doernbecher hematology oncology ohsu doernbecher hematology oncology program is nationally...

Hem

atolo

gy O

nco

log

y

Doernbecher Hematology Oncology

Contents:Program overview . . . . . . . . . . . . . . . . . . . . . . . .2Meet our staff . . . . . . . . . . . . . . . . . . . . . . . . . . .4Leukemia and lymphoma . . . . . . . . . . . . . . . .5Neuro-oncology . . . . . . . . . . . . . . . . . . . . . . . . .6Oregon hemophilia and thrombosis center . . . . . . . . . . . . . . . . . . . . . . .7Solid tumors . . . . . . . . . . . . . . . . . . . . . . . . . . . . .8Blood and bone marrow transplantation . . 9Support services . . . . . . . . . . . . . . . . . . . . . . . 10

www.ohsudoernbecher.com

To refer a patient or consult with our team, please call:

503 346-0644or toll free:888 346-0644

HEM

ATO

LOG

Y O

nC

OLO

GY

2

Pediatric Hematology Oncology

O V E R V I E W

Oregon’s only comprehensive center for childhood cancer and blood disorders

The OHSU Doernbecher Hematology Oncology Program is nationally recognized as a comprehensive center for the treatment of children and adolescents with cancer and blood disorders . We offer a breadth and depth of clinical expertise provided by:

• Fourteen pediatric hematologist/oncologists • Five nurse practitioners• One neuro-psychologist• Six subspecialty residents in fellowship training

Our physicians are both generalists and subspecialists within the field of pediatric hematology/oncology, and each physician has a focused area of expertise .

Pediatric hematology oncology subspecialists

Patients you refer to us for treatment of cancer and blood disorders receive care in the 21-bed Kenneth Ford Cancer Center which includes a state-of-the-art clinic and infusion center . Here, patients benefit from:

• High-quality, family-centered care and extensive medical expertise .• A dedicated staff of nurses specially trained in chemotherapy

administration, social workers, school teachers and child life therapists skilled in the care of children with complex illness .

• A wide range of medical and surgical subspecialty expertise .• The educational and research missions of the Department of Pediatrics

and OHSU School of Medicine .

call 503 346-0644 • toll free 888 346-0644

“Doernbecher has been a blessing. We know Graham is getting the best medical care possible. His doctors are brilliant, and the whole staff has been incredibly patient and supportive. We really do feel like we’re part of a community here.”

– Louise Thudium, parent of Graham, neuro-oncology patient

at OHSU Doernbecher.

HEM

ATO

LOG

Y O

nC

OLO

GY

3

To refer a patient or consult with our team, please call OHSU Doernbecher Physician Consult: 503 346-0644or toll free at: 1 888 346-0644

OHSU Doernbecher Children’s Hospital 700 S .W . Campus Drive Portland, OR 97239


Our team is always available to you and your patients

• We admit acutely ill patients 24 hours a day, seven days a week, and see less urgent referrals in our clinic as promptly as needed for optimal care .

• When you request telephone consultation, you can count on our prompt response and thoughtful advice .

Ranked among the nation’s best

We are the only pediatric specialty program in Oregon to be ranked in U .S . News & World Report’s 2010-11 “Best Children’s Hospitals .” This prestigious national recognition reflects the

exceptional care our cancer patients receive . To calculate the cancer specialty rankings, hundreds of pediatric cancer specialists ranked programs based on criteria including quality of care, reputation, infection-prevention activities, patient volume, nonsurgical procedure volume, advanced clinical services, clinical support services and clinical trial participation .

Affiliated with OHSU Knight Cancer Institute

OHSU Doernbecher Children’s Hospital shares resources with the OHSU Knight Cancer Institute, the only National Cancer Institute-designated center between Sacramento and Seattle . Through a robust basic and clinical research program and compassionate, multidisciplinary care, more than 200 research scientists and top medical professionals are working to find new cures and prevention for cancer -- and to bring new hope to patients and their families . Because of this affiliation, Doernbecher Hematology/Oncology patients benefit from the most advanced treatments, state-of-the-art facilities and some of the finest medical expertise in the country .

