hope parkinson program summer newsletter

7/25/2019 Hope Parkinson Program Summer Newsletter

1/12

JulyIAugustISeptember 2016

Parkinsons Disease and

Sun Exposure

Caring Community

Summer Ice Cream Socials

HOPE HEALTHCARE SERVICES


2/12

Until there is a cure, there is a community.Many of our participants have chosen to live by this powerful phrase - believing thatthose who live with Parkinsons disease are stronger together. All of us at Hope believe

this too.Our program includes nearly 2,000 vibrant and passionate people living with PD andtheir care partners too. Within this close-knit community, participants find empathy,compassion, motivation, and friendship. Tis past season, movement classes, supportgroups and inspiring events brought members together to share successes and learnfrom experiences.

More than 150 people gathered at Lakes Park to raise awareness for our PD Communityat the Walk 4 Hope. Other participants enjoyed a beloved Parkinson Program tradition:the annual Sunset Cruise. Whether at a large event or a small gathering we are simplybetter together.

Spend the summer among friends. Enjoy a new class, join a support group and stop byone of our Ice Cream Socials to have some fun!

Warm regards,

Samira K. BeckwithPresident and CEOHope HealthCare Services

D F H P P

Parkinsons Disease and Sun ExposureDr. Amanda Avila

As the season winds to a closeand summers heat, sun andrain is once again upon us,Id like to take a moment todiscuss the risks people withParkinsons disease face with

added sun exposure.As we already know, PD is a disease of the whole body.Not only does it affect movements, balance and the GItract, but it can also affect the skin. In fact, people withPD have almost twice the risk of developing skin cancersincluding melanoma, the most serious type. Somescientists even speculate that both PD and melanomashare a common genetic link that it is actually a lackof natural pigmentation that predisposes people to bothskin cancer and Parkinsons disease. Individuals with PDare also more susceptible to other skin diseases such as

actinic keratosis and seborrheic dermatitis, both of whicause dry, flaky and sometimes itchy skin.

Good skin care and regular visits to the dermatologistcan go a long way in protecting against and treating thediseases. Every person with Parkinsons disease shouldsee a dermatologist for an annual screening. In the

interim, sunscreen should be used daily and reappliedfrequently, especially while spending time outside. Tisis especially important in South Florida, where ourexposure to the sun is so great. Be safe, stay cool andcover up!

Amanda Avila, MDHope Parkinson Program Medical Director

Movement Disorder Specialist, Florida Neurology GroupOffices in Cape Coral 239-574-4242 andFort Myers 239-936-3554

2


3/12

Ask a PD Expert: Te Milk EffectKathrynne Holden, MS, RD

Do you use levodopa? If so, have you noticed that whenyou drink milk, the medication doesnt work as well?

Not everyone is sensitive to the protein in cows and

goats milk, but for those who are, a glass of milk in themorning can block their levodopa for the rest of theday. Tis is because the milk contains an unusually highamount of the five neutral amino acids that competewith levodopa for absorption from the small intestine.Milk has an even higher ratio of these amino acids thanmeat, poultry, or fish.

Almond, soy and rice milk alternatives dont containthis high ratio of aminos, so they can be safelysubstituted. Also, some people find that cheese andGreek yogurt do not produce as severe an effect; this is

because some of the whey is drawn off in production,taking with it a large amount of the competing aminoacids.

Do be certain that you are getting enough protein daily about one-half gram of protein per pound of bodyweight per day. Fatty fish, meat, poultry, cooked driedbeans, nuts and seeds are all good sources of protein.

Capturing Grace is a story about two realms. One is occupied by some of the mostacclaimed modern dancers in the world. Te other is inhabited by a group of peoplewith Parkinsons disease. Tis film is about what happens when those worlds intersect.For me, its also a personal story. I was diagnosed with Parkinsons eight years ago, thethird member of my family to receive that news.

Dave Iverson

Friday, July 15 at 1 p.m.Hope Cape Community Room2430 Diplomat Pkwy. E,

Cape Coral

Friday, Aug. 12 at 1 p.m.Hope HealthParkCommunity Room

9470 HealthPark Circle,Fort Myers

Friday, Sept. 16 at 1 p.m.Hope BonitaCommunity Room

27200 Imperial Parkway,Bonita Springs

A S :Hope PD Program Ice Cream SocialsCreate your own ice cream sundae complete with all the toppings

while enjoying fun and fellowship with your friends. Immediately

following the ice cream social, you are invited to watch CapturingGrace, a 50-minute documentary from filmmaker Dave Iverson,

who also directed a film about Parkinsons for the PBS Frontline

series called My Father, My Brother and Me. RSVP is required.

