gateway connection€¦ · 4 gateway onnetions summer 2018 gha’s unite for bleeding disorders...

Summer 2018

GATEWAY

CONNECTION

CALENDAR OF UPCOMING EVENTS

August 1 Grant Applications due for NHF’s Bleeding Disorders Conference 16 Wine Tasting Fundraiser Farotto’s Pasta & Pizzeria

September 24 Tee Off 4 Hemophilia Golf Tournament The Legends, Eureka

October 11-13 NHF’s Bleeding Disorders Conference, Orlando, FL 20 GHA Fall Membership Meeting, Stuckmeyers Farm

November 3 Trivia Night Fundraiser The Pavilion at Lemay

December 20 GHA Holiday Party The Magic House, Kirkwood

Like us on Follow us @GatewayHemo

WWW.GATEWAYHEMOPHILA.ORG

Sign up today for GHA’s

28th Annual Tee off 4 Hemophilia

Golf Tournament!

When: September 24, 2018 Where: The Legends Country Club 625 Legends Parkway, Eureka, MO 63025 Join us at The Legends Country Club, a Robert Trent Jones, Sr. designed course, for our 28th Annual Tee off 4 Hemophilia Golf Tournament! This charity event provides crucial funding necessary to support GHA’s overall mission to find better treatments and cures for bleeding disorders and to prevent complica-tions of these disorders through education, awareness, advocacy and research. In addition to a wonderful day of golf at a premier facility, we invite you to participate in our special contests, raffles, silent auction and live auction that will take place the day of the tournament. This year’s lunch will be provided by Pappy’s Smokehouse.

For more information and to register for this event, please visit www.gatewayhemophilia.org/events/tee-off-4-hemophilia/

Gateway Connection

is published quarterly by

Gateway Hemophilia Association

4976 Eichelberger St. St. Louis, MO 63109

314-482-5973 gatewayhemophilia.org

Email us at [email protected]

BOARD OF DIRECTORS

President Anne Parrott

Vice President Chris Schneider

Treasurer James Addie

Secretary Stephanie Bauman

Jim Causey

Tremika Conway Kari Moellenhoff Ben Moramarco

Maria Mohler

INDUSTRY ADVISORY CHAIRS

John Carleton Jessica Hurtig

EXECUTIVE DIRECTOR

Bridget Tyrey

COMMUNICATIONS AND PROGRAM MANAGER

Jennifer McNamee

INTERN Rieley Schneider

2 GATEWAY CONNECTIONS SUMMER 2018

GHA Board of Directors meetings are open to the public and held the 2nd Tuesday of every odd numbered month at 6:00pm at 4976 Eichelberger Street, St. Louis, MO 63109. Changes

to these dates may be necessary due to scheduling conflicts and will be announced at www.gatewayhemophilia.org/about-us/board-of-directors as soon as they are available.

Do You Have Your Medical Alert ID? A Medical Alert ID is essential for people with bleeding disorders. Wearing a Medical ID ensures emergency responders and hospital staff have up-to-date medical information the moment they need it to make informed decisions about treatment and care.

Did you know that GHA assists with MedicAlert memberships and IDs for patients with hemophilia and vWD? Visit http://www.gatewayhemophilia.org/resources/medical-information/ for more information or to apply for assistance with a Medic Alert ID due to financial hardship.

http://www.gatewayhemophilia.org/about-us/board-of-directors

SUMMER 2018 GATEWAY CONNECTIONS 3


GHA’s Unite for Bleeding Disorders Walk/5K

GHA’s Unite for Bleeding Disorders Walk/5K was held on May 5th at the Lower Muny Parking Lot in Forest Park. We are excited to say that this year’s event broke several organization records! With 43 fundraising teams and over 430 participants, it was GHA’s largest walk event, as well as its most successful, raising $63,805 to date! To top it off, we enjoyed a beautiful day in the park, which included breakfast, a DJ, face painting, St. Louis Fire Department trucks, a hydration and treat station for our 4-legged participants, and a visit from Billy the Blood Drop!