HEM

ATO

LOG

Y O

nC

OLO

GY

4


M E E T O U R T E A M

call 503 346-0644 • toll free 888 346-0644

“We switched to Doernbecher after some research. The entire Doernbecher staff is focused on the special needs of children. We had a whole team of top specialists evaluating every situation and collaborating on Taylor’s treatment. I was always confident she was getting the best medical care.”

– Shelly Jackson, mother of Doernbecher leukemia patient

Kelly Anderson, R.N., F.N.P. Specialty: Survivorship,

Inpatient Care

Tara Bernhardt, R.N., P.N.P.Specialty: Bone Marrow

Transplant

Bill Chang, M.D., Ph.D.Specialty: Research,

Leukemia

Peter Kurre, M.D. Specialty: Research,

Marrow Failure

Thomas Lamkin, M.D.Specialty: General

Oncology/Hematology

Susan Lindemulder, M.D., M.S.Specialty: Survivorship,

Clinical Research

Suman Malempati, M.D.Specialty: Solid Tumors and

Investigational Agents

Eneida Nemecek, M.D., M.S.Specialty: Bone Marrow

Transplant, Clinical Research

H. Stacy Nicholson, M.D., M.P.H.

Specialty: Brain Tumors

Kathy Perko, R.N., P.N.P.Specialty: Palliative Care,

General Oncology

Mike Recht, M.D., Ph.D.Specialty: Hemophilia,

Hematology

Brian Stuepfert, R.N., P.N.P. Specialty: Inpatient Care

Greg Thomas, M.D.Specialty: Palliative Care and General Oncology/

Hematology

David Tilford, M.D.Specialty: General

Oncology/Hematology

Sarah Wickengagen, R.N., F.N.P.

Specialty: Brain Tumors

Amy Kenagy, R.N., P.N.P. Specialty: Bone Marrow

Transplant, Inpatient Care

Kellie Nazemi, M.D.Specialty: Brain Tumors

Linda Stork, M.D.Specialty: Leukemia,

Clinical Research

Lawrence Wolff, M.D.Specialty: General

Oncology/Hematology

Robert Trueworthy, M.D.Specialty: General

Oncology/Hematology

HEM

ATO

LOG

Y O

nC

OLO

GY

5

L E U K E M I A A n D L Y M P H O M A P R O G R A M


More expertise than any other program in Oregon

When you refer your patients with leukemia or lymphoma to us, they will be treated at Doernbecher on a protocol designed by the Children’s Oncology Group (COG) and they may choose to enroll in a clinical research trial . Participation in clinical trials gives your patient access to the newest, most advanced treatments . Linda Stork, M .D ., director of Hematology/Oncology at Doernbecher, is an internationally respected expert in childhood leukemia and collaborates in the design of these therapeutic trials . One of our physician scientists, Bill Chang, M .D ., Ph .D ., is studying leukemia development in the laboratory and treats patients with complex leukemia .

Comprehensive, multidisciplinary approach

Throughout the course of treatment, your patients will receive comprehensive care from our multidisciplinary team of experts in:

• Surgery • Radiation therapy • Laboratory medicine and hematopathology• Pharmacy • Pediatric subspecialties, such as endocrinology, cardiology and infectious disease

Highly specialized care

• Patients with acute lymphoblastic leukemia receive most of their treatment in our oncology clinic and infusion center .

• Patients with acute myeloid leukemia or Burkitt’s lymphoma require intensive inpatient care .

• Chemotherapy is prepared and administered by specially trained pediatric oncology pharmacists and nurses .• Some patients may be referred to the bone marrow transplant program .

To refer a patient or consult with our team, please call OHSU Doernbecher Physician Consult: 503 346-0644or toll free: 1 888 346-0644

Patients are seen at:


HEM

ATO

LOG

Y O

nC

OLO

GY

6


n E U R O - O n C O L O G Y P R O G R A M

Oregon’s only comprehensive program for children and adolescents with brain tumors

Doernbecher’s Neuro-Oncology Program is unique in the state of Oregon and provides comprehensive care to your patients with a multidisciplinary and highly individualized approach . Kellie Nazemi, M .D ., a nationally recognized expert in pediatric brain tumors, directs a team of specialists from:

• Neurosurgery • Radiation oncology• Neuro-radiology • Neuro-pathology• Neurology • Audiology • Endocrinology and other pediatric subspecialties• Physical and occupational therapy• Social workers• School teacher

Brain tumors comprise approximately 35 percent of newly diagnosed childhood cancers at Doernbecher . We treat more than 40 patients with newly diagnosed brain tumors each year and follow many more as long-term survivors .

