Unintended'Consequences'What'We'Can'Learn'From'Digital'Outcasts'
@kelsmith'
#plaintalk2013'
h"p://ar(cles.washingtonpost.com/2012812813/na(onal/35812804_1_disease8study8research8study8life8expectancyC
U.S.C
h"p://ar(cles.washingtonpost.com/2012812813/na(onal/35812804_1_disease8study8research8study8life8expectancyC
“Historically,''
''accessibility'has''
''been'perceived'as'an''
''aGerthought'–'the''
''final'bullet'point.''
''Nice'to'have'if'we''
''had'the'budget.”''
�Accessibility'is'ugly�'
�Accessibility'is'expensive�'
�Accessibility'isn't'marketable�'
“Accessibility'isn’t'innovaSve”'
~'Rich'Donovan'
Return'on'Disability'and'M2Enabling'SummitCC
“Designing'for'''
''extreme''
''environments''
''leads'to''
''consumer''
''innovaSon.”'
~'Rich'Donovan'
Return'on'Disability'and'M2Enabling'SummitCC
“My'daughter'is''
''capable'of'a'threeW'
''hour'tantrum'that''
''leaves'your'ears''
''ringing.'With'the''
''phone'showing''
''exactly'what'she'
''has'requested,'we''''
''see'a'huge'reducSon''''
''in'(her)'frustraSon."'
University of Rochester http://vizwiz.org/ http://enabledbydesign.org/community/vizwix-prototype-crowdsourced-assistance-for-the-visually-impaired/
h"p://www.cnn.com/2012/04/29/showbiz/lost8voice/index.html?iref=obinsiteC
“Doctors'
''frequently'
''make'incorrect''
''assumpSons''
''about'me'
''related'to'my''
''intelligence'and''
''my'ability'to''
''funcSon''
''independently.”''
How'much'do'you'agree'with'the'following'
statement:'“Most'healthWrelated'content'
reflects'an'understanding'of'what'it’s'like'to'be'
a'blind'or'low'vision'paSent.”'
Strongly'agree'
'
Somewhat''
Agree'
'
Neither'agree''nor'disagree'
'
Somewhat'disagree'
'
Strongly''disagree'
'
100%'
78%'
“For'blind'paSents'it’s''
''nearly'impossible'to'dose''
''medicaSon'properly.'A''
''change'adverSsed'as''
''being'great'for'the'sighted''
''can'be'dangerous'for'us.”''
“For'blind'paSents'it’s''
''nearly'impossible'to'dose''
''medicaSon'properly.'A''
''change'adverSsed'as''
''being'great'for'the'sighted''
''can'be'dangerous'for'us.”''
250'medical'pracSces'
50%'would'complete'
only'part'of'the'
examinaSon'
250'medical'pracSces'
20%'refused'to'book'an'
appointment'
250'medical'pracSces'
10%'employed'staff'who'
were'adequately'
trained'on'PWD'
ofCnotCdeliveringCqualityCclinicalCservicesCforCeveryCpa(entCtypeC
Risks'' Costs''ofCopera(ngCwithinCaCregulatedCsystemCofC
sharedCservicesC
“I'think'the'system''
''has'been'very''
''reacSve.'It’s''
''about'pueng'out''
''fires.”'
~'Mike'Evans'
MedicalCDirectorCofCHealthCDesignCLabCSt.CMichael’sCHospital,CTorontoC
~'Mike'Evans'
MedicalCDirectorCofCHealthCDesignCLabCSt.CMichael’sCHospital,CTorontoC
“In'Health'2.0''
''we'are'seeing'the''
''need'to'anScipate''
''problems,'with''
''paSents'driving'
''the'bus.”'
“Most'frustraSng'is''
''waiSng'for''
''something'that'we''
''know'is'being''
''researched,'
''knowing'that'
''we'won't'ever'have''
''access'to'that'one''
''thing'that'may'change''
''our'child's'life.”''
“Most'frustraSng'is''
''waiSng'for''
''something'that'we''
''know'is'being''
''researched,'
''knowing'that'
''we'won't'ever'have''
''access'to'that'one''
''thing'that'may'change''
''our'child's'life.”''
“Accessibility'is'about'
'providing'fundamental''
'human'services'to''
'benefit'more'people'in''
'more'situaSons.”'
“Accessibility'is'about'
''providing'fundamental''
''human'services'to''
''benefit'more'people'in''
''more'situaSons.”'
http://www.nytimes.com/2011/11/27/magazine/smule.html?_r=1&pagewanted=all
http://articles.herald-mail.com/2011-02-28/news/28640356_1_brain-injury-sylvia-ellsworth-parents
“Mason'is'very'social'and'finds''
''social'interacSons'rewarding.''
''New'learning'can'be'facilitated''
''by'tasks'which'have'posiSve''
''emoSonal'associaSons,'such''
''as'music'and'arts'acSviSes''
''used'as'reinforcers'for''
''appropriate'effort.”''
is'a'conSnuum'by'
which'people'
adapt'to'their'
environment'
Competence'
makes'it'implicitly'clear'how'
to'interact'with'an'object'
Affordance'
reinforces'posiSve'
behaviors'into'
rouSnes'
HabituaSon'
empower'people'to'
surpass'their'level'
IncenSves'
allows'for'
ahributes'that'
cannot'be'
changed'
Empathy'
“I'make'the'
''people'in'
''my'design'
''pracSce'sit'in'
''wheelchairs''
''and'use'walkers.''''
''There'is'just'
''nothing'like'
''doing'it.”'
15%'
http://www.npr.org/blogs/health/2011/06/09/137084239/nearly-1-in-7-people-on-earth-are-disabled-survey-findssc=fb&cc=fp/
15%'We'are'all'digital'outcasts'
http://www.npr.org/blogs/health/2011/06/09/137084239/nearly-1-in-7-people-on-earth-are-disabled-survey-findssc=fb&cc=fp/
~'David'Green'
FoundCofCAurolab,CdistributorCofC$2ClensesCforCcataractCpa(entsC
Making'health'
care'innovaSon'
affordable'and'
accessible'to'
everyone'
Compassionate'
Capitalism'
(183s) chickpeas (514s) beans (552s) Goya Beans
~'William'Gibson'
ScienceCFic(onCWriterCandCAuthorCofCIdoruCC
“The'future'has''
''already'arrived.''
''It’s'just'not'evenly''
''distributed'yet.”'
Thank'You'[email protected]'