happy-ending story: how modern technology can cure - valerie verveda, project manager at intersog
TRANSCRIPT
Happy-ending story:How modern technology can cure
Story # 1
Fred
Artist Illness: Bipolar Lives in Norway
What usually happens?
This is best for you. Trust me. I am the doctor.
Medicine is very paternalistic nowadays.
Doctors know best what to do.
Do they ask patients:What matters for you?
Will result be differentif they asked?
What did you use before?
Did you take is as it was prescribed?
How did it work for you?
Were the effects monitored?
What doctors shouldkeep in mind?
What´s most important to him?
Does he feel able to participate?
Do we have a shared understandingof what the decision is about?
What medications are available now?
What medications we should avoid?
What can he expect from the medications?
How are we going to check whether a new medication really is better?
…on what matters to him
… for a sufficiently long time
Will doctor know that making art is crucial for Fred?
What data doctor has to take into account
when making a decision?
Network meta-analysis, The Lancet, sep 201416 medications, 5 outcomes
• Take all this data into account
• Integrate it with his personal preferences
• Integrate it with his knowledge
• And don’t forget your clinical experience
What do we stand for?
Research data is transformed into something visual
Replace research wherever possible
Add doctor experience
Add Patient experience
Look at how the treatment works — together
Monitor current treatment based on his priorities
Evaluate based on monitoring
The same is available to Patient and his relatives
Story # 2
Amanda
35 years old Illness: asthma Lives near Kalamazoo, USA
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