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Curriculum Vitae
Berry
1
Curriculum Vitae
Date Prepared: June 10, 2016
Name: Jay Griffin Berry
Education
1997 B.S.
summa cum laude
Psychology, Chemistry University of Alabama
2001 M.D. Medicine University of Alabama
School of Medicine
2006 M.P.H. Clinical Effectiveness Harvard School of Public
Health
Postdoctoral Training
7/01-6/04 Residency Pediatrics Primary Children’s
Medical Center, University
of Utah School of
Medicine
7/04-6/06 Fellowship Harvard Pediatric Health Services
Research Fellowship
Boston Children’s
Hospital, Harvard Medical
School
Faculty Academic Appointments
2006-2011 Instructor Medicine Harvard Medical School
2011- Assistant Professor Medicine Harvard Medical School
Curriculum Vitae
Berry
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Appointments at Hospitals/Affiliated Institutions
7/04-7/10 Hospitalist Department of Pediatrics Beverly Hospital
6/06- Assistant in Medicine Division of General Pediatrics Boston Children’s Hospital
12/08- Staff Physician
(Research only)
Department of Research
Franciscan Hospital for
Children
Other Professional Positions
2006-2011 Officer, Program for Safety and Quality Boston Children’s Hospital
Administrative Leadership Positions
National
2008- Founder and Director, Complex Care
Quality Improvement Research
Collaborative
Children’s Hospital Association
2008- Co-Chair, Complex Care Special Interest
Group
Academic Pediatrics Association
International
2012-2015 Director, Central Data Repository, International Tracheotomy Quality Improvement
Collaborative
Committee Service
Local
2006- Scientific Review Committee, Division of General
Pediatrics
Boston Children’s Hospital
2006-2011 Program for Patient Safety and Quality Measurement
Committee
Boston Children’s Hospital
2006-2011 Neurosurgery Quality Improvement Committee Boston Children’s Hospital
2009-2011 External Posting of Quality Outcomes Committee Boston Children’s Hospital
2009-2011 Psychiatry Quality Improvement Committee Boston Children’s Hospital
2009 Health Information Technology and Healthcare Quality
Task Committee
Boston Children’s Hospital
2010-2011 Department of Medicine Measurement Expert Panel Boston Children’s Hospital
2010-2011 Clinical Care Outcomes Executive Committee Boston Children’s Hospital
2010-2011 Readmission Task Force Boston Children’s Hospital
2013- Accountable Care Program for Children with Medical
Complexity
Boston Children’s Hospital
National
2006- Pediatric Research Group, Children’s Hospital Association
2010 Quality of Care for Children with Medical Complexity Expert Panel
Children’s Hospital, Los Angeles
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2010 Whole Systems Measures Committee, Children’s Hospital Association
2011 Technical Advisory Group, Identifying Children with Medical Complexity, Children’s
Hospital Coalition, Washington D.C.
2012- Seamless Transitions and Avoiding Readmissions Network
(STARNet) Expert Group, American Academy of Pediatrics, Chicago, IL
2013- AcademyHealth Child Health Services Research Steering Committee
2013- Executive Council, Pediatric Research in Inpatient Settings (PRIS)
2014 Care Management for Children with Medical Complexity Expert Panel
Children’s Hospital, Los Angeles
2014 Committee on Advancing Care for Exceptional Kids Act (ACE Kids Act); Children’s
Hospital Association, Washington, D.C.
Professional Societies
2008- Academic Pediatrics Association
2008- American Academy of Pediatrics
2008- American Medical Association
2011-
2013-
AcademyHealth
Society of Pediatric Research
Grant Review Activities
2009 Ad Hoc Reviewer Physician Services Incorporated Foundation
2011 Ad Hoc Reviewer Center for Integration of Medicine and Innovative
Technology
2012 Ad Hoc Reviewer Harvard Clinical and Translational Science Center
Editorial Activities
2014 Editorial board JAMA Pediatrics
Ad hoc Reviewer: New England Journal of Medicine, Journal of the American Medical Association,
Public Library of Science (PLoS) - Medicine, British Medical Journal, Pediatrics, Archives of Pediatrics
and Adolescent Medicine, Health Services Research, Journal of Hospital Medicine, Journal of Pediatric
Neurology, American Journal of Managed Care
Honors and Prizes
1992 Mary Harmon Bryant Scholar, University of Alabama Scholarship
1993 Presidential Scholar, University of Alabama Scholarship
1996 Honors Psychology Program, University of Alabama Research
1996 Phi Beta Kappa, University of Alabama Scholarship
Curriculum Vitae
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1997 William S. Dinerman Medical Scholarship, Baptist Health Care System Scholarship
1997 Richard A. Harris Medical Scholarship, Baptist Health Care System Scholarship
1997 Steven J. Lueck Memorial Scholarship, Baptist Health Care System Scholarship
1997 Alabama State Medical Board Scholar, University of Alabama School of
Medicine
Scholarship
1999 Clinical Medicine Recognition Award, University of Alabama School of
Medicine
Clinical
2002 Residency Comradeship Award, Department of Pediatrics, University of
Utah
Leadership
2008 Leadership in Neurodevelopmental Disabilities Fellow, Boston Children’s
Hospital
Leadership
2009 Guest HCUP Researcher, Agency for Healthcare Research and Quality Research
2010 Outstanding Achievement for Scientific Contribution Using HCUP Award,
Agency for Healthcare Research and Quality
Research
2010 Young Clinician Research Award, Center for Integration of Medicine and
Innovative Technology
Research
2013 Nemours Child Health Services Research Award Research
2013 Most Read Articles of 2013, Children’s Hospital Association Research
Inpatient Growth and Resource Use in 28 Children's Hospitals: A
Longitudinal, Multi-institutional Study
2014 Academic Pediatrics Association Fellow Research Award, Prasanna
Ananth (mentee)
Research
Report of Research Projects
Past Funding
2006-2007 Prevalence and Impact of Children with Chronic Conditions in the 21st Century
HSC Foundation Grant
Role: PI
Goals: To determine the prevalence of childhood chronic conditions using systematic
review.
2007-2008 Health Outcomes in Children Following Tracheotomy NIH Loan Repayment Program
Role: PI
Goals: To determine long-term mortality, decannulation, hospitalization and complication
rates for children following tracheotomy.
2008-2009 Improving Healthcare Integration for Children with Tracheostomy
K12 Clinical Scholars Program, Boston Children’s Hospital
Role: PI
Goals: To explore perceptions and experiences with health information exchange and
management for children with tracheostomy
2008-2010 Health Information Technology for Health Care Transitions (HIT4HCT)
Program for Patient Safety and Quality Grant, Boston Children’s Hospital
Role: Collaborator
Curriculum Vitae
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Goals: To understand adolescent and young adult perceptions of personally-controlled
health record use as they transition from the pediatric to adult healthcare system
2008-2010 Children’s Hospital Applications Maximizing Patient Safety
D1BIT0828 / HRSA
Role: Co-investigator
Goals: Leverage an existing electronic health record to summarize and share key,
clinically-relevant health information about medically-complex children for both hospital
and community caregivers.
