curriculum vitae october 2018 - wordpress.com · about kate swaffer: kate was the winner of the...

KateSwaffer

CurriculumVitae

October2018

KateSwaffer:CurriculumVitaePOBox202Burnside5066|http://kateswaffer.com|http://www.infodai.org|[email protected]

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AboutKateSwaffer: Katewas thewinnerof theAustralianFinancialReview100Womenof InfluenceGlobal Leader category for 2018. Shewas also the 2017 SA AustralianOf The Year. She received theUniversityofWollongong’sAlumniSocialImpactAwardforherglobalworkindementiain2016,andwasamongst the Westpac/Financial Review 100 Women of Influence announced for 2016. Amongst anumber of other prestigious awards, she was also the Inaugural winner of the Stirling UniversityInternationalDementiaLeaderin2015,andwinnerasanEmergingLeaderinDisAbilityAwarenessintheNational Australian DisAbility Awards in 2015. She was also invited to give the AAG Sir KeithWilsonOrationinJune2017.Kate is the Chair, CEO and co-founder of the Dementia Alliance International, a global advocacy andsupport group for people livingwith dementia. She is the only Australian to be a fullmember of theWorldDementiaCouncil,andisaboardmemberofAlzheimer’sDiseaseInternational.KateisacurrentPhDstudent,anHonoraryAssociateFellowwiththeFacultyofScience,MedicineandHealth,UniversityofWollongong,aFellowoftheRSA,andanInternationalFellowatCanterburyChristChurchUniversity.ShecompletedaMastersofScience inDementiaCarewithaDistinction in2014.She isalsoa retiredchef having run her own hospitality businesses for ten years, and before that worked as nurse indementiaandagedcareandthenoperatingtheatres.Notably,inherhumanrightswork,sheisthefirstpersonlivingwithadiagnosisofdementiatogivenainvitedkeynotepresentationattheWorldHealthOrganisation(WHO)attheFirstMinisterialConferenceonDementiainMarch2015,whereshedemandedhumanrights,accesstotheConventionontheRightsofPersonswithDisabilities(CRPD)forallpeoplewithdementia,andabalanceinresearchbetweencareandcureontheglobalstage.ThesedemandswereincludedintheWHOFinalCallToAction,andhumanrightswere included in theGlobalActionPlan forDementiaadoptedat theWorldHealthAssembly inMay2017.Kateisaninfluentialhumanitarianandactivistforhumanrightsforagedanddementiacare.Shehasalwaysstoodupforsocialjusticeasanadvocateorinvolunteeringroles,andstillvolunteersforthehomelessinSouthAustralia,andtheBereavedThroughSuicideSupportGroup(SA)Incorporated.She is also awidelypublishedacademic, author andpoet.Her firstbookondementia,WhatTheHellHappened to My Brain?: Living Beyond Dementia, and her second dementia book Diagnosed withAlzheimer’soranotherdementia,co-authoredwithAssociateProfessorLee-FayLowwerebothreleasedin 2016, the latter currently being updated for an international audience. Her first two volumes ofpoetrywerepublished in2012and2016, andher third volume is currently inpress. She continues towriteandpublishacademicarticles,booksandbookchaptersregularly.Katehasbeen instrumental inbringinghuman rights to the fore indementiaandagedcare, includingrecognition in practice for dementia being recognised as a disability through published articles andbooks,presentationsandglobalcampaigning.Since2010,KatehasbeenactivelyworkingwithamajorfocusonhumanrightsandaccesstotheCRPDforpeoplewithdementia,andhasgivenmorethan800invitedkeynotepresentationsonanumberoftopics,notonlyinthefieldofdementiaandhumanrights,but on disAbility, discrimination, stigma, the lived experience of dementia, dementia-enabling designprinciples, language, Inclusive Communities, Prescribed Disengagement®,Models of care, InformationTechnology,AdvocacyandActivism,dementiapolicy(local,nationalandglobal)andlossandgrief.Therehasbeenadistincttransformationinherworkfromadvocacytoactivism,inAustraliaandontheglobalstage for all peoplewith disAbilities, and specifically disAbilities caused by a diagnosis of a dementia.KatealsoactivelysupportstheDignityPartyinSouthAustralia,heronlypoliticalaffiliation.


