Happy 10th birthday Evelina London! ISSUE 2 the GiST Welcome to the latest edition of the GiST magazine, which celebrates the 10th birthday of Evelina London Childrens Hospital.
Post on 06-Feb-2018
Happy 10th birthdayEvelina London!News from Guys and St Thomas Issue 16 | 2015THIS ISSUE2 the GiSTWelcome to the latest edition of the GiST magazine,which celebrates the 10th birthday ofEvelina London Childrens Hospital.When Evelina London opened in 2005, itwas the first new childrens hospital inLondon for more than 100 years. You canfind out more about the history of ourhospital and who the original Evelina wason page 21. Evelina London now sees more than50,000 patients each year. The families offour young patients Sebastian, Peter,James and Ellie talk about the care theyhave received on pages 8 and 9. I agree wholeheartedly with Dr SimonSteddon, our Acting Chief Operating Officer,who says on page 18 that our strengthcomes from how we work together as ateam, with a shared purpose. In this edition,you can read about the work of a wide rangeof staff at Guys and St Thomas and find outhow they are improving the way we care forpatients. I hope you enjoy this issue of the GiST.Amanda PritchardActing Chief ExecutiveGuys and St Thomas NHS Foundation Trust515 8Contents04 Older peoples care in focus Question time at the AnnualPublic Meeting05 Lily Cole praises babyfriendly midwives Model and actress presentsUNICEF Baby Friendly Award08 Now we are 10Patients and their families talkabout Evelina London 14 Inside the medicine cabinet Behind the scenes in Pharmacy18 Role reversal Medical student Andrew Baigeytalks to Dr Simon Steddon 21 History CornerThe creation of Evelina LondonChildrens Hospital 22 From the frontlineDimbleby Cancer Care counsellorJean Meadows Meet the teamTELL US WHAT YOU THINKIf you have any comments about the magazineor suggestions for future articles, please contactthe communications department, St ThomasHospital, Westminster Bridge Road, London SE1 7EH, or email email@example.comVisit us online at: www.guysandstthomas.nhs.ukProduced by: The communications departmentDesign: AYA-Creative www.aya-creative.co.ukPrint: OSullivan CommunicationsFront cover: India Stern, a patient at Evelina London,celebrates the hospitals 10th birthday with herparents, Suzy and Ben, and her big sister, Freya. the GiST is published by Guys andSt Thomas NHS Foundation TrustFollow us on Twitter @GSTTnhsPick up your copy: the GiST magazine is for ourpatients, local people, staff,members and other supportersof Guys and St ThomasROUND-UPwww.guysandstthomas.nhs.uk 3IN THE NEWSA round-up of mediacoverage featuring Guysand St Thomas.The MirrorConsultant cardiac surgeonProfessor Vinayak Bapat andhis team have performedthe UKs first keyhole aorticheart valve replacements.The pioneering procedurewas used to save the life andcareer of Kamil Wojniak,Londons Strongest Man(pictured with Prof Bapat).His story was featured inThe Mirror and on BBCSouth East.BBC LondonBBC Londons Inside Outaired a feature aboutEvelina Londons 10thbirthday on both BBC1London and BBC1 HD. The news programme waswatched by more than500,000 people, and ashort clip on Facebook hadmore than 100,000 views.Sky NewsA new approach to HIVtesting in St ThomasEmergency Department(A&E) was featured on SkyNews. Dr Nick Larbalestier,consultant physician andHIV clinical lead, explainedwhy including an HIV testalongside other routineblood tests will help todiagnose patients who areunaware they have thecondition.Nurse Katharine Forbes was among 10 membersof staff and two firefighters who died at StThomas Hospital during World War II. Her nephewEric Arnold attended a service of remembranceon 10 September which marked the 75thanniversary of the first Blitz raids.In her last letter home on 10 September 1940,Photos celebrate older peopleafter the nurses home was bombed, Katharinewrote: We heard men calling to us. We shoutedback that we were alright and they were very niceto us. Planes were overheard and searchlights onthem and men told us to Take cover.Well, I must say I just laughed as I was thenstanding in a mass of masonry and girders so Iskipped across them and made for the arch(which is really the steps leading to theTreasurers House). To my great surprise theother side was completely clear. I had Bainbridgewith me with a slightly cut ankle we tied a pillowcase round it. Then we rounded the corner and there wasBig Ben, safe and sound, and we were sothankful. I should be really very upset if anythinghappened to Big Ben. We climbed a little gate andwere now on the terrace. We walked acrossNightingale lawn which had a good bit of glass onit. We went to Matrons office and werethoroughly spoilt with two mugs of tea, one mugof coffee, and lots of sandwiches. We tuckedourselves up down there till morning.Katharine Forbes (second left) with patients and nursesBlitz nurses war memorieslearned so much about theirlives and characters and I thinktheir personalities come acrossstrongly in the photographs. Seeing all the images ondisplay together at St Thomasis really powerful. Im pleasedto hear that people enjoylooking at the portraits on theirway in and out of the wards its nice to make even a smalldifference to how patients,visitors, and staff feel while inthe hospital.The project was funded by aDepartment of Health grant thathas been used to make thewards more dementia-friendly. An exhibition of photographsshowing positive images ofageing is creating a welcomingatmosphere for patients andvisitors at St Thomas Hospital. The 50 photos, which aredisplayed on the walls leadingto the hospitals Older PersonsUnit, were taken byprofessional photographerEdward Webb. They showpatients from Guys and StThomas and other peoplefrom the local community insouth London. Winifred Burraway, 92, whowas one of the models, says: Ienjoyed having my picturetaken and Im really pleasedwith how it looks as part of thedisplay. Everyone says whatlovely photos they are.Photographer Edward Webbsays: It was an immensepleasure to meet everyone whofeatures in these portraits. IWinifred Burraway with the photo display4 the GiSTROUND-UPThe Care Quality Commission (CQC),which regulates health and social careservices in England, carried out aninspection of our hospitals andcommunity sites in September.Inspectors visited services across theTrust to assess the standards of care weprovide for patients. They also spoke topatients, relatives, carers and staff. The inspection was an importantopportunity for staff to showcase whatthey do well and also a chance to learnwhere we need to do better. When the report is published, it will bepublicly available on the CQC website. Through its inspection, the CQC aimsto give the public a clear picture of thecare provided at Guys and St Thomas byasking five key questions:Survey resultsnow inIn the last edition of the GiST, weasked you what you thought of ourmagazine and how we might improveit. More than 350 people shared theirviews and came up with some greatsuggestions for features and stories.We were very pleased that 97% ofyou rated the GiST as very