2008-2010 Improving Care Transitions to Adulthood for Adolescents and Young Adults with Spina
Bifida
N07-25 / Deborah Munroe Noonan Foundation
Role: PI
Goals: To develop a patient-centered, information-technology informed care transitions
model for adolescents and young adults with spina bifida as they change from pediatric to
adult care providers.
2009-2010 Application of NASA Data to Develop an Influenza Forecasting System
ROSES A.19 / NASA
Role: Collaborator
Goals: To create a climate forecasting system that predicts the geospatial spread of
influenza across the United States from 1997-2008 using NASA climate and AHRQ
influenza hospitalization data.
2010-2012 The Pediatric Care Transitions Measure
Children’s Hospital Integrated Care Organization
Role: PI
Goals: To develop and validate a quality improvement tool that measures the quality of
care received by a child and family at hospital discharge
2011-2012 Complexity Ruler for Children with Medical Complexity
Draper Lab
Role: Co-investigator
Goals: To test the relationship between the information size (i.e., number of bytes) of
hospitalized patients’ inpatient electronic health record and the risk of unplanned transfer
to intensive care services and hospital readmission within 30 days.
2011-2012 Risk Factors for Pediatric Asthma Readmissions
Program for Patient Safety and Quality
Role: Co-investigator
Goals: To identity demographic and clinical risk factors of short and long-term hospital
readmission in children with asthma.
2012-2014 Hospital Discharge Planning for Children
Lucile Packard Foundation for Children’s Health
Role: PI
Goals: To develop national consensus for discharge planning of hospitalized children.
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2013-2014 Exploring the Constituents of an Effective Transition of a Child with Complex
Technological Healthcare Needs From Hospital to Home:
Role: Consultant (Brenner – PI; University College of Dublin, Ireland)
Goals: To develop a tool that assesses the hospital discharge needs of children with
medical complexity
2009-2015 Improving Healthcare Integration for Children with Tracheostomy
K23 HD058092-01A1 / NICHD
Role: PI
Goals: To improve healthcare integration and decrease re-hospitalizations for medically-
complex children using an innovative information technology application (personally-
controlled health record).
2011-2015 Children’s Hospital Boston Center of Excellence for Quality Measurement
U18 HS020513 / AHRQ (Schuster – PI)
Role: Readmissions Research Investigator
Goals: To develop quality performance measures for hospital readmissions and inpatient
family experience.
2014-2015 Innovative Research Methods to Study Children with Multiple Chronic Conditions
R21 HS023092-01 / AHRQ
Role: PI
Goals: 1) To adapt for children a publicly available, comprehensive diagnosis
classification scheme to describe identify and describe the clinical diagnoses of children
with multiple chronic conditions (CMCC); and 2) to employ an innovative, machine
learning method to systematically identify the most consequential interactions of
coexisting chronic conditions in CMCC and to predict high resource utilization in these
children.
Current Funding
2014-2016 Implementing Standards of Hospital Discharge Care for Children with Medical Complexity
Lucile Packard Foundation for Children’s Health
Role: PI
Goals: To implement and test 9 standards of pediatric hospital discharge care in 4
hospitals that serve children with medical complexity.
2015-2016 Post-Acute Care Health Services Research
Franciscan Hospital for Children
Role: PI
Goals: to improve the understanding of pediatric post-acute care across the U.S. by 1)
optimizing the quality of care transitions to pediatric post-acute care from local acute care
hospitals; 2) developing a centralized data repository of children utilizing a group of
pediatric-post-acute hospitals across the U.S.; and 3) creating a Children’s Hospital
Association sponsored research group on pediatric post-acute care.
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2015-2018 Models of Child Health Appraised / Developing and Comparing Models for Safe and Efficient,
Prevention Oriented Health and Care Systems
European Commission for Research and Innovation
Role: Consultant (PI Blair, Imperial College of Science, Technology, and Medicine, UK)
Goals: to identify best systems of care across the continuum for children with medical
complexity throughout Europe and North America.
2015-2019
Engineering Highly Reliable Communication and Coordination Systems for High Risk
Patients, Referrals, and Tests
1P30HS024453-01 / AHRQ
Role: Site PI (Boston Children’s Hospital)
Goals: to address poor communication and poorly coordinated care among children with
medical complexity undergoing high-risk surgery
2016-2017 Absence of Primary Care in High-Intensity Children with Special Health Care Needs
R40MC29443-01-00 / Maternal and Child Health Bureau (HRSA)
Role: PI
Goals: to assess the characteristics of children with medical complexity using Medicaid who do
not receive primary care health services; and to assess the relationship between no primary
care use with emergency department visits and hospitalizations.
2016-2019 Optimizing Medication Safety for Children with Medical Complexity at Hospital
Discharge
Role: PI
Goals: To minimize medical errors related to medication, nutrition, and durable medical
equipment ordering at hospital discharge for children with medical complexity through
implementation of innovative reconciliation approaches.
Report of Local Teaching and Training
Formal Teaching of Residents, Clinical Fellows and Research Fellows (post-docs)
2007- Kids’ Inpatient Database and Pediatric Health
Information Systems Database
Boston Children’s Hospital
Harvard Pediatric Health Services Research Fellows One hour lecture
2008- Path to the Career Development Award
Harvard Pediatric Health Services Research Fellows
Boston Children’s Hospital
One hour lecture
2010- Integrating Healthcare for Children with Chronic
Conditions: Putting the Puzzle Pieces Together
Leadership Education in Neurodevelopmental
Disabilities Fellows
Boston Children’s Hospital
One hour lecture
2011 Author in the Room Journal Club Boston Children’s Hospital
Harvard Pediatric Health Services Research Fellows One hour lecture
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2011 Re-Engineering the Care Plan for Children with
Medical Complexity
Institute for Healthcare
Improvement
Institute for Healthcare Improvement Fellows One hour lecture
2014 Optimizing Healthcare For Children with Medical
Complexity
Dana Farber Cancer Institute
Harvard Medical School
Pediatric Palliative Care Fellows One hour lecture
2016 Big Data: What Can it Do For You? Boston Children’s Hospital
Harvard Medical School
One hour lecture
Formally Supervised Trainees
2007-2008 Amy Jost, MD / Fellow, Harvard Pediatric Health Services Research
Role: Supervision of short-term research career goals and training curriculum, which
contributed to her enrollment in the Harvard Pediatric Health Services Research
Fellowship Program
2008-2010 Jessica Stephenson, MS / Medical Student, Eastern Virginia Medical College
Role: Supervision of pediatric quality improvement measurement projects (administrative
data capture of inpatient psychiatric medical restraint events; 72 hour hospital readmission
for medically-complex children).
2009 – Sarah Jernigan, MD MPH / Chief resident, Pediatric Neurosurgery Residency Program,
Boston Children’s Hospital.
Role: Supervision of Pediatric Health Information Systems outcome and hospital
comparison studies of infants with hydrocephalus undergoing cerebrospinal fluid diversion
therapies.
