ifip wg9.2 corporate social responsibility final wotc€¦ · towards this task: ... in technology,...

PROGRESSIVE New approaches to standards in digital

health, care, and well-being

Diane WHITEHOUSE, EHTEL, Belgium IFIP working group 9.2, Milano, Italy

Overview – contents of slide set

 Background to PROGRESSIVE  PROGRESSIVE’s aims and objectives  EHTEL’s involvement in PROGRESSIVE

IFIP - Politeia - Milano, Italy 10/02/2017 2

Background to PROGRESSIVE


Contextual setting

•  As part of the work on the EIP on AHA - with the support of H2020 - roadmapping is taking place to ensure a focus on standardisation in - eHealth; - Health and care (i.e., integrated care); - Independent living and age-friendly environments.


General stage of stock-taking   In the emerging field of active

and healthy ageing (AHA), it is important to identify the “to dos” – in standardisation – needed to bring AHA “into a good shape”.

  Towards this task: - EHTEL brings its expertise in technology, interoperability and standards applied to eHealth/digital health. - EHTEL brings its ability to provide a multi-stakeholder platform.


However, PROGRESSIVE is not   PRO EIP AHA / EIP on AHA Intensive work on collecting

the 600 ‘tips-guides-standards’ that exist in the EIP AHA world, completed December 2016. eStandards http://www.estandards-project.eu 24-month coordination and support action running until 30 April 2017, proposed by HL7, CEN TC251, & IHE, leading Standards Development Organizations (SDOs), and supported by the eHealth Network, ISO TC215, GS1, IHTSDO, IEEE11073, and IMIA to advance eHealth interoperability and global alignment of standards.

  International Patient Summary (roadmapping the activities to materialise an International Patient Summary).


PROGRESSIVE: aims and objectives


PROGRESSIVE   PROGRESSIVE stands for

Progressive standards for ICT in active and healthy ageing (AHA)

  PROGRESSIVE responds to three challenges related to change: - Attitudes and demographics of ageing. - Older people’s engagement and inclusion in the standardisation process. - Improving the impact and influence of standards.

  PROGRESSIVE focuses on European standards related to AHA in the 28 European Union countries, plus five others


Participants   1 (Coordinator) De Montfort University (DMU) UK   2 Open University (OU) UK   3 Age Platform Europe (AGE) Belgium   4 EHTEL Belgium   5 Telehealth Quality Group (TQG) EEIG UK   6 Consiglio Nazionale delle Ricerche - Istituto per le

Tecnologie della Costruzione (CNR) Italy   7 Spanish Association for Standardisation and

Certification (AENOR) Spain   8 German Institute for Standardization (DIN) Germany   9 Dutch Association for Standardisation (NEN)   Netherlands   10 Tecnologie Informatiche e loro applicazioni –

Ente di normazione Federato all’UNI (UNINFO) Italy   IFIP - Politeia - Milano, Italy 10/02/2017 9


PROGRESSIVE length and budget

 Coordination and support action  24 months in duration  Started 1 October 2016 (launch was held on 9 November 2016)  905,781.24 euros total budget.

Problem statement

  Age-friendly communities are needed.

  For active, healthy, and empowered older people. who have the opportunity to live in accessible, affordable and supportable homes.

  Complemented by reformed and empowering services.


To achieve this vision, many different forms of standards are needed e.g., - design for all, - smart buildings, - standards for telehealth, telemedicine (including mHealth) and eHealth.

AgeFriendly Communi0es

ReformedandEmpoweringServices

Accessible,AffordableandSuppor0veHomes

Ac0ve,HealthyandEmpoweredOlderPeople

B1:StandardsforAccessibleTransportandNaviga0on C1:StandardsforHousingincludingCareHomesandSmartHomes

A5:StandardsforeHealth

A1:StandardsforGeneric‘DesignforAll’ApproachesinHomes,inCommuni0esandonTransport

E1:StandardsforHealth,SocialCareandHousingServices

E2:StandardsforServicesforEduca0on,Learning,andLiteracy

D1:StandardsforPrivacyandConfiden0alityincludingPersonalData

D2:StandardsforSocialAlarms,TelecareandAc0vityMonitoring

C2:StandardsforHomeSafetyandU0lityServices

B2:StandardsforRe0rementVillages

B3:StandardsforCommunitySafetyandSecurity

B4:StandardsforSmartBuildingsandWorkplaces

E4:StandardsforPreventa0veHealth,andSelf-Management

A3:StandardsforShopping,Banking,PharmacyUseand‘HighStreet’Ac0vity

A4:StandardsforTelehealthandTelemedicine(incl.mHealth,SmartTV,etc.)