good orgood. You also told us that you mostenjoyed reading the news section,stories about patients, and HistoryCorner.Thank you to everyone whocompleted the survey andcongratulations to Ashok Patel, whowon our prize draw for tickets to TheView from The Shard.More than 250 people attended the TrustsAnnual Public Meeting on 10 September tohear about the last year in the life of Guysand St Thomas and to find out more aboutour future plans.Keynote speakers Dr Rebekah Schiffand nurse Karen Titchener talked aboutimproving care for older people in ourhospitals and in the community.The meeting also saw the premiere ofWere Listening, a new film demonstratingthe commitment of our staff to listen toand learn from the experts our patientsand carers.This film is now available to watch viathe Guys and St Thomas YouTube channelwww.youtube.com/GSTTnhs. Chief Nurse Dame Eileen Sills talkedabout #hellomynameis, a nationalcampaign that we have adopted at Guysand St Thomas. More than 10,000 staffnow wear bright yellow name badges toensure that patients know who they aretalking to.The meeting also included a livelyquestion and answer session which gavepeople the chance to quiz the Trust Board.Older peoples care in focus Is care safe? Is care effective? Are services caring? Is the service responsive? Is the service well-led?Dame Eileen Sills, Chief Nurse, says: Wedo not know what the outcome of ourreport will be, but I would like to thank allstaff for their tremendous response inwelcoming and engaging with theinspection team.Our CQC inspectionQuestion time at Septembers Annual Public Meetingwww.guysandstthomas.nhs.uk 5presentation, Lily said: Thecare I received at St ThomasHospital was wonderful. I wasin hospital for two days afterthe birth and I had no idea howto breastfeed.I was so grateful to be in anenvironment where I wasconstantly helped to learn howto breastfeed. I couldnt do itwithout help at first, but by thetime I left I had the confidence tofeed my baby at home on myown and it has been easy eversince!ROUND-UPNew mum Lily Cole hasthanked midwives at StThomas Hospital who gave herthe confidence to breastfeed. The model and actressreturned to the hospital, whereshe received postnatal care, topresent the maternity teamwith the internationallyrenowned UNICEF BabyFriendly Award.The Baby Friendly Initiative,set up by UNICEF and theWorld Health Organisation,works with UK public servicesto protect, promote, andsupport breastfeeding in orderto strengthen mother-baby andfamily relationships.Speaking at theLily Cole praises baby friendlymidwives Bermondsey Centre opens its doorsDermatology and rheumatology serviceshave recently moved into state-of-the-artfacilities in the new Bermondsey Centre atGuys Hospital. Barbara Gratton has been a patient of thephotopheresis service, where blood is treatedwith UV light, since she was diagnosed with arare kind of blood cancer in November 2014.She now receives her treatment in theBermondsey Centre.Barbara says: Its very smart here verypleasant. The old place was pretty grotty, really,compared with this. I like the big, airy waitingroom, and I like that its so near to the coffeeshop. I think its really well signposted. Theyvemade a huge effort to make it comfortable, and itshows.Of course, the nurses are still as wonderful asever and thats the most important thing.A lot of the conditions that are treated in theBermondsey Centre require several differentclinicians. By locating services together,healthcare professionals can collaborate closely,alongside academic and research teams.Manda Mootien, senior sister in thephotopheresis service, adds: The move hasbeen really good for our patients. Were easier tofind and the environment is nicer.Everyone is under one roof, so we can getadvice from specialist colleagues, if we need it,and it feels like were working as a team.We can be more efficient too. We can makethe most of our resources so we can help morepatients.Read about the art in the BermondseyCentre on page 20.TOP TWEETS@BeckyRDtobeIn the haematology dayunit @GSTTnhs havingtreatment spotless,comfortable and the staff areabsolutely lovely! Big thumbs up@VanessaLongleyLove the way mydaughters consultant @GSTTnhsways talks to her first and givesher the time she needs to reallyunderstand. @GrangerKate@CLScottLang#Evelina10Remembering the excitingmove! I was working in PICU atthe time one of my best jobsever. Happy birthday ECH!@EvelinaLondon@lswithin @GSTTnhs Im walkingmy kids to school and back#WorldHeartDay #WHD2015#startthemyoung@Eric_Barratt 8Early morning start to getmy nose fixed. Will be nice tobreathe/smell again! @GSTTnhs@HGWombat @GSTTnhs thank you toeveryone who dealt with metoday at the fracture clinic. Made a stressful visit completelystress free.@joelpetch@EvelinaLondon@GSTTnhs want to expressmassive gratitude to both PICUand Mountain Ward staff for thetreatment of a relative.#ThankYouFollow @GSTTnhsand @EvelinaLondonfor all the latest news fromGuys and St Thomas andEvelina London ChildrensHospital.Patient Barbara Gratton with nurse Manda MootienSPOTLIGHT6 the GiSTMayas storyIn April 2014, when I was 16 years old, I had astroke. Of course, I didnt use the word strokeat first as far as I knew, what I was feelingcould just have been a side effect of being anormal teenager. When I arrived at Evelina London ChildrensHospital, I was seen by child neurologist DrNoma Dlamini. I heard the word stroke forthe first time. My panic rose. But she talked tome as if I was a friend, explained what washappening, and my panic and confusionmelted into a sense of power. In July 2014, I had a second stroke while Iwas in America and I was admitted to hospitalin California. Day after day, teams of people in whitecoats came by to work out why this washappening to me. One doctor in particularbecame more than just another white coat tome. Just like Dr Dlamini did, Dr Schwartz tookthe time to talk to me, not my parents, not theother doctors, just me. He made sure that Iunderstood what was happening to my body.At the end of July 2014, my doctors foundthe cause of my strokes. I had been born witha bone in my neck crunching into an artery,which damaged it and caused blood clots.These blood clots travelled up to my brainand caused the strokes. In August 2014, I hada seven-hour brain operation at StanfordHospital in California to fix the problem. Everyone needs someone to believe inthem and to trust them with knowledge.Never is it more important than when you areat your weakest and most vulnerable. DrDlamini and Dr Schwartz gave me confidence they made me feel brave and powerful. For me, the best doctors were the oneswho made me the owner of my problems andthe boss of my own body.Surviving a stroke at 16The Child Stroke Project is a unique collaboration between EvelinaLondon and the Stroke Association. It has helped more than 140children and young people since it started two years ago, including Maya Jotwani.What is a stroke?The brain controls everythingour body does. It needs bloodto work properly. When theblood supply to the brain is cutoff, a stroke happens.The signs of