data sharing of medical and health the fifth meeting of us-china roundtable on scientific data...
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Data Sharing of Medical and Health
The Fifth meeting of US-China Roundtable on Scientific Data Cooperation
Depei Liu, MD, Ph.D.
National Center for the Management and Sharing of Population and Health Data
Chinese Academy of Medical Sciences & Peking Union Medical College
2011-10-27
Introduction
◇ Medical science data sharing working ten years.
◇ Sino-US scientific data sharing roundtable five times
◇ National Population and Health Scientific Data Sharing
Platform(NPHDSP) working in 2011
- NPHDSP into a stage of long-running and server
- supported by national budget
- To provide data sharing services for some major projects
- To provide special services
1. National population and health data sharing platform for scientific progress
2. Scientific data collection in the field of population and health
3. International cooper ation in medical science data sharing
Resource survey
Needs analysis
Standards & norms
Resource system
Technology platform
Data center
Program management
Needs analysis
standards and norms
Resource system construction
Technology platform construction
basic medicine, clinical medicine, public health, TCM, Pharmacy
Sharing node construction
Resource survey
Content 2010-20112002-2004 2005-2009
Program management
(1)National cientific Data Sharing Platforme for Population and Health
(1)National cientific Data Sharing Platforme for Population and Health
Local node
Platform Commission
Platform office
Management Center Population and Health Data Sharing
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tform
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Sta
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Int’l
co
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Sp
ecialist s
d
ecision
m
akers
Users
com
mittee
Basic medicineData center
Clinical medicineData center
Public healthData center
ChinesemedicineData center
Pharmacy Data center
Population&reproductivehealthData center
Academic associations/research groups Local nodes
Us
er s
erv
ice
Su
pervisio
n an
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com
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ts
Framework of support and organization
Basic medicine data center
Institute of Basic Medical Sciences , CAMS
Clinical medicine data center
Peking Union Medical College Hospital , CAMS ;PLA General Hospital
Public health data center China Center for Disease Control and Prevention
Traditional Chinese medicine data center
China Academy of Chinese Medical Sciences
Pharmacy main database Information Center of State Food and DrugAdministration ;Institute of Pharmacy Sciences , CAMS
Population& reproductiveHealth Data center
Institute of science and Technology Research forNational population and Family Planning National Bureau of Statistics (sixth population
census)
National Platforme of cientific Data Sharing for Population and Health
Specialty Scientific Data Center
Total of specialists engaged 1149
Academic titles
Senior titles 460 40.03%
Middle titles 572 49.78%
Junior titles 117 10.18%
Age
20-30 282 24.54%
30-40 405 35.25%
40-50 275 23.93%
50 above 187 16.28%
Functions
Administrators 59 5.13%
Researchers 668 58.14%
Technical supporters 321 27.94%
Data sharing service staff 101 8.79%
National Platforme of cientific Data Sharing for Population and Health
Chinese Physical Constants Database
Design of the theme database for National Database of Diagnostic Pathology of Difficult Diseases: Collection and compilation of the cases presented to national pathology meetings and to the diagnostic pathology meetings organized by the pathology branches in the localities in recent three years. All typical cases, difficult cases, and cases with complete auxiliary lab tests, complete data, clear diagnosis and through discussions may be included. These cases are classified according to anatomical locations and systems of the disease, in addition to categorizing of the users. Via a shared network, the users may register and enjoy categorized authorizations for services.
Design of pathology theme database
Public Health Scientific Data Center
Traditional Chinese Medicine Scientific Data Center
Compound’s physio-chemical nature, biological activity and chemical structure are available, and the chemical structure can be displayed, edited and downloaded.
Medicinal Natural Bioactive Products Databases
Demographic statistics of population and health science data sharing platform
Actively push the sharing information to urban communities and rural areas
the analysis results of rural health data
China rural three-graded health service network
Health Topics Services for rural three-graded medical care in China
1. National population and health data sharing platform for scientific progress
2. Scientific data collection in the field of population and health
3. International cooper ation in medical science data sharing
(2)“十一五”国家科技计划人口健康领域科技资源汇交Resources submission for National science and
technology projects 人口健康领域项目数据
共计 2269
基础医学 ( Basic medicine ) 906
临床医学 ( Clinical medicine ) 597
药学 (Pharmacyr) 332
中医药 (TCM) 227
公共卫生 (Public health)197
人口与生殖健康 (Population&
Reproductive healthData center)6
Data collection principle
1. Full collection principles: the formation of scientific and
technological projects of information technology resources
should be in principle collection to the state-designated
Science and Technology Infrastructure
2. Principle of efficiency increase: the resources to collect
and submit the issue and acceptance of work and project
coordination to promote the combination of full use of
inspection work in the basis for the work already
3. Principles of authenticity and reliability: the converging
requirements of true and reliable technology resources to
ensure quality.
Organization and management of data
collection 1.Collection led by the planning department, the National Science
and Technology Infrastructure Center, responsible for organizing.
2. Department of the first subject holder is responsible for
organizing the specific subject of science and technology
resources to collect the project unit, supervision, and review.
3. Project Leader in charge of scientific and technological
resources sorting, processing and collection to ensure the
integrity of scientific and technological resources.
Collecting objects and methods
1.collection work is mainly through a network approach. Enter the
"national scientific and technological projects and technological
resources collection system" by logging into China Science and
Technology Resource sharing Network (www.escience.gov.cn),
collection to carry out the work.
2. The scientific and technological resources that can not be
collected through network, the CD-ROMs are required to be
submitted to the National Science and Technology Infrastructure.
Resources submission system for National science and technology projects
Submission of clinical scientific data resource about chinese deaf patients
1. National population and health data sharing platform for scientific progress
2. Scientific data collection in the field of population and health
3. International cooper ation in medical science data sharing
国际用户地区排名统计
Overseas users of China population andhealth science data sharing platform
USA 17.20%
澳大利亚
美国
韩
国
印度
加拿大
意
大
利
香港
沙特阿拉伯
新加
坡
巴西
芬
兰瑞典
挪
威
英国 丹麦
法国西班牙
日本
中国台湾
韩国
德
国比利时
意大利
波兰
埃及
俄罗斯
塞浦路斯
新西
兰
南非
非律宾
爱沙尼亚
阿根廷
Users all over the world
Suggestions1. International Cooperation Working Group of
Medical and Health Scientific data sharing to be established.
2. The standards of scientific data sharing in the field of medical and health to be drawn up.
3. Creating international medical and health service platform of scientific data sharing.
4. Integration of global Medicine and Health Scientific data resources
5. Provide global medical and health scientific data sharing services
