Development on Nordic platform for sensitive biomedical data

The Tryggve project

21.5.2014Antti Pursula

Tryggve project – platform for sensitive biomedical data

• Tryggve project aims at building a Nordic platform for sensitive BMS research data

• Nordic collaborative effort, funded by– NeIC – the Nordic e-Infrastructure Collaboration– ELIXIR Nodes in Denmark, Finland, Norway and Sweden.

• Project officially launched in April 2014, end date in 4/2017• Builds on expertise and national efforts in Nordic countries

2

3

Vision for Nordic platform for sensitive data

• Motivation: Enable and strengthen biomedical research

• Produce Nordic secure platform for processing and cross-border sharing of sensitive biomedical data– With interfaces to various data sources

• Digitalize the routines for sharing sensitive data– Less time for administration, more time for science– Environment in line with law and regulations

• Aim is not to change legal framework• Aim is not to change who gets to use the data

4

Links to outside Nordics

• Tryggve is a Nordic effort -- but by no means limited to the Nordic countries

• Approach is on open communication and interlinking with international parties

• Flexibility in design so that including additional use cases and resources is possible

• Discussion with ELIXIR actively through Nodes in Nordic countries

5

Current and emerging components

• Services for secure data – TSD, Oslo University • Biomedical cloud infrastructure, CSC Finland• Mosler system for secure (genomics) data, SciLifeLab,

Sweden• Bioinformatics tool registry, Elixir node in Denmark

6

Potential use cases

• Tryggve project development is based on user needs• Potential user communities identified at this point include

– Biobanking (BBMRI in Nordic countries)– Imaging (EuroBioImaging)– Human genomics– Cancer research– Academy-industry collaboration

• Project aims to develop pilot services for several use cases running on the Tryggve secure platform

7

Requirements gathering

• Project currently in requirements gathering stage

• This mostly done through collecting use cases– What is the current challenge / bottleneck?– Who would be users of the potential service?– What requirements for security, scalability

8

Reference Group

• Project has established a Reference Group including members from user communities and national e-infrastructures

• Aim to give input and advice to the project as well as ensure that project results are acceptable for the users

• Reference Group members are a hub for collecting use cases – RG members listed in project wiki

9

Contact Info

• Tryggve wiki pagewiki.neic.no/wiki/Tryggve

• Project leader: antti.pursula @csc.fi