See calendars for details.

Kathrynne Holden, MS,Moderator of the NationalParkinson Foundation ForumAsk About Nutrition, and author of Eat Well, Stay Wellwith Parkinsons Disease, and Cook Well, Stay Well withParkinsons Disease.www.nutritionucanlivewith.com.


4/12

Fighting Back Against PDTe Rock Steady Boxing program at FYZICAL FitnessTerapy & Balance Center in Fort Myers includes boxingdrills and conditioning or optimal agility, speed, endurance,accuracy, hand-eye coordination, ootwork and overallstrength. No boxing experience is necessary, and male andemale participants range in age rom mid-30s to 80s.

Tree class levels are offered:PD 1: Mon. at 11 a.m.; Wed. at 1:30 p.m.

PD 2: ue. and Turs. at 1:30 p.m.PD 3: ue. and Turs. at noon

PD 1 & 2: Sat. at noon

For additional inormation or to schedule an appointment,call Julie Shamburger at 239-561-1177. Classes are offered ona first-come, first-serve basis and are available or purchaseby class or as part o a membership. Remember to consultyour physician beore starting any exercise program.

SAVE HE DAETe Davis Phinney Foundation:Te Victory SummitFriday, March 3, 2017Charlotte Harbor Event Center

In collaboration with the Hope Parkinson Program, Te Davis Phinney

Foundation will host their world-renowned Te Victory Summit symposiaseries. Tis incredible event will take the place o Hopes annual SpringSymposium and is expected to bring together as many as 1,000 peoplerom local communities or a day o inspiration and learning. Includingpresentations by internationally and nationally recognized researchers,clinicians and physical therapists, Te Victory Summit symposia deliver up-to-date inormation and practical tools that people with Parkinsons can useto live well today. Participation in Te Victory Summit is ree, and the all-dayevent is open to all members o the Parkinsons community.

Tis event is ree, and pre-registration will open in December 2016.

Attendees SayIt Best:

Te best gif you can giveyoursel and your uture?Attend this conerence,and bring a riend withParkinsons so you can

support each other afer youreturn home. Very positive,inspiring, un and so manytips to improve your lie.

Tis was one o the mostpositive and uplifing dayson our 29-year journey withParkinsons.

4

Fall Forum:Save the DateFriday, October 7

from 10 a.m. to noonCrowne Plaza Fort Myersat Bell ower Shops

Dr. Amanda Avila, Hope ParkinsonProgram Medical Director, will presentPD Medical reatments: Fact vs. Fiction.

Patricia Radord, Senior AssociateDirector, Advancement rom Te Michael

J. Fox Foundation or Parkinsons Research,will present an overview on the currentstate o Parkinsons research and shareexciting updates rom the Foundation.

Seating is limited, and pre-registration willbe required. Online registration will openAug. 26. Check hopeparkinson.org/eventsor more inormation.


5/12

Local Resources for Parkinsons DiseaseContact the ollowing organizations or more details and current programming schedules.

NPF National Parkinson Foundation

PD Help Line; Patient Education Booklets;Aware In Care Kits; Ask the Doctor Forumwww.parkinson.org800-473-4636

MJ Fox Foundation

PD Research Opportunitieswww.michaeljoxoundation.org

UF Center for Movement Disorders

3450 Hull Rd., Gainesville, 32607www.movementdisorders.ufealth.org352-265-8408

Te Davis Phinney Foundation

www.davisphinneyoundation.org

PDF Parkinson Disease Foundation

www.pd.org

National Resources

Educational and Navigational SupportArea Agency on Aging or Southwest FloridaAging and Disability Resource Center15201 N. Cleveland Ave., North Fort Myers

Helpline 866-413-5337; www.aaaswfl.org

United Way-211Helps people navigate their way through the maze ohealth and social services agencies by providing the mostadequate resources or the clients situation and promotingprevention and sel-sufficiency by giving clients easy accessto services. www.unitedwaylee.org

Dubin Resource CenterDementia Saety Program, dementia caregiver educationand support groups.239-437-3007; www.alzheimersswfl.org