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CURRENTPROFESSIONALACTIVITIES→ DementiaAllianceInternational(DAI),Co-founder,ChairandCEO→ Saxtons,InternationalspeakerandConsultant→ WorldDementiaCouncil,Member→ GlobalRehabilitationAlliance,FoundingCommitteeMember→ WorldHealthOrganisation(WHO)Riskreductionguidelinesforcognitivedeclineanddementia,

ExternalReviewGroup(ERG)SteeringGroupMember→ HighLevelMeetingSteeringCommittee,UnitedNations,Member→ CommunityofPracticefortheMeaningfulInvolvementofPeopleLivingwithNCDs,Steering

CommitteeMember→ UnitedNationsCivilSocietyWorkingGroup,Member→ TheWorldwideHospicePalliativeCareAlliance(WHPCA),StakeholderCommitteeMember→ InternationalDisabilityAlliance,Observermember,representingDAI→ Researcher,UniversityofWollongong,UniversityofSydney,UniversityofSAandUniversityofNSW→ Alzheimer’sDiseaseInternational,BoardmemberandSEAsiaMentor→ BoardMember,DignityDisabilitySA→ HumanitarianandactivistfordisAbility,AgedandDementiacare→ Publishedauthor,academicandpoet→ DementiaAustralia,ConsumerAdvocate,DFCDementiaAdvisoryGroup→ Centacare,DementiaStrategyReferenceGroup→ Member,DepartmentofHealthSA,OakdenWorkingGroup,2017→ Alzheimer’sDiseaseInternational,ScientificPanelCommitteeforADIChicago2018→ HonoraryAssociateFellowwiththeFacultyofScience,MedicineandHealth,Universityof

Wollongong→ Fellow,RoyalSocietyfortheencouragementofArts,ManufacturesandCommerce(RSA)→ InternationalFellow,CanterburyChristChurchUniversity→ SouthernDementiaAdvisoryGroup,Honorarymember(Kiama,NSW)→ ProfessionalAdvisoryBoard,TheBereavedThroughSuicideSupportGroup(SA)Inc.EDUCATION2018 PhDCandidate,UniversityofSouthAustralia(PT,transferredfromUOW)2016 PhDCandidate,UniversityofWollongong(FT,thenLeaveofAbsence,2017-July18)2014 MastersofScienceinDementiaCare(Distinction),UniversityofWollongong2010 BachelorofPsychology,UniSA2009 BachelorofArts,WritingandCreativeCommunication,UniSA2005 CertificateofSmallBusinessManagement,BusinessSA1989 GraduateDiplomainGriefCounseling,UniversityofBallarat1987 Chefdiploma:“AustralianCuisinewithCheongLiew”,RegencyParkTAFE1977 Nursestraining,WhyallaandCleveHospitals,SA


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HONORSANDAWARDS2018 AustralianFinancialReview100WomenofInfluence:Winner,GlobalLeadercategory2017 SAParliamentaryMotion(60)bytheHonKellyVincentMLC,unanimouslyaccepted

recognisingmylocal,nationalandglobalworkindementia2017AustralianGerontologyAssociation(AAG)SA,TheSirKeithWilsonOration2017 AustralianofTheYearAward,SouthAustralianWinner2016 UniversityofWollongong,AlumniAwardSocialImpactAward,Winner2016 Westpac/FinancialReview100WomenofInfluence2016 AustralianofTheYearAward,SouthAustralianFinalist2015 NationalDisabilityAwards:EmergingLeaderinDisabilityAwareness,Winner2015 DementiaLeader,UniversityofStirlingInternationalDementiaAwards,Winner2015 DignityinCareAchievementAward,OutstandingIndividualContributiontoDignityin

Care,Inauguralwinner2015 BethanieEducationMedallionAward,Winner2015 UniversityofWollongong,AAGCommunityEngagementAward,Winner2015 UniversityofWollongong,CommunityEngagementAward,Winner2015 UniversityofWollongong,AlumniAwardSocialImpactCategory,Runnerup2014 UniversityofWollongong,Master’sofScience(DementiaCare),Distinction2012 Creatinglifewithwords:Love,InspirationandTruthwasarchivedinthePANDORA

CollectionoftheState(SA)andNationalLibraryofAustralia2015 InternationalDementiaAwards:DementiaandtheArtsAlsoAMirror,ECH

Inc.andUrbanMythTheatreofYouthandKateSwaffer,SouthAustralia2012-13 PatronforTheVisitors,aplayaboutYoungerOnsetDementia,UrbanMythTheatre