2011- Chen Kenyon, MD / Fellow, Robert Wood Johnson Clinical Scholars Program, University
of Pennsylvania, Children’s Hospital of Philadelphia
Role: Supervision of asthma readmission research project using the Pediatric Health
Information Systems database
2011 - Matt Pesko, BS / Student, Harvard Medical School
Role: Supervision of preventive care and unmet medical needs project using the national
survey of children with special healthcare needs
2011- Hannah Zhu / Student, University of Cambridge Clinical School
Role: Supervision of project assessing reasons for hospitalization of children with
tracheostomy using the Kids’ Inpatient Database
2011- Preety Das / Student, University of Cambridge Clinical School
Role: Supervision of project assessing reasons for hospitalization of children with
tracheostomy using the Kids’ Inpatient Database
2012-
Prasanna Ananth, MD, MPH / Fellow, Palliative Care, Boston Children’s Hospital/
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Dana-Farber Cancer Institute
Role: Supervision of projects assessing the inpatient resource utilization of children with
complex chronic conditions who die.
Award: APA Fellow Research Award 2014
2013-
Alon Peltz, MD, MBA / Resident, General Pediatrics, Boston Children’s Hospital/
Harvard Medical School
Role: Supervision of project on trends in hospital use for high cost patients.
Award: APA Presidential Plenary Presentation, PAS 2014
2013-
Joanna Thomson, MD / Fellow, Hospital Medicine, Cincinnati Children’s Hospital
Role: Supervision of project on treatment of pneumonia in children with neurological
impairment
Award: APA Young Investigator Award 2014
2015- Christopher Russell, MD / Assistant Professor of Clinical Pediatrics, Keck School of
Medicine, University of Southern California
Role: Supervision of project on pneumonia in children with tracheotomy
Award: APA Young Investigator Award 2015
2015- Fareesa Hasan, BS / Masters of Science and Masters of Public Health Candidate, Boston
University
Formal Teaching of Peers (e.g., CME and other continuing education courses)
2008, 2010 Pre-operative Medical Assessment of Children with Cerebral Palsy
Undergoing Surgical Procedures: Avoiding Pitfalls
Single
presentation
Harvard Medical School Boston, MA
Local Invited Presentations
2006 Hospital Volumes for Common Pediatric Specialty Operations
Chiefs’ Research Conference, Department of Medicine, Boston Children’s Hospital
2007 In-hospital Mortality in Children with Hypoplastic Left Heart Syndrome Undergoing Stage
I Surgical Palliation: Teaching vs. Non-Teaching Hospitals
Neonatology Clinical Conference, Beth Israel Deaconess Hospital, Boston
2007 Overview of the Kids’ Inpatient Database
Program for Patient Safety and Quality Measurement Committee, Boston Children’s
Hospital
2008 Improving Healthcare Integration for Children with Tracheostomy
Leadership in Education and Neurodevelopmental Disabilities, Graduation, Boston
Children’s Hospital
2008 Hospital Readmissions for Complex Care Service Patients
Performance Excellence Group, Department of Medicine, Boston Children’s Hospital
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2009 In-hospital Mortality Following Tracheotomy in Children
Chief’s Research Conference, Department of Medicine, Boston Children’s Hospital
Department of Otolaryngology, Research Conference, Boston Children’s Hospital
2009 Predictors of Hospital Readmission within Children’s Hospitals
Children’s Hospital Informatics Program Data Sharing Conference, Boston Children’s
Hospital
2010 An Early Look into Hospital Readmission of Complex Care Service Patients
Healthcare Quality and Outcomes Forum, Boston Children’s Hospital
2011 The Intersection of Respiratory Disease in Children with Neurological Impairment: Is it
time for a caution light? Division of Respiratory Diseases, Boston Children’s Hospital
2011 Pediatric Readmissions: Perspectives for the Intensive Care Unit
Department of Critical Care Medicine and Anesthesia, Boston Children’s Hospital
2011 Development of an Integrated Care Plan for Children with Medical Complexity
Massachusetts General Hospital, Center for Integration of Medicine and Innovative
Technology Forum
2012 Preventing Readmissions in Children Assisted with Medical Technology
Department of Critical Care Medicine and Anesthesia, Boston Children’s Hospital
2013 Don’t Be Afraid of Data: Making Informed Medical Decisions for Children with Special
Healthcare Needs, Massachusetts Department of Public Health, Boston, MA
2014 Children with Medical Complexity: Opportunities for Quality Improvement and Cost
Savings. Fellows Seminar, Division of Pediatric Palliative Care, Boston Children’s
Hospital, Harvard Medical School, Boston, MA
2015 Children with Medical Complexity: Opportunities for Quality Improvement and Cost
Savings. Grand Rounds, Division of Pediatric Palliative Care, Boston Children’s Hospital,
Harvard Medical School, Boston, MA
2015 Children with Medical Complexity: Opportunities for Quality Improvement and Cost
Savings. Newborn Epidemiology & Clinical Research Seminar, Division of Newborn
Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA
Report of Regional, National and International Invited Teaching and
Presentations
Invited Presentations and Courses
National and International
2005 In-hospital Mortality in Children with Hypoplastic Left Heart Syndrome following Stage I
Surgical Palliation: Teaching vs. Non-teaching Hospitals / Platform presentation
Curriculum Vitae
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National Research Service Award Training Conference, Boston, MA
(result of a selected abstract)
2006 Hospital Volumes for Common Pediatric Specialty Operations / Platform Presentation
National Research Service Award Training Conference, Seattle, WA
(result of a selected abstract)
2007 The Changing Nature of Inpatient Pediatrics / Platform Presentation
Pediatric Academic Societies, Toronto, CA (result of a selected abstract)
2008 Quality Improvement for Medically-Complex Children / Platform Presentation
Child Health Corporation of America, Shawnee Mission, Kansas
2009 Introducing the Pediatric Complex Care Special Interest Group
Pediatric Academic Societies Conference, Baltimore, Maryland
2010 Frequent Attenders: An Analysis of Children who Experience Frequent, Repeated
Admissions to Children’s Hospitals; Child Health Corporation of America Virtual
Research Journal Club, Shawnee Mission, Kansas
2010 Impact of Chronic Conditions on Children’s Hospitals / Platform Presentation
Child Health Corporation of America, Executive Dialogue, Dallas, Texas
2010 Coordinating Care with MPages / Platform Presentation
Cerner Information Technology Conference, Kansas City, MO
2010 Growing up with the Kids’ Inpatient Database / Platform Presentation
Agency for Healthcare Research and Quality Conference, Bethesda, MD
2010 An Overview of the Complex Care Service
American Academy of Cerebral Palsy and Developmental Medicine Conference,
Washington D.C.
2010 National Trends in Hospitalizations for Children with Neurological Impairment
American Academy of Cerebral Palsy and Developmental Medicine Conference,
Washington D.C. (result of a selected abstract)
2011
Pediatric Readmissions. Center for Medicare and Medicaid Services Readmissions
Summit, Washington D.C.