Chronic Disease Sel-Management WorkshopIts All About You239-424-3122

Good Wheels, Inc.Provides transportation or the ransportationDisadvantaged in Lee, Hendry and Glades counties andserves the community as the major transportation provideror Medicaid in Lee, Hendry and Glades counties.239-768-2900; 1-800-741-1570; www.goodwheels.org

Exercise Health & WellnessBonita YMCA Pedaling or Parkinsons programMarla Ramsey; 239-221-7560 x116

Lehigh Senior Citizens CenterWeekly ai Chi Balance Classes219 Plaza Drive, Lehigh Acres239-369-5355; [email protected]

LMHS SHARE ClubSenior Health & Wellness program serving residents oSouthwest Florida ages 50 and older.239-424-3765;

[email protected]

Lee County Parks & Recreation PoolsSan Carlos, Lehigh Acres, Fort Myers and Pine Island239-533-7275

Punta Gorda PD Exercise ClassesContact Pete Gaylord at [email protected]

Cape Wellness Center LMHSPD exercise and fitness center; 239-424-3225

FYZICAL FINESS

Rock Steady Boxing Gym13010 Metro Pkwy., Fort Myers; 239-561-1177

Medical ServicesLMHS PD Rehabilitation Service eamFREE Summer Parkinson Rehab Screenings:July 30 and Sept. 24. Pre-registration required.Contact Mary Jo Haughey, SLP; 239-434-4962

FYZICAL Terapy & Balance Centers239-561-1177; www.yzical.com/ort-myers

Hope at Home

Private Duty Care, Medicare Home Health, Palliative andHospice Care239-482-HOPE; www.HopeHCS.org

Mind & Brain CareDr. Mabel Lopez, Neuropsychologist6442 Commerce Park Drive #1, Fort Myers239-768-6500; www.mabc.co


6/12

2016 Parkinson Cruise

6

Caring Community


7/12

Inaugural Walk 4 Hope:Raising Awareness for Hope Parkinson Program

O ip o the Montho decrease tremors that make eating a challenge,

try using a 2.5-pound cuff weight on your

wrist while you are eating. Cuff weights can be

purchased at retail stores for approximately $5.

Using weighted utensils may also make it easier

to reach the mouth. A variety of styles, in both

plastic and stainless steel, can be purchased

online from www.Amazon.com or

www.SammonsPreston.com starting around $12.

LLC Speech-Language Terapy

With special thanks to


8/12

Hope Parkinson Program Calendar Details

* Provided in partnership with PASFI.

** Entry to Estero and North

Ft. Myers Lee County Parks and

Recreation acilities requires you present a

Membership Card that can be purchased

at the acility prior to attending your

first class. Cost is $10 or a lietime

membership.

All events require pre-registration.

Please call 239-985-7727

or email [email protected].

Te latest programming information can

be found at www.Hopeparkinson.org.

Call for detailsbefore attending your first

class. Schedules are subject to change.

C O L O R K E Y :

Support Groups: Blue

Exercise Classes: Black

Educational Events: Red

Social Events: Green

8

E V E N L O C A I O N S :

BONIA SPRINGS Hope Bonita Springs Community Room: 27200 Imperial Parkway

e Terraces: 26455 S Tamiami Trail *

CAPE CORAL Cape Coral Wellness Center: 609 SE 13th Court

HOPE Cape Community Room: 2430 Diplomat Parkway E.

ESERO

Estero Recreation Center: 9200 Corkscrew Palms Blvd.**

Coconut Point LMHS Healthy Life Center 23190 Fashion Drive, Suite 105

FOR MYERS Cypress Cove Edison Room: 10500 Cypress Cove Drive

Brookdale Cypress Lake: 7460 Lake Breeze Drive

FUMC-Faith United Methodist Church: 15690 McGregor Blvd.

Hope HealthPark Community Rooms: 9470 HealthPark Circle Shell Point Kings Crown Meeting Room: 14701 Kings Crown Way

LABELLE Hope Connections: 475 East Cowboy Way

NORH FOR MYERS Recreation Center: 2000 North Recreation Park Way **

PUNA GORDA Punta Gorda Isles Civic Association Room 4: 2001 Shreve Street Led by Pete and Kelly Gaylord. Call 941-637-6418.

At the movie premiere, Hopevolunteers served rereshmentswith old-ashioned style.

Capturing Graceshows how thepower o dance can ease PDsymptoms.