Along with being GHA’s largest fundraiser of the year, the Unite for Bleeding Disorders Walk brought our community and people who support it together to celebrate each

other, support each other, and raise awareness. This year, the message of unity was shared with all attendees during the new Pinwheel Ceremony. A special thanks to former GHA Board President, Dave Decker, for leading the ceremony. Following this moving speech, and with pinwheels in hand, the group of 5K runners and 1-mile walkers departed on their respective courses. As a new feature of the 5K run, chip timing was provided to give our runners a more accurate timing experience. Congratulations to our 5K winners: 1st Place winner Megan Tooley, with a time of 23:59.17; 2nd Place winner Dominic Arbini, with a time of 26:25.07; and 3rd Place winner Julie Harrison, with a time of 26:43.81.

Though we were all winners at the Unite Walk, special recognition was given to those teams and individuals that went above and beyond to make this event successful. The Top Fundraising Team was once again Team Action Jackson & Quentin who, lead by Kristina Klein, raised an astounding $5,425! Joining them as “VIP” teams who raised over $2,000 were Blood & Thunder, Luke’s League, The A Team, & Team G-Rex! Kristina was also recognized for her efforts at raising awareness by receiving the most individual donations to her team! Our Top Individual Fundraiser was Stephanie Bauman, team captain of Luke’s League, who raised an impressive $3,265! Joining Stephanie in the “Factor Club” for individuals who raised over $500 were Danielle

Flores, Bridget Tyrey, Jen McNamee, Trudy Stringer, Pam Carleton, Janet Sims, Ashly Walls, Bob Eschbacher, Mareena Snarey, and Gina Eschbacher! Luke’s League was also recognized for showing the most Team Spirit in their matching red apparel! Finally, we created 2 new awards this year. Kristine Jorgensen, team captain of Blood Brothers CBCh, was awarded “Rookie of the Year” for raising $1,645 as a new team! Barb Love, team captain of Nick’s Blood Clotters, was awarded “Most Improved” for raising $1,028 this year, a 190% increase from last year!

The success of this event would not have been possible without the work of a village of people. Thank you to all of our fundraising teams for rallying support for GHA and the bleeding disorders community! Our

fundraising teams were: Team Action Jackson & Quentin, Luke’s League, The A Team, Blood and Thunder, Team G-Rex, HemophiLIAM, Mac’s Factor, Blood Brother’s CBCh, Super Jack, Got Factor?, Kari’s MIDSCI Maulers, DoubleTree Chesterfield, Nick’s Blood Clotters, Daytona’s Destiny Fighters, Bayer, The Snarey Family, Luke’s Squad, Kyle’s Krusaders, The Coagulators – Wash U/SLCH, The O’Rieley Factor, J Walkers, Garrett’s Bruisers, Nate the Great, Bagato’s Bruisers, The Power of X, Dragonfly, The Amigos, Team Sidekicks, Cruising 4 Conway’s, Bioverativ, Team Lilbug, Stop Bleeding Staats, Mid-MO Fighters, CSL Plasma, Glanzmann’s Gals, The Walking Dead, Scott’s Tots, No More Bleeds, The Bouncies, Andrea’s Clotters, Zittel Development, Novo Nordisk – Great Plains, and The Von Willies.

Thank you to our wonderful sponsors for your continued support! National Presenting Sponsor – Shire; Official Sponsors – Bayer, CVS Specialty, Grifols, Hema Biologics, Octapharma, and Pfizer; Partner – Accredo; Gold Sponsors - CSL Behring, Genentech, and Novo Nordisk; Silver Sponsors – Accurate RX, ARJ Infusion Services, Bioverativ, Cottrill’s Pharmacy, DoubleTree by Hilton, Paragon Healthcare, and Sanofi; Bronze Sponsors - Aptevo, Ascension, Bio Ethics, Briova RX Infusion Services, Shire, and State Farm – Joshua Arnold; Kilometer Sponsors - Affordable Auto Credit, Athletico, Charpentier Law, Clarkson Eyecare, Farrotto’s Pasta & Pizzaria, Great Southern Bank, Kohls, NCHS,


