Parkinsons Condition Social Community Group Charity

Your local community charity like no other

June - 2018

Email Address – friends.of.parkies@gmail.com

Website Page – friendsofparkies.btck.co.uk

Text and Message – 07539866325 (Ians Personal Number)

Facebook - #friendsofparkies

community Creative Oswestry Shropshire Oswestry

Care council Rotary Club County council Town council

Keele University

Our thanks go to Constructiv Clothing Ltd for our new logo design.

Introduction and what we are about.

We are a Non-Profit,Parkinson’s condition Social Community

group Charity, of friends who either have, or care for

someone living with Parkinson’s. We started an informal

social group in April 2016 to meet, exchange and signpost

ideas and information in a relaxed atmosphere. At every

meeting, we have guest speakers from various Parkinson’s

related groups and therapists who can offer support on a

regular basis. This year will see us having social trips for

the first time.We are based in Chirk but our members are

mainly from Shropshire and North East Wales and get

together on the second Wednesday of each month, usually

between 11:00am and 1:00pm but can go on longer.

We have since become a Parkinsons Condition Social

Community Group Charity

Our meetings are held at –

Moreton Garden Centre,Chirk,on the A5

Through the main entrance. To the right of the Ground

Floor Restaurant just before the cool drinks cabinet

before the tray line Sat Nav LL14 5DG

Constitution : statement of intent“TO PROVIDE AN INFORMAL GROUP FOR PEOPLE WITH THE CONDITION KNOWN AS PARKINSON’S AND ALLIED CONDITIONS BY PROVIDING ASSISTANCE SUPPORT, SIGNPOSTING AND ADVICE TO PEOPLE WITH PARKINSON’S AND/OR THEIR FAMILIES, DEPENDANTS, FRIENDS AND CARERS AND OTHER PERSONS AFFECTED BY PARKINSON’S”

2018 Meetings Speaker/Group Jan - 10th

Feb - 14th Val Coleman – Parkinson’s Nurse

March - 14th Estyn Wellbeing

April – 11th Birthday,Corrie Davies –

Shropshire Council

May - 9th Linda Hallet,Ellie Talbot

Thai Qi

June – 13th Keele University

Dr Sue Hunter and Aseel

July – 11th Estyn Wellbeing - Mindfullness

August – 8th Am - Kit Clewley – Private Speech and

language therapist

Pm - Debbie Harris - OT

September – 12th Val McKay – Parkinson’s UK

October – 10th Amanda Roberts - Mindfullness

November – 14th Laura Kavanah-Jones – Fire Service

Vulnerable persons officer

December – 12th Christmas DINNER

We shall be having other speakers but some have not confirmed

dates

The Team

Ian 56 yrs old – Chairman & Secretary diagnosed - 6 yrs

Chris Arkwright – 62 ys old – Treasurer – diagnosed - 2 yrs

Phil – 67 ys old – Vice Chairman – diagnosed - 3 yrs

Chtis Duckett – Fund Raiser – Diagnosed – 2 yrs

Whilst the group is ultimately run by a committee it is

important that the members realize that it will not work

without their input.

It is therefore encouraged that they have their say about

how the group is being run and should either approach one

of the Team or put in writing for the next committee

meeting under “Any Other Business”

We will also be having more promotional days this year and

it would be great if some members could spare a little time

to man the tables.

Our first promotional day will be at Oswestry Library on

Monday the 5th of july in the reception area.

Our Regular Friends and Complimentary Therapists

Val Coleman – Specialist Parkinson’s Nurse

Corrie Davies – Oswestry council Community enablement

officer

Val Mckay – Parkinsons UK – Shropshire

Sarah Owen – Parkinsons uk – North wales

Sarah & Deborah - Estyn Wellbeing, Wrexham.

Therapies include massages, lymphatic drainage,

reflexology

Moreton Wyevale Garden Centre – Meeting Venue

Linda Hallett & Ellie Talbot

• Thai Chi and Chi Gong

Melody & Tracey - Your Clinic, The Plassey and Manchester

Therapies include acupuncture, massage & reflexology

Note – Lilly Sneade our resident accupuncturist is no longer

able to offer her services,we would therefore recommend

either Linda Hallett (Hanmer,New clinic building) or Mel &

Tracey (The Plassey)

March

A lot is happening in the background at the moment.We

have been given lots of contacts for obtaining donations to

enable us to do what we said we would accomplish and

include more social outings this year to places such as The

Lake district,Llandudno,Shopping outings such as Cheshire

oaks,The iron Works,Northwest Model helicopter club who

will put on a flying display of small and large model

helicopters and planes and maybe the odd lawnmower and

teradactyl,whilst putting on a barbeque for us, and any

other suggestions that members can make.. On the same

subject we where passed details by Elaine at the last

meeting for “Three Parishes BIG LOCAL” at the Qube in

oswestry who will help us with a trip on a specially modified

barge, the details of which where passed on by Shiela and

strangely enough I had personally been on before

Christmas with another party. We took a picnic and had it

at a stop on the side of the canal,a thoroughly good day was

had by all.