2011
Characteristics of Patients Experiencing Recurrent Readmissions Within Children’s
Hospitals, Child Health Corporation of America
2011 Pediatric Readmissions: Implications for Children’s Hospitals, Child Health Corporation
of America, Executive Dialogue, Philadelphia, PA
2011
Parent Perceptions of Their Child’s Hospital Discharge and the Likelihood of
Readmission. Pediatric Academic Societies Conference, Denver, CO. (result of a selected
Curriculum Vitae
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abstract)
2011
Impact of the Complex Chronic Patient Population on Children’s Hospitals, Pediatric
Academic Societies Conference, Denver, CO (result of a selected abstract)
2011 Complex Care Research: A Coherent Agenda? Academic Pediatrics Association Complex
Care Special Interest Group Meeting, Denver, CO
2011 Characteristics of Children Experiencing Recurrent Readmissions Within Children’s
Hospitals, Child Health Corporation of America Journal Club, Shawnee Mission, KS
2012 Pediatric Readmissions, National Stakeholder Panel, Boston Children’s Hospital Center of
Excellence for Pediatric Quality Measurement (CEPQM), Boston, MA
2012 Variation in Readmission Rates Across Hospitals. AcademyHealth Research Meeting,
Orlando, FL (result of a selected abstract)
2012 Variation in Readmission Rates Across Hospitals. Pediatric Academic Societies, AAP
Presidential Plenary, Boston, MA (result of a selected abstract)
2012 Are Children Admitted to the Hospital at Similar Rates to Adults? Pediatric Academic
Societies, Boston, MA (result of a selected abstract)
2012 Identification of Children Assisted with Medical Technology Using Administrative Data.
Complex Care Special Interest Group, Pediatric Academic Societies, Boston, MA
2012 Re-engineering Discharge Care Plans for Children with Medical Complexity. PolicyLab,
Children’s Hospital of Philadelphia, Philadelphia, PA
2012 Chronic Respiratory Disease Management in Children with Neurologic Impairment: Room
for Improvement. Division of Hospital Medicine, Cincinnati Children’s Medical Center,
Cincinnati, OH
2013 Population Management of Children with Medical Complexity: Opportunities for Quality
Improvement and Cost Savings. Grand Rounds, Children’s Memorial Hospital, University
of Massachusetts Medical School, Worcester, MA
2013 Population Management of Children with Medical Complexity: Opportunities for Quality
Improvement and Cost Savings. Grand Rounds, Massachusetts Hospital School, Canton,
MA.
2013 Children with Medical Complexity: Opportunities for Quality Improvement and Cost
Savings. Grand Rounds, Children’s Hospital of Alabama, University of Alabama School
of Medicine, Birmingham, AL
2014 Children with Medical Complexity: Opportunities for Quality Improvement and Cost
Savings. Research Rounds, The Hospital for Sick Children, University of Toronto,
Ontario, CA
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2014 Children with Medical Complexity: Delivering High Value Healthcare. American Medical
School Pediatric Department Chairs Annual Meeting, San Antonio, TX
2014 Improving Care Transitions for Children with Medical Complexity. School of Nursing,
Midwifery, and Health Systems. University College of Dublin, Dublin, Ireland
2014 Children with Medical Complexity: Opportunities for Quality Improvement and Cost
Savings. Grand Rounds, Department of Pediatrics, University of Florida, Gainesville, FL
2014 Children with Medical Complexity: Opportunities for Quality Improvement and Cost
Savings. Florida Association of Children’s Hospitals, Gainesville, FL
2014 Big, Longitudinal Data: Predicting the Future for Children with Expensive, Chronic, and
Complex Health Problems. University of Florida Institute for Child Health Policy and
Department of Pediatrics, Gainesville, FL
2014 International Tracheostomy Database. Global Tracheostomy Collaborative Meeting,
Melbourne, Victoria (Australia).
2014 Healthcare Use and Spending for Children with Medical Complexity in Medicaid. Health
Affairs. National Press Club, Washington, D.C.
2014 Children with Medical Complexity: Opportunities for Quality Improvement and Cost
Savings. Grand Rounds, Department of Pediatrics, Albert Einstein Medical Center, Bronx,
NY.
2015 Children with Medical Complexity: What We Know and What We Don’t Know. Centers
for Medicare and Medicaid Services: Center for Innovation. San Diego, CA.
2015 Children with Medical Complexity: Making the Case for Care Coordination. Children’s
Hospital of Alabama, Department of Pediatrics, University of Alabama at Birmingham
School of Medicine, Birmingham, AL.
2015 The Race From Illness to Wellness: Will Hospitals (and Hospitalists) Be a Speed Bump or
Highway? Pediatric Hospital Medicine Conference, San Antonio, TX.
2015 12 Steps to Contain Hospital Use of Children with Medical Complexity. Children’s
Hospital Association, Washington, D.C.
2015 Optimizing Healthcare For Children with Medical Complexity: Perspectives from the U.S.
Great Ormond Street Hospital, London, U.K.
2016 Optimizing Healthcare Delivery and Spending for Children with Medical Complexity.
Grand Rounds. Department of Pediatrics, University of Miami Miller School of Medicine.
2016 Timeout! Calling in the Right Play for Children with Neurological Impairment. Research
Ethics Seminar. Department of Bioethics, University of Miami Miller School of Medicine.
Curriculum Vitae
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2016 National Landscape of Pediatric Post-Acute Care Use. CEO Executive Forum, Children’s
Hospital Association, Washington, D.C.
2016 Integration of the AHRQ Clinical Classification System and the Pareto Principle to Study
Multiple Chronic Conditions in Children. AcademyHealth Research Meeting 2016,
Boston, MA.
Report of Education of Patients and Service to the Community
Activities
2008 Improving Healthcare Integration for Children with Tracheostomy / Lecture
TrachCare Parent Support Group, Franciscan Children’s Hospital, Brighton, MA
2008- Development of an on-line care plan software application to assist parents of children with
tracheotomy to aggregate and share their child’s health information with community and
hospital providers.
2009- External posting of quality improvement and hospital performance information for patients
and families who receive care at the Boston Children’s Hospital
2010-2011
Director and narrator of an instructional video to assist parents of children with spina
bifida prepare for the transition to adulthood.
2012 Boston Children’s Hospital Physician Representative for Family Advocacy Day,
Washington, D.C.
Educational Material for Patients and the Lay Community
2009- Hospital Readmission as a Marker of the Quality of Care Your Child Receives, Boston
Children’s Hospital website
Report of Clinical Activities and Innovations
Current Licensure and Certification
2004 Pediatrics
Practice Activities
2004-
2010
Hospitalist and Emergency
Department Care
Pediatric Inpatient Unit,
Beverly Hospital, Beverly,
MA
2 weeks per year
2006-
current
Ambulatory, Consultative, and
Hospitalist Care
Complex Care Service,
Boston Children’s Hospital
1-2 outpatient clinic sessions
per week (2006-2009); 4-6
weeks of inpatient service per
year (2006-current)
Curriculum Vitae
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Clinical Innovations
Ventricular shunt
malfunction outcome
measure
This quality improvement effectiveness measure, implemented at the Boston
Children’s Hospital, has influenced the care received by children with
hydrocephalus requiring cerebrospinal fluid shunt diversion. The measure
received full endorsement by the National Quality Forum in 2012.
State of the Universe
The state of the universe (SOU) is an extensive database of the universe of
pediatric and adult quality improvement metrics complied from national,
regional and local sources. Information abstracted from SOU has informed
national pediatric quality improvement initiatives, including the Institute for
Healthcare Improvement’s Improvement Map.
Care Coordination View
The Care Coordination View is an interactive page within the Children’s
Hospital electronic health record which displays important diagnosis,
medication, equipment, and care plan information for children with medical
complexity. The view is being used to populate a personally-controlled health
record so that patients, families, outpatient and community providers may
access, view and share this health information.