a stroke arevery sudden, and include oneside of the body being weak,slurred speech, problems withvision, confusion orunsteadiness, and severeheadaches.Adults can reduce their riskof stroke by not smoking,drinking sensibly, eatinghealthily, and keeping active.Generally, people are moreat risk of a stroke when theyare older. However, it ispossible for a child or baby tohave a stroke. It is not always easy torecognise when a young childhas a stroke. It may bedetected afterwards when theyhave difficulties with learningand development. Recovering from a strokecan take a long time, andneeds to be supported byspecialist therapy.Professor Tony Rudd, strokeconsultant at Guys and StThomas, says: Treating strokein children is complex.Because younger children losethe potential to learn, ratherthan the abilities themselves,we talk about habilitationrather than rehabilitation.The stroke service at EvelinaLondon Childrens Hospitalgives advice and treatment tochildren and families affectedby stroke, ensuring they haveinformation and access tosupport in the localcommunity.SPOTLIGHTwww.guysandstthomas.nhs.uk 7When John Bernard realised he had a drinkproblem he turned to Guys and St ThomasCommunity Alcohol Support Service for help.John, 59, who works in sales, says: Mypartner and I belong to a sports social club.Most of our friends drink the same volumesas us and theres a kind of social acceptancewhen were out drinking together.Eventually I found myself drinking a bottleof wine a night, maybe more. A friend said Imargumentative and confrontational when Idrink excessively. I do silly things. Once I gavemy Montblanc watch to a complete strangeron a bridge.One morning, when I was completelysober, I decided to go to my GP to talkthrough my fears. I said, I think I might be analcoholic. Thankfully he confirmed that Iwasnt but referred me to Nell Blane in theCommunity Alcohol Support Service whoworked with me for nine weeks using talkingtherapy. In talking therapy a trained therapistlistens to people and helps them to find theirown answers to problems withoutjudgement. John continues: I've got a high-pressurejob thats all about targets, I live with anirregular heartbeat, and recently I foundblood in my urine which was stressful. Butwith Nells help Im able to stay on track. I stilldrink now but its in moderation and thatgives me the confidence to walk away fromdifficult situations.People who drink above recommendedlevels are at greater risk of many conditionsincluding mouth, bowel and breast cancerand liver disease. They are also more likely tohave depression, low energy, high bloodpressure and weight problems.Nell Blane, Guy's and St Thomas' HealthImprovement Practitioner for Alcohol,supports people in Lambeth to cut down onalcohol before it becomes a problem. She says: Drink has a way of creeping upon you. Before you know it, it's too important.I see lots of different people teachers,musicians, artists, all ages and nationalities.I carry out an initial assessment to findout how much people drink and whether theyare putting their health at risk. I try to find outwhy they are drinking. Alcohol might behelping them sleep or simply marking theboundary between day and night. By makingsmall changes, people can reduce the risk totheir health.John Bernard with NellBlane, Health ImprovementPractitioner for AlcoholOur Alcohol Care TeamIn 2013-14, more than a millionhospital admissions in Englandwere due to an alcohol-relateddisease, injury or condition. Guys and St ThomasSpecialist Alcohol Care Team isbased in our hospitals andcarries out a range of tasksincluding training staff toscreen and advise patients onwards about alcohol. Kundayi Sauti, clinical nursespecialist from the AlcoholCare Team, says: People arenot aware of harmful drinkinglevels. It may not be obviouswhen they come into hospitalthat they have an underlyingalcohol problem and requiredetox or support to managetheir withdrawal. So it is important that allpatients are screened for theiralcohol use and, when they areready to leave hospital, thosewho need further help arereferred to communityservices for follow-up andsupport.For advice about alcohol call 020 3049 5221 or email gstr-tr.AlcoholLEIPS@nhs.netJohnbreaks the alcoholcycleIN FOCUS8 the GiSTRaise 10 for our 10th birthdayText EVELINA10 to 70025 to donate 10Visit www.supportevelina.org.uk/birthday Helen Marshall with her twins Peter and James at Evelina Londons 10th birthday partyIN FOCUSwww.guysandstthomas.nhs.uk 9Ellie with her mum Salmatta, and her dad, JohnAyoolaThe new Evelina London Childrens Hospital opened in2005. Over the last 10 years, it has saved the lives ofthousands of children. We talk to patients, parents andstaff to find out why it is so special. Peter and James storyTwins Peter and James Marshall wereborn prematurely and spent months onventilators in their local hospital. Whenthey were five months old, they weretransferred to Evelina London where theywere given tracheostomies, small plastictubes inserted into their windpipes toform an artificial airway to help thembreathe more easily. Now, the three-year-old boys arelooking forward to having theirtracheostomies removed next year.Su Man, ear, nose and throat (ENT)nurse specialist, says: Tracheostomiesare used as a last resort, as they have ahuge impact on the whole family's life.They can be used for a number ofreasons Peter and James need them tohelp their airways to stay open so theirlungs can work properly. Theyre such lovely, energetic boysand its great to see how far theyve come.Helen Marshall, the twins mother, says:Evelina London is amazing. The nurses goabove and beyond all the time. Theres lotsfor the boys to do while theyre here, andwe know theyre always safe.Sebastians story I was told Sebastian had a problem withhis heart when I was pregnant with him,says Marcela Holtheuer, whose son isnow a patient at Evelina LondonChildrens Hospital.At the 20-week scan they couldnt seethe left side of the heart.Sebastian had the first of threeoperations at Guys Hospital in March2000 when he was just three days old. When Evelina London opened in 2005,Sebastian became a patient in the newhospital. Now, aged 15, hes considering acareer with computers.Marcella continues: Evelina Londonprovides five-star care. The new buildinghas made a real difference to how I as aparent and Sebastian as a patient feelabout visiting hospital.Sebastian adds: I like to talk to theother patients and play games with them.Its good to know that you are not theonly one in this situation.Professor John Simpson, consultantfetal cardiologist, explains: The leftpumping chamber of Sebastians heart istoo small. Its quite a rare condition, onlyabout 200 babies a year are born with it.Sebastian, aged two, with his dad, Paul BainbridgeEllies story Evelina London has provided communityservices including breastfeedingsupport and school nursing to familiesin Lambeth and Southwark since 2014.Salmatta Sesay received extra help fromEvelina Londons team of communityhealth visitors after her daughter, Ellie,was born in February this year. Salmatta says: They were