B5:StandardsforCommunityDevelopment/Cohesion

E3:StandardsforMedicines,Therapies,Nutri0on,etc.

A2:StandardsforPoli0calandSocialEngagementandSupportforCi0zenship

F1:StandardsforHomeSupportServicesandTaskswithDevicesincludingRobots/Robo0cs,Li]s,HoistsandotherrelevantAssis0veTechnologies(foruser/carer)

E6:StandardsforEndofLife(Pallia0ve)Care

F2:StandardsforPersonalCareServicesandTasks(withDevicesincludingrelevantAssis0veTechnologies(foruser/carer) E5:StandardsforLeisure

Domains and

Fields

10/02/2017 IFIP - Politeia - Milano, Italy 12


Age friendly communities

Reformed and empowering services

Accessible affordable and supportive homes

Active, healthy and empowered older people

PROGRESSIVE domains – EHTEL members’ familiarity with standards

PROGRESSIVE domains

EHTEL’s familiarity with standards


PROGRESSIVE’S primary objective

 Making the best use of standards / standardisation for ICT in the field of AHA.  Putting in place a dynamic and sustainable framework for standards in AHA.


Ten sub-objectives support the primary objective (1/2)   [Sub-objective [SO-1]]

A map of standardisation actors.   [SO-2] A sustainable platform for multi-stakeholder

networking, collaboration, knowledge management and the sharing of expertise (FEASt).

  [SO-3] A process for stakeholder involvement (to support SO-2).

  [SO-4] A benchmarking process in relation to standards.

  [SO-5] Identification of all relevant standards and standardisation activities.


Ten sub-objectives support the primary objective (2/2)   [SO-6] A first draft of ‘Smart and Age-Friendly

Homes’ guidelines for standardisation and an accreditation/certification framework.

  [SO-7] Coordination activities + gaps, and a roadmap, around standards and standardisation.

  [SO-8] Good practice guidance and a framework for standards.

  [SO-9] A policy information brief.   [SO-10] Age friendly procurement guidelines on

standardisation and an audit tool for standard technologies.

EHTEL’s involvement in PROGRESSIVE


EHTEL will help to ….

  Translate what has been learned in the eHealth field about standards and interoperability to the much wider, emerging domain of AHA.


Slow Tech. Good ICT. N. Patrignani

EHTEL’s role in WP7 (1/2):

EHTEL leads on:

  WP7 on “Use cases and interoperability”   It runs from M7-M19 of the project.


EHTEL’s role in WP7 (2/2):

  To explore the role of standards for interoperability in specific and wider range of domains around ICT for AHA - an example is electronic health records.   To outline, and consider, the merits of use cases - so that interoperability and harmonisation objectives can be tested in different service models.


WP7 has two deliverables   D7.1 Use Cases Defined

[EHTEL] M10 i.e., Oct 2017

A brief internal report, focusing on a range of use cases. Method = using outcomes of meetings, consortium member knowledge, and literature. Task 7.1 acts as a basis for Tasks 7.2 and especially Task 7.3.

  D7.3 Report: Interoperability Profiles for Use Cases in Different ICT and Service Contexts [EHTEL / TQG] M19 (Milestone 3) (i.e., July 2018)

A longer report that shows how 2017-2018 activities around interoperability can be addressed in the context of ICT for AHA service models, services and related products.


EHTEL’s role   EHTEL is involved in four other

PROGRESSIVE work packages, besides project management:

•  Use cases and interoperability. Stakeholder engagement/consultation.

•  Online platform development/ collation of information.

•  Development of first draft guidelines. •  Evaluation and monitoring.


Any questions? [email protected]


1

POLITEIAThebigquestions:ICT,ethics,socialresponsibility,

andcorporatesocialresponsibility

InternationalFederationforInformationProcessing,workinggrouponsocialaccountabilityandICT(WG9.2)http://ifipwg92.org

Friday10thFebruary20171000am-1700pmSaturday11thFebruary20171030am-1500pm

Eventisself-paying.

Politeia-CentreforResearchandTraininginPoliticsandEthicsUniversitàdegliStudidiMilano/StateUniversityofMilan

viaFestaDelPerdono,720122-Milano(MI),Italyhttp://www.politeia-centrostudi.org/index.html

Googlemaps:https://www.google.it/maps/place/Universit%C3%A0+degli+Studi+di+Milano/@45.4639211,9.19694

46,14z/data=!4m5!3m4!1s0x0:0x1df6905f72858f73!8m2!3d45.4601435!4d9.1945843

WithmanythankstoProfessorEmilioD’Orazio,DirectorofPoliteia,weareonceagainwelcomeatthePoliteiaheadquartersattheUniversityofMilan!