Complex Care
Home Visit Program
I directed the development and implementation of a clinical program in which
hospital nurses make home visits to children with medical complexity soon
after their hospital discharge. During the visit, a standardized process occurs to
assess and address post-discharge issues, including problems with medications,
durable medical equipment, follow-up appointments, discharge instructions,
etc.
Report of Scholarship
Peer reviewed publications in print or other media
Research Investigations
1. Berry JG, Cowley CG, Hoff CJ, Srivastava R. In-hospital mortality for children with hypoplastic left
heart syndrome after stage I surgical palliation: teaching versus nonteaching hospitals. Pediatrics
2006;117(4):1307-13.
2. Berry JG, Lieu TA, Forbes PW, Goldmann DA. Hospital volumes for common pediatric specialty
operations. Arch Pediatr Adolesc Med 2007;161(1):38-43.
3. Berry JG, Askovich B, Shaddy RE, Hawkins JA, Cowley CG. Prognostic Value of B-Type
Natriuretic Peptide in Surgical Palliation of Children with Single-Ventricle Congenital Heart Disease.
Pediatr Cardiol. 2007 Aug 4.
4. Berry JG, Hall M, Goumnerova L, Sharma V, Slonim T, Shah S. A Five-Year Multi-Centered
Analysis of Initial and Multiple Cerebrospinal Ventricular Shunt Revisions in Children.”
Neurosurgery. 2008 Feb;62(2):445-53.
Curriculum Vitae
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5. Shah SS, Hall M, Slonim AD, Hornig GW, Berry JG, Sharma V.A. multicenter study of factors
influencing cerebrospinal fluid shunt survival in infants and children. Neurosurgery. 2008
May;62(5):1095-102.
6. Berry JG, Graham D, Graham R, O’Brien J, Hall M, Roberson D, Goldmann D. Predictors of
Clinical Outcomes and Hospital Resource for Children Following Tracheotomy: A Five-Year Multi-
institutional Analysis. Pediatrics. 2009 Aug;124(2):563-72.
7. Srivastava R, Berry JG, Hall M, Downey J, O’Gorman M, Dean, M, Barnhart D. Reflux related
hospital admissions after fundoplication in children with neurological impairment: retrospective
cohort study. BMJ. 2009 Nov 18;339:b4411.
8. Berry JG, Graham R, Roberson D, Graham D, Zhou J, Putney H, O’brien J, Goldmann D. Patient
Characteristics Associated with In-Hospital Mortality in Children Following Tracheotomy. Arch Dis
Child. 2010 Sep;95(9):703-10. Epub 2010 Jun 3
9. Simon T, Berry JG, Feudtner C, Stone B, Sheng X, Bratton S, Dean JM, Srivastava R. Children with
Complex Chronic Conditions in Inpatient Hospital Settings in the U.S. Pediatrics. 2010
Oct;126(4):647-55. Epub 2010 Sep 20
10. Berry JG, Hall D, Cohen A, Kuo D, Agrawal D, Kueser J, Feudtner C, Hall M, Neff J. Hospital
utilization and characteristics of patients experiencing recurrent readmissions within children's
hospitals. JAMA.2011 Feb 16;305(7):682-90
11. Berry JG, Agrawal R, Kuo DZ, Cohen E, Risko W, Hall M, Casey P, Gordon J, Srivastava R.
Characteristics of Hospitalizations for Patients Who Use a Structured Clinical Care Program for
Children with Medical Complexity. J Pediatr. 2011 Aug;159(2):284-90.
12. Berry JG, Goldmann D, Mandl K, Putney H, Antonelli R, Helm D, Weinick R. Health
InformationManagement and Perceptions of the Quality of Care for Children with Tracheotomy: A
Qualitative Study. BMC Health Serv Res. 2011 May 23;11:117
13. Kuo DZ, Cohen E, Agrawal R, Berry JG, Casey P. A National Profile of Caregiver Challenges of
Children with Medical Complexity. Arch Pediatr Adolesc Med. 2011 Nov;165(11):1020-6
14. Feudtner C, Berry JG, Parry G, Hain P, Morse RB, Slonim AD, Shah S, Hall M. Assessment of the
Statistical Uncertainty of Children’s Hospitals’ Mortality Rates and Rankings. Pediatrics.
2011Oct;128(4):e966-72. Epub 2011 Sep 2
15. Shah R, Lander L, Berry JG, Nussenbaum B, Merati A, Roberson D. Tracheotomy Outcomes and
Complications – a National Perspective. Laryngoscope. 2012 Jan;122(1):25-9. doi:
10.1002/lary.21907
16. Das P, Zhu H, Skinner M, Shah R, Berry JG, Roberson D. Tracheotomy-related Catastrophic Events:
Results of a National Survey. Laryngoscope. 2012 Jan;122(1):30-7. doi: 10.1002/lary.22453
17. Berry JG, Poduri A, Bonkowsky J, Graham D, Zhou J, Putney H, Srivastava R. The Impact of
Children with Neurological Impairment on the U.S. Inpatient Healthcare System. PLoS Med. 2012
Curriculum Vitae
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Jan;9(1):e1001158. Epub 2012 Jan 17.
18. Jernigan S, Berry JG, Bauer S, Hobbs N, Karlin L, Warf, B. Risk Factors of Sudden Death in Young
Adult Spina Bifida Patients: Female Gender, Sleep Apnea, and Midbrain Elongation. J Neurosurg
Pediatr. 2012 Feb;9(2):149-55.
19. Zhang X, Elliott MN, Saaddine J, Berry JG, Cuccaro P, Tortolero S, Franklin F, Barker L, Schuster
MA. Unmet Eye Care Needs among US Fifth Grade Students. Am J Prev Med. 2012 Jul;43(1):55-8
20. Charland KM, Buckeridge DL, Hoen AG, Berry JG, Elixhauser
A, Melton F, Brownstein JS.
Association between community prevalence of obesity and obesity-related behavioral factors and
hospitalization rates for influenza in the United States. Influenza Other Respi Viruses. 2012 Nov 8.
21. Cohen E, Berry JG, Camacho X, Anderson G, Wodchis W, Guttmann A. Patterns and Cost of Health
Care Use of Children with Medical Complexity. Pediatrics. 2012 Dec;130(6):e1463-70
22. Berry JG, Hall M, Hall DE, Kuo DZ, Cohen E, Agrawal R, Mandl KD, Clifton H, Neff J. Inpatient
Growth and Resource Use in 28 Children's Hospitals: A Longitudinal, Multi-institutional Study. Arch
Pediatr Adolesc Med. 2012 Dec 24:1-9. doi: 10.1001/jamapediatrics.2013.432. [Epub ahead of print]
23. Berry JG, Toomey SL, Zaslavsky AM, Jha AK, Nakamura MM, Klein DJ, Feng JY, Shulman S,
Chiang VK, Kaplan W, Hall M, Schuster MA. Pediatric readmission prevalence and variability across
hospitals. JAMA. 2013 Jan 23;309(4):372-80.