GroupandECHResidentialAgedCare2008 BachelorofPsychologyUniversityMeritAward,UniSA; LifetimeGoldenKeyMembership,UniSATRADEMARKS2014 MytheoryofPrescribedDisengagement®receivedRegisteredTrademarkstatusafter

meetingthestringentTrademarkstatuscriteriaintwomedicalcategories.CURRENTRESEARCHPROJECTSKate’sPhDisbasedonethnographyandautoethnographytoreviewthelivedexperienceofdementia,whichshehasrecentlytransferredtocompleteattheUniversityofSouthAustralia.ThefocusofherPhDisstigmaandthepublicdiscourseofdementia.Herotherresearchprojectsincludeprojectsonalifestylecoachwithpeertopeersupportapproachtoadiagnosisofdementia,humanrights,disabilityrights,dementiaenablinguniversities,rehabilitationanddementia,PrescribedDisengagement®,legalcapacityofpeoplewithcognitivedisabilities,thediagnosisandpostdiagnosticexperienceofpeoplewithdementiaandtheirfamilies,anddementiacareintheLowandMiddleIncomeCountries(LMIC’s).


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SELECTEDPUBLICATIONSLow,L,McGrath,M,Swaffer,K,&Brodaty,H.(2018).Communicatingadiagnosisofdementia:Asystematicmixedstudiesreviewofattitudesandpracticesofhealthpractitioners.Dementia,OnlineFirst1-50.LowLF,SwafferK,McGrathM,BrodatyH.(2017)DopeoplewithearlystagedementiaexperiencePrescribedDisengagement®?IntPsychogeriatry,30(6):807-83.doi:10.1017/S1041610217001545Swaffer,K.(2018).Humanrights,disabilityanddementia,AustralianJournalofDementiaCare,Vol7,(1),25-28.

Rahman,S.&Swaffer,K.(2018).Assetsbasedapproachedanddementiafriendlycommunities,Dementia,Vol17(2),131-137.DOI:10.1177/1471301217751533.

Swaffer,K.(2017).Sesaisirdelaquestiondesdroitsdel’Hommedansladémence.Gérontologieetsociété,vol.39/154,(3),21-29.doi:10.3917/gs1.154.0019.Swaffer,K.(2016).Co-productionandengagementofpeoplewithdementia:Theissueofethicsandcreativeorintellectualcopyright,Dementia,Vol.15(6)1319–1325.

Swaffer,K.(2016).Thehumanrightsofpeoplewithdementia:fromrhetorictoreality,GraphicPrint:RichmondSA.(PositionpaperproducedforDementiaAllianceInternational)

Swaffer,K.(2016).Whatpeoplewithdementiawantfromresidentialcarehomes,AustralianJournalofDementiaCare,vol.5,no3,21-23.Phillipson,L.Cridland,E,Swaffer,K.andBrennan-Horley,C.(2016).QualitativeResearchInvolvingPeoplewithDementia:RecommendationsforConductingSemi-StructuredInterviews,QualitativeHealthResearch,Vol26,Issue13,1774–1786,doi.org/10.1177/1049732316637065Fleming,R.Phillipson,L&Swaffer,K.(2016).DTSC’saimtocreateAustralia’sfirstdementiaenablinguniversity,AustralianJournalofDementiaCare,5-7.

Swaffer,K.(2015).PrescribedDisengagement™,Dementia,Vol.14,3-6.DOI:10.1177/1471301214548136

Swaffer,K.(2014).Dementia:Stigma,LanguageandDementia-friendly,Dementia,Vol.13(6)709–716,DOI:10.1177/1471301214548143.Swaffer,K.(2015).Notjusta“Challengingbehaviour”,AustralianJournalofDementiaCare,vol.4,no3,21-23.Swaffer,K.(2015).Thepoweroflanguage,AustralianJournalofDementiaCare,vol.4,no1,21-24.


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Swaffer,K.(2014/2015),Reinvestinginalifeisthebestprescription,AustralianJournalofDementiaCare,vol.3,no6,31-32.Swaffer,K2014.Humanrightsinresidentialagedcare:Aconsumer’sperspective,AustralianJournalofDementiaCare,vol.3,no1,9-10.Swaffer,K.(2013/14).IntroducingtheAustralianDementiaAdvisoryCommittee,AustralianJournalofDementiaCare,vol.2,no6,pp.13-14.Swaffer,K.(2013).Drivinganddementia,AustralianJournalofDementiaCare,vol.2,no4,pp.17-18.Fleming,R,Phillipson,L,Swaffer,K,&Steele,L.(2016).Submission19:Inquiryintothe'IndefinitedetentionofpeoplewithcognitiveandpsychiatricimpairmentinAustralia'.

Swaffer,K.(2012).Dementia:thereality,InquiryintoDementiaEarlydiagnosisandIntervention,Submissionno71.