s Unite for Bleeding Disorders Walk/5K Queen of All Saints, Seamus McDaniels, Superior Biologics, UMB Bank, and UMSL. Thank you to our Give-Away Sponsors: Aptevo, ARJ Infusion Services, Athletico, Bayer, Club Fitness, CSL Behring, and The Pasta House Co. Thank you to our Walk newspaper advertiser, Genentech.

Finally, a heartfelt thank you to our dedicated team of volunteers who worked behind the scenes leading up to the event, as well as the day of, to make sure everything was perfect. Thank you to the Walk

Committee: Stephanie Bauman, Kristina Klein, Liz LaFlamme, and Andrea Metcalf. Thank you to the rest of our volunteer team: James & Sandy Addie, Brandon Allmeyer, Maryam Azam, Kyle Bai, Jake Bauman, Brian Beasley, Daniel Bone, Meghan Burgess, Tina Charpentier, David Cheung, Levert & Tremika Conway, Caroline Cross, Ashley Degenhardt, Lauren Ferrari, Danielle & Tony Flores, Chris Finck, Alex Ford, Pat Gute, Jessica Hurtig, Dan Johannes, William Kenard, Shannon Keys, Sam Kickham, Kohl’s Cares Team, Ellen Lawrence, Mike Lewis, Rose Micias, Maria Mohler, Matt Pappert, Susan Preis, Arielle Pflumm, Scott & Colin Putnam, Jean Safron, Chris & Rieley Schneider, Janet & Bryan Sims, Emily Slone, Sparky’s Bites, Steve Staats, STARS, Kristin Steiner, STLFD, Dirk & Trudy Stringer, Molly Watson, Robyn Weatherspoon, and Matt Wernsing.


The World Federation of Hemophilia (WFH) Congress was held in Glasgow, Scotland on May 19-24, 2018. The event brought together the entire global bleeding disorders community, including WHF national member organizations, patients and families, health care professionals, as well as industry and regulators from more than 100 countries. The biennial meeting provided attendees an opportunity to share ideas and interact (and debate) with diverse groups from around the world.

The Congress program highlighted internationally recognized authorities in hemophilia care and research who discussed recent advances in the management and treatment of hemophilia and other inherited bleeding disorders. Medical plenary sessions presented updated information on emerging therapies, new models of prophylaxis in the developing world, considerations when switching patients from established standard replacement therapy, as well as research and case reports on gene therapy.

Participants also had the opportunity to attend a “multidisciplinary development day” specifically designed for nurses, dental service providers, social workers and laboratory staff which provided new information and insights in areas of pain management, alternative therapies, using the patient’s “voice”, women’s perspectives, and transition issues.

World Federation of Hemophilia Congress By: Bill Berger, MS, MSW

Morey Blinder, MD and Bill Berger, MSW, from the Washington University Hemophilia Treatment Center (HTC), attended the Congress and presented their poster entitled, “A Single institution, observational study on the treatment of acquired factor VIII inhibitors.” The study evaluated various approaches and response to Acquired hemophilia A (AHA), a rare disorder caused by an autoantibody targeting factor VIII that causes severe, potentially life-threatening

Dr. Morey Blinder at the World

Federation of Hemophilia Congress

bleeding. The research suggested bleeding in these patients may not be severe and treatment may not always be needed. Treatment with immunosuppressive agents, such as prednisone and rituximab, is common but the optimal

regimen is not well defined.

For those not familiar with the World Federation of Hemophilia, the organization is an excellent source of information and resources for the bleeding disorders community. Check out their website: www.wfh.org. The site also includes interesting articles on WFH global programs and humanitarian aid efforts.