Te PD Dance Clinic wasled by University o Floridagraduate student AshleyLeBlanc.


9/12

MONDAY

TUESDAY

WEDNESDAY

THURSDAY

FRIDAY

Happy

FourthofJuly!

NoClasses

Exercise

Bonita-Terraces11am

N.

Ft.Myers11am

Exercise

FTM-FUMC10am

HopeHealthPk.TaiChi2:30pm

CaregiverSupportGroup

FUMC10am

Exercise

BrookdaleCypressLake10:30am

Bonita-Terraces11am

N.

Ft.

Myers11am


CapeWellnessCtr.

1pm

Exercise

HopeCapeTaiChi3pm

PDSupportGroup

ShellPointKingsCrown

10:15am

Exercise

N.

Ft.Myers11am

PDSupportGroup

HopeLaBelle1pm

Exercise

FTM-FUMC10am


Exercise


Bonita-Terraces11am

N.

Ft.

Myers11am

PDSupportGroup


CapeWellnessCtr.

2pm

Summer

IceCreamSocial

&MovieEvent

HopeCapeCom.

Rm.

1pm

RSVPby7/8

239-9

85-7

727

Exercise

HopeCapeTaiChi3pm

Exercise

Bonita-Terraces11am

N.

Ft.Myers11am

Exercise

FTM-FUMC10am


Exercise


Bonita-Terraces11am

N.

Ft.

Myers11am

LadiesPDGroup

HopeHealthPark-1pm

Pun

taGordaSupportGroups

PWP&CarePartners

Meetseparatelysamebldg.

PuntaGorda-1

0:30am

Exercise

HopeCapeTaiChi3pm

CommunityEducationEvent

FindingHopeFor

LivingWellWithPD1pm

LehighAcresLibrary

RSVPby7/20.

239-985-7727

Exercise

N.

Ft.Myers11am

PDSupportGroup

HopeLaBelle1pm

Exercise

FTM-FUMC10am


Exercise


Bonita-Terraces11am

N.

Ft.

Myers11am

4

5

6

7

8

11

12

1

3

14

15

25

26

2

7

28

29

18

19

2

0

21

22


10/12

MONDAY

TUESDAY

WEDNESDAY

THURSDAY

FRIDAY

Exercise

EsteroRec.Ctr.

11am

HopeCapeTaiChi3pm

PDS

upportGroup

ShellPointKingsCrown

10:15am

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

Exercise

FTM-FUMC10am

EsteroRec.Ctr.

11am



FUMC10am

Exercise

Bro

okdaleCypressLake10:30am

Bonita-Terraces11am

N.

Ft.

Myers11am


CapeWellnessCtr.

1pm

Exercise

EsteroRec.Ctr.

11am

HopeCapeTaiChi3pm

PDS

upportGroup

EsteroRec.Ctr.

12Noon

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

PDS

upportGroup

HopeLaBelle1pm

Exercise

FTM-FUMC10am

EsteroRec.Ctr.

11am

NoTaiChitodayonly

Exercise

Bro


Bonita-Terraces11am

N.

Ft.

Myers11am

PDSupportGroup

Bro


CapeWellnessCtr.

2pm

Summer

Ic

eCreamSocial

&MovieEvent

HopeHealthPark1pm

RSVPby8/5

239-985-7727

Exercise

HopeCapeTaiChi3pm

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

Exercise

FTM-FUMC10am

EsteroRec.Ctr.

11am


Exercise

Bro


Bonita-Terraces11am

N.

Ft.

Myers11am

Exercise

HopeCapeTaiChi3pm

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

PDS

upportGroups

N.

Ft.

Myers12Noon

(Bringbrownbaglunch)

PDS

upportGroup

HopeLaBelle1pm

Exercise

FTM-FUMC10:00am

EsteroRec.Ctr.

11am


Exercise

Bro


Bonita-Terraces11am

N.

Ft.

Myers11am

LadiesPDG

roup

H

opeHealthPark1pm

Punta

Gorda

SupportGroups

P

WP&CarePartners

Mee

tseparatelysamebldg.

PuntaGorda10:30am

Exercise

EsteroRec.Ctr.

11am

HopeCapeTaiChi3pm

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

Exercise

FTM-FUMC10am

EsteroRec.Ctr.

