faculty mentor: judith holt, phd trainees: mari beitman, dmdjulie martinez, lsw brandalyn chidsey,...
TRANSCRIPT
Faculty Mentor: Judith Holt, PhD
Trainees: Mari Beitman, DMD Julie Martinez, LSW Brandalyn Chidsey, GC Shelley Woeste, DPT
Medical Home Portal Leadership Project
Consumer Consultant: Eric StokerMedical Home Portal Coordinator: Mindy Tueller
Medical Home Portal Website
Medical Home Portal Website
Project OverviewPurpose: Define and organize the services listed in the “Services & Resources” section of the Medical Home Portal Website:
www.medicalhomeportal.org
Goal: To provide clear information and easy access to valuable services and resources listed on this medical reference website for medical providers and families of children and youth with special health care needs
Project Overview
METHODS:– Preliminary communication to solidify the
process• Google+ hang out, email communications, Dropbox• Met with Mindy Tueller, Medical Home Portal
coordinator
– First protocol – solely descriptions– Evolved second/final Model protocol more
comprehensive
Project OverviewPROCESS:– Tracked through Excel Spreadsheet– Protocol• Researched evidence based practices and services
available• Analyzed expected and actual services listed in category • Constructed category description
– Focus– Full explanation & brief description – Key words or phrases
• Peer review and Medical Portal Team Review
Project Overview
• Results– Total of 59 descriptions were created
• Discussion – Benefits for consumers– Benefits for trainees
– Advocacy– Breastfeeding– Care Coordination– Child Abuse/Neglect– Child Care & Respite– Education/Schools
– Finances– Healthcare- Dental– Healthcare- Related Services– Recreation– Transition to Adulthood– Equipment
Project Overview
• CHALLENGES & LIMITATIONS:– Defining project– Knowledge about categories– Appropriate reading level
• FUTURE DIRECTIONS: – Continued maintenance to keep relevant– Increasing awareness to surrounding states
Special Acknowledgments• Medical Home Portal Team
– Mindy Tueller, Medical Home Portal Program Manager– Chuck Norlin, MD-Medical Home Portal Director– Gina Pola-Money – Family Consultant
• URLEND Consumer Consultant– Eric Stoker
• URLEND Faculty & Leadership Project Advisors – Judith Holt, PhD– Janice Palumbos, CGC– Heidi Lane, PT, DPT, PCS– David Derezotes, Ph.D.– James Bekker, DDS
Questions?
URLEND Feedback: Julie
• Interdisciplinary teamwork – Discipline culture– Respecting expertise while contributing outside of
our expertise• Diverse didactic trainings– Family living, Legislative activity, Evidence based
practices, Etc.• Individuals with special health care needs– Learning the lingo– Awareness of their needs and their rights
URLEND Feedback: Mari• Collaboration –– Introduction to specialists in the area – Excellent referral resources– Leadership project
• People First Language – – Awareness
• Family dynamics -– PDC’s – Clinic hours– Parent advocates
URLEND Feedback: Brandalyn
• Legislative Activities– More encouragement and guidance in hands-on
activities in the legislative process • PDC’s – Excellent opportunity to learn about the role of
other disciplines and a model for interdisciplinary care
• Responsibility – Encourage more assignments, pre-seminar
collaboration, and responsibility and for pre-seminar assignments and readings
URLEND Feedback: ShelleyAdvocacy & Leadership• Leadership project online tool; Hx of disability law & policy; South Main Clinic • Suggestions: Online calendar listing legislative/advocacy activities; sharing of
legislative experience; face time with Med Home Portal Team
Medical Home• Child & family-centered approach with partnership by pediatric care team to
provide continuous, coordinated and culturally effective care; panels with young adults & URLEND family partners
• Suggestions: PDC’s have wider range of dx/needs with possible evening time to accommodate schedules; South Main Clinic experience with more info regarding target population/specific questions to meet needs & promote participation; timely sharing of South Main Clinic experience
Knowledge & Networking• Current trends, topics, & research by varied guest speakers & faculty; clinical
experiences foster professional connections among multi-disciplines• Suggestions: Weekly assignments/reading with interactive seminars; online
calendar for clinical opportunities; clearer expectations for trainees
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URLEND Feedback: Eric
Fun & Interesting•Favorite seminars: Interactive panels with young adults with special needs; transition training lead by Louise Dunn; autism topics
Working with a Great Leadership Project Team •Thanks to Judith Holt as our project mentor
Meeting many new people •Sharing experiences and learning from each other’s perspective
Suggestions:•Some confusion during certain seminars with jumping around between very different topics•Include more interactive panels with individuals & families with special needs•Include Swedish fish for seminar snacks!