Swaffer,K.(2011).MyUnseenDisappearingWorld,TheBigIssue,no389,pp.16-19.Swaffer,K.(2008).Dementia:MyNewWorld,LINKDisabilityMagazine,vol.17,no4,pp.12-13.BOOKSSwaffer,K&Low,LF.(2016)."DiagnosedwithAlzheimer’soranotherdementia:Apracticalguideforwhat'snextforpeoplewithdementia,theirfamiliesandcarepartners",NewHollandPublishers:Sydney.Swaffer,K.(2016)."LoveLifeLoss,Arollercoasterofpoetryvolume3:HaikuMania",GinninderraPress,[InPress].Swaffer,K.(2016)."Whatthehellhappenedtomybrain?:Livingbeyonddementia",JessicaKingsleyPublishers:London.Swaffer,K.2012,Chpt7,‘YouLiveUntilYouDie’inWillis,P&Leeson,K(eds),LearningLifefromIllnessStories,PostPressed,MtGravatt,Qld,pp.90-101.Swaffer,K.(2016)."LoveLifeLoss,Arollercoasterofpoetryvolume2:Daysofdementia":,GinninderraPress.Swaffer,K.2012,LoveLifeLoss,Aroller-coasterofpoetry,GraphicPrintGroup,Richmond,SA.Swaffer,K.2010,‘Kate’inWordsThatShine,PoetryandPoeticsCentre,UniversityofSA,Magill,pp.11-16.Swaffer,K.2009,‘SlippingAway’inShort,Cetal(eds),Stratosphere,PipingShrike,UniversityofSA,Magill,p85.


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RECENTCONFERENCEPRESENTATIONS→ 5thWorldCongressonAdultGuardianship:MeetingtheGlobalChallenge–CognitiveImpairment

andHumanRights,Seoul,October2018→ LausanneV:TakingTransformativeActiontoChangetheCourseofAlzheimer’sDisease,Lausanne,

October2018→ WorldHealthOrganisationmhGAPForum:DementiaCarePathways,Geneva,October2018→ FederationAlzheimer’sItalia,RespondingtotheWHOGlobalDementiaActionPlan,Milan,October

2018→ TaiwanMinistryofJustice:Dementia&HumanRights:2018-2025TaiwanDementiaPlan,

September2018→ TADA:PeopleLivingwithDementiaandHumanRightsinTaiwan,September2018→ UniversityofWollongong,iAccelerate:Impact4ChangethroughSocialEnterprise:Isitpossible?,

August2018→ Alzheimer’sDiseaseInternational:Autoethnography:aninterventionfordementia,July2018Afulllistofallconferencepresentationsisavailableonrequest.PASTPROFESSIONALANDVOLUNTEERACTIVITIES(2007-2017)→ DepartmentofHealth,Australia,SDCUExpertAdvisoryGroup,2017/18,Member(resigned)→ Member,DepartmentofHealthSA,OakdenWorkingGroup,2017(resigned)→ AustralianAgedCareQualityAgency(2016-2017)

o SteeringCommittee→ DignityinCareAustralia:Actiongroup,MemberandChampion(2013-2017)

o Conferencesubcommitteeo Educationsubcommittee

→ CognitiveDeclinePartnershipCentre,SteeringCommitteemember,2014-2016→ PaidConsultant,Alzheimer’sAustralia,DementiaFriendlyCommunities,2014-15→ InternationalConsortiumforHealthOutcomesMeasurement(ICHOM)DementiaWorkingGroup,

coremember,2014-15→ SupportingGP’sandPracticeNursesinthetimelydiagnosisofdementiaProject,SteeringCommittee

member,2015-2017→ NationalDementiainHospitalsprogram,Advisorycommitteemember,2015-2017→ GlobalActiononPersonhoodGAPinDementia,corememberoftheGlobalgroup,andChairofthe

Australianchapter,2015-2017→ ConsumeradvocatewithAlzheimer’sAustralia(Nationaloffice)2010-2017

o InauguralChair,DementiaAdvisoryCommittee(AADAC)2013-2017o Member,NationalConsumersAdvisoryCommittee(NCAC),2010-2015o Co-chair,ConsumerDementiaResearchNetwork(CDRN)2010-2016

CDRNsubgroupsandprojects:§ ChildrenofYOD§ Assistedtechnologiesproject,AssociateInvestigator§ TRACSproject,consumerrepresentative