Thetwo-dayworkshopwillbeorganisedsothatDay1focusesonpresentationswhereasDay2concentratesmoreonplanningfortheworkahead.

ByFriday27thJanuary2017atthelatestkindlysendaconfirmationofyourattendancetoDianeWHITEHOUSE(workinggroupchair)diane.whitehouseatthecastlegateconsultancy.com,withthetitleofyourshortpresentation(whether

PowerPoint-basedornot)anda100-wordabstractofitscontent.Ifyouwouldliketoattendwithoutpresenting,pleaseflagthatuptoo.

OverviewBusinessethics,corporatesocialresponsibility,andprofessionalconduct:allarefacingconsiderablechallengesintoday’sso-calledpost-factandpost-truthenvironments.Yetastrongandcommittedmoralframeworkisprobablymoreneededthanever.WhatdothesechallengesmeanforICTcompaniesandothercompanies,authoritiesandorganisationsprovidingICT-basedservices;computing-relatedprofessionalassociations;researchandteachinginstitutions;andnot-for-profitorganisationsandassociations?

2

Dotheclassicsolutionse.g.,codesofconductandbehaviour;trainingandeducation;pressuresfromcitizens’organisationsinattemptstoensuresocialresponsibility;andaccreditation/certificationcontinuetoofferappropriatesolutions?Arenewmodelsandnewapproachesneeded?Aretheirparticularmattersofconcernfortheglobeasawhole,theenvironment,andsustainability?Thismeetingwillencourage:• Shortpresentationsontopicsofconcerntoworkinggroupmembers,associatesandfriends-fromarangeoforganisationalsettings;researchprojects;andnational/regionalcontexts.Presenterscanselectanydomainoftechnologyofparticularinteresttotheme.g.,InternetofThings,bigdata,cloudcomputingoranyfieldoforganisationalconcerne.g.,health,education,services,commerce.Theymightalsochooseastheirtopicstheclassictopicscoveredbythisworkinggroupi.e.,UserandITprofessionaleducationandawareness;Socialconsequencesoffuturetechnologies;Ethical,legalandregulatoryissues;Privacyandconfidentiality;Inclusion,accessforall,andchoice;Equalityinsystemrelationships.

Andalso,onamoretargetedbasis:• In-depthdiscussionaboutnextsteps,intermsoftheworkinggroup’seventsandactivities;needforanewChairoftheworkinggroupassoonaspossible!• InsightsintonextpossiblestepsforIFIP’sHumanChoiceandComputersconference(in2018)andwheretheworkofworkinggroup9.2mightfitinatrackortheme.

Backgroundontheco-organisersIFIP’sworkinggroup9.2onsocialaccountabilityandcomputinghasalwayssoughttoprovideaninternationalforumforassessingthesocialconsequencesofubiquitousICTanditsapplicationsandtopromotethesafeandsociallybeneficialdevelopmentanduseofICT.AspartofIFIPworkinggrouponsocialaccountabilityandICT,weareorganisingournextmeetingatPoliteiainMilan,Italyinmid-February2017.Politeia(theCentreforResearchandTraininginPoliticsandEthics)wasestablishedin1983fortheanalysisofdecisionprocessesincomplexsocietieswiththegoalofpromotingacriticalpublicculture,influencedbycriteriaofefficacy,efficiencyandsocialjustice.

DetailsofnearbyhotelsTherewillbenospecificworkshophotel.Pleaseusethesehoteldetailstobookyourownhotelroom.AtawalkingdistancefromtheUniversity,thereareseveralappropriatehotels:• BestWesternHotelAscotHotel,ViaLentasio3,MilanoCentro,20122Milano,Italia• HotelRomanaResidence,CorsodiPortaRomana,64,Milano,MI,20122,Italia,• HotelCanada,ViaSantaSofia16,MilanoCentro,20122Milano,Italia• HotelLloydHotel,CorsodiPortaRomana48,MilanoCentro,20122Milano,Italia• HotelZurigo,CorsoItalia11/a,20122Milano• HotelBrunelleschi,ViaFlavioBaracchini12,Milano,MI,20123,Italia.

ifip wg9.2 corporate social responsibility final wotc€¦ · towards this task: ... in technology,...

Documents