24. Barnhart D, Hall M, Mahant S, Goldin A, Berry JG, Faix R, Dean JM, Srivastava R. Effectiveness
of Fundoplication at the Time of Gastrostomy in Infants with Neurological Impairment. JAMA
Pediatr. 2013 Aug 5
25. Morse RB, Hall M, Fieldston ES, Goodman DM, Berry JG, Srivastava R, Hain PD, Gay J, Shah SS.
Association of Length of Stay and Readmission for Common Pediatric Conditions. J Pediatr. 2013
May 14.
26. Berry JG, Ziniel SI, Freeman L, Kaplan W, Antonelli R, Gay J, Coleman EA, Porter S, Goldmann D.
Hospital readmission and parent perceptions of their child’s hospital discharge. Int J Qual Health
Care. 2013 Aug 20.
27. Berry JG, Kusminsky M, Foley SM, Hobbs N, Queally JT, Bauer SB, Kaplan WJ, Weitzman ER.
Strategic directions for transition to adulthood for patients with spina bifida. J Pediatr Neurol
2013;11(4):211-220.
28. Kenyon, CC, Melvin PR, Chiang, VW, Elliott, MN, Schuster, MA, and Berry, JG. Rehospitalization
for Childhood Asthma: Timing, Variation and Opportunities for Intervention. J. Peds. 2014; 164(2):
300-305.
29. Jernigan S, Berry JG, Graham D, Goumnerova L. The Comparative Effectiveness of Ventricular
Shunt Placement versus Endoscopic Third Ventriculostomy for Initial Treatment of Hydrocephalus in
Infants. J Neurosurg Pediatr. 2014 Mar;13(3):295-300. doi: 10.3171/2013.11.PEDS13138. Epub 2014
Jan 3.
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30. Heffernan C, Liu C, Felton, M, Berry JG, Roberson D. Indications, Hospital Course, and Complexity
of Patients Undergoing Tracheostomy at a Tertiary Care Pediatric Hospital. Otolaryngol Head Neck
Surg. 2014 Apr 30;151(2):232-239.
31. Zhu H, Das P, Roberson D, Skinner M, Berry JG. Hospitalisations for Children with Indwelling
Tracheostomy: A National Perspective. Laryngoscope. 14 Jul 1.
32. Nakamura MM, Toomey SL, Jha AK, Berry JG, Bryant MC, Loren SS, Pain D, Zaslavsky A,
Schuster M. The Readmission Debate: Views from Both Sides and Current Knowledge Gaps. Acad
Pediatr. 2014 Sep-Oct;14(5 Suppl):S39-46. doi: 10.1016/j.acap.2014.06.012
33. Neuman MI, Alpern ER, Hall M, Kharbanda AB, Shah SS, Feedman SB, Aronson PL, Florin TA,
Mistry RD, Berry JG. Recurrent and potentially-avoidable emergency department visits in children:
a multi-institutional study. Pediatrics. 2014 Oct;134(4):e1025-31. doi: 10.1542/peds.2014-1362. Epub
2014 Sep 15.
34. Berry JG, Hall M, Neff J, Goodman D, Cohen E, Agrawal R, Kuo D, Feudtner C. Children with
medical complexity and medicaid: spending and cost savings. Health Aff (Millwood). 2014 Dec
1;33(12):2199-206. doi: 10.1377/hlthaff.2014.0828.
35. Khan A, Nakamura MM, Zaslavsky AM, Jang J, Berry JG, Feng JY, Schuster MA.Same-Hospital
Readmission Rates as a Measure of Pediatric Quality of Care. JAMA Pediatr. 2015 Aug 3. doi:
10.1001/jamapediatrics.2015.1129. [Epub ahead of print] PMID: 26237469
36. Berry JG, Zaslavsky AM, Toomey SL, Chien AT, Jang J, Bryant MC, Klein DJ, Kaplan WJ,
Schuster MA. Recognizing Differences in Hospital Quality Performance for Pediatric Inpatient Care.
Pediatrics. 2015 Aug;136(2):251-62. doi: 10.1542/peds.2014-3131. Epub 2015 Jul 13. PMID:
26169435
37. Ananth P, Wolfe J, Melvin P, Feudtner C, Berry JG. Inpatient Healthcare Utilization and Cost for
Children with Complex Chronic Conditions in Their Last Year of Life. Pediatrics. 2015
Nov;136(5):938-46. doi: 10.1542/peds.2015-0260. Epub 2015 Oct 5.
38. Gray S, Emans J, Woods E, Trudell E, Berry JG, Vernacchio L. Total Direct Medical Expenses and
Characteristics of High-cost, Privately-insured Adolescents. JAMA Pediatr. 2015
Oct;169(10):e152682. doi: 10.1001/jamapediatrics.2015.2682. Epub 2015 Oct 5.
39. Kuo D, Hall M, Goodman D, Agrawal R, Feudtner C, Cohen E, Neff J, Berry JG. Healthcare
Utilization and Spending of Children in Medicaid: A Comparison of Low and High Resource
Utilizers. Pediatrics. 2015 Dec;136(6):1521-9. doi: 10.1542/peds.2015-0871. Epub 2015 Nov 16
40. Florin TA, Aronson P, Hall M, Kharbanda AB, Shah SS, Freedman S, Alpern ER, Mistry R, Simon
HK, Berry JG, Coley BD, Neuman M. Emergency Department Use of Computed Tomography for
Children with Ventricular Shunts. J Pediatr. 2015 Dec;167(6):1382-1388.e2. doi:
10.1016/j.jpeds.2015.09.024. Epub 2015 Oct 23.
41. Kuo DZ, Berry JG, Glader J, Morin M, Johaningsmeir S, Gordon J. Social, Familial, and Health
Curriculum Vitae
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Care Needs of Patients Enrolled in a Structured Clinical Program for Children with Medical
Complexity. J Pediatr. 2016 Feb;169:291-296.e1. doi: 10.1016/j.jpeds.2015.10.010. Epub 2015 Oct
31.
42. Peltz A, Hall M, Rubin D, Mandl K, Neff J, Brittan M, Cohen E, Hall D, Kuo D, Agrawal R, Berry
JG. Hospital Utilization Among Children With the Highest Annual Inpatient Cost. Pediatrics. 2016
Jan 18. pii: peds.2015-1829. [Epub ahead of print]
43. Thomson J, Hall M, Ambroggio L, Stone B, Srivastava R, Shah S, Berry JG. Aspiration and non-
Aspiration Pneumonia in Hospitalized Children with Neurologic Impairment. Pediatrics. 2016 Jan 19.
pii: peds.2015-1612. [Epub ahead of print]
44. Berry JG, Hall M, Dumas H, Simpser E, Whitford K, Wilson K, O’Neill M, Mittal V, Agrawal R,
Dribbon M, Haines CJ, Traul C, Marks M, O’Brien J. A National Study of Pediatric Hospital
Discharges to Home Health and Post-Acute Facility Care. JAMA Pediatr.
doi:10.1001/jamapediatrics.2015.4836 [Epub ahead of print]
45. Colvin JD, Hall M, Gottlieb L, Bettenhausen JL, Shah SS, Berry JG, Chung PJ. Hospitalizations of
Low-Income Children and Children With Severe Health Conditions: Implications of the Patient
Protection and Affordable Care Act. JAMA Pediatr. 2016 Feb;170(2):176-8. doi:
10.1001/jamapediatrics.2015.3366.
