www.inclusion-international.org

The Right to DecideInclusion International’s Global Campaign

on Decision Making

II Global Campaigns

2009 InclusiveEducation:Better Educationfor All

2006 Poverty and People with Intellectual Disabilities

2012The Right to Live and Be Included in the Community

Poverty and disability

Global Knowledge

The MDG 2015 were used as the frame of analysis for our Report

Local Voices

II said the MDGs could not be achieved if the voices of people with intellectual disability and their families were not included

Inclusive Education

Global knowledgeDeclaration of Salamanca

Education for All, TheDakar Goals

CRPD Article 24

Local Voices

15 years after Salamanca we still have a long way to go

Living and be included in the Community

Global knowledgeArticle 19 of the ConventionOn he Rights ofPersons withDisabilities (CRPD)

dLocal voicesLiving and being in the community is aboutChoice, Support and Inclusion

Inclusive Communities = Stronger Communities• The majority of people with intellectual disabilities live at home and do not have

choice in where they live. • The major source of support is families• Individuals and their families do not get the support they need and for the most

part, community systems continue to exclude people with disabilities. • Transforming communities to be inclusive and ensuring that people with

disabilities are included in mainstream programmes are essential for securing the rights of people with intellectual disabilities.

To do this, we need to:• Transition from segregated models (i.e. employment, housing, education) to

community based models• Build and support self-advocacy groups.• Develop family resource and training programmes and assist families to build and

sustain natural supports in the community.• Secure budget allocation for disability supports and inclusion in mainstream

budgets.

Common Elements

Raised the collective Voice of people with intellectual disabilities and their families

Identified exclusion, isolation and discrimination

Identified strategies to promote inclusion

The Right to Decide

• Our members tell us:– people with intellectual disabilities aren’t supported to

develop decision making skills as they grow; – that families lack the skills and tools to understand how to

support their sons and daughters to express themselves and that guardianship is a way to “protect” them;

– that communities lack the mechanisms (legal and otherwise) to recognize supported decision making.

• Article 12 tells us...

CRPD Article 12Equal Recognition before the Law

1. States Parties reaffirm that persons with disabilities have the right to recognition everywhere as persons before the law.

2. States Parties shall recognize that persons with disabilities enjoy legal capacity on an equal basis with others in all aspects of life.

3. States Parties shall take appropriate measures to provide access by persons with disabilities to the support they may require in exercising their legal capacity.

4. States Parties shall ensure that all measures that relate to the exercise of legal capacity provide for appropriate and effective safeguards to prevent abuse in accordance with international human rights law. Such safeguards shall ensure that measures relating to the exercise of legal capacity respect the rights, will and preferences of the person, are free of conflict of interest and undue influence, are proportional and tailored to the person's circumstances, apply for the shortest time possible and are subject to regular review by a competent, independent and impartial authority or judicial body. The safeguards shall be proportional to the degree to which such measures affect the person's rights and interests.

5. Subject to the provisions of this article, States Parties shall take all appropriate and effective measures to ensure the equal right of persons with disabilities to own or inherit property, to control their own financial affairs and to have equal access to bank loans, mortgages and other forms of financial credit, and shall ensure that persons with disabilities are not arbitrarily deprived of their property.

Objectives Global Campaign• Raising awareness about the impact of the

denial of the right to make decisions• Identify models of support for families and

individuals that enable people to control their own lives

• Explore models of Supported Decision Making• Provide tools to families and individuals and

their organizations

Campaign will explore how to:• Support people to make choices in their

everyday life about where and with whom they live

• Provide support to families in planning• Promote person centered planning• Secure access to supported decision making.

Methodology• Building on previous Global Campaigns

knowledge and findings

• Building shared Knowledge on Art. 12– Building the knowledge in II´s members

• Understanding and sharing global knowledge– Discussion groups with Families (Discussion Guide

& Background Paper)– Discussion groups with Self-Advocates (Discussion

Guide & Background Paper)

• Case Studies of SDM Models• Mapping global initiatives on Article 12

What can you do?• Share your stories and examples• Host a discussion group with families in your

community• Host a discussion group with self-advocates in

your community• Speak up in our consultations

What Next?• II will develop and launch a global report on decision-making.

• Be part of the campaign and join us at our World Congress in Kenya to be part of the launch.

For More Information:

www.inclusion-international.org