Ian and chris will be attending various meetings with corrie

davies and others about the group and further funding. We

have this month received a donation of £150 from Les’s

wifes ex-employer at Synthite in Mold,so a big thankyou to

Anne and Les. Whilst on the subject I would like to say

personally a big thankyou to all the members who have

donated at each get together.

During the last week of march saw lilly and mysel travelling

to Chatham Maritime Museum for a pre-booked parkinsons

physio course run by Karl Sterling from NYC,USA.

April

Well folks what a couple of months its been,our vice

chairman (Neil Benny) has moved away and is longer

asociated with us ,much to my surprise. Phil Bowen has

stepped into his shoes and with dismay has already put

together a promotional letter to local businesses and

groups for donations,well done phil.

I ,along with chris arkwright (our treasurer) where asked

to attend a meeting with Corrie davies (community

enablement officer for shropshire ) and Kim Thompson-

Lawrence ( Volunteering) Officer and community

connections network coordinator) to discuss other groups

who would like connections or help from our group.

Community Connections Meeting - April)

Myself and very kindly Sheila Catmur, attended a meeting

of Oswestry “Community Connections” to introduce our

group by way of myself giving a 15 minute talk about us and

its history with shiela filling in the spaces as a member.

Sheila’s perspective – Peter from Shropshire council gave

an introducton,then each participant gave an introduction

with their name and organisation or group. We had an

interesting talk from a representative of Headway,in

shrewsbury who listed all the help offered to people with

acquired head injuries, then the next participant from

Hope House told us about all the help offered to families

of expected or unexpected deaths.We then had a pretty

much free for all talk and listed on paper charts the things

we thought most important to a community.

Thanyou Shiela for your first feedback.

April also saw me attending a long time arranged talk to the

Oswestry Round Table, I was due to give the talk following

the donation we received from the club last year.

I was the first to arrive at the Wynnstay Hotel in oswestry

and very quickly realised that I was completely Under

dressed for the occasion as the first of the clubs members

arrived to whom I was introduced one by one,we all had a

beautifully laid out dinner of salmon,potatoes and sauce,and

fresh vegetables…not expected at all followed by my very

nervous talk/spluttter.

May

I must first send condolence to Phil Bowens family

following the death of his father,phil will be joining us again

next month. Also,Ken and kate will probably not be joining

us for a few months following kens addmision into respite

care following a sudden change in his meds effects,we wish

them both a good outcome.

You will have noticed some last minute changes to the

speaker dates,I have done this to fit in Keele university in

june and shuffled others to accommodate.

I must thank Shiela and John Catmur for arranging a

choice of dates for the barge trip/I will be sending out a

request form to select a suitable date,but towards the end

of July looks the most favourable. I am also looking for a

local coach company to take us to Llandudno for the day.

We have ths month received a donation cheque by

Borderlands Rotary Club to the sum of £500 pounds

bringing bankable funds to approximately £927.

June

Last month saw us having a visit fro Keele Universities Dr

Sue Hunter And Phd Student Aseel.They had been in

contact with me for some months following a reference to

me by Professor Rose Fricker ,also from Keele,to test the

waters to see if we wold be interested in becoming involved

in a new research program based on fitness and methods of

gaining fitness.I think the overall meetimg went well and I

had excellent feedback from Dr Hunter about the way the

group worked and how the meeting was run,she had not

come across as good a working model as it is,the same I

wish could be said from the Parkinsons uk group that had

been asked to attend,I include the extract taken from the

june issue of Parkinsons Uk Wrexham Group Newsletter ,

Following an invitation to the Branch by Ian Bunting, Sylvia, Mary,

Brian and Miroslaw went to a research talk by a student from Keele

University at the Moreton Garden Centre. Ellen and Geoff Harding

from Llangollen Support Group also attended. It was felt that this was

not quite as professional as the research talk recently held at the

Llangollen Support Group and those attending were a little worried

about the statements made about people with Parkinson’s.

Hopefully comments at the talk may have helped this young lady to

understand more about the problems of coping with Parkinson’s.

I have forwarded a copy of said newsletter to Dr Hunter.

We again tested the waters with concern about our members

being able to hear the speaker properly, especially at the

back,having tried two screens to quieten the area,this was

better but still not acceptable,to this end I have loaned

(with a possible view to purchase) a small PA system with a

Headset microphone and separate loud speaker which can be

placed at the back to throw the sound forwards,we hope this

works as Sarah Roberts from Estyn wellbeing will be testing

it for the first time,but also will be running the whole session

with Deborah as I will be visiting the Parkinsons Uk Offices

in London for a meeting about me becoming Wales Member

for YOPD,YPA (Young onset pd and Youmg Peoples Alliance)

, more news about this in the next issue.