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§ Hydrationproject§ Thekeyworkerroleofpeoplewithdementiaandtheircarers§ Systematicreviewandscopingstudyfortheimplementationofanationalapproachto

dementiaspecificAdvanceCarePlanning§ ReviewinternationaldementiaguidelinesandsynthesisetodevelopnationalAustralian

guidelines→ ConsumeradvocatewithAlzheimer’sAustraliaSouthAustralia(AASA)

o AASAConsumersReferenceGroup(2010-2017)o YODreferencegroup(2014-2016)o DementiaFriendlyCommunitiesWorkingGroup(2014-2016)

→ ConsumerRepresentativewithHealthConsumersAllianceSAo OlderPersonsClinicalNetwork(2012-15-thiscommitteenolongerexistsnSA)o DementiaFrameworksteeringgroupo AdvancedCareDirectivescommittee

→ Authorandmanagerofthreewebsites;CreatingLifewithWords:Inspiration,Loveandtruth,LivingBeyondDementia,andtheDementiaAllianceInternationalwebsite.

KateSwafferspersonalwebsiteCreatingLifewithWords:Inspiration,Loveandtruthisanonlinespacecommittedtomeaningfuldialoguewithawiderangeofstakeholdersaboutthecriticalissuesimpactingapersonlivingwithadiagnosisofdementiaandtheirlovedones.Currentlywithmorethan110,000subscribers,wasarchivedin2012inthePANDORACollectionoftheState(SA)andNationalLibraryofAustralia.Thiswebsiteiscurrentlylistedinthefollowingeducationalinstitutionsandorganisationsasaresource:

o UniversityofWollongong,Master’sofScienceinDementiaCareo QueenMargaretUniversity,Edinburgh,MastersofNursingo EdinburghUniversity,MScDementia:InternationalExperience,Scotlando MurrayAlzheimerResearchandEducationProgram,OntarioCanadao NSWDepartmentofHealthDementiaCareResourceandTrainingNetworko FlindersUniversity,BachelorAppliedScience(Physiotherapy):RehabilitationofDegenerative

NeurologicalDisorderso UniversityofTasmania,Wicking’sUnderstandingDementiaMassiveOpenOnlineCourseand

BachelorofDementiaCareo YoungDementiaUK

REFEREESDrMichelleFunk,Coordinator,MentalHealthPolicyandServiceDevelopment(MHP),DepartmentofMentalHealthandSubstanceAbuse,WorldHealthOrganization,[email protected],AOOBE,Journalist,Businesswoman,TelevisionpersonalityandAuthor,Patron,DementiaAustralia,[email protected],ScientiaProfessorofAgeingandMentalHealth,MontefioreChairofHealthyBrainAgeingDirector,DementiaCentreforResearchCollaborationCo-Director,CHeBA(CentreforHealthyBrainAgeing)UniversityofNewSouthWales,[email protected]


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SUMMARYOFPROFESSIONALANDVOLUNTEERINGEXPERIENCECo-founder,Chair,andCEO,DementiaAllianceInternational(DAI):DAIisaglobaladvocacyandsupportgroup,of,byandforpeoplewithdementiaofwhichIamacofounder.DAIisthevoiceofpeoplewithdementiaglobally,andthepeakbodyforpeoplewithdementia.DAInowrepresentsmembersfrom47countries,isamemberoftheCouncilOfStateParties(COSP)oftheCRPD,hasObserverMemberstatuswithInternationalDisabilityAlliance(IDA)andisworkingtowardsbeinginofficialrelationswiththeWorldHealthOrganisation(WHO)andtheUnitedNations(UN).AscurrentChairandCEOofthisinternationaladvocacy,supportandnowanactivelobbyinggroup,Katemanagestheglobalnetwork,thecollaborationwiththeotherpeakbodiessuchasAlzheimer’sDiseaseInternational,aswellasbeingonmanyofthesubcommitteesandnumerousnationalandregionalDementiaWorkingGroups.Katefrequentlyengageswiththemedia,advocatingforhumanrights,andotherissuessuchasrespectfuldementialanguagebothinthemedia,andwithinthewidercommunity.

