dr nikki allorto specialist burn surgeon head ... 1... · registry versus electronic record...
TRANSCRIPT
Dr Nikki Allorto
Specialist Burn Surgeon
Head Pietermaritzburg Metropolitan Burn Service
President SA Burn Society
Founder Burn Care Trust
Need for data
• Describing the spectrum of disease – funders/government
• Quality improvement / audit
• Benchmarking
• Strategic planning
• Prevention initiatives
• Economic objectives
• Research purposes
Registry versus Electronic Record
Registry:
• A medical registry is a systematic collection of a clearly defined set of
health and demographic data, held in a central database for predefined
purposes
Electronic medical record:
• Information captured through electronic means, and which may or may not
have a paper record to back it up.
Burn Registries
• National Burn Repository (US)
• Burns Registry of Australia and New Zealand
• UK National Burn Injury Database
• Data capturers / nurses
• Additional to clinical work and hospital records
• iBER is a medical registry
• Also standardized electronic medical record that facilitates data collection
• It serves the following purposes
• An epidemiological tool to describe the burden of disease and used for strategic planning
• As a quality improvement tool
• To facilitate local research
iBER features
• Web based cloud storage of data
• Basic set of data collected plus flexibility for individual needs
• Practically orientated
• Follows clinical flow
• Entered by clinicians
• Reports & log books generated automatically every month
• Export data in excel eg. to contribute to WHO surveillance registry
• Way forward - mobile phone version
Concerns
• Standard internet security certificates
• Your hospital data belongs to your hospital
• Protected access
• Research possibilities
• Individual access to all ‘own’ data on local ethics approval for a project
• Combined research as agreed amongst parties, also ethical approval
• Collaborative work
What do you need
• Local ethics approval
• Internet access
• Computer & printer
• Commitment to get the data entered
Summary
• Established a hybrid EMR/Registry
• Data entered by clinicians
• Generates necessary paperwork
• Admission/Discharge/Theatre notes
• Simple monthly reports
• Logbook for surgeons
• Capability larger audits/research
• Flexible
• Web based with offline capacity