Nobody’s PatientLeigh Kendall

Catherine MacLennanGill Phillips

April 7, 2017

Joining in today and beyond

• Please use the chat box to contribute continuously during the web seminar

• Please tweet using hashtag #EdgeTalks and the handle @Sch4Change @theEdgeNHS

The Team Today

Session Chair and Chat Room Monitor

Janet Wildman@jwildman1

Twitter monitorsTechnical Support

Paul Woodley@PaulWoodley4

Dominic Cushnan

@DomCushnan

Louis Warner@LouisWHorizons

Our Presenters

Leigh KendallPatient leader, #HugosLegacy

@leighakendall

Catherine MacLennanFounder,

The Pinks N Blues CIC

@thepinksnblues

Gill Phillips

Creator, Whose Shoes?®

@WhoseShoesWith special thanks to Anna Geyer, New Possibilities, who produced the graphic illustrations included in this presentation

Who Are You?• Midwife• Obstetrician• Neonatal doctor• Neonatal nurse• Paediatric nurse• Paediatric doctor• Gynae nurse• Gynae doctor• Health care professional from another specialty• Patient• Charity• Commissioner• Other

Catherine’s Story

Leigh’s Story

About #MatExp

The need for change

Challenging existing

assumptions

Working collaboratively

across boundaries

What is Nobody’s Patient?

NHS England National Maternity Review Challenge Fund:

Funding for three pilots available.

Genuine collaboration with women from the outset:

Bid written with Leigh and Catherine

Three Key Groups:

#MatExp 2 – ‘Nobody’s Patient’• Families with newborn babies in

neo-natal units (NNU) and paediatrics

• Women faced with an unexpectedly serious illness, sometimes life threatening, in pregnancy or the immediate postnatal period

• Women who miscarry in the second trimester

Collaboration and Co-Production

• ‘Nobody’s Patient’ is a direct quote from a woman

• Crowdsourced feedback from all perspectives to create new scenarios and poems for the Whose Shoes?® board game

Sourcing Material

• Talking to staff and parents at two Trusts

• Focus group led by Catherine• Sourced through blogs and social

media• Friends and Family free text comments• Complaints & compliments• Linking to the Trusts’ MSLCs• Meetings with wider stakeholders

ODN, SWL maternity network , SCN

Pilot Workshops

Kingston Hospital: July 2016; St George’s Hospital September 2016

Themes from the Pilot Workshops

Reflections

No Hierarchy, Just People

Wrap-Up Event, March 2017

Spreading the Learning

New edition of #MatExp workshop toolkit, including guidance on inclusion of families with a sensitive history.

Best practice case studies

Linking strongly with the

4 April 2017 – BBC News

What’s Next?

No one, irrespective of specialty, should feel like they are Nobody’s Patient.

What will YOU do to ensure all voices are heard?

Questions?

More information:matexp.org.uk

headspace-perspective.comthepinksnblues.co.uknutshellcomms.co.uk

#MatExp