Disability Data: WHO’s perspective

Alarcos Cieza, MSc, MPH, PhDWorld Health Organization, Geneva

2001

3

Health(health conditions & impairments)

Environment(physical, social, attitudinal and political)

Disability

Disability has been assessed as …

… decrements of health

Commonly used questions:Because of your health, how much difficulty do you have with …

70 SURVEYS

Household - long

Household - short

CATI

WHO - World Health SurveysWHS 2002

2001

5World Health Surveys in > 70 countries

2001

7

1. Improving access to health services

2. Strengthening rehabilitation, assistive technology, support services, and community-based rehabilitation

3. Strengthen collection of disability data and research

Sustainable Development Agenda

9

Goal 3

Ensure healthy lives and promote well-

being forALL at ALL ages

Infectious diseases

ageing

NCD

disability

Injuries

11Low ExtremeDisability

World population on the disability continuum

Nu

mb

er o

f p

erso

ns

0 1000 10 20 30 40 50 60 70 80 90 100

12

How much difficulty do you have: 1 2 3 4 5

seeing things at a distance [without glasses]?

hearing [without hearing aids]?

walking or climbing steps?

remembering or concentrating?

washing all over or dressing?

sleeping ?

doing household tasks ?

joining community activities?

feeling sad, low, worried or anxious?

getting along with people who are close to you?

How much bodily aches or pain do you have?

0 10 20 30 40 50 60 70 80 90 100

13

1. Improving access to health services

2. Strengthening rehabilitation, assistive technology, support services, and community-based rehabilitation

3. Strengthen collection of disability data and research

Disability as decrements of health

The outcome of the interaction with the environment

Dis

ablin

g b

arri

ers

–B

reak

to

incl

ud

e

Model Disability Survey

Socio-demografic

Health care utilization

Work history & benefits

Well-being Empower-ment

Environment Decrement of health

Core modules

Additional modules:

Outcome of the

interaction

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VERSION ZERO (Dec 2012)

Expert meeting - 5th Dec 2012

ALPHA VERSION

Expert appraisal Norway - March 2013

First revised Alpha version (March 2013)

Expert Meeting - 29-30 April 2013

Second Revision of the Alpha Version (May 2013)

1st Round of Cognitive Testing

Revised Alpha version -1st round cognitive testing (Oct 2013)

2nd Round of Cognitive Testing

Revised Alpha version - 2nd round cognitive testing (July 2014)

Preparatory work national survey Chile (Nov 2014)

Revised Alpha version after preparation in Chile (Nov 2014)

MDS Group Intern Meeting, July 2015 – results pilot studies (Cambodia, Pakistan, Malawi) and preparation for the national surveys (Sri Lanka and Chile)

CURRENT MDS ALPHA VERSION (July 2015)

21

244indicators

52relevant for

disaggregation

15collected

in the MDS

22

33articles

26relevant for

disaggregation

23addressedin the MDS

23

CHILE 2015N=12.000 adults

SRI LANKA2015

N=3.000 adults

PHILIPPINES2017

N=20.000 adults

PANAMA 2017

QATAR 2017

OMAN

COSTA RICA 2017

National disability surveys

UNITED ARAB EMIRATES

Goal 8Indicator 8.5.2: Unemployment rate by sex and disability

% working*

Sri Lanka

44.936.2

17.6

0

10

20

30

40

50

60

70

80

90

100

31.525.6

7.8

0

10

20

30

40

50

60

70

80

90

100

*Working for wages or salary with an employer (full- or part-time)

Level of disability by education (Sri Lanka)

0

5

10

15

20

25

30

35

40

45

None Mild Moderate Severe

No formal education Elementary school Secondary school Higher education

Goal 1010.3.1 Proportion of the population reporting having personally felt discriminated against or harassed within the previous 12 months

% who felt often or always discriminated

Chile

0.66

2.293.16

10.96

0

2

4

6

8

10

12

1.12.16

4.35

8.43

0

2

4

6

8

10

12

14

16

18

20

27

Goal 11Indicator 11.2.1: Proportion that has convenient access to public transport

Chile

85%

38%11%

Experienced barriers57%26%13%

Problems using transportation

28

1. Improving access to health services

2. Strengthening rehabilitation, assistive technology, support services, and community-based rehabilitation

3. Strengthen collection of disability data and research

Dis

ablin

g b

arri

ers

–B

reak

to

incl

ud

e

Model Disability Survey

Brief

Environment Decrement of health

Core modules

Outcome of the

interaction

12 1313

31

Brief MDS in Gallup World Poll

LAOS

INDIA

TAJIKISTAN

• Emphasis on strengthening statistical system to mainstream disability

– SDGs and the guidelines provide window of opportunity

• Data for evidence-informed policy

• International standards, such as ICD and ICF, are important for comparability purposes

Important considerations from WHO perspective

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Alarcos Cieza, MSc, MPH, PhDWorld Health OrganizationAvenue Appia 201211 Geneva 27Switzerland

Tel.: +41 22 791 1998Fax: +41 22 791 4874Email: ciezaa@who.intWebsite: http://www.who.int/disabilities/care/rehab-2030/en/

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