“EXPANDING OUR HORIZONS”PLENARY SESSIONLOUISVILLE, 2007

EARL Y. CHENG, MD, FAAPAssociate Professor of UrologyChildren’s Memorial Hospital

The Feinberg School of Medicine at Northwestern University

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CHICAGO WHITE SOX

WHAT IS ON THE HORIZON?

SBA Partnerships

SBA Mission Accomplished

Education Print – Audio – Conference Internet www.sbaa.org

Programs National - Local

Research Support of Young

Investigators Secure government funding

SBA Mission Accomplished

Advocacy Partnership with

CDC AHRQ NIH

NIDDK NINDS

Evidence Based Practice in Spina Bifida Scientific credibility of previous studies Defined areas of need for future research

Capitol Hill

Prominent credible presence Continuous educational effort Spina Bifida Caucus ~ $5 million appropriated 2007 National Spina Bifida Program

CDC-National Center on Birth Defects and Developmental Disabilities

EXPERTS MEETING February 24, 2006

SBA PACCDCAHRQ

Review of Spina Bifida Clinic Survey Fall ‘05

Evaluation of what is needed to enhance current standard of care Status of clinics – lack of uniformity Lack of adult care clinics Lack of dedicated and organized

research agenda

EXPERTS MEETING February 24, 2006

SBA PACCDCAHRQ

FUTURE AGENDA National Spina Bifida Patient

Database Registry Spina Bifida Clinical Care Network Multidisciplinary Professional

Conference2009 every 3 years

PLENARY SESSION

“Challenges in Spina Bifida Care in the

Next 20 Years”

FUTURE AGENDA

National Spina Bifida Patient Database Registry

Spina Bifida Clinical Care Network

Multidisciplinary professional conference

Panel Thomas Webb, MD

Assistant Professor of Internal Medicine / PediatricsUniversity of Cincinnati

Timothy Brei, MDClinical Associate Professor of PediatricsIndiana University

Shubhra Mukherjee, MD Assistant Professor of Physical Medicine and

Rehabilitation Jeffrey Blount, MD

Associate Professor of NeurosurgeryUniversity of Alabama Birmingham

OUTLINE CLINIC SURVEY

Thomas Webb, MD SPINA BIFIDA CLINICAL CARE

NETWORK Timothy Brei, MD

TRANSITION Shubhra Mukherjee, MD

THE FUTURE Jeffrey Blount, MD

Question and Answer Session

3 x 5 cards available for questions