Enduring Hearts2018 Annual ReportGiving extraordinary kids the chance at an ordinary childhood.

Atlanta-based Enduring Hearts launched in 2013 with a mission to fund research that increases the longevity of pediatric heart transplants, improve the quality of life for children living with a new heart and eliminate pediatric heart diseases that may lead to a transplant.

Our Impact

Transplant Immunology

Accurate, early identification of the onset of

rejection

Technology Applications

Non-invasive methods to detect heart rejection

2018 Targeted Grant Funding

Number of Grants Funded

Gra

nt F

undi

ng C

ateg

orie

s

Gas Card Program Growth

5

10

15

20

25

2017 2019(projected)

2018

Num

ber o

f Hos

pita

ls

Year of Program

Funding to date has resulted in 36

abstracts and peer-reviewed publications

and $1,000,000 in 2018 in NIH funding.

5959 gas cards were awarded to new families in 2018

alone.

66 new research grants were funded in 2018

for over $640,000.

2018 Program Centers Added

36In 2018, we

generated 273 new donors to help support

our mission.

273 24Expanded to 24

institutional partners across the United States.

0 1 2 43 5

2018 Total Expenses2018 Total Revenue

$1,031,301

Total Operations Cost$238,351

23%

Total Programs Cost$792,950

77%

$1,144,278

Total Contributions$727,778

63.6%

Fundraising Event Revenue$379,065

33.1%

Investment Income$37,435

3.3%

Financials

Since inception in 2013, we have funded

$3,262,914!

Our goal is to fund $10,000,000 by the end

of 2020!

Why We Exist

One in four heart transplants will fail

largely due to organ rejection

Anti-rejection drugs and rejection-detection

procedures negatively affect their quality of life.

On average, a heart transplant only lasts

about 12 years.

12

$3.2M+

We are the only nonprofit organization dedicated to funding the critical yet often overlooked research needed to eliminate rejection, prevent

life-threatening complications and reduce the risk that a second transplant will be needed.

American Heart Association$114,175

Enduring HeartsDirect Grants

$535,995

Grant Funding Totals by Type

$650,170

A regular newsletter that provides information

about Enduring Hearts’ latest research efforts. It also features an “Ask Dr. Boo” column where

members of our scientific advisory

committee respond to parent’s questions.

Road to Recovery Gas Card Program, which

allows families to apply for up to a year’s worth of gas cards, helping to alleviate the cost of traveling to and from

participating transplant centers.

2018 was a year of milestones for Enduring Hearts. Working together, our tireless staff, committed board, and generous donors made aggressive advances in our mission to increase the longevity of pediatric heart transplants and improve the quality of life for transplant recipients.

For our 5th full year of operation, we posted record fundraising dollars, which resulted in increased levels of research grants and funding commitments to the international community of scientists dedicated to helping fulfill our vision.

We cemented and even grew existing grant-making alignments with our research partners at the American Heart Association, and at the International Society for Heart and Lung Transplantation. We forged new relationships, pulling together existing and complementary organizations like the Pediatric Heart Transplant Society, to maximize our combined impact on the communities of children living with heart transplant-related challenges.

All the positive momentum we’ve built to date comes with costs. Our program budget to meet our funding commitments is growing at a very rapid rate, with the expectation that our research programs outlay in 2021 will reach $2,200,000! Contrast that to our FY2018 grant making of over $640,000, and the growth trajectory is clear - we need innovative and sustainable fundraising strategies to bolster this continued growth. We are implementing a more geographically diverse fundraising strategy in the coming years, and seeking our existing donors’ support in activating their networks to support Enduring Hearts.

We know that we can achieve our vision for a world where every child’s heart lasts a lifetime, but this journey is not without challenges. We can overcome them together.

Are you with us?

Will you be a heart hero?

Ankur ChatterjeeEnduring Hearts Board President

Message from OurPresident

Programs Introduced

Enduring Hearts/ ISHLT Transplant Longevity

Award, funding research towards our

mission in the international

pediatric transplant community.

Our StoryA message from Patrick and Madelyn Gahan, parents of Mya and founders of Enduring HeartsWhen most people hear your child needs a heart transplant, they say something like, “Are you OK? I can’t even imagine what you’re going through.” And they’re right. They can’t.

We don’t have to imagine. We created Enduring Hearts in 2013 after our 3-year-old daughter Mya received her life-saving heart transplant. We remember the days spent waiting for a donor heart, the bittersweet joy of finding a match, the whirlwind of surgery, and the uncertain recovery. They were the most challenging moments of our lives, but we made it through. We’re on the other side, and Mya is thriving.

Of course, there are still challenges. But we believe you can overcome those same challenges – and that you and your child can make it through, too. We know every fiber of your body hurts, and we can’t take that away. But we can be here to listen, to lean on and to do what your well-meaning friends and family members can’t do, because they haven’t been in your shoes. Let us shoulder some of your pain by going on this journey with you. We’re in this together.

Board of Directors• Carolyn Salvador - Executive Director• Ankur Chatterjee - Board President• Patrick Gahan - Founder• Kelley Gray - Board Secretary• Claude Preston – Board Treasurer• Kelly Fechalos - Director of Business Administration • Conner Greenberg - Marketing Specialist• Marna Friedman- Senior Operations Manager• Dr. Robert Boucek, M.D. - Board Scientific Liaison

• Jim Marino – Board Member• Derek Cunningham – Board Member• Chris Cartrett – Board Member• Ruth Manlapas – Board Member• Stephen Ochs – Board Member• Kevin Goodman – Board Member• Alok Gupta – Board Member• John Hawkins - Board Member• Tim Fechalos -Board Member• Amy Persons - Board Member

Scientific Advisory Committee

• Robert Boucek, M.D.• Michael Davis, PhD, FAHA• Shriprasad Deshpande, M.D.• Brian Feingold, M.D.• Justin Godown, M.D.

• Melissa Cousino Hood, PhD• Dave Mathews, PhD• George T. Nicholson, M.D• Janet N. Scheel, M.D.• Kurt R. Schumacher, M.D.

Enduring Hearts is a registered 501(c)(3) charitable organization. This publication is based on the 2018 fiscal year.

3600 Dallas Highway Suite 230-250

Marietta, GA 30064240-EHEART-1

www.enduringhearts.orgenduringheartsorg enduringhearts