Bill Berger, MS, MSW at the World

Federation of Hemophilia Congress

The next WFH Congress will be held in Malaysia in 2020.

http://www.wfh.org


Celebrating 10 Years of Camp Notaclotamongus!“Anniversaries are like birthdays: occasions to celebrate and to think ahead, usually among friends whom one shares not only t

By: Rieley Schneider

I know it is hard to believe, but 2018 marks the 10th anniversary of Camp Notaclotamongus. With that milestone in mind, we decided to make this year our biggest celebration so far. From the moment the campers arrived on Wednesday afternoon, there was a party atmosphere. The cabins, Med Shed, and Dining Hall were each decorated with themes from years past. We brought back all of our favorites: Rock N Roll, Space Odyssey, Survivor, Sports, Superhero’s, Military, and Games. We even brought back some of our favorite and activities from previous years to ensure all our campers and staff would have a good time. On the field we played Human Foosball, Space balls, and to top it off, we had ourselves a little marshmallow war. In the dining hall we had a blast playing Minute-to-Win-it. On Thursday we learned survival skills, how to start a fire, preparing for emergency situations, and making a shelter. Campers were having fun while learning lifelong skills they can take home with them.

Like most years, camp on Friday ends with an all camper swim, a party, and a camp fire, but it always starts with the most important and memorable thing we do at camp: Infusion day. This year we awarded four brave campers with a big stick award for successfully sticking themselves for the first time.

Camp is full of firsts, full of fun, and full of laughter. Camp creates friends and memories that will last for a lifetime.


Celebrating 10 Years of Camp Notaclotamongus! Anniversaries are like birthdays: occasions to celebrate and to think ahead, usually among friends whom one shares not only the past but also the future.” - Unknown

Thank you to all our donors!

Monetary Donors

Shire, Carney’s Kids Foundation, Pfizer, CVS Specialty, CSL Behring, Novo Nordisk, Bayer, Bioverativ, ARJ Infusion Services, Inc., Grifols, NCHS

Camper Giveaway Bag Sponsors

ARJ Infusion Services, Inc., Bayer, BioMatrix, CSL Behring, CVS Specialty, Express Scripts, Grifols, Novo Nordisk, Superior Biologics

Thank you U.S. Coast Guard! Special thanks to Trudy Stringer and the U.S. Coast Guard for once again volunteering at “Camp Cleanup“ on May 17th. The team of volunteers spent several hours that morning making sure the grounds at Living Well Village were safe and ready for our campers.

Thank you to our team of dedicated volunteers! Cabin 1 - Todd Daube & Joe Wigge Med Shed - Jessica Glubo Solomon, Lynn Golec

Cabin 2 - Kevin Ellebrecht & Justin Senger Azadeh Golkar, Lydia Johnson, Angie

Cabin 3 - Craig MacDonald, Josh Swanson Kaminski, Kathy Logan, Maria Mohler,

& Isaiah Shepherd Stephanie Naumann, Sue Pardeshi,

Cabin 4 - Steve Kreher & Joe Zwier Dr. John Puetz, Sarah Sazdar, Makenzie

Cabin 5 - Kirstie Hilty & Ariel Magee Sledd, Becky Toman, Cate Toman,

Cabin 6 - Arielle Pflumm & Maggie Poronto Jessica Walker, Dr. David Wilson

Other Volunteers - Angela Brown, Danielle Flores, Tony Flores, Arianna Gray, Kevin Harris,

Austin Hanse, Makayla Holder, John Huff, Jessica Hurtig, Jim Hurster,

April Littrell, Juli Mason, Anne Parrott, Brian Rodgers, Abby Schneider,

Chris Schneider, Johnny Schuppe, Trudy Stringer, Adriauna Walker,

Carl Weixler

Youth Golf On May 24th, GHA kicked off another season of Youth Golf

at Quail Creek Golf Course. GHA’s Youth Golf clinic is

available to kids age 5-17 with a bleeding disorder and their

siblings. The clinic meets twice a week for 4 weeks in the

summer, and was held this year from June 11th - July 5th.