Enact – PD. Mentioned last month.As the project comes to

an end later this year,the results will be analyzed and

released. Whilst it would be wrong of me tocomment on my

current feeling,I can say that from a personal point of

view,it has enabled me to partly to control points related to

pd in my brain,

A leaflet about this was enclosed with last months

pamphlet..

I have started a new research project again with Bangor

University into cognitive behaviour.

Barge Trip

Hopefully all our members have been contacted by

myself and given one of two dates on which we are

runnng trips,I quickl became aware that 1 trip wold

not be enough as only 12 people can be accomodated

at a time. This is a free trip but you will need a

packed lunch for a picnic

Wellbeing and how to do it

Below is a list of feel-good and wellbeing places where you

can get help with mindfulness, physical and mental

attitudes and courses that are run.

National Exercise Referral Scheme, their website is

www.wlga.gov.uk/ners. You can get a referral from your

GP/practice nurse/health professional for swimming and

gym work.

Tai Chi classes are being run at St Mary’s church hall by

Linda Hallett every Monday 6.00pm until 7.00pm and the

cost is £3.50

The Hydrotherapy pool at the Gobowen Orthopedic

Hospital is available for use by the public on Tuesday

afternoons between 2.00pm and 6.00 pm. Referrals can be

made through Ian and the cost is £3.50 per 40 minutes An

exercise class is run at St Mary’s church hall every

Thursday 6.00pm until 7.00pm and the cost is £3.50

Estyn Wellbeing aka Sarah and Deborah

http://www.wrexhamwellbeing.co.uk/

Telephone: 01978 447020

Email: contact@wrexhamwellbeing.co.uk

Hanmer Holistic Healing Aka Linda Hallet

http://hanmerholistichealing.com/

mobile: 07599 813 077

It was and still is our intention to NOT become a for-profit

charity but for the members to benefit from the donations

we receive.The member and promotional day donations will

go towards costs and the purchase of merchandise, whilst

donations from other groups and,will go towards social

events such as trips to places that are of interest to

members.

I Am currently compiling a fuller list to add to the above

Useful Contacts

Below is a list of useful internet websites where there is a

hive of information. This list will be constantly added to

and if any members have additional websites that they

would like added, please approach any of the committee.

Val Coleman

Val.coleman@wales.nhs.uk 01978 291100

07899065574

Estyn Wellbeing

Http://www.wrexhamwellbeing.co.uk/

Office - 01978 447020

Linda Hallett

http://hanmerholistichealing.com/

mobile: 07599 813 077

Your Clinic

07871 301191

Parkinson's UK at http://www.parkinsons.org.uk/ .

They have a helpline, forums, local advisors, publications

and local groups. Membership is only £4.00 per year.

The Parkinson's Research Foundation

http://parkinsonhope.org

EPDA (The European Parkinson's Disease Association)

http://www.epda.eu.com/en/

The Cure Parkinson's Trust

https://www.cureparkinsons.org.uk

The Michael J Fox Foundation

https://www.michaeljfox.org.

Keele University Healthwise Wales

Http://healthwisewales.gov.wales

Constructiv Clothing Ltd – Logo design and clothing

www.constructiv.co.uk

Poetry Corner

We are Friends of Parkies And we’re nearly 2 years old you see We are a small group of people with PD and carers Who meet once a month and information we share Over tea, cake and coffee At Moreton Garden Centre cafe With a guest speaker, every time we find Ourselves discussing about what might be on our mind We rely on voluntary donations For our days out and celebrations As we are a community charity And nothing in this world is free So if you are able To help put some funds on the table Our members will be very grateful That to our group you have been so helpful NB 03/2018

Merchandise Notice

It was with some trepidation that we had to admit defeat

with our first attempt with the car sticker,,,Too big and

unseen behind tinted glass. We have redesigned the logo

and are just awaiting proof copies for your approval,this

new logo will be used across the board for all

advertising,letterheads.etc.Copies are availabale for you to

comment on.

Merchandise

We are now able to offer the following: -

T-shirts with full colour print front and website on the

back £10

Sweatshirts with full colour print front and website on the

back £16

Hoodies with full colour print front and website on the

back £20

Mugs with full colour print £6.00

Car Screen Sticker £3.00

Meeting Photos

Promotion day photos

Come and join Pete Roberts,

Police Community Support Officer for West Mercia Police

Be Scams aware- how to avoid being an innocent

victim.

Gobowen Central Library and Hub Thursday 12th July 11-12noon

£2.50. Please book your place with library staff.