Development of an e-learning tutorial ofa form: Transplant Essential Data (TED),as a facilitator of understanding andlearning in data entry in CIBMTR toBrazilian centers

02/22/2017

Cinthya Corrêa da SilvaBiomedical - Data manager

Hospital Israelita Albert Einstein

There are no conflicts of interest to disclose

To develop an e-learning tool focused on the CIBMTR TEDform in Portuguese to improve data collection andincrease the number of Brazilian centers to participate inthe CIBMTR.

Objective

Allo (TR) Auto (TR) Total (TR)

World 31,926 (28) 36,220 (40) 68,146 (63)

Latin America 1,206 (24) 2,057 (40) 3,263 (64)

Brazil 631 (32) 1,062 (53) 1,693 (85)

HSCT in the world, in Latin America and in BrazilFirst transplants in 2012

G,Jaimovich; Latin America: The next region for haematopoietic transplant progress; Bone Marrow Transplantation (2017), 1–7

Abbreviation: TR= Transplant Rate

51.9% in Latin America 2.5% in the world

Transplants reported to the CIBMTR by Country in Latin America, 2003-2012

5

Num

ber o

f Tr

ansp

lant

s

Countries with

Centers authorized by SNT

to perform BMT in Brazil

(94 centers)

1%(1)

13%(12) 3%(3)

69% (65)

14%(13)

NorthNortheastMidwestSoutheastSouth

1

5

1

4

2

21

43

10

11

1

7

15

HSCT centers in Brazil

Source Data: Sistema Nacional de Transplante (SNT)

PresenterPresentation Notes

Gráf1

North

Northeast

Midwest

Southeast

South

Centers

1%(1)

13%(12)

3%(3)

69% (65)

14%(13)

1

12

3

65

13

Plan1

Centers

North1

Northeast12

Midwest3

Southeast65

South13

Para redimensionar o intervalo de dados do gráfico, arraste o canto inferior direito do intervalo.

4

1

1

1

1

2

1

215

1

2

1

51

4

22

1

43

10

11

1

7

1

5

Source Data: Sistema Nacional de Transplante (SNT) / CIBMTR Annual reports

Centers authorized to perform BMT in Brazil

(94 centers)

Active centers in CIBMTRin 2016

(7 centers)

Centers registeredin CIBMTR

(24 centers)

HSCT centers in Braziland CIBMTR

PresenterPresentation Notes

% of transplants reported to the CIBMTR by Brazil2010 - 2016*

Source Data: Associação Brasileira de Transplantes de Órgãos (ABTO)/ CIBMTR Annual reports2016* January-September

There isn't a national registry specific to HSCT in the country

How can we improve data collection in Brazil?

Suit the Pre and Post TED form to Brazilian centersTranslate the TED forms

Develop a course for Brazilian centersLet’s create a course:

Start in 06/2016What is the reason for decreased reporting of data from Brazilian centers to CIBMTR?

Brazilian centers thinking together about questions and solutions in order to increase reporting of data to CIBMTR

The development of the course started in 06/2016 andended in 12/2016;

The course was developed through Captivate program,managed to capture images of the forms.

Guia de Preenchimento de Dados Essenciais Pré - TransplanteGuia de Preenchimento de Dados Essenciais Pós - Transplante

Development of the e-learning courseby Brazilian transplant centers – TED forms

http://learning.einstein.br/presentation_cibmtr_course/

Conclusion

Lack of HSCT data in Brazil is a real problem

The CIBMTR tools can assist in establishing databases at each site with DBtC

Training and education are key and a user friendly tool in Portuguese can help improve data collection and new center participation

We are expanding to include other forms in the e-learning and to translateto Spanish

Since the start of this project there are three new CIBMTR centers which are initiating reporting

Through this project we now have a data manager group with representatives from three centers that focus on training

Next steps

Oral presentation, Tandem 02/2016Data manager: Heliz Regina Neves

Curitiba / Brazil

Visit to CIBMTR on 03/2016Medical College of Wisconsin - Milwaukee

Data Managers: Anderson Simioni - Jaú / Brazil

Cinthya Silva - São Paulo / Brazil

Team HSCT - Hospital Israelita Albert EinsteinSão Paulo - Brazil

Team HSCT – Hospital Amaral CarvalhoJaú - Brazil

Team HSCT – Hospital de ClínicasCuritiba - Brazil

Collaborators

http://learning.einstein.br/apresentation/

cinthyacs@einstein.br

Thank you!!!

Cinthya Corrêa da Silva, Data manager - HIAEAdenildo Felix Ribeiro, Training analyst - HIAEAnderson João Simioni, Data manager - HACHeliz Regina das Neves, Data manager - HCVergilio Antônio Rensi Colturato vcolturato , Medical Coordinator - HAC, President of SBTMO Marcelo C. Pasquni, MD, MS - CIBMTRCristina Vogel, Nursing Coordinator - HIAELidiane Soares Sodre da Costa, RN - HIAETânia Michele Barreto Waisbeck, RN - HIAENelson Hamerschlak , MD, PHD, Medical Coordinator - HIAE

Slide Number 1Slide Number 2Slide Number 3Slide Number 4Transplants reported to the CIBMTR by Country �in Latin America, 2003-2012Slide Number 6Slide Number 7Slide Number 8�Brazilian centers thinking together about questions �and solutions in order to increase reporting of data to CIBMTR��Slide Number 11Next stepsSlide Number 13Slide Number 14CollaboratorsSlide Number 16Slide Number 17