Thank you to CSL Behring, Perry Parker, and Quail Creek

Golf Course for sharing this “Green Light” sport with our

community!

Do The Five

Follow these steps to prevent or reduce complications of bleeding disorders.

1. Get an annual comprehensive checkup at a hemophilia treatment center.

2. Get vaccinated - Hepatitis A and B are preventable.

3. Treat bleeds early and adequately.

4. Exercise to protect your joints.

5. Get tested regularly for blood-borne infections.

To find out more about the National Prevention Program developed by the National Hemophilia Foundation in collaboration with the Centers for Disease Control and Prevention (CDC), visit www.hemophilia.org or call toll-free 1-800-42-HANDI



HTC Investigators Look at Rates of Cardiovascular Disease in Hemophilia Patients

Because of their lower factor levels, hemophilia patients are

generally thought to be better protected from cardiovascular disease (CVD). To determine whether data would support this long-held assumption, a team of investigators enrolled patients from 19 U.S. hemophilia treatment centers (HTCs) in the “CVD in Hemophilia” study. The lead author of the study was Barbara Konkle, MD, Professor of Medicine in the Division of Hematology at the University of Washington School of Medicine in Seattle, WA. She is also Director of Clinical and Translational Research, Associate Director of the Washington Center for Bleeding Disorders, and Director of the Hemostasis, Platelet Immunology and Genomics Laboratory at Bloodworks Northwest.

In all, 200 moderate and severe hemophilia patients, ranging from 54 to 73 years of age, were enrolled in the study between 2012 and 2015. The purpose was to better understand the prevalence of CVD in these patients. Konkle and her fellow authors collected medical records and patient interviews, then compared the HTC data with unaffected men of comparable age ranges. The comparison data were drawn primarily from the US Atherosclerosis Risk in Communities (ARIC) survey group.

The authors defined CVD in patients who had presented with certain symptoms and procedures including angina, a type of chest pain caused by reduced blood flow to the heart; any myocardial infarction (MI) or heart attack; nonhemorrhagic stroke or transient ischemic attack, often referred to as a “mini stroke”; any history of heart-related procedures such as coronary bypass graft surgery or coronary artery angioplasty. Ultimately, 30 of the hemophilia patients met the established CVD criteria, with the most common events being angina and MI. When compared with the unaffected group, the HTC patients did experience significantly less CVD events and procedures, with an overall rate of 15% vs. 25.8% in the ARIC group.

The authors cited study strengths including its multicenter structure and the measures that were taken to account for

certain variables unique to hemophilia. “If a low baseline factor level is protective against CVD, it would be more likely to be detected in a population with more severe disease, as the protective effect could be diluted or masked in cohorts that include patients with mildly decreased factor levels, explained the authors. “This is particularly true of rare diseases such as hemophilia, for which subject numbers in studies tend to be low. Our study also used medical records to confirm CVD diagnoses, central laboratory testing for lipids, and hsCRP (high-sensitivity C-reactive protein) and central reading of electrocardiograms.”

Study limitations were also noted, including the lack of an active control group and potential selection bias as individuals with more medical complications may visit the HTC more often and thus be more available for study. In addition, the study included HTC patients only, thus excluding the estimated 20%-30% U.S. patients who receive care outside the HTC network. The authors acknowledge that these factors could possibly skew their study group towards patients with more comorbidities, potentially resulting in an “overestimation of CVD in the population.”

Strengths and weaknesses notwithstanding, the authors drew important takeaways from the study. While hemophilia may offer some protection from CVD in certain moderate and severe patients, older patients are not completely immune from heart-related complications. Cardiovascular risk factors such as hypertension, are still common in hemophilia and as such prevention measures are still warranted.

“Thus, given the occurrence of CVD in men with hemophilia, and the challenges in its treatment in this population, measures directed at screening for and managing cardiovascular risk factors and optimizing management of CVD in this population are needed,” concluded the authors.