Collaborative, multidisciplinary approach

The Pediatric Neuro-Oncology Tumor Board at Doernbecher meets weekly to discuss new, recurrent, and complex cases in order to determine the best surgical and medical management for each child . Your patient may be treated on COG protocols or with other leading-edge therapies designed for tumors with recognized poor outcomes .

call 503 346-0644 • toll free 888 346-0644

“It’s so important for the subspecialists to be sitting in one room, looking at the MRI together and making a decision all at once. OHSU Doernbecher is big and has all the up-to-date technology, but we also value professional collaboration, which can make all the difference in a patient’s treatment.”

– Kellie Nazemi, M.D., director, Pediatric Neuro-Oncology Program

HEM

ATO

LOG

Y O

nC

OLO

GY

7


O R E G O n H E M O P H I L I A A n D T H R O M B O S I S C E n T E R

Oregon’s only comprehensive program for patients with bleeding and clotting disorders

The Oregon Hemophilia and Thrombosis Center is dedicated to providing comprehensive care to children and adults with hemophilia, von Willebrand disease, and other bleeding and clotting disorders . Recognizing that living with bleeding or clotting disorders creates unique challenges for patients and families, we provide a variety of services to help make life as normal as possible:

Unsurpassed expertise

Director of the Oregon Hemophilia and Thrombosis Center, Michael Recht, M .D ., Ph .D ., is an internationally recognized expert in hemophilia and benign hematology . He serves as regional director for the federally funded hemophilia programs of Oregon, Washington, Idaho and Alaska, providing leadership and expertise to all of the Northwest . He and his team are always available for telephone consultation .

Cost savings for families

We understand that many families facing long-term treatment for bleeding disorders have difficulty obtaining insurance or reach their lifetime insurance cap in a few years . To help families manage the costs associated with long-term treatment, the Oregon Hemophilia and Thrombosis Center provides cost-saving pharmaceutical services and is proud to be the lowest-cost provider of a full range of factor medication in the state .

• Full-time specialized nursing care• Full-time social work• Full-time physical therapy • Home visits• Insurance/financial support• School support• Educational programs

• Psychological testing and counseling

• Nutrition support• Pediatric orthopaedic surgery

expertise• Dental support• Child life services




HEM

ATO

LOG

Y O

nC

OLO

GY

8


S O L I D T U M O R P R O G R A M

More specialized pediatric tumor expertise than any other program in Oregon

The Doernbecher Solid Tumor Program provides the finest coordinated care from our expert team of:

Collaborative approach to individualized treatment

At Doernbecher your patient’s diagnosis and treatment are discussed in depth at our weekly tumor board . At these meetings our multidisciplinary team of specialists confers on the best course of treatment and designs an individualized program to meet each patient’s specific needs .

Your patient may be offered participation in a Children’s Oncology Group trial for cancers such as:

Clinical trials offer your patients new hope

OHSU Doernbecher Children’s Hospital is one of only 21 hospitals in the U .S . and Canada approved by the National Cancer Institute to participate in the Children’s Oncology Group Phase I consortium . We offer children and young adults with progressive disease the opportunity to be treated on research protocols and receive investigational agents in our clinic and infusion center .

Suman Malempati, M .D ., leads a national efort in childhood sarcoma and directs our Solid Tumor Program and our Developmental Therapeutics Program .

call 503 346-0644 • toll free 888 346-0644

• Radiologists• General and subspecialty surgeons• Pharmacists

• Radiation therapists• Pathologists• Pediatric subspecialists

• Wilm’s tumor• Neuroblastoma• Bone tumors

• Soft tissue sarcoma• Rare pediatric cancers

HEM

ATO

LOG

Y O

nC

OLO

GY

9


B LO O D A n D B O n E M A R R O W T R A n S P L A n TAT I O n

The only pediatric transplant center in Oregon

Accredited by the Foundation for the Accreditation of Cellular Therapy and the National Marrow Donor Program, the Pediatric Blood and Marrow Transplant Program is the only one of its kind in the state .