46. Peltz A, Wu CL, White ML, Wilson K, Lorch S, Thurm C, Hall M, Berry JG. Characteristics of
Rural Children Admitted to Pediatric Hospitals. Pediatrics. 2016 May;137(5). pii: e20153156. doi:
10.1542/peds.2015-3156
47. Watters K, Hall M, Graham R, O’Neill M, Berry JG. Two-year Mortality, Complications, and
Healthcare Use in Children with Medicaid Following Tracheostomy. Laryngoscope. 2016 Apr 5. doi:
10.1002/lary.25972
48. Stephens JR, Steiner MJ, DeJong N, Rodean J, Hall M, Richardson T, Berry JG. Healthcare
Utilization and Spending for Constipation in Children with Versus Without Complex Chronic
Conditions. J Pediatr Gastroenterol Nutr. 2016 Apr 8
49. Branowicki PN, Vessey JA, Graham DA, McCabe MA, Snydeman CK, Kline NE, Clapp AL, Gouthro
JA, Chiang V, Cannon C, Blaine K, O’Neill MA, Berry JG. A Meta-Analysis of Clinical Trials That
Evaluate the Effectiveness of Hospital-initiated Post-Discharge Interventions on Hospital
Readmission. Accepted to the Journal for Healthcare Quality, April 2016.
50. Gold J,Hall M, Shah SS, Thomson J, Subramony A, Mahant S, Mittal V, Wilson KM, Morse, MD7,
Grant M, Mussman M, Hametz P, Montalbano A, Parikh K, Ishman S, O’Neill M, Berry JG. Long
Length of Hospital Stay in Children with Medical Complexity. Accepted to J Peds, May 2016.
Other peer-reviewed publications
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51. Mahmood A, Berry JG, Wenger DA, Escolar M, Sobeih M, Raymond G, Eichler FS. Metachromatic
Leukodystrophy: A Case of Triplets With the Late Infantile Variant and a Systematic Review of the
Literature. J Child Neurol. 2009 Dec 28.
52. Berry JG, Bloom S, Foley S, Palfrey J. Children with Chronic Health Conditions: Another Case of
Health Inequity. Pediatrics. 2010 Dec;126 Suppl 3:S111-9
53. Cohen E, Kuo D, Agrawal R, Berry J, Simon T, Bhagat S, Srivastava R. Children with Medical
Complexity: An Emerging Population for Clinical and Research Initiatives. Pediatrics. 2011
Mar;127(3):529-38. Epub 2011 Feb 21.
54. Berry JG, Blaine K, Rogers J, McBride S, Schor E, Schuster MA, Feudtner C. Pediatric Hospital
Discharge Care: Legislation, Evidence, and Practice. JAMA Pediatr. 2014 Oct;168(10):955-62; quiz
965-6. doi: 10.1001/jamapediatrics.2014.891.
55. Auger KA, Simon TD, Cooperberg D, Gay J, Kuo DZ, Saysana M, Stille CJ, Fisher ES, Wallace S,
Berry J, Coghlin D, Jhaveri V, Kairys S, Logsdon T, Shaikh U, Srivastava R, Starmer AJ, Wilkins V,
Shen MW. Summary of STARNet: Seamless Transitions and (Re)admissions Network. Pediatrics.
2014 Dec 8. pii: peds.2014-1887.
56. Berry JG, Hall M, Cohen E, O’Neil M, Feudtner C. Identification of Children with Medical
Complexity and the Importance of Why. J Pediatr. 2015 Aug;167(2):229-37. doi:
10.1016/j.jpeds.2015.04.068. Epub 2015 May 28.
57. Dumas H, Berry JG, O’Brien J. Pediatric Post-Acute Hospital Care: Striving for Identity and Value.
Hosp Pediatr. 2015 Oct;5(10):548-51. doi: 10.1542/hpeds.2015-0133.
58. Berry JG, Gay JC. Preventing Readmissions in Children: How Do We Do That? Hosp Pediatr. 2015
Nov;5(11):602-4. doi: 10.1542/hpeds.2015-0189.
59. Berry JG, Chien AT. To Risk Adjust or Not to Risk Adjust. Is That the Question? Accepted to
JAMA Pediatrics, December 2015.
Non-peer reviewed scientific or medical publications/materials in print or other media
Reports
60. Berry JG, Agrawal RK, Cohen E, Kuo DZ. The Landscape of Medical Care for Children with
Medical Complexity. Children’s Hospital Association. Alexandria, VA, and Overland Park, KS; June
2013.
61. Berry JG. What Children with Medical Complexity, Their Families, and Healthcare Providers
Deserve from an Ideal Healthcare System. Briefing Report. Lucile Packard Foundation for Children’s
Health; December 2015.
Proceedings of Meetings
62. Agrawal R, Ballantine A, Srivastava R, Berry J. Collaborative Developments in Complex Care.
Hospital Pediatrics.2008;1(2): 18-19.
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Books/Textbooks for the medical or scientific community
63. Berry JG, Manzi S. Infections in Children with Tracheostomy. Shah S, ed. In: Pediatric Practice:
Infectious Disease. Vol 1. New York: McGraw-Hill, 2009.
64. Bogetz J, Ulrich C, Berry JG. Pediatric Hospital Care for Children with Life-Threatening Conditions
and the Role of Pediatric Palliative Care. Pediatr Clin North Am. 2014 Aug;61(4):719-733
Case Reports
65. Berry JG, Young PC, 2003. A 9 year-old boy with a first seizure: time to excel at diagnosis!
Contemporary Pediatrics, Vol 20 (Number 6), pg 21-25.
Letters to the Editor
66. Shah SS, Hall M, Slonim AD, Hornig GW, Berry JG, Sharma V. A multicenter study of factors
influencing cerebrospinal fluid shunt survival in infants and children. Letter to the Editor.
Neurosurgery. 2009 Jun;64(6):E1206.
Blogs
67. Berry JG. Keeping Frequent Flyers Safe at Home – With Good Detective Work. March 2011
(http://vectorblog.org/2011/03/keeping-frequent-flyers-safe-at-home-%E2%80%93-with-good-
detective-work/)
68. Berry JG. A Rising Tide of Neurological Impairment: Where’s the Medical Home for These
Children? January 2012 (http://vectorblog.org/2012/01/a-rising-tide-of-neurologic-impairment-
wheres-the-medical-home-for-these-children/)
69. Berry JG. Children with medical complexity: Caught in a political and economic crossfire.
December 2012. (http://vectorblog.org/2012/12/children-with-medical-complexity-caught-in-a-
political-and-economic-crossfire/)
Podcasts
Berry JG. Inpatient Growth and Resource Use in Children’s Hospitals. JAMA Pediatrics, January 2013.
(http://archpedi.jamanetwork.com/article.aspx?articleid=1486706).
Professional Educational Materials
Berry JG, Norlin C, Steadman C, Shaddy RE, 2003. Utah collaborative medical home project: section of
congenital heart disease. World Wide Web Page: http://medhome.med.utah.edu.
Berry JG, Norlin C, 2005. Utah collaborative medical home project: section of tracheostomy care. World
Wide Web Page: http://medhome.med.utah.edu.