The study, “A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population,” was published on June 12, 2018 in the journal Blood Advances.

DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the second quarter of 2018 with

general donations, Honorariums, and Memorials.

$15,000—$19,999

Genentech

$10,000—$14,999

CSL Behring

National Hemophilia

Foundation

Shire

$5,000 - $9,999

ARJ Infusion Services, Inc.

Bioverativ

CVS/Caremark

Octapharma

Pfizer

$3,000 - $4,999

Aptevo Therapeutics

NCHS

$1,000 - $2,999

AccurateRx

Bayer, Inc.

BioRx

Global Prairie Marketing

Grifols

LHM

Matrix Health

Midwest Hemophilia

Association

Novo Nordisk

Paragon Healthcare

Redchip of Nevada

Swink, Fiehler, & Company

UMB Bank

$500 - $999

Ascension

BriovaRx

Eschbacher, Gina

Flores, Tony & Danielle

J.B. Marine Services, Inc.

Johannes, Cyril & Charla

Joshua S. Arnold Insurance

Agency

Stringer, Drew

$100 - $499

Addie, Martin

Affordable Auto Credit, Inc.

Ahlers, Kara

Ajans, Lena

Athletico Physical Therapy

Bauman, Stephanie & Jake

Billups, Bethany

Birk, Matt

Brawley, Carol A.

Brown, Rachel

Campbell, James

Canada, Robyn

Carleton, John & Pam

Chandler Chicco Agency

Copeland, Andy

Costephens, Julie

Daube, Todd & Sharon

Dave Sinclair

Ellebrecht, Kevin & Lee

Emergency Medcard LLC

E-Script

Filyaw, Jennifer

Flax, Brittany

Frey, Brian

Gagnier, Jennifer

Garmon, Piper

Great Southern Bank

Gute, Patrick

Gutelius, Erica

Haley, Chris

Hentschel, Richard

Hilmes, Bruce

Hoffman, Daniel & Linda

Hoffman, Michelle

Hopkins, Jennifer & Steph

Jochum, Katherine

Johannes, Donald

Johannes, Stephen

Jones, Lisa

Keller, Katherine

Kendra Scott

Klein, BJ

Klein, Dwayn

Klein, Michael & Kristina

Larson, Elena & Terry

Lauman, Kate

Lawlor, Callaway

MacDonald, Craig

Magee, Brian & Carlisa

Majerus, Dr. Elaine

Marema, Kristin

Mayer, Richard

McRoy, Mary

Meile, Christopher

Meile, Jim & Patty

Meyer, Amanda

Miers, Patricia

Milhauser, Tim & Debbie

Miller, Veronica

Moore, Lori

Nestor, Lynn

Oberkrom, Vicki

Oliver, Kristi

Pappert, Matthew

Pezzillo, Rich

PP & DJ Foods, Inc.

Primm, Courtney

Pruitt, Don & Cheryl

Putnam, Jamison

Queen of All Saints

Ratcliff, Randyl

Rodgers, Brian

Ruckman, Rita

Schneider, Chris & Abby

Shults, Kevin

Sledd, Makenzie

Smith, Mary

Smith, Sarah

Snarey, Mareena & James

Staats, Steven

Stewart, Linda & Larry

Taake, Lisa

Tinsley, Cindy

Underwood, Colleen

University of Missouri—St.

