FGM – THE ENHANCED DATASET

DR EMMA TUKMACHI

LEAD GP FOR SAFEGUARDING CHILDREN IN TOWER HAMLETS

WHAT IS FGM?

• PROCEDURES THAT INTENTIONALLY ALTER OR CAUSE INJURY TO THE FEMALE GENITAL ORGANS FOR NON MEDICAL REASONS.

• ILLEGAL IN UK SINCE 1985 WITH LAW STRENGTHENED IN 2003 TO PREVENT GIRLS FROM TRAVELLING ABROAD

WHAT ARE THE DIFFERENT TYPES?

ENHANCED DATA SET – WHAT IS IT?

• BUILDS ON THE FGM PREVALENCE DATASET WHICH COLLECTS DATA FROM ACUTE TRUSTS 2014-2015

• NEED TO PULL TOGETHER A NATIONAL PICTURE TO DEVELOP A RESPONSE TO FGM AND ENSURE APPROPRIATE SERVICES ARE OFFERED. AIMED TO SUPPORT FURTHER DEVELOPMENT IN THIS AREA

• FROM THE DATA THEY HOPE TO ENSURE THAT THE PROGRAMME OF IMPROVEMENTS IS BOTH TARGETED AT THE ARES IF NEED AND THAT IT IS OF AN APPROPRIATE SCALE.

INFORMATION GOVERNANCE

• HSCIC NO LONGER NEEDS TO APPLY FOR A SECTION 251 WHEN DIRECTED OR REQUESTED TO COLLECT PERSON CONFIDENTIAL DATA.

• PROPOSED CHANGES TO THE DATA SET INFORMATION STANDARDS NOTICE DO NOT REQUIRE CONFIDENTIALITY ADVISORY GROUP APPROVAL , A PRIVACY IMPACT STATEMENT HAS BEEN CARRIED OUT INSTEAD

• ALTHOUGH HSCIC IS PERMITTED TO COLLECT , HOLD AND PROCESS PATIENT IDENTIFIABLE INFORMATION UNDER THE HEALTH AND SOCIAL CARE ACT 2012, IT IS OBLIGED TO ENSURE THAT THERE IS A LEGAL GATEWAY IN PLACE BEFORE SHARING THIS INFORMATION WITH THIRD PARTIES

INFORMATION GOVERNANCE

• IT IS NOT INTENDED THAT INFORMATION WILL BE HELD BY THIRD PARTIES , SUCH ACTIVITY WOULD REQUIRE EXPLICIT PATIENT CONSENT, SECTION 251 SUPPORT UNDER THE NHS ACT 2006 OR ANOTHER STATUTORY GATEWAY

• IT IS INTENDED THAT FGM INFORMATION WILL SUPPORT THE PUBLICATION OF PATIENT ANONYMISED OFFICIAL STATISTICS

• HSCIC STATES THAT PATIENT IDENTIFIABLE DATA IS BEING COLLECTED IN ORDER TO VERIFY THAT THE DATA RECORDED IS FOR THE RIGHT WOMAN OR GIRL , AVOID DUPLICATION OF PREVALENCE DATA. NO PATIENT IDENTIFIABLE PATIENT INFORMATION WILL EVER BE USED WITHIN ANY PUBLICATIONS

PATIENT CONSENT

• THIS WILL REQUIRE NO EXPLICIT PATIENT CONSENT AS IT IS UNDERPINNED AS A RESULT OF THE DEPARTMENT OF HEALTH DIRECTIONS

• WE MUST INFORM EACH WOMAN AND GIRL AS TO HOW AND WHAT WILL HAPPEN TO THE INFORMATION BEING RECORDED , AND FURTHER TO THIS , WHERE AN OBJECTION IS MADE THAT THE ORGANISATION UNDERSTANDS THE FAIR PROCESSING PROCEDURES A OUTLYING WHERE A WOMAN CAN CONTACT TO MAKE AN OBJECTION TO THIS INFORMATION BEING RECORDED AND SENT TO HSCIC.

• THIS IS IN A PATIENT LEAFLET THAT CAN BE GIVEN T THE PATIENT , THEY CAN EMAIL HSCIC BUT THEY NEED TO HAVE A NUMBER OF PROOFS OF PERSON.

WHO DO WE NEED TO REPORT?

• ONLY CASES WHERE FGM WAS IDENTIFIED OR TREATMENT RELATING TO FGM WAS UNDERTAKEN FROM 1ST APRIL 2015 ONWARDS CAN BE SUBMITTED

• NEW CASES OF FGM – NEW SELF REPORTED OR FOUND ON CLINICAL EXAMINATION

• KNOWN CASES OF FGM REFERRED FOR TREATMENT

• HISTORIC CASES PRIOR TO APRIL 2015 DO NOT NEED TO BE REPORTED

WHICH ORGANISATIONS ARE REPORTING

• CLINICIANS ACROSS ALL NHS HEALTHCARE SETTINGS MUST RECORD FGM IN CLINICAL NOTES

• MANDATORY REPORTING IS FOR ALL ACUTE HOSPITAL TRUSTS , MENTAL HEALTH TRUSTS AND GPS

• PRIVATE PATIENTS SEEN IN AN NHS HEALTHCARE SETTING SHOULD BE INCLUDED

• SEXUAL HEALTH/ GUM AND HIS CLINICS DO NOT NEED TO SUBMIT FGM INFORMATION TO HSCIC BUT HAVE. A LEGAL OBLIGATION TO SHARE INFORMATION FOR SAFEGUARDING PURPOSES

WHO CAN VIEW THE DATA?

• WITHIN THE CLINICAL AUDIT PLATFORM REGISTERED USERS CAN VIEW THE DATA OF WOMEN AND GIRLS IN RECORDS THAT THEY SUBMITTED AND THOSE THEY HAVE SEARCHED FOR USING AN NHS NUMBER

• ALL USERS NEED A CALDECOTT GUARDIAN SIGN OFF

• ONLY HSCIC STAFF WITH THE APPROPRIATE LEVEL OF ACCESS CAN VIEW PATIENT DATA

WHAT DATA ARE WE PROVIDING?

• 3 TYPES REQUIRED

• (M)ANDATORY: THESE DATA ITEMS MUST BE INCLUDED. FAILURE TO SUBMIT THESE ITEMS WILL RESULT IN THE REJECTION OF THE SUBMISSION

• (R)EQUIRED: THESE DATA ITEMS SHOULD BE REPORTED WHERE THEY APPLY. FAILURE TO SUBMIT THESE ITEMS WILL NOT RESULT IN THE REJECTION OF THE SUBMISSION BUT THEY MAY AFFECT THE DERIVATION OF NATIONAL INDICATORS OR NATIONAL ANALYSIS

• (O)PTIONAL: THESE DATA ITEMS MAY BE SUBMITTED ON AN OPTIONAL BASIS AT THE SUBMITTER’S DISCRETION

AS GP’S WHAT ELSE DO WE NEED TO DOCUMENT?

ON RECEIPT OF MATERNITY DISCHARGE THE BABIES RECORD MUST BE UPDATED WITH

THE FOLLOWING INFO:

ON RECEIPT OF A MATERNITY DISCHARGE, THE MOTHER’S RECORD MUST BE UPDATED WITH THE FOLLOWING FGM INFORMATION,

AS APPLICABLE

ON RECEIPT OF ANY CLINICAL NOTES, DISCHARGE SUMMARIES OR REFERRALS FROM OTHER HEALTHCARE ORGANISATIONS, THE FOLLOWING INFORMATION MUST BE RECORDED WITHIN THEIR

HEALTHCARE RECORD, AS APPLICABLE