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uHealth Resources and Services Administration

Maternal and Child Health Bureau

NEWBORN HEARING SCREENING AND INTERVENTION

Irene ForsmanOctober 2007

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uHISTORY

Healthy People 20001989 Utah State University pilot in Rhode Island, Utah and Hawaii1995 Technical Assistance by University of Colorado1999 Legislation

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uHRSA Charge

Develop and monitor the efficacy of statewide newborn and infant hearing screening, evaluation and intervention programs

(Early Intervention is defined in the law as referral to schools and agencies including community, consumer and parent-based agencies and programs mandated by Part C…)

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uHRSA Charge cont’d

Collect data on screening, evaluation and intervention…systems that can be used for applied research, program evaluation and policy

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uCDC Charge

Ensure quality monitoringProvide technical assistance on data collection and managementStudy the effectiveness by looking at outcomes at school entryStudy cost and effectivenessIdentify causes and risk factors

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uHRSA’s Program

Universal newborn hearing screening prior to hospital discharge

Liinkage to a medical homeAudiologic diagnosis before 3 monthsEnrollment in a program of early intervention before 6 mosLinkage to family- to- family support

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uCollaboration

Centers for Disease Control and PreventionNational Institute of Deafness and Communication DisordersDepartment of Education

Administration on Children and Families’ Head Start BureauAmerican Academy of PediatricsFamily Voices

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u2007

55 States/Territories fundedTA center continued

infanthearing.org

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uOther Activities

Intra-Agency Agreement with CDC to examine reasons for loss to followupState Chapter ”Champion” program with American Academy of PediatricsHead Start Screening Activities

Literacy contractsJCIH 2007 Statement

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uPerformance Measures

2005 All MCHB Discretionary Grant Programs report on selected performance measures Demographic and fiscal data

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uPurpose

GPRA requirementsEstablish measurable goals Reported in budgetary processLink funding decisions with performance

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uOther Activities cont’d

Series of targeted issues meetingsTraining grant targeted to audiologistsEvaluation contractLearning Collaborative

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uExperience

93% of newborns are screenedData for some infants needing some f/up are missing

protocols for communication of screening results to parents uncertaintoo few pediatric audiologistshealth care professionals are still not all well informed of consequences of hearing lossdata and tracking systems not mature

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uNational Initiative for Child

Healthcare Quality (NICHQ)

2006 quality improvement contractFaculty agrees on problemsNICHQ develops “small tests of change”States (8) recruited to participate in 18 month project

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uLearning Collaborative

Three face to face sessions with teams Action periodsData collection

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uSmall Tests of Change

Script parent message Second point of contactverify PCPMake next appt before discharge and explainReminder calls with explanation

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uSmall Tests cont’d

Make two audiology apptsFax backConsent for release of EI information

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uHealth Resources and Services Administration

Maternal and Child Health Bureau

National Center for Hearing Assessment and Management (NCHAM)

infanthearing.org

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uContact Information

Irene Forsman301-443-9023Iforsman@hrsa.gov