Louis

Wadsworth, Nathan

Weiss, Suzanne

Witt, Jeff

Wunderlich, Steve

Your Cause

Zwier, Jozef

$50 - $99

Beckham, Mark

Beykirch, Kathy & Paul

Bockhorst, Robert

Bolduc, Jennifer

Brueggeman, Amanda

Brumfield, James

Buehne, Tricia

Causey, James

Chandler, Joseph

Chiarizia, Maureen

Codak, Lisa

Copilevitz, Debbie

Daley, Sarah

Davies, Judith

Davis, Corey

Decker, David & Nicole

Deere, Travis

Degenhart, Mike & Daveann

Donnan, Steven

Donnelly, Kimberly

Dressle, David

Dunn, Kirk

Flynn, Carrie

Garea, Diane

Gerstenkorn, Dorothy

Gindling, Judy

Gray, Ellen

Greater St. Louis Community

Foundation

Gute, Amelia

Hamilton, Derek

Hargrave, Kathleen &

Michael

Harper, Jeffrey

Harris, Erin

Hilmes, Lauren

Hirsch, Jennifer

Hurd, Kathryn

Hurtig, Jessica

Ift, Mike & Cheryl




Jarvis, Tim

Kalisiak, Brooke

Kemper, Melissa

King, Elisabeth

Klein, Jane

Korner, Mary

Lambdin, Henry

Lathrum, Jill

Latsch, Rosalie

Leith, Brian

Lewis, LeEllen

Long, Nancy

Madinger, Julie

Martini, Sue

McNamee, Patrick

McRoy, Joy

Mills, Michael

Mohler, Maria

Moyer, Meredith

Mueller, Gary

Nanney, Diane

Nave, Rachel

Noeltner, Trent

Parrott, Jeff

Powers, Jan

Powers, Timothy

Price, Mike & Karen

Prickett, Dennis

Primm, Jeff

Proctor, Keith

Radek, Stephanie

Ray, Maddie

Reichelt, Keara

Rendezvous Café & Wine Bar

Ruwe, Stuart

Sander, Maureen

Schroeder, Elizabeth

Schultz, Brooke

Seebeck, Thelma

Settle, Ashleigh

Shippey, Dean

Shrout, Jeff

Smith, Laura

Stringer, Dirk & Trudy

Summers, Leslie

Thomas, Dawn

Towell, Jennifer

United Health Group

The Vertex Foundation

Waitukaitis, Jennifer

Walls, Tim

Wilson, Cheri

Wilson, James

Witt, Christine

Wood, Linda

Wurglitz, Rebekah

Yemm, Kate

Zaragoza, Analy

$1 - $49

Addie, James

Admas, Becky

Agers, Susan

Ailor, Carol

Allen, Cara

Amazon Smile

Ambrose, Elise

Anderson, Misti

Antenor-Dorsey, Jo Ann

Arbini, Adam

Arbini, Dominic

Armbruster, Catherine

Arnold, Ashley

Ashby, Bria

Athavale, Ajay

Bagato, Judy

Ball, Deborah

Barberis, Laura

Barletta, Molly

Barringer, Joe

Bill Simo, Simo Realty

Bollinger, Anne

Bolozky, Suzanne

Bova, Adam

Boyer, Joan

Boyher, Amanda

Brake, Lisa

Brockmeyer, Carol

Brockmeyer, Ramona

Brown, KayLeigh

Bueckman, Audree

Burkhart, Chris

Callis, Cristin

Chateece, Rickard

The Clorox Company

Cook, Christine

Cosmano, Leslie

Cottet, Donna

Cox, Brian

Cox, Robert

Crews, Janet

Culp, Linda

Culver, Denis

Daily, Morgan

Daniel, Hillary

Danley, James

Danter, Carol

Darr, Sara

Dazey, Melissa

DelRosaric, Genevieve

Desloge, Nancy

Deters, Courtney

DeVille, Barb

Dobecki, Sarah

Drenckpohl, Molly

Dunlap, Patrick

Dunn, Jarred

Earll, Tracy

Eastman, Anthony

Eaves, Kasey

Edler, Sondra

Esser, Hillary

Fauke, Laura

Finkes, Pat

Flanigan, Matthew

Fleming, Mary

Fogarty, Rachel

Foster, Tonya

Franklin, Delta

Frese, Jan