Comprehensive treatment

Our transplant program offers allogeneic (from a donor) or autologous (from self ) marrow transplants for children and young adults with advanced or recurrent cancers including:

• Leukemia • Lymphoma • Neuroblastoma • Brain tumors

We also provide transplants for children with nonmalignant diseases including:

• Aplastic anemia and other bone marrow failure syndromes • Thalassemia• Inborn errors of metabolism• Immunodeficiency syndromes

Expert, multidisciplinary care

Our director, Eneida Nemecek, M .D ., M .S ., is an internationally respected expert in marrow transplantation . She and her team provide advanced subspecialty care and innovative treatment regimens to your patients . During and after the month-long inpatient stay following stem cell infusion, your patient will receive:

• Round-the-clock skilled nursing care and consultations from many of the expert subspecialists at Doernbecher .

• Close monitoring by our transplant team in the Oncology Clinic for complications after marrow engraftment, like graft-vs-host disease .

• Continued care in the infusion center from our multidisciplinary team of physicians, nurses, pharmacists and nutritionists .




HEM

ATO

LOG

Y O

nC

OLO

GY

10


S U P P O R T S E R V I C E S f O R O n C O L O G Y P A T I E n T S

To provide your patients with the most comprehensive care, OHSU Doernbecher offers a broad range of medical, nursing, psychological and social services to maximize the quality of their care and to enhance their overall well-being .

In addition to our comprehensive clinical staff, our team includes social workers, child life therapists, and a school teacher to help your patients during this difficult time .

Childhood Cancer Survivor Program

The Doernbecher Childhood Cancer Survivor Program provides comprehensive care and support to survivors of childhood cancer, including anyone under age 30 who has been cancer free and off treatment for at least two years . Susan Lindemulder, M .D ., pediatric hematologist/oncologist with advanced training in clinical research, directs this vital program .

Specialized support from our Survivorship Clinic

In our Survivorship Clinic, a multidisciplinary team of specialists meets weekly and addresses the medical, neuro-psychological and psychosocial issues facing these adolescents and young adults . Our team includes:

• Oncology nurse practitioner• Pediatric and medical subspecialists • Social worker • Clinical psychologist • Neuro-psychologist• School teachers

Help with life changes including:

• Insurance • Education • Employment • Fertility• Mental health • Living with the long-term effects of cancer treatment

call 503 346-0644 • toll free 888 346-0644

HEM

ATO

LOG

Y O

nC

OLO

GY

11


OHSU Adolescent and Young Adult Program

The Adolescent and Young Adult Program was established to meet the unique emotional, physical and social needs of cancer patients between the ages of 15 and 40, and to maximize the quality of life of every survivor of childhood cancer . Brandon Hayes-Lattin, M .D ., is the director of the OHSU AYA program, one of only a few such programs in the United States . Susan Lindemulder, M .D ., serves as a liaison between the pediatric and adult programs offered to OHSU and Doernbecher patients . Also unique in the U .S ., Doernbecher and OHSU offer a subspecialty training program in AYA oncology .

Bridges — Pediatric Palliative and Comfort Care Program

The Bridges Program at OHSU Doernbecher Children’s Hospital combines medical care with psychological, physical, social and spiritual support for your patients with potentially life-limiting conditions, and helps families cope with serious illness and end-of-life issues .

Our palliative care specialists offer families help with:

• Decisions about care• Accessing hospice and community resources• Pain and symptom management• Emotional responses and grief experienced by patients’ families and caregivers

before and after a child’s death




Pediatric Hematology OncologyOHSU Doernbecher Children’s Hospital700 S .W . Campus DrivePortland, OR 97239-3098

www.ohsudoernbecher.com

OHSU is an equal opportunity, affirmative action institution.

DCH 257881 7/10

To refer a patient or consult with our team, please call:

503 346-0644or toll free:

888 346-0644

doernbecher hematology oncology ohsu doernbecher hematology oncology program is nationally...

Documents