john wilbanks & stephen friend partnering for cures: standardized informed consent 2011-11-08
DESCRIPTION
John Wilbanks & Stephen Friend, Nov 7-8, 2011. Partnering for Cures: Standardized Informed Consent, New York, NYTRANSCRIPT
PORTABLE LEGAL CONSENT
John Wilbanks
“one more thing”
what‘s missing?
network effects.
how do we get there?
standards, legal and technical.
start with the patient.
patient-driven data collection.
in the beginning, there was consent.
simple. weak. standardized. open.
simple. weak. standardized. open.
simple. weak. standardized. open.
simple. weak. standardized. open.
http://weconsent.us
@wilbanks [email protected]
supported by: Sage Bionetworks
Ewing Marion Kauffman Foundation Lybba.org