NotablyKatehasbeentheleadingadvocatedemandinghumanrightsanddisabilityrightsforpeoplewithdementia,andledthisactivismandmovementbypeoplewithdementiaasthefirstpersonwithdementiatobeaninvitedkeynotespeakerattheWorldHealthOrganisationinMarch2015attheFirstMinisterialConferenceonDementia.Thatyear,shewasoneoftwowinnersoftheNationalDisabilityAwardsin2015,asanEmergingLeadersinDisabilityAwareness.TheGlobalRehabilitationAlliance:DuetoKate’sadvocacyandwork,DementiaAllianceInternationalisoneofthefoundingmembersofanewglobalAssociation,theGlobalRehabilitationAlliance,whoheldtheirfoundingmeetingduringtheWorldhealthAssemblyinMay2018,asoneof14foundingorganisationmembers.Thisissignificant,asitwillhelpensurerehabilitationeventuallybecomespartofthesuiteofservicesandsupportallpeoplewithdementiaareprovidedwithandwhomarecurrentlydenied.WorldDementiaCouncil:TheWorldDementiaCouncil(WDC)isaninternationalcharity.Itconsistsof24seniorexpertsandleadersdrawnfromresearch,academia,industryandNGOsinbothhighincomeandlowandmiddle-incomecountriesandincludestwoleaderswithapersonaldementiadiagnosis.WDCstimulatesinnovationandidentifiesandpursuespriorityopportunitiesforglobalcollaborationagainstdementia.AllofWDC’smeetingsareattendedbyanumberofitsassociatemembers,includingfromnationalgovernments,theWHOandOECD.KateSwafferistheonlyAustraliantobeafullmember,andadvocatedformanymonthstoensurepeoplewithdementiawereincludedasmembers,throughherroleasChairofDementiaAllianceInternational.Therearetwomemberslivingwithdementia,andKateisalsoamemberoftwooftheGlobalTeams,oneonCare,theotheronRiskReduction.ICHOMStandardSetforDementia:TheInternationalConsortiumonHealthOutcomeMeasures(ICHOM)approachisbuiltonasolidframeworkdevelopedatHarvardBusinessSchoolbyProfessorsMichaelE.PorterandElizabethO.Teisberg.In2006,PorterandTeisbergwrotethewell-knownbook,RedefiningHealthCare,whichoutlinestheargumentforusinghealthoutcomesdatatoredefinethenatureofcompetitioninhealthcare.TheICHOMStandardSetforDementiaistheresultofhardworkbyagroupofleadingphysicians,measurementexpertsandpatients.Asafullmemberofthisteam,Kateprovidedbothintellectualadvice,andperspectivesfromtheexperienceoflivingwithdementiaandcaringforthreepeoplewithdementia,aswellasherbackgroundinnursing.ItwastherecommendationoftheoutcomesthatmattermosttopersonswithDementiathatinfluencedthissetofstandards.


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ICHOMurgesallprovidersaroundtheworldtostartmeasuringtheseoutcomestobetterunderstandhowtoimprovethelivesoftheirpatientswithdementia.

Alzheimer’sDiseaseInternational,BoardmemberandSEAsiaRegionalMentor:Alzheimer'sDiseaseInternational(ADI)believesthatthekeytowinningthefightagainstdementialiesinauniquecombinationofGlobalSolutionsandlocalknowledge.Assuch,itworkslocally,byempoweringAlzheimerassociationstopromoteandoffercareandsupportforpeoplewithdementiaandtheircarers,whileworkinggloballytofocusattentionondementia.Ourboardiscomposedofpeoplefromaroundtheworld,andourstaffteamisbasedinLondon.ADIistheinternationalfederationofAlzheimerassociationsaroundtheworld,inofficialrelationswiththeWorldHealthOrganization.EachmemberistheAlzheimerassociationintheircountrywhosupportpeoplewithdementiaandtheirfamilies.ADI'svisionisprevention,careandinclusiontoday,andcuretomorrow.KatehasbeenanactiveadvocateforpeoplewithdementiawithADIsince2012,andhasbeenontheboardasafullmembersince2014,andtheSEAsiaRegionalAmbassadorforADIsinceNovember2016.ShehasbeenamemberoftheADIScientificPanelforthelastfourinternationalconferences.

