impact of a child with a disability
TRANSCRIPT
By: Cathy Baptista
EDSP 432 SUM 2014
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*You may go through: (Kubler-Ross’s model)
* · Denial
*· Anger
*· Bargaining
*· Depression
*· Acceptance
The hopes and expectations you had for you child must be revisited and adjusted.
Boyd (1951) Indicated that parents went through three stages in reacting to the diagnosis of disability in a child:
*Focus on Self
*Focus on the Child
*Focus on Advocacy
The child you hoped and planned for no longer exist.
*Increased bills
*Financial burden
*Your job
*Child care arrangements
*Family’s routines
*Family’s activities
*Impact on other family members
*Stress
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The Impact of Child Disability on the
Family found; having an infant with a
serious health condition or health risk
increases the likelihood that parents
divorce or live apart.
Reichman, Corman, Noona. The Impact of Child Disability on the
Family. 2008.
http://www.medscape.com/viewarticle/581577_2
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Investigations show positive experiences on;
Family life related to parenting
Sibling experiences
Pleasure
Satisfaction in caring for and relating to the child
Personal growth
Greater purpose in life
(Dykens, 2005; Hastings & Taunt, 2002; Stoneman, 2005)
In the positive impact of children with an intellectual disability on the family by
Tim Stainton found;
Source of Joy and Happiness
Pleasure in achievements of your child (Beat the odds)
Increased Sense of Purpose and Priorities
What's really important in life
Expanded Personal and Social Networks and Community
Involvement
Getting Involved in the Community
Source of Increased Spirituality
Strengthened religious faith
Source of Family Unity
Growing Stronger (make or break experience)
Source of increased tolerance and understanding
Human Difference
Source of Personal growth and strength
Persistence (bringing out the best)
Positive Impact on others and the community
Acceptance of differences
Interaction with professionals and services
Get over negative interactions with professionals
Stainton, Tim. In the positive impact of children with an
intellectual disability on the family.1998.
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NVPEP Resource Center for Families
http://nvpep.org/webinar-archive.html
Beach Cent3er on Families and Disabilities
http://www.beachcenter.org/default.aspx?JScript=1
Autism-PPD Resource Network
http://www.autism-pdd.net/
Disability Information and Resources
http://www.makoa.org/index.htm