Abstracts, Poster Presentations and Exhibits Presented at Professional Meetings - Not already
published as full length manuscripts
Curriculum Vitae
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Berry JG, Zhu H, Das P, Skinner M, Kaplan W, Roberson D. Regional Variation in Paediatric
Tracheotomy Across the United States. Poster presentation. British Academic Conference in
Otolaryngology, Glasgow, U.K., 2012.
Zhu H, Das P, Berry JG, Skinner M, Roberson D. Patient and Hospitalization Characteristics of Children
with Tracheostomy in the United States. Poster presentation. British Academic Conference in
Otolaryngology, Glasgow, U.K., 2012.
Saurabh S, Berry JG, Roberson D. Indications and Outcomes of Tracheotomy at a Tertiary Care Pediatric
Hospital. Poster presentation. British Academic Conference in Otolaryngology, Glasgow, U.K., 2012.
Consultation
Care delivery for children with medical complexity: Our Lady’s Children’s Hospital, University College,
Dublin, Ireland; Hospital in the Home Program, Royal Children’s Hospital, Melbourne, Australia;
Complex Care Program, Hospital for Sick Children, Toronto, Canada; PolicyLab, Children’s Hospital of
Philadelphia; Hospital Medicine, Cincinnati Children’s Hospital; Hospital Medicine, Monroe Children’s
Hospital, Vanderbilt University; SUNY Upstate Medical University; Special Needs Primary Care
Program, Texas Children’s Hospital, Houston, TX; Children’s Medical Center, Dallas, TX; Medical
Home Clinic for Medically Complex Children, Children's Hospital at Erlanger in Chattanooga, TN;
Division of General Pediatrics, Children’s Hospital of Alabama; National Association of Children’s
Hospitals and Related Institutions; National Initiative for Children’s Healthcare Quality; Institute for
Healthcare Improvement; Bayada Home Health Care; Holtz Children’s Hospital (University of Miami
Health System).
Press
Editorials
Hall DE. The care of children with medically complex chronic disease. J Pediatr. 2011 Aug;159(2):178-
80 Comment on Berry JG et al Characteristics of Hospitalizations for Patients Who Use a Structured Clinical Care Program
for Children with Medical Complexity. J Pediatr. 2011 Aug;159(2):284-90.
Srivastava R, Keren R. Pediatric readmissions as a hospital quality measure. JAMA. 2013 Jan
23;309(4):396-8. Comment on Berry JG et al, Pediatric readmission prevalence and variability across hospitals. JAMA.
2013 Jan 23;309(4):372-80.
Fieldston ES, Altschuler SM. Implications of the Growing Use of Freestanding Children's Hospitals.
JAMA Pediatr. 2013 Feb;167(2):190-2. Comment on Berry JG et al, Inpatient Growth and Resource Use in 28
Children's Hospitals: A Longitudinal, Multi-institutional Study. Arch Pediatr Adolesc Med. 2012 Dec 24:1-9.
McMillan JA. What can be learned by residents caring for children with lifelong, chronic, complex
conditions? JAMA Pediatr. 2013 Feb;167(2):192-3. Comment on Berry JG et al, Inpatient Growth and Resource
Use in 28 Children's Hospitals: A Longitudinal, Multi-institutional Study. Arch Pediatr Adolesc Med. 2012 Dec 24:1-9.
Faultner J. Integrating medical plans within family life. JAMA Pediatr. 2014 Oct;168(10):891-2. doi:
10.1001/jamapediatrics.2014.1031. Comment on Berry JG et al, Pediatric Hospital Discharge Care: Legislation,
Evidence, and Practice. JAMA Pediatr. 2014 Oct;168(10):955-62; quiz 965-6. doi: 10.1001/jamapediatrics.2014.891.
Apkon M., Friedman JN. Planning for effective hospital discharge. JAMA Pediatr. 2014
Oct;168(10):890-1. doi: 10.1001/jamapediatrics.2014.1028. Comment on Berry JG et al, Pediatric Hospital
Curriculum Vitae
Berry
23
Discharge Care: Legislation, Evidence, and Practice. JAMA Pediatr. 2014 Oct;168(10):955-62; quiz 965-6. doi:
10.1001/jamapediatrics.2014.891.
News Articles / Interviews
U.S News, Wall Street Journal, WBUR (Massachusetts Public Radio), Reuters, American Hospital
Association Trendwatch, Child Health Corporation of America (CHCA) Blog, Healthcare Finance News,
MedIll Reports (Chicago), Family Practice News, MedPage Today, About Kids Health (Toronto), AHRQ
Articles of Interest, Politico, NEJM Journal Watch, AHRQ Electronic Newsletter
Narrative
My clinical, research, and quality improvement activities center on optimizing the health and wellbeing of
children with medical complexity (CMC). CMC are a population of children with life-limiting complex
chronic conditions and mult-morbidities who often rely on medical technology (e.g., tracheostomy) to
overcome significant functional impairment. I have had a major affinity to help these children and their
families since medical school. I am grateful to have worked over the last 10 years with one of the first
general pediatrics, structured clinical programs designed specifically for CMC, the Complex Care Service
at Boston Children’s Hospital. I am also grateful to have completed the Harvard Pediatric Health
Services Research Fellowship program, which enabled me to develop the research skills necessary to
conduct investigations on CMC.
In 2008, with the help of the Children’s Hospital Association, I founded the Complex Care Quality
Improvement and Research Collaborative (CC-QIRC), a multi-institutional collaborative of health
services researchers, quality improvement specialists, and researchers clinicians with a strong interest in
improving care for CMC. This group set out to understand the utilization of hospital resources by
children with medical complexity and how this utilization could be reduced with better care coordination
and better care planning in the community. I led the group through the first national study demonstrating
that a small group of children with medical complexity accounted for a large proportion of hospital
resources because they were being re-hospitalized over and over again in a short amount of time. This
work, published in JAMA, has spurred quality improvement initiatives in hospitals and communities
across the country to monitor and reduce this phenomenon. It has been a catalyst for the development of a
national coalition of children’s hospitals to incentivize the reduction of repeat hospitalizations in children
with medical complexity through Medicaid payment reform. Since its inception, CC-QIRC has secured
federal funding from the Agency for Healthcare Research and Quality and the Maternal and Child Health
Bureau. The collaborative has published an array of health services projects on CMC in Pediatrics,
JAMA Pediatrics, and Health Affairs. It also founded the Complex Care Special Interest Group sponsored
Academic Pediatrics Association. The body of work conducted by the collaborative contributed to the
development of federal legislation (Advancing Care for Exceptional Kids Act) to reform the system of
care for CMC.
I am thankful for the opportunities that have led me to develop a strong national and international
presence for CMC. This presence has enabled me to participate in national expert panels on CMC; advise
policymakers about CMC on Capitol Hill in Washington D.C.; and work with hospital leaders across the
U.S. as well as in Canada, Ireland, the United Kingdom, and Australia about their ongoing efforts to
systematically improve the quality of health services for CMC. This experience led me to become the
U.S. representative on the first ever international health systems project on CMC, funded by the European
Commission.
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I plan to keep going with my attempts to leverage my health services research background to answer the
clinical questions that will have the greatest impact on the health and lives of CMC. There is a lot of
work to be done for these children and I’m thankful to be involved in it.