Friedman, Peter

Garanzini, AC

Glover, Andrea

Grantham, Kate

Gravitz, Beth

Grimsley, Carrie

Griser, Mary

Harris, Melissa

Harrison, Julie

Hartpence, Monica

Hayden, Vickie

Heaney, Janelle

Heard, Jessica

Higgins, James

Hilmes, Larry & Marla

Hinkson, Manuel

Hoelscher, Kelly

Hoffman, Douglas & Ashley

Holmes, Kerri

Hon, Angela

Housley, John & Julie

Hughes, Nancy

Innes, Rhonda

Johannes, Jill

Kalecki, Diane

Kaminski, Rachel

Kemper, Glen

Kennedy, Harry

Kershner, Beth

Kinion, Rachel

Klepacki, JoEllyn

Knight, Donna

Kraenzle, Cherri

Kramer, James

Krystoff, Cheryl

Larocca, Irene

Larrew, Cinthia

Lathrum, Alaina

Laughlin, Charlene

Leonard, Elizabeth

Liesen, Brenda

Linear, Mary

Loesch, Amy

Lotz, Jessica

Love, Barb & Jim

Mantia, Cathy

Mantovani, Elizabeth

May, Sandra

Mayer, Kristin

Mayfield, Hannah


Scheurich, Gretchen

Schmidt, Donald & Diane

Schneider, Linda Lee

Schneider, Rieley

Schroeder Pod, Mary Sue

Schultz, Nathan

Scott, Robin

Shenberg, Jan

Sims, Janet

Slayden, Ashley

Sloan, Ryan

Speiser, Gina

Stafford, Brandy

Starks, Rick

Stepp, Barbara

Stovall, Russell

Sureshkumar, Yogesh

Switzer, Leslie

Talbot, Jeanine

Tate, Heather




McAtee, Dawn

McCaughey, Don & Kay

McCormack, Helen

McCormack, Tina

McCulley, Alisa

McFadden, June

McGrath, Martha

McMahon, Kent

Meadows, Charity

Meile, Danielle

Metcalf, Andrea

Milhauser, Nancy & Nick

Mitchell, Victoria

Moder, Stacy

Moore, Jessica

Moore, Julie

Moore, Randall

Morff, Julie

Muniz, Christopher

Nichols, Kim

Nugent, Jennifer

Oakes, Stacey

Ohanlon, Angela

Parrent, Eric

Parrott, Mickey

Perez-Franco, Orlando

Potts, Amanda Maria

Prather, Shane

Rensing, Melody

Rexach, Velda Y.

Rhoades, Jill

Rieken, Kathleen

Robinson, Ashleigh

Roesch, Shirley

Rogers, Chad

Rousseau, Kevin

Saller, Lindsey

Sansegraw, Kim

SAP Software Solutions

Scanlon, Joe

Tipton, Melanie

Tooley, Megan

Tucker, Brian

Tyrey, Bridget

Vaughn, David

Vieke, Briana

Villarreal, Maricela

Villegas, Rodolfo

Viviano, Alice

Wachtel, Cynthia

Walls, Ashly

Wand, Theresa

Watts, Ken

Weaver, Martha

Wells, Linda & Lance

Wetter, Melanie

White, Michelle

Whiteman, Tommie

Yelton, Ronnie

Young, Nancy

4976 Eichelberger Street St. Louis, Missouri 63109 314.482.5973 www.gatewayhemophilia.org

Presort Standard US Postage

PAID St. Louis, MO

Permit No.

Email us at: [email protected]

Tasting of Delicious Wines

Microbrew Signature Beers

Light Hors D’oeuvres

Silent Auction & Live Music

Complimentary Valet Parking

Tickets: $30 in advance

$35 day of

Register at gatewayhemophilia.org

or (314) 482-5973

GHA’s Wine Tasting Fundraiser Benefiting the Matthew Wilson Scholarship Fund

Thursday, August 16, 2018 from 6-8pm

gateway connection€¦ · 4 gateway onnetions summer 2018 gha’s unite for bleeding disorders...

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