kids georgia (kids and families impacting disease through science) child life department: june 17...
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KIDS GEORGIA(Kids and Families Impacting Disease through Science)
Child L
ife D
epar
tmen
t: Ju
ne 17
th , 201
5
KIDS is an advisory group of children, adolescents and families focused on understanding, communicating and improving the process of medical innovation for children.
KIDS is sponsored by the American Academy of Pediatrics (AAP) Section on Advances in Therapeutics and Technology (SATT) in collaboration with local AAP Chapters, children’s hospitals, local schools and other partners.
WHAT IS KIDS?
United States KIDS Current
Connecticut Kansas City Utah Ohio Georgia
KIDS In development New Jersey
KIDS Under consideration Illinois Indiana Michigan Texas Washington, DC
International Young Person’s Advisory Groups
(n=6) United Kingdom
Liverpool Birmingham London Bristol Nottingham Scotland
KidsCAN Vancouver
In development KIDS Lyon (France) Italy (Rome) Spain (Barcelona)
Under consideration Australia, Germany, Toronto
INTERNATIONAL CHILDREN’SADVISORY NETWORK
What is ICAN?
iCAN is a worldwide consortium of KIDS Teams, Young Person’s Advisory Groups
(YPAGs), and similar organizations working together to provide a voice for
children and families in pediatric medicine through synergy, communication, and
collaboration.
ICAN OBJECTIVES
KIDS MEMBERSHIP
Children ages 8 to 18 years*Past experience with a clinical trial, orExperience using hospital services, orSome knowledge of taking medicine, orInterest in medicine and/or research, orParents/guardians of such children
*Consideration given to younger Team Members
on case-by-case basis
Current Membership:>50 Members + parents60% with medical condition, 40% healthy with interest in medicine/research60% membership attendance, 80% executive boardExecutive Board and Junior Board
WHAT DO WE DO?
Learn about research that improves the health and well-being of kids
Help researchers with their projects Suggest ways that research in kids could be done
better Attend and participate in educational conferences Interact with companies and scientists studying things
that will help kids Help start other KIDS Teams in the US and in other
countries and share ideas…and lots more!
1ST KIDS GA MEETING
2ND KIDS GA MEETING
3RD & 4TH KIDS GA MEETING
Virtual Reality Lab & Engineering Lab
BME Lab, 3-D Printing Lab, & Capstone Design Expo
5TH KIDS GA MEETING
June 13th, 2015
FOR M
ORE
INFO
RMATIO
N
PLEASE CONTACTStephanie Meisner, RN, BSN, CCRPEdress Darsey, PharmDLinda Kelly, MD
[email protected]://www.kidsgeorgia.org/
THANK Y
OU TO
OUR
SUPPORT
ERS: