Good Morning

Connecting with National Cancer Institute

Sara Comstock, ICC, NCI CIS Sara Comstock, ICC, NCI CIS

Maebe Brown, NCI CISMaebe Brown, NCI CIS

“This information is presented to enhance your efforts in

conducting cancer control interventions

in your Community”

Quick Assessment of Your Experience with NCI Resources

““One or two things I hope to learn at this Session”

1.2.

Programs

CANCER 101A Cancer Education and Training Program for American Indians and Alaska Natives

Goal►Provide basic information about cancer

Audience Community Members, Cancer

Patient/Family Education, Healthcare Staff

Cancer 101 CurriculumCancer 101 Curriculum► Module 1 - Cancer Data

► Module 2 - What is Cancer?

► Module 3 - Cancer Screening and Early

Detection

► Module 4 - Cancer Diagnosis and Staging

► Module 5 - Cancer Risk Factors and Risk

Reduction

► Module 6 - Basics of Cancer Treatment

► Module 7 - Support for Patients and Caregivers

How to Access?How to Access?

Posted on www.CancerIowa.orgPosted on www.CancerIowa.org

Call ICC @ 319-335-8144Call ICC @ 319-335-8144

Clinical TrialsClinical Trials

Why Care About Clinical Why Care About Clinical Trials?Trials?

Clinical Trials save lives by leading to:Clinical Trials save lives by leading to:

Improved cancer care delivery and treatment Improved cancer care delivery and treatment management.management.

Prevention of specific cancers in healthy Prevention of specific cancers in healthy people who are at high risk for cancer.people who are at high risk for cancer.

► Fewer than 3% of adults with cancer Fewer than 3% of adults with cancer participate in clinical trials. participate in clinical trials. Less than 5% of all eligible people with cancer

o Few over age 65o Ethnically diverse populationso Even fewer in many large prevention trials

► Many people are:Many people are: Unaware of the option of clinical trial Unaware of the option of clinical trial

participation.participation. Misinformed about the clinical trial Misinformed about the clinical trial

process.process.

Clinical Trials Education Series Clinical Trials Education Series (CTES)(CTES)► Group of 13 different educational resources to Group of 13 different educational resources to

support targeted education and outreach support targeted education and outreach programs.programs.

► CTES Includes:CTES Includes: WorkbooksWorkbooks BookletsBooklets

BrochuresBrochures

VideosVideos

Slide ProgramsSlide Programs

Web-based CoursesWeb-based Courses

For:For:► Individuals who want to develop a Individuals who want to develop a

basic understanding of clinical trialsbasic understanding of clinical trials

Content:Content:► Clinical trial processClinical trial process► How clinical trials lead to advances in How clinical trials lead to advances in

carecare► Participant protectionParticipant protection► Barriers to participationBarriers to participation► Finding clinical trialsFinding clinical trials► Exercises and reviewsExercises and reviews

Basic Workbook (91 pages)

In-Depth Program (96 pages)

For:For:► Health care professionalsHealth care professionals► Others seeking a more in-depth Others seeking a more in-depth

understanding of clinical trialsunderstanding of clinical trials

Content:Content:► Same as basic workbook and Same as basic workbook and

more (e.g., designing a trial and more (e.g., designing a trial and interpreting results)interpreting results)

► Conducting, locating, and Conducting, locating, and referring to trialsreferring to trials

► Case studyCase study

For:For:► Individuals and organizations Individuals and organizations

engaging their communities in clinical engaging their communities in clinical trials outreach and education trials outreach and education activitiesactivities

Content:Content:► Educating yourself and othersEducating yourself and others► Reaching underserved populations in Reaching underserved populations in

your community/outreachyour community/outreach► Working with the mediaWorking with the media► Working with medical organizationsWorking with medical organizations

A Resource Guide for Outreach, Education, and Advocacy (116 pages)

Trainer’s Guide for Cancer Education (115 pages)

For:For:► Health professionals and lay Health professionals and lay

people who conduct group people who conduct group training sessions with training sessions with community and scientific community and scientific audiencesaudiences

Content:Content:► Steps to plan, implement, and Steps to plan, implement, and

evaluate trainingsevaluate trainings► Examples of training methodsExamples of training methods► Worksheets/planning toolsWorksheets/planning tools

Brochures

For:► Cancer patients considering

a clinical trial (purple cover)► Medicare recipients

considering a clinical trial (green cover)

Content:► What are clinical trials?► What are my rights?► What are the risk and

benefits?► What questions should I ask?► What does Medicare pay for?

Also available in Spanish Coming Soon: Brochure on Prevention Clinical

Trials in English and Spanish

Booklet & DVD

For:For:► Cancer patients considering a Cancer patients considering a

clinical trialclinical trial

Content:Content:► What are clinical trials?What are clinical trials?► What happens in a clinical trial?What happens in a clinical trial?► Should I take part?Should I take part?

Available in English and Spanish

19 pages 28 pages

Ask Me about Clinical Trials Posters and Button

It can be worn by It can be worn by health care health care providers, clinical providers, clinical staff, patients, and staff, patients, and advocates. advocates.

Posters come in two designs, one

featuring a group of patients and

the other a health care provider.

Slide Programs Slide Programs (CD-ROM)(CD-ROM)Cancer Clinical Trials: The BasicsCancer Clinical Trials: The Basics ► For general audiencesFor general audiences► Includes speaker’s notesIncludes speaker’s notes

Cancer Clinical Trials . . . The Way Cancer Clinical Trials . . . The Way We Make Progress Against We Make Progress Against CancerCancer

► For limited literacy audiences in a For limited literacy audiences in a community settingcommunity setting

► Includes speaker’s notesIncludes speaker’s notes

Clinical Trials: In-Depth Clinical Trials: In-Depth InformationInformation

► For health professionals For health professionals ► Presenter prepares speaker’s notesPresenter prepares speaker’s notesComing Soon: Spanish Slide Program

Web-based Course (with CME)Title:Title:► Incorporating Clinical Trials into Incorporating Clinical Trials into

Your PracticeYour Practice

((http://cme.nci.nih.govhttp://cme.nci.nih.gov))

For:For: ► Health care professionalsHealth care professionals

Content:Content:► Challenges and solutions to Challenges and solutions to

participation in clinical trialsparticipation in clinical trials► Practical information to help guide Practical information to help guide

patients considering the option of patients considering the option of a clinical triala clinical trial

Also available: Human Participant Protection Education for Research Teams

How to Access?How to Access?►Resources can be:Resources can be:

DownloadedDownloaded Ordered onlineOrdered online Ordered by telephoneOrdered by telephone

http://www.cancer.gov/http://www.cancer.gov/clinicaltrialsclinicaltrials

Education in Palliative & End of Life Education in Palliative & End of Life Care for Oncology (EPEC-O)Care for Oncology (EPEC-O)

► Multimedia train the trainer curriculum Pain and symptom Pain and symptom

managementmanagement Care planningCare planning CommunicationCommunication

► Multimedia train the trainer curriculum Pain and symptom Pain and symptom

managementmanagement Care planningCare planning CommunicationCommunication

Tools

Cancer Control P.L.A.N.E.TUnderstandingRisk web site

Understanding Cancer SeriesPublication Locator

Lots of “Information” Out There . . .

What burns me up is that the answer is here somewhere staring usin our face!© The New Yorker Magazine

Cancer Control PLANET**Plan* Link *Act *Network with

Evidence-based Tools

Gateway to data and research-tested resources that can help planners, program staff, and researchers to design, implement, and evaluate evidence-based cancer control programs.

Understanding Cancer Series

www.cancer.gov/cancertopics/UnderstandingCwww.cancer.gov/cancertopics/UnderstandingCancerancer

Cancer Risk: Understand the PuzzleCancer Risk: Understand the Puzzle► NCI Interactive Site about cancer risk for NCI Interactive Site about cancer risk for

cancer free adultscancer free adults► TopicsTopics

Definition of RiskDefinition of Risk Risk Information for six common cancerRisk Information for six common cancer Action Steps to lower ones riskAction Steps to lower ones risk Tips for understanding cancer news storiesTips for understanding cancer news stories Tools to use with your doctor to manage cancer Tools to use with your doctor to manage cancer

riskrisk

Risk - http://Risk - http://understandingrisk.cancer.govunderstandingrisk.cancer.gov

Ordering Publications

►Hundreds of Publications Reports, Booklets, Pamphlets, Kits

►Multitude of cancer-related topics for both health care professionals and patients.

“This information was presented to enhance your

efforts in conducting cancer control interventionsin your Community”

Can you list one or two things you learned at this Session are?

Sara ComstockIowa Cancer Consortium(319) 335-8144Comstock@CancerIowa.org