Alzheimer’sAustraliaDementiaAdvisoryCommittee:KatewastheinauguralChairofthisgroup,andadvocatedfortwoyearsforittobesetupandsupportedbyAlzheimer’sAustralia.ThebroadpurposeoftheCommitteeistobuildonconsumerfocuswithinDementiaAustralia,andincludesprovidingadviceandguidancetoAlzheimer’sAustraliaandtheFederalandstategovernmentsregardingtheissuesofimportanceorconcernspecificallytopeoplewithdementia.MembershipismadeupoftwelvepeoplewithdementiafromacrossAustralia,originallyfromtheagesof43and72.Itisthethirdofitskindintheworld,andtherearenowmanyothercountriessupportingDementiaWorkingGroups.KateisalsoveryactivelysupportingLowandMiddleIncomeCountriestosetDementiaWorkingGroupswithherglobalworkthroughDAIandADI.Alzheimer’sAustralia(nowDementiaAustralia)ConsumerDementiaResearchNetwork(CDRN):Membersworkedtogethertosetprioritiesfordementiaresearchandresearchtranslation,andhaveresponsibilityfordrivingthedirection,assessmentandfundingdecisionsofAlzheimer’sAustralia’s$3.3mNationalQualityDementiaCareInitiative.Wehavedevelopedsubstantialexpertiseandasophisticatedunderstandingofthecomplexitiesofchanginghealthcarepracticetoreflectnewresearchfindings,andofevidence-basedapproachestodoingso.Thisinvolvementincludesanumberofsubgroupsandprojectsastheyarise.Thisgroupisnolongeroperational,althoughIamstillinvolvedinmanyresearchprojectsaroundAustraliaasaresultofit.Alzheimer’sAustralia(nowDementiaAustralia)NationalConsumerAdvisoryCommittee(NCAC):ThebroadpurposeofthatCommitteeistobuildonconsumerfocuswithinAlzheimer’sAustraliaanditsStateandTerritorymemberorganisations,andincludesprovidingadviceandguidancetoAlzheimer’sAustraliaregardingtheissuesofimportanceorconcerntoconsumers;beingavailableforconsultationonissuesastheyarise;Identifyingemergingissuesofinteresttoconsumers;presentingaconsumerperspectiveinpublicforumsortothemedia;participatingonbehalfofAlzheimer’sAustraliaonexternalcommittees;contributingtoadvocacydocumentsincludingElectionManifestosandBudgetandothersubmissions;providingaconsumerperspectiveondementiaresearchpriorities;andmonitoringtheworkofAlzheimer’sAustraliainrelationtoconsumerissues.Thisinvolvementincludedanumberofsubgroupsandprojectsastheyarose.Thisgroupisnolongeroperational.


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DementiaAustraliaSA:ConsumersAllianceCommittee,DementiaFriendlyCommunitiesWorkingGroupandYoungerOnsetDementia(YOD)Referencegroup.Consultantprovidingagedanddementiacarestaffeducationandaconsumervoice:agrowingnumberofAgedCareproviders,includingGroupHomesAustralia,ACH,Eldercare,ECH,LorneHealthServices,LyndochLiving(Warnambool),UnitingCommunities,RACF’sandChaplains,MasonicHomes,ECH,ACH,Eldercare,Resthaven,UnitingCommunities,SA&NTDementiaTrainingStudyCentre,DomiciliaryCareSA,CaringChoice,SAHealth,DomiciliaryCare,CaringChoice,whospecificallyrequestsupportfromKatefortheirworkinimprovingtheserviceprovisionofdementiacare,andimprovingdementiaenvironments.Katealsoguestlecturesatvariousuniversities,forexample,RMITandtheUniversityofWollongong.UrbanMythTheatreGroupandECH:CollaboratingonaplayTheVisitorsaboutYoungerOnsetDementia,andmajorcontributortoaccompanyingOnlineSACEEducationPacktosupportRadioNationalplayaboutolderonsetAlzheimer’sdisease,AlsoAMirrorPurpleOrangeandDisabilitySA:MemberNationalDisabilityServicesSA:Consumeradvocate,variousprojectsincludingNDIS HealthConsumersAllianceSA(HCA):TheprincipalgoaloftheSteeringCommitteeistofurtherdeveloptherecommendationsoutlinedintheSouthAustralianHealthServiceFrameworkforOlderPeople2009-2016andtomonitorimplementationoftherecommendationsfromtheNetworkandServicePlan.Thisincludesadvisingonthedevelopmentofpatientcentred,sustainableandeffectiveclinicalservicesacrossthecontinuumofcareusingmodelsofcarebasedonbestpracticeandpopulationneed.Themodelsshallbereadilyaccessible,efficientlyprovidedandevidencebased.Considerationwillbegiventoarangeofapproachestoensureservicesareequitableforruralandremoteconsumers,AboriginalandTorresStraitIslanderandspecialpopulationgroups.