very helpfulwith making sure Ellie was OK and thatwe were doing all the right things for her.When Ellie started to have eczema, I hadno idea what to do but they helped me.And now, apart from a bit of dry skin,shes doing really well.They made me feel like a mum justlike Im supposed to.Evelina London has led the way in alot of the recent developments inchildrens heart medicine. We havepioneered the use of hybrid surgery totreat people with Sebastians condition.Cardiac surgeons and interventionalcardiologists operate at the same time toreduce the number of times a child has tohave surgery.And the ways we can now visualise aheart, without having to carry outsurgery, would have been unthinkable 10years ago. Evelina London was one of thefirst units to use cardiac MRI scanning tolook at a heart, and it is still the only placewhere you can have a fetal cardiac MRI toscan your babys heart before it is born.Now we areTHE INTERVIEW10 the GiSTAmanda Pritchard took on the role of ActingChief Executive when Sir Ron Kerr steppeddown at the start of October. She has been atGuys and St Thomas for more than threeyears as Chief Operating Officer.Amanda talks candidly about her role, thechallenges facing the Trust and how her youngfamily helps keep her grounded. Representing an incredible teamQ Did you always want a job in healthcare?A Im not from a medical background my father was a clergyman and mymother was a maths teacher. I was,however, determined to work in the publicsector, so joined the NHS ManagementTraining Scheme. I fell in love with it fromthe moment I started, and I have neverstopped being absolutely committed tothe health service.Q How has the NHS enabledyou to progress your career?A I grew up and went to a comprehensive school in CountyDurham before studying at OxfordUniversity. I have a strong public serviceethos, which I get from my parents andfrom my experience growing up. I stronglybelieve that where you come from shouldin no way determine where you can go. I think the NHS, and particularly Guysand St Thomas, is fantastic at providingopportunities and supporting people tosucceed. Im younger than most peoplein this position, but you should neverunderestimate the life experience thathaving three children gives you!Q How do you manage to juggleyour family life and work?A Its very busy. Both my family and my work are extremely important tome and I very much want to be good atboth of them. Its too difficult for me to beone thing at work and another thing athome and I wouldnt want to be. My familyshapes my values and makes me who Iam. Ive always been very open about that. Q How do you describe yournew job to your children?A The closest theyve come to understanding what I do was whenI told them Im a bit like the headmistressof Guys and St Thomas. They wantdetails such as how many people I cantell what to do! I try to explain that my jobis more about working with people butIm afraid I just get questions like, Whatare you going to say at assembly todayMummy?Amanda and her children Thomas (1), Isobel (5) and Henry (7) www.guysandstthomas.nhs.uk 11Q Do you feel you have big shoes to fill after Sir Ron Kerr?A Thats a massive understatement. Weve been very lucky to have Ronand have benefited enormously from hisexperience. The fact that hes staying onas Executive Vice Chairman will be a hugebenefit to the organisation and to mepersonally. Its a real testament to his leadershipthat, along with our Chairman Sir HughTaylor, hes planned the transition as hehas done. It will allow us to continue to workeffectively with other externalorganisations, while making sure we canfocus on our internal challenges in theway we need to.Q Youre presumably talkingabout financial challenges? A Were certainly not immune from the huge financial pressures facingthe whole of the NHS. This financial yearis the first time the Trust has everplanned to make a deficit. Essentially, weare getting paid less for the services weprovide and the gap cannot be filled byjust increasing our activity. We cant losefocus on providing high-quality and safecare to more patients than ever butunless we get the money side of thingssorted, we cannot pursue our ambitionsto invest in improvements. My immediate focus is on engaging allour 13,600 staff to increase efficiencyand reduce costs without compromisingthe quality and safety of care that weprovide to patients.Q What makes Guys and St omas special for you? A If Im having a bad day, there is nothing better than getting out intothe organisation, meeting people andtalking to them about what theyre doing.It reinforces what were all about and justhow special Guys and St Thomas is. Our third child, Thomas, was born herelast year so I experienced at first handthe fantastic care that our staff provide. Ifeel very privileged to be part of this teamand to be able to represent this incrediblecollection of people.Yes were facing huge challenges as an organisation, but we also have greatopportunities. Just look at the people, the values, the experience, the structureand the diversity that weve got torespond to them.Acting Chief Executive Amanda Pritchard outside St Thomas HospitalINTERVIEWTHE12 the GiSTLIVING WELLThere have been some major changes taking places in and around our EmergencyDepartment (A&E) at St Thomas Hospital as we create a new Emergency Floor. We take a look at how our patients are already seeing the benefits.Admission WardSome patients who come to theEmergency Department (A&E) need tostay in hospital for a day or two, but notlong enough to be admitted to aspecialist ward. These patients have beenthe first to experience the newenvironment of the Admission Ward.Dr Simon Eccles, consultant inemergency medicine who is leading workto transform the emergency carepathway, explains: Weve reached thehalfway point of the Emergency Floordevelopment and weve successfullycompleted the biggest physical change.Our two acute medical wards, which werelocated on the 9th and 10th floors of EastWing, have moved down to the groundfloor to become our new AdmissionWard.The ward is now next to theEmergency Department. The move hasreduced what used to be a 30 minutejourney out of the department and up allthose floors in a lift, to a five minutejourney just across the corridor. Weresaving our patients and staff a lot of time.The modern design of the new ward ismaking a big difference to patients andstaff.Weve used some subtle but cleverlighting, explains Dr Eccles. The lightingin the ward changes intensity, brightnessand tone to mirror the time of day.Some patients can be on theAdmission Ward for up to 48 hours. Ifyoure in bed for all that time, its easy tobecome disorientated. The change inlighting helps patients to keep in tunewith the day.A lighter viewfor patientse polite and responsivestaff can make you forgetyour pain. www.guysandstthomas.nhs.uk 13LIVING WELLFaisail Maramazi on the Admission WardFaisails storyFaisail Maramazi, 32, from Southwark, wason the Admission Ward after the discoveryof a blood clot on his lung. He said: Theward is very bright and very clean, theyvechanged my bedding every day. Patientsare not here for fun, but the polite andresponsive staff can make you forget yourpain.Vincents storyVincent Elliott, 75, from Stockwell, spentone night on the Admission Ward afterbeing brought to the EmergencyDepartment by ambulance when hebecame short of breath. He said: Its anice clean place. Ive had no problems, thepeople are very lovely and I hope they keepup the good work.What else is changing?If youve visited the EmergencyDepartment recently youll have noticedthat the entrance and reception areas foradults and children have drasticallychanged.The registration, initial assessmentand main waiting areas have moved to anew temporary location on theEmergency Floor and the pedestrianentrance to the department has movedto a temporary location.The challenge has been keeping thedepartment open while the project hasbeen underway, and continuing workingwith less space, says Dr Eccles. Its a bit like changing the wheels on acar while its still moving.Looking forwardThe final two stages of the EmergencyFloor development have now started.James Hill, Head of EmergencyNursing, explains: By completing theproject in stages, were able to learn whatworks well and what doesnt work so wellas we go along.Its been really encouraging to seealready how the new environments arebenefiting patient care, patient safety,and how efficiently we can work. The enthusiasm weve seen frompatients and staff who are alreadymaking use of the new facilities hasdefinitely motivated everyone to lookforward as we embark on the next stagesof the project. Weve had some really positivefeedback from patients and staff.14 the GiSTAndrew Hunter was admitted to Guysand St Thomas after his kidney stoppedworking in May 2014. For a while, he hadto have dialysis several times a week atGuys Hospital. After a series of tests, Andrew wasdiagnosed with a rare blood condition.The condition causes small clots in hisblood which make it hard for his kidneysto work properly. Andrews doctorprescribed a special infusion of medicineto manage the condition and to helpprevent it from getting worse. He receivesthe medicine once every two weeks. Andrew says: Every fortnight, I emailLouise in the pharmacy team and tell herthat Im on my way in. She then gets towork to prepare the medicine so that itswaiting for me when I get to the hospital.Behind the scenesThe pharmacy team makes sure that themedicine is properly prepared to beready for Andrew.Louise Condon, specialist pharmacist,explains: Andrews condition is very rare.We order his medicine in specifically forhim, and we have to go through a veryspecial process to get his medicine justright.The day before Andrew is due toreceive his treatment, we check theoriginal prescription. Then, on the dayitself, we give the order to the asepticteam who prepare the medicine. The aseptic team includes specialistpharmacists and technicians whoprepare medicines in sterileenvironments to stop them becomingcontaminated by dirt or bacteria.Penny Player, principal asepticservices technician, says: We make surethe volumes of the medicine are correctand we clean the vials. Then we mix theraw ingredients together inside anisolator with sterile air (pictured) to makesure that no bacteria can get inside.Once weve done all that andeverything has been double-checked, weput the medicine under a special lightthat allows us to check for contaminants.If it passes the test, Andrews medicine isready to be collected by a nurse andtaken up to the ward for him. Andrew concludes: I know Im veryfortunate. I dont suffer any side-effects, Ican lead a normal life and I considermyself lucky to have a very supportivefamily and to be in the hands of theprofessional pharmacists and kidneyteams at Guys.Tim Hanlon, Chief Pharmacist, adds:Pharmacy is always about medicine, butyou might see pharmacists runningclinics, prescribing, offering advice,manufacturing medicines or trainingcolleagues. For every pharmacist youmeet, there are a huge number ofcolleagues from across the team workingin the background.The breadth and depth of pharmacyservices at Guys and St Thomas meansthat we can do whatever patients need,there and then. Everyone in the teamplays a different role, whether its helpingpatients in the community or in hospital.Inside themedicine cabinetIN FOCUSMore than 250 pharmacists, technicians andsupport staff at Guys and St Thomas make suredrugs are prescribed and administered safely.We follow a medicine from its prescription up to the moment it is received by kidney patient Andrew Hunter.An aseptic technician prepares medicinesIN FOCUSwww.guysandstthomas.nhs.uk 15Andrew Hunterreceives an infusionof medicine onceevery two weeksAndrew Hunter receivesan infusion of medicineevery two weeksFrequently asked questionsHow should I store my medicines?Medicines should be kept in their original packaging and stored in acool, dry, dark place out of the sight and reach of children. Somemedicines need to be kept in the fridge this will be clearly marked onthe packet or instruction leaflet.What should I do with leftover or expired medicines?Make sure that you never take a medicine after its expiry date, which willbe printed on the packet. Never throw unused or expired medicines inthe rubbish bin or flush them down the toilet. Take unwanted medicinesto a community pharmacy, where they can be disposed of safely.Is it safe to take herbal medicines? Herbal medicines are often thought to be safe as they are natural. Theydo however have an effect on the body and can lead to side-effects andso should be used with care. They may also interact with your othermedicines, medical conditions, or be unsafe if you are undergoingsurgery. Always let your doctor or pharmacist know about any herbalmedicines you are taking. What should I do if I have any questions or concerns about my medicines? Speak to your pharmacist first. If they can't help or they think that youneed to see your doctor, they will advise you to do that. Alternatively, ifyou are a patient at Guys and St Thomas, you can call our PharmacyMedicines Helpline for advice on 020 7188 8748 (open 9am-5pmMonday to Friday). 16 the GiSTIN FOCUSLast year more than60,000 people in the UKsuffered a hip fracture.Consultant orthopaedicsurgeon Zameer Shah talksabout the treatment andcare of hip fracturepatients.A hip fracture is a crack or break in thethigh bone which occurs at the hip joint.Hip fractures can be extremely painful andleave a person unable to move their leg. Zameer Shah, consultant orthopaedicsurgeon, explains: We see a wide range ofpatients in the Fracture Clinic. A hipfracture can be brought about through allsorts of circumstances, so we have amulti-disciplinary team in place forproviding prompt treatment appropriateto each patients individual needs.There are hip surgeons on standby forcarrying out hip replacement or hip repairoperations. We can get people back ontheir feet within a day or so.Hips become weaker as a personbecomes older. Older people can also bevulnerable to falls leading to broken hips. A lot of hip fractures happen later inlife so there are also specialist olderpeoples doctors in the team who assessand plan suitable care for these patients,says Zameer.Having this full team available makessuch a difference for our patients as wework together very efficiently to get thepatient back on their feet as quickly aspossible. Were a national leader in theservice we provide and we gain a lot ofpositive feedback.Guys and St Thomas also provides ahip care service for cancer patients.Cancer in bones increases the risk of a hipfracture occurring, so a service has beenset up at the Trust which cancer patientscan be referred to for specialist treatment. After an assessment, the patient willpotentially be offered surgery aimed atavoiding a hip fracture. This preventativetreatment can relieve patients of the worrythat their hips will suddenly break and leadto a dangerous fall. It means that cancerpatients have a better chance ofremaining mobile while undergoing theirtreatment.Tony Hunter is a kidney cancer patientat Guys and St Thomas who hasbenefited from the service. Tony, who is 63 and lives in Rochester,Kent, had a tumour behind his pelviswhich made it very painful for him to useone of his legs. A referral to the specialisthip care service led to the tumour beingremoved and his hip being replaced.Tony is grateful to be walking again andfeels his quality of life has improved.My new hip is working well. Having hadthe operation Im now able to get from Ato B by myself and that gives me greatKeepingpatientsmobileTony Hunter and Zameer Shah, consultant orthopaedic surgeonOn top of everythingelse they are goingthrough, you dontwant cancer patientslike Tony to be worriedabout hip fractures www.guysandstthomas.nhs.uk 17LIVING WELLpeace of mind. Zameer Shah says: On top ofeverything else they are going through,you dont want cancer patients like Tony tobe worried about hip fractures. Through working closely with thecancer team, we are able to providepatients with improved treatment optionsthat help them stay on their feet.To find out more, go towww.guysandstthomas.nhs.uk/trauma-orthopaedicsBody and mindWe are always aiming to make things better for our patients, to helpthem become more independent, explains physiotherapist RebeccaMullin. Rebecca works with people who have neurofibromatosis, acondition that causes tumours to grow on nerves. She uses exerciseto restore movement and function for her patients.Rebecca found that some patients werent improving as quickly asshe would have expected, because they found it difficult to commit tothe exercises she had recommended they do in their own time. She explains: They find it hard to keep their motivation up. Itsunderstandable physio isnt a quick fix, and some of the stretchescan be uncomfortable, but theyre so important. Rehabilitation canoften stop a problem from getting worse.Rebecca started to work with health psychologist Jess Walburnto find new ways of helping patients to commit to theirrehabilitation. The initiative is part of the NationalNeurofibromatosis Service, based at Guys Hospital. With Jesssinsight and advice, Rebecca hopes that her patients will find theencouragement they need. Jess explains: Whether or not a patient commits to theirrehabilitation depends on how necessary they think the rehab is,and whether they have any concerns or worries about it.Barriers to commitment might include a lack of motivation,time, or understanding, or wider anxieties about what youve beenasked to do. Motivation problems can arise during thephysiotherapy session itself, or afterwards. By working together, wecan find out from patients what the barriers are, and see how wecan support them. Setbacks are normal and to be expected if youre tryingsomething new. People who lapse on one day of a new resolution whether its physiotherapy, or stopping smoking, or going to thegym often think well, theres no point doing it tomorrow either.But of course, its always worth trying again the next day. Its early days for the partnership between physiotherapy andpsychology, but Rebecca and Jess are already seeing results.Rebecca says: It is absolutely amazing to see someone walk ontheir own for the first time in years.Zameer Shahs healthy hip tipsKeep active and exerciseregularlyWalking, swimming, and cyclingare particularly beneficialTry a new activity such as yoga or PilatesMaintain a healthy weightPhysiotherapist Rebecca Mullin with patient Maria WhitefieldTRUST LIFE18 the GiSTRolereversalS How are you finding theEmergency Department?A Im learning a lot you have no idea whos going to comethrough the door next. Wereencouraged to spend lots of time withpatients, which is great because youlearn something new from everyperson. S Absolutely. Patients and clinical teams both really value students patients understand that you needto learn in order to becometomorrows doctors and staff aregrateful for your help and thecompletely fresh perspective youbring. Its really important that you getas involved as you can. A What do you do as Acting Chief Operating Officer? S I have to make sure that the Trust performs as effectively as itpossibly can day-to-day. I have afantastic team that works very closelywith all our clinical services to supportthem in delivering care that is of thehighest quality. Its really importantthat we take every opportunity to dothings better. What are your careeraspirations? A At this point, I really dont know. Im just starting my second yearof clinical placements and still havelots to learn. Its clear from working atGuys and St omas that theres a loton offer. S ats a good answer. Im always a bit nervous when a student tellsme that theyve already decided whatthey want to specialise in there is somuch to see and to learn aboutmedicine, and yourself, before youreach that decision. Do your reasonsfor wanting to be a doctor still holdtrue? A Yes. I chose medicine because I want to keep learning and I enjoybeing part of a team that deliverspatient care.S at sense of team spirit is very important at Guys and Stomas. Its great to be part of a largeteam that has common goals thebest possible experience andoutcomes for patients. Dr Simon Steddon andKings College Londonmedical student Andrew Baigey discuss lifeat Guys and St Thomas.They met in Simons firstweek as Acting ChiefOperating Officer andAndrews first week onplacement in the EmergencyDepartment (A&E) at St Thomas Hospital. Dr Simon Steddon, Acting Chief Operating Officer, talks to medical student Andrew BaigeyYou learnsomething newfrom everyperson TRUST LIFEwww.guysandstthomas.nhs.uk 19To find out how you can support theappeal, go towww.supportgstt.org.uk/cancercentreA What led you into the role?S roughout my career, Ive always felt that it isimportant to share good practiceand to try to be a positiveinfluence on the wider workingof the hospital. at really is thefocus of my team. If you couldimprove one thing about life as astudent, what would it be?A ere are more than 2,200 medical students at KingsCollege London so its importantthat people dont feel lost in thesystem. Id like all students to feelthat their voice is heard, and asPresident of the MedicalStudents Association I can helpWhy IfundraiseBirthday thanks for breast cancer treatmentAlison Hookham was treated for breastcancer in 2009, which included fiveweeks of radiotherapy treatment at StThomas Hospital. Once she recovered, Alison joinedthe Patient Reference Group that wasbrought together to help design thenew Cancer Centre at Guys Hospital.She continues to play a key role in thegroup which meets regularly to discusshow the Centre will be run, from theway services are delivered to menus inthe cafs. Alison is also a keensupporter of our fundraising appeal. Westill need to raise just over 9 million toprovide the finishing touches to ournew Cancer Centre.She recently celebrated a specialbirthday and, in lieu of presents, askedfriends and family to donate to GuysCancer Centre Appeal and a local breastcancer support charity in south eastLondon, raising an amazing 2,000 toshare between the two good causes.make that happen. Whats thebiggest challenge in your job?S e complexity! Guys and St omas is avery large organisation and it is challenging to keep on top ofeverything from district nursingthrough to dentistry. However,thats also part of the real joy of the job it is a privilege to beinvolved in the work of so many services. As a student, youre in a similarposition. e hospital is open toyou, so cherish the opportunityto experience all you can.Alison Hookham with Ivan Harbour and RichardRogers from Rogers Stirk Harbour + Partners,the architects who designed the new CancerCentre at Guys Hospital, which opens in autumn 2016.TRUST LIFE20 the GiSTYou may have noticed the art on displayacross Guys and St Thomas. From thestatues outside the hospitals to thepaintings and prints on the walls of wardsand waiting areas, art helps to create a calmand uplifting environment for staff andpatients. Working with Guys and StThomas Charity, we want to make ourhospitals very special places.Artwork from the collection held by Guysand St Thomas Charity, as well as speciallymade pieces are on display in the newlyopened Bermondsey Centre at GuysHospital. The art complements the richhistory and surroundings of the hospitaland is part of our work to improve theenvironment for patients and staff. An artist in residence, Sue Ridge, workedclosely with staff, patients and Guys and St Thomas to develop the art for theBermondsey Centre. Old maps of the local area were put onFor more information about The Friends of St Thomas Hospital, call 020 7188 2468 oremail firstname.lastname@example.orgFor more information about The Friends of Guys Hospital, call 020 7188 2465 oremail email@example.comAsk us: Have you met our Friends?We speak to Dr Michael OBrien, Chair of The Friends of Guys Hospital, and Marian de la Piquerie, Chair of The Friends of St Thomas Hospital.Art in the Bermondsey Centreshow and hand-drawn architecturaldrawings of the original hospital have beenreplicated as wallpaper. They sit alongsidenew pieces like an eye-catching haikuwater wall. To make the wall, staff wereinvited to write their own haiku a three-line poem, which originated in Japan inspired by water, light and the sea. In thefinal piece, the poems float over a waterbackground, forming a soothing image. For more information about Guys and St Thomas Charity, visitwww.gsttcharity.org.ukWho are The Friends?Were two different charities. Weve existed at Guys since 1895and at St Thomas since 1880. A lot of Friends are former staffmembers and patients, but we come from across the community.The thing we share is that we all want to give something back tothe hospitals.What do you fund?All sorts of things it depends on the applications we receivefrom staff. For example, at St Thomas we fund medicalequipment, the refurbishment of day rooms on wards, and theMusic Man, who plays songs for children in intensive care atEvelina London (pictured right). At Guys Hospital, we providefacilities and some research grants, which must be of clear andimmediate relevance to patients. Whats next for The Friends? More of the same. Were proud of our history and we want to carryon providing things that make a difference for patients.The haiku water wall in the Bermondsey CentreRunning fast as I canNot scared at allSuddenly a wave hits me- a haiku from the water wallTRUST LIFEHISTORY CORNERwww.guysandstthomas.nhs.uk 21When Evelina de Rothschild tragically losther life during childbirth almost 160 yearsago, little did she know that her legacywould become an organisation that caresfor more than 55,000 children in hospitaland the community each year.The original Evelina Hospital for SickChildren was funded by Baron Ferdinandde Rothschild in memory of his wife. Itopened on Southwark Bridge Road in1869 with no expense spared to makethis a model hospital. In its first year,more than 300 children were admitted tothe hospital. By 1900 more than 1,000children were admitted and more than20,000 children were treated each year.Evelina moves to GuysFollowing the creation of the NationalHealth Service in 1946, Evelina mergedwith Guys Hospital. It moved to the newlyopened Guys Tower in 1973. Several ofthe childrens wards in Guys Tower werenamed after those who had contributedto the original hospital, includingRothschild Ward.Over the next 30 years, as hospitalservices for children became morespecialised, the childrens departmentdeveloped a worldwide reputation in anumber of areas, including childrensheart surgery, kidney medicine, andneurology. As Evelina London Childrens Hospitalcelebrates its 10th birthday in its currenthome on the St Thomas site, we lookback at the history of the hospital thatwas designed by children for children.Evelina Londoncelebrates 10 years in itsnew homeEvelina moves to St ThomasIn 2005, Evelina moved to a brand newbuilding on the St Thomas Hospital site.It was the first new childrens hospital tobe built in London for more than 100years. The award-winning building wasdesigned around the needs of thechildren, their families and staff toprovide the best possible care. Our new logo is launchedPatients, their families, and staff cametogether to choose the Evelina Londonlogo, which was unveiled on 1 July 2013.Today, 10 years since the hospitalmoved to its current location, EvelinaLondon offers a wide range of servicesmeeting the needs of south Londonschildren while offering highly specialistcare for children from across south eastEngland and beyond.Birthday celebrationsWe held special events in October tocelebrate Evelina Londons 10th birthday.Teenage patients kicked off thecelebrations with an exciting party andexclusive performance from X Factor popstars Only the Young. Patients,supporters and staff were invited to acelebratory tea party and there were evensome surprise visits to the wards fromShrek and Princess Fiona. Patients unveil the new logo for Evelina London Childrens Hospital in 2013 The original Evelina Hospital on SouthwarkBridge RoadA royal visit in 1869TRUST LIFE22 the GiSTIm here to help cancer patients and theircarers cope with the personal difficultiesthat they encounter during and after theirtreatment. People have all