and Service Data

Collection (ACDC) Data Guide: Questions and Definitions (disability.wa.gov.au) .

Reporting exclusions:

Some service type outlets—particularly those providing advocacy or information/referral

services are not requested to provide any service user details.

Unique count:

Service use data

People recorded in ACDC as using services in this area have been reported as a unique

count, with multiple recordings of people against service types removed.

If a person lives in two profile regions during the same year they may be counted in both

locations.

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Provider data

Some people are reported as using services from multiple service providers within a service

type. In this instance multiple records have not been removed as this occurrence could

reflect personal choices in changing their provider (i.e., portability of funding).

Rounding of numbers:

In this document all recordings of service use with less than five people have been rounded

to five to prevent identification.

Service type definitions:

The Commission-funded services reported in this document relate to specific ACDC service

type classifications recorded in the ACDC. The following table outlines the various ACDC

categories that fall under the service types detailed in this document:

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Table 15: Commission-funded service types and the related ACDC reporting categories

Service type ACDC reporting categories

Alternatives to Employment and Post

School Options

Alternatives to Employment (ATE)

Post School Options (PSO)

Disability Professional Services Behaviour specialist intervention

Comprehensive adult intervention

Comprehensive early childhood

intervention

Comprehensive school aged intervention

Regional and support teams

Family support and respite Centre-based respite

Family Living Initiative (FLI)

Flexible/combination respite

Host family respite

Other respite

Own home respite

Peer support respite

Respite brokerage

Respite for carers

Individualised community living Alternative family

Attendant and personal care

Community Living Initiative (CLI)

In-home accommodation support

Intensive Family Support Intensive Family Support (IFS)

Recreation Holiday programs

Recreation

Shared supported accommodation Group homes or duplex

Hostels

Large residential institutions

Shared care arrangements

Small residential institutions

Source: DSC 2011.

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Tell us what you think Below is a list of questions that appear in this document. We welcome your feedback and

response.

Demographics and community

1. What other information would you like to add about the Kimberley area that is not

already contained in the profile?

2. What other disability or community support groups are available and active in this area?

3. What other informal community support groups would the area benefit from?

Disability supports and services

4. What difference are supports and services making?

5. How well are disability-specific supports and services complementing other

community supports?

6. Can you provide details of any partnerships that are working well in this area?

7. Does the mix of services match the needs of people in this area?

8. What supports are working well in this area?

9. Are there services and supports in this area that are not achieving the best

outcomes? What kind of fine-tuning is needed?

10. Are there barriers to accessing services and supports in this area? If so, what are

they?

Other community services

11. What is required to support people with disability in the area to achieve their

employment aspirations?

12. What are the main three factors that assist people with disability to achieve their

employment aspirations? (list in order of importance—with one being most important).

13. What are the top three barriers to people with disability achieving their employment

aspirations? (list in order—with one being the greatest barrier).

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14. What examples can you provide of Home and Community Care services working

well on the ground for people with disability in this area?

Service demand and coverage

15. Are you aware of any emerging trends where the changing needs of people with

disability in this area are not fulfilled by current services? If so, what are they?

16. What supports and services are likely to be in demand in this area into the future?

17. What types of supports and services needed by local people are not available now?

Service planning

18. Can you suggest any ways to improve the effectiveness of disability supports and

services in WA? If so what are they?

19. Can you identify barriers to improving the effectiveness of disability supports and

services in WA?

20. If so, what are the top three barriers? (list in order—with one being the greatest

barrier).

21. Can you suggest any opportunities for developing the disability sector in WA? If so,

what would they be? (list in order—with one being the biggest opportunity).

22. Are there any emerging issues regarding the disability services sector or emerging

issues facing people with disability, their families and carers? What do we need to

take into consideration when planning in this area?

23. To what extent do service providers have the capacity to support people with

disability, families and carers to share decision-making and management of their

supports and services where and when needed?

General comments

24. Do you have any other feedback?