AdelaideFringeMyUnseenDisappearingWorld,withaccompanyingYouthEngagementProgramEducationPacksupportingYears11&12throughSACE.DomiciliaryCareSAtrainingDVD,Kate’sstory:aproductionfundedandproducedin2012bythestategovernmentofSAfortrainingofstaffwithinthedepartmentandDomiciliaryCareSAResthavenIncandUnitingCommunities:‘Insider’sviewofdementiaandanenabler’sperspective’apresentation;Trainingandprojectsrelatedto:‘Understandingthevulnerabilitiesofolderpeople’-Resthaven’sHACCInnovativeProjects;‘StrongerCommunitiesBrighterFutures’;‘ConsumersDirectingConsumerDirectedCare’and‘HeadstarttoIndependence’;‘AssetBasedCommunityDevelopment’,‘ValuedSocialRoles’,‘ImportanceofRelationshipsandSocialConnection’-relatedto‘StrongerCommunitiesBrighterFutures’.‘ConsumerDirectedCare-UnderstandingControl’:relatesto‘ConsumersDirectingConsumerDirectedCare’;SteeringCommitteefor‘StrongerCommunitiesBrighterFutures’andaparticipantforthebookletTheGoodTheBadandTheBrilliant:Lessonsfromthejourneyoflivingwithdementia,publishedin2012


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SubmissiontoAustralianGovernmentHouseofRepresentativesCommittees:InquiryintoDementia:EarlydiagnosisandIntervention,resultinginaninvitationtopresentatapublicmeetinginAdelaide.

GrahamWrightandAssociates,SuccessMotivationInstitute(nowLeadershipManagementAustralia):motivational speaker from1992-1996 and facilitator ofmotivation and timemanagementworkshops.Graham Wright was operating as a franchise for Success Motivation Institute, now LeadershipManagement Institute. Kate worked for this organisation in a casual capacity, teaching motivationthrough theSMIprograms,andasamotivational speaker for fouryears.During this time, shewasanactivememberofRostrumAustralia,anorganisationtosupportfindingyourvoiceinpublicspeaking.

TheBereavedThroughSuicideSupportGroupInc.(SA):CurrentlyProfessionalAdvisoryCommitteeMember;Katewasanactivevolunteerforovernineyears,astheInauguralChair,agriefsupportworker,workingwiththemediaandliaisingoncommunityawareness.Shealsoworkedasagriefeducatorandgriefsupportworker,facilitatingtwopeer-to-peergriefsupportgroupspermonthfornineyears,alsohostinga24/7Helplineforthatwholetermforallpeoplebereavedthroughsuicide.Thisworkincludedindividualandfamilycounseling,supportingfamiliesattheCoronersofficeandeducationofthecommunityontheimpactofsuicidegrief.Duringthistime,Katealsowasaninauguralmemberofagroupnolongerinexistence,PeopleAgainstTeenageSuicide(PATS),workingwithProfessorGrahamMartin,facilitatedamonthlysupportgroupforyoungpeopleunder18livingintheAdelaideHills,bereavedfromanytypeoflossandgrief.IndigenousTutor,Psychology,LawandJournalism:UniversityofSA,workingasacontracttutorfor8-10hoursperweekwith1stand2ndyearIndigenouspsychology,lawandjournalismstudents,RegionalSalesManagerroles:MölnlyckeHealthCare;MedicalConcepts,BunzlPtyLtd;RelianceMedical.KateprovidededucationandactivesalesintooperatingtheatresinherpositionwithMölnlyckeHealthCare,actingastheregionalmanagerinSA.Inthenextthreepositions,sheworkedasaRegionalManagerinfourstates(SA,NT,TAS&NSW),andprovidedsalessupporttointernalstaff,andeducationtostaffinhospitalsandagedcarefacilitiesonwoundcareandcontinencemanagement.Owner,ManagingDirectorandheadChef:Babette’sFeastsPtyLtdoperatingasthreeseparatefulltimebusinesses,KateSwaffer’sKatering,CaféCakeandBeaumontHouseEvents.SheownedandoperatedthesebusinessesthroughBeaumontHouseinBeaumontSouthAustraliaforalmosttenyears.NavalMilitary&AirforceClubSAInc:PastBoardmember,membershipcommitteememberandactivememberfrom1987-2005.FlindersUniversity,SchoolofMedicine:grieflecturerspecificallylecturinginsuicidegrieftomedicalandnursingstudentsGlensidePsychiatricHospital:PastBoardmemberQualifiednurse:Kate’sfirstcareerwasinnursingspanningalmost25years,specialisinginAgedandDementiacare,thenOperatingTheatres.SheworkedatvariouspublicandprivatehospitalsandagedcarefacilitiesinAdelaide.Shecontinuestovolunteeroccasionallyinagedanddementiacare.

curriculum vitae october 2018 - wordpress.com · about kate swaffer: kate was the winner of the...

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