sorts ofdifferent emotional reactions to cancerand counselling can really benefit bothpatients, their families and carers. Having started working at Guys and StThomas 15 years ago, Ive seen a hugeincrease in referrals particularly amongmen. I think people are much more openabout their feelings than they used to beand thats great because it means theyrewilling to receive specialist help from acounsellor when they need it. I run a support group for patients withhead and neck cancer. Its not unusual forthese patients to be left withdisfigurements, including eating andspeech problems that make it hard tosocialise or even go out in public. Throughthe group they get peer support fromFrom the frontlineDimbleby Cancer Care counsellor Jean Meadowsothers who have gone through similarexperiences which can boost theirconfidence and convince them that,although life may be different and difficult,it is still liveable. I also provide a psychosexualcounselling service for cancer patients.Run within Dimbleby Cancer Care, this isone of the only services of its type in theentire country and demonstrates howcommitted we are to providing the bestpossible care for our patients.Cancer treatment can have a majorimpact on someones personalrelationships. Fatigue, body imageconcerns, and other side effects oftreatment mean patients may experiencedifficulties. The service offers aconfidential place to talk and seek advice.I help patients adjust to the physicalchange in their bodies and to learn how tobe intimate with their partners again. Wediscuss the issues affecting them and I canhelp them through a difficult adjustmentprocess. Sometimes their partner willattend counselling sessions as well as this isoften a really useful way of improvingcommunication between them andenabling them to overcome their fears. I take enormous pride in my job,especially when I receive grateful feedbackfrom a patient. I believe its crucial thatcancer care isnt only about treatingsomeone medically but also helping themwith the psychological and other personalchallenges they face. Say what? Q Growing up, what did you want to be? A Originally I wanted to be an interior designer because of TV programmeslike Changing Rooms. It wasnt until I was 17,when my mum got breast cancer, that Idecided I wanted to be a nurse.Q What did you do this summer?A I spent two weeks in Addis Ababa, the capital of Ethiopia, working with asmall team of doctors and nurses for acharity called Project Harar. The charitycarries out cleft surgery all year round, andonce a year they fly out doctors and nursesto provide surgery and care for people withcomplex facial disfigurements. Thesepatients are often isolated by theirconditions, and have difficulty eating,drinking and speaking.Q How did you hear about the project?A This is the third year Ive been involved. I first heard about theproject through Professor Mark McGurk,a maxillofacial surgeon at the Trust. As the project has got more established,lots of junior nurses have had theopportunity to go to help. Q What is the most importantthing you learnt? A You learn to be very careful with anything that costs money. Duringmy first visit, a nurse asked me why I wasusing two gloves rather than doing mywork with one hand and one glove! Q Who was the most inspiringperson you met?A An eight-year-old boy called Adem (pictured left). He wasattacked by a hyena at night and hadsevere wounds. He had travelled a longway to come to the clinic, bringing hislittle sister and mum with him. Wechanged his dressing every day until hewas ready to have a skin graft he wasone of the bravest little boys Ive met. Catherine Collins,Inpatient MatronTRUST LIFEwww.guysandstthomas.nhs.uk 23We have two pairs of tickets to the View from The Shardup for grabs. To be in with a chance of winning one pair,simply complete the Evelina London wordsearch below.NameAddressEmailSend your entry by Friday 8 January to the GiST competition,Communications Department, 4th floor, Staircase C, SouthWing, St Thomas Hospital, Westminster Bridge Road, SE1 7EH;or you can email firstname.lastname@example.org.The winners will be selected at random and notified withinseven days of the draw. The result will be final and we will notenter into any correspondence regarding the competitionwinners. The prize is non-transferable.CompetitionEvery Monday: Free lunchtime concert 1- 2pm, Central Hall, St ThomasEvery Wednesday: Free lunchtime concert 1- 2pm, Hospital Chapel, Guys Raise money for your hospitalFor all the latest news about our amazing fundraisers and how you can support Guys, St Thomas and Evelina London, follow @SupportGSTT and @SupportEvelina and like facebook.com/SupportGSTT and facebook.com/SupportEvelina1 December Guys and St ThomasCommunity Carols 7- 8.15pm, Southwark Cathedral, London Bridge SE1 9DA Call 020 7848 7915 to book5 donation3 December The Friends of Guys HospitalChristmas Fair 10.30am - 2.30pm, Atrium 1, Guys3 December The Friends of St ThomasHospital Christmas Market 11am - 3pm, Central Hall andBirdsong Corridor, St Thomas5 December Florence NightingalesWonderland Grotto Booking times for a personal audience: 12.45 - 1pm and 2.30 - 4pmEmail email@example.com to book andfor details, free entry9 December Evelina London Carols 2pm, Atrium, 3rd Floor,Evelina London ChildrensHospitalWhats On130 November Movember Mens health awareness monthuk.movember.com14 November World Diabetes Day19 November20 February 2016 Exhibition: Designing Bodies:Models of anatomy from1945 to now Tuesday- Saturday, 10am - 5pm, Qvist Gallery,Hunterian Museum, Royal College of Surgeons,free entry25 November Cancer Centre drop-in session 5 - 7pm, Atrium 2, Guys131 December Decembeard (bowel cancer fundraisingcampaign) Call 020 8973 0011www.beatingbowelcancer.org/decembeard1 December World AIDS DayJ N I G C A M E L E C WB I T S E R O F F I R BE U O C T O P U S N A IA G F D F H O D E D B RC N W O S E C E S R O DH E H L U R E E R A P LU P A P R A A R O G U LS D L H L E N R H O F IK Q E I A B N V A N F ZY R A N W I U D E F I AM O U N T A I N S L N RY E L T R U T A A Y R DBeachBearCamelCrabDeerDolphinDragonflyForestHuskyLizardMountainOceanOctopusPenguinPuffinReefSeahorseTurtleWalrusWhaleText EVELINA10 to 70025 to donate 10*Get your kids to raise 10 for Evelina LondonFind out how at www.supportevelina.org.uk/birthday *for terms and conditions, please see our website supportevelina.org.uk.Evelina London Childrens Hospital is part of Guys and St Thomas NHS Foundation Trust.Guys and St Thomas Charity, Francis House, 9 Kings Head Yard, London SE1 1NA. Registered Charity No. 1160316.Company limited by guarantee registered in England and Wales No. 9341980Raise 10 for our10th birthdayWe are
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Measuring phenylalanine R Neil Dalton The WellChild Trust Laboratory Kings College, London Evelina Childrens Hospital at Guys Hospital NSPKU, Skipton,
Visiting Professional Programme: Paediatric Pharmacy Specialist Paediatric Pharmacist, Evelina London Childrens Hospital and Senior Pharmacy Lecturer, Kings College London. Aileen Parke,