11am


REMINDER:

ONLINEREGISTRATIONFOR

FALLFORUM

OPENSFRI.8/2

6

1

2

3

4

5

8

9

1

0

11

12

22

23

2

4

25

26

29

30

3

1

15

16

1

7

18

19


11/12

MONDAY

TUESDAY

WEDNESDAY

THURSDAY

FRIDAY

Exercise

Brookdale/Lakes10:30am

Bonita-Terraces11am

N.

Ft.

Myers11am

C

aregiverSupportGroup

CapeWellnessCtr.

1pm

LaborDay

NoClasses

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

Exercise

FTM-FUMC10am

EsteroRec.Ctr.

11am



FUMC-10:00am

Exercise


Bonita-Terraces11am

N.

Ft.

Myers11am

PDSupportGroup


CapeWellness2pm

Exercise

EsteroRec.Ctr.

11am

HopeCapeTaiChi3pm

PDSupportGroup

ShellPointKingsCrown10:15am

EsteroRec.Ctr.

12Noon

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

PDSupportGroup

HopeLaBelle1pm

Exercise

FTM-FUMC10am

EsteroRec.Ctr.

11am


Exercise


Bonita-Terraces11am

N.

Ft.

Myers11am

Summer

Ic

eCreamSocial

&MovieEvent

HopeBonitaCom.

Rm.

1pm

RSVPby9/9

239-9

85-7

727

Exercise

EsteroRec.Ctr.

11am

HopeCapeTaiChi3pm

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

Exercise

FTM-FUMC10:00am

EsteroRec.Ctr.

11am

HopeHealthPk.TaiChi2:30

Exercise


Bonita-Terraces11am

N.

Ft.

Myers11am

Ladies

PDGroup

H

opeHealthPark1pm

Punta

Gorda

Support

Groups

PWP&CarePartners

Meetseparatelysamebldg.

P

untaGorda10:30am

Exercise

HopeCapeTaiChi3pm

CommunityEducationEvent

FindingHopeFor

LivingWellWithPD1pm

ESTERO-CoconutPoint

RSVPby7/20239-985-7727

Exercise

Bonita-Terraces11am

N.

Ft.

Myers11am

PDSupportGroup

N.

Ft.

Myers12Noon

(BringBrownBagLunch)

HopeLaBelle1pm

Exercise

FTM-FUMC10:00am

EsteroRec.Ctr.

11am


Exercise

N.

Ft.

Myers11am

Bonita-Terraces11am

1

2

5

6

7

8

9

12

13

14

15

16

19

20

21

22

23

26

27

2

8

29

30


12/12

Join theHope Parkinson

Program

Tere is no cost to register and becoming aparticipant is simple. Visit HopeParkinson.org/Join and follow the easy-to-understandnstructions. Registration by phone is alsovailable at 239-985-7727.

Ways to Give BackPREAD HE WORD: Share this newsletter

with friends, relatives, coworkers andneighbors.

VISI OUR RESALE SORES: Donate or shopt Hope Chest, North Fort Myers, 239-652-114 and Hope Chest at the Crossings, Bonitaprings, 239-444-1100.

VOLUNEER: Lead an exercise class or help

with office work.

DONAE: Send a check to470 HealthPark Circleort Myers, FL 33908

Or make a secure online donation atwww.hopehcs.orgSpecial Note: When donating online pleasendicate Parkinson Program in the comments

field.

ORGANIZE: Design your own event to benefitur program. Call us at39-985-7727 for details.

Home Health Care

Private Duty Nursing

MedicationManagement

Personal CareAssistance

Caregiver Support

Family Education

Palliative Care

Expert Hospice Care

BereavementCounseling

Theyre relying on you. And you m

need some help.At Hope, we understand

have many roles in your family - and that few ar

important as your role of caregiver. We can supall you do with our comforting care - coordinat

medical needs, explaining options and providin

emotional guidance for you and your loved one

Together, we can make each day the best possibl

Let Hope be there for you.

239 482 4673

Sometimes loveneeds a helping hand.

Proud Partner Agency

239-985-7727800-859-0314

HopeParkinson.orghe Hope Parkinson Program is

provided by Hope HealthCare Services,a not-or-proit, 501 (c)(3) status

it b d

Hope Hospice and Community Services, Inc.9470 HealthPark CircleFort Myers, FL 33908

PrsUS P

PAPermFt. M

Please shop at Amazon Smile, and choose

us as your charity!Amazon will make a donation to our

organization. Just select name Hope Hospiceand Community Services, Inc.